Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Barbara, Please let us know what you and your docs decide to do. I bet however it is decided to proceed, that getting rid of the stone will be the best in the long run. Hugs, wheatchild2 wrote: > Well, the urologist thinks I might have complications with the > procedure like more bleeding than usual. (My last muscle biopsy > turned my leg purple from mid-thigh to sole of foot!) Also would not > recover as easily from tissue trauma as most since I have been on > prednisone for 17 years and that fact throws me into adrenal > insufficiency every time I get infection or virus or have surgery or > a medical procedure like lithotripsy. But the big problem is the > overnight fasting. They would have to make special accommodations > for me because overnight fasting inevitably triggers myoclonus and > you can't have myoclonus in the middle of lithotripsy without > risking damage to the kidney. The targeting has to be precise and > even the breathing of the patient can move the stone enough to > require constantly resetting to the target. I would probably have to > be hospitalized overnight, given PPN or something substantial to > prevent the myoclonus. I know from experience that IV glucose is not > enough to prevent the overnight jerks. I also have problems with > sedation--tends to make my blood pressure drop....so you can see why > he is reluctant. However, tonight I talked to my local internal > medicine doc and he was more positive and thought I could get > through it. He also thought it would be better to get rid of it > rather than risk infection down the road. > > Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Hi Barbara, Just wanted to let you know that I have had you on my mind. Hope you are getting some relief from the kidney stone pain you were experiencing. Has anything changed for you? Hope this week is going well for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 barbara, sorry to hear about all your problems with the rib and back pain. ive been experiencing this alot lately myself with low back pain and very severe rib pain. the pain feels deep but also on the surface and it feels like my ribs are bruised almost but also feels like they are on fire. is this anything like what you are experiencing? the back pain isnt as bad as the rib pain. i cant even put any pressure on my ribs. told pain dr and he didnt seem to concerned, but gonna bring it up to my rheumatologist next time i see her cuz like yours its getting worse. it also makes my chest tight and causes me more probs with breathing too. one dr said it might be costochondritis (inflammation between ribs) but ive had that before and this is different. The PT im doing in the water isnt helping much either. Keep me posted on what you find out and if anything changes. ill keep you in my thoughts and prayers. take care, adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Hi , Haven't been online much so just saw your message....bless your heart. Thanks for thinking of me. The urologist decided my pain is not being caused by the kidney stone...he also said it was not in a good position for lithotripsy, so for now I am stuck with it. I am still having a lot of pain...a band of pain in my ribs and around to my back. Hard to sleep or move or do anything. It is getting worse instead of better, which is discouraging. Positions that used to be more comfortable no longer are. Last week, my internist said he thought I had a nerve problem in my spine and that the nerve endings that reach around to my ribs were irritated. Not sure that would account for the deep soreness and aching thoughout my middle, but it could explain the intermittent burning needles in my ribs. He did not offer much treatment....said an anesthesiologist could do a block, but I'm leary of that. I do have some pain meds I can take, but they don't help that much and anyway I would prefer to treat CAUSE.... Meanwhile trying to figure out what I can do to make the pain better. Using heat, creams, etc. At times it affects my breathing and I get tightness in the chest and coughing which I think is due to muscle weakness in the chest. Lungs look okay on xray. When I can, I'm going to email Anne the PT with more details and ask for any PT suggestions that might help. She is always so practical. Take care, and hope you are okay. Barbara > Hi Barbara, > > Just wanted to let you know that I have had you on my mind. Hope you > are getting some relief from the kidney stone pain you were experiencing. Has > anything changed for you? Hope this week is going well for you. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Barbara, Have they considered doing a MRI of the trunk area to see if anything shows up? Thinking of you! wheatchild2 wrote: > Hi , > > Haven't been online much so just saw your message....bless your > heart. Thanks for thinking of me. The urologist decided my pain is > not being caused by the kidney stone...he also said it was not in a > good position for lithotripsy, so for now I am stuck with it. I am > still having a lot of pain...a band of pain in my ribs and around to > my back. Hard to sleep or move or do anything. It is getting worse > instead of better, which is discouraging. Positions that used to be > more comfortable no longer are. Last week, my internist said he > thought I had a nerve problem in my spine and that the nerve endings > that reach around to my ribs were irritated. Not sure that would > account for the deep soreness and aching thoughout my middle, but it > could explain the intermittent burning needles in my ribs. He did > not offer much treatment....said an anesthesiologist could do a > block, but I'm leary of that. I do have some pain meds I can take, > but they don't help that much and anyway I would prefer to treat > CAUSE.... Meanwhile trying to figure out what I can do to make the > pain better. Using heat, creams, etc. At times it affects my > breathing and I get tightness in the chest and coughing which I > think is due to muscle weakness in the chest. Lungs look okay on > xray. When I can, I'm going to email Anne the PT with more details > and ask for any PT suggestions that might help. She is always so > practical. > > Take care, and hope you are okay. > Barbara > > > >>Hi Barbara, >> >> Just wanted to let you know that I have had you on my mind. > > Hope you > >>are getting some relief from the kidney stone pain you were > > experiencing. Has > >>anything changed for you? Hope this week is going well for you. >> >> > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Thanks, . No to the MRI, but I wish they would. they did do an abdominal sonogram and checked liver, pancreas, spleen and both kidneys. B > > > >>Hi Barbara, > >> > >> Just wanted to let you know that I have had you on my mind. > > > > Hope you > > > >>are getting some relief from the kidney stone pain you were > > > > experiencing. Has > > > >>anything changed for you? Hope this week is going well for you. > >> > >> > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Thanks, Adrienne....yes, your symptoms do sound similar. I will look up costochondritis see if that sounds possible. What did they do for that? Any treatment? After 3 months of this, I'm feeling pretty desperate for help. Barbara > barbara, > sorry to hear about all your problems with the rib and back pain. ive been > experiencing this alot lately myself with low back pain and very severe rib > pain. the pain feels deep but also on the surface and it feels like my ribs > are bruised almost but also feels like they are on fire. is this anything > like what you are experiencing? the back pain isnt as bad as the rib pain. i > cant even put any pressure on my ribs. told pain dr and he didnt seem to > concerned, but gonna bring it up to my rheumatologist next time i see her cuz > like yours its getting worse. it also makes my chest tight and causes me more > probs with breathing too. one dr said it might be costochondritis > (inflammation between ribs) but ive had that before and this is different. > The PT im doing in the water isnt helping much either. Keep me posted on what > you find out and if anything changes. ill keep you in my thoughts and > prayers. > take care, > adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 Barbara, Hi. The reason i dont think either of ours is costochondritis is because that is usually pain near the breast bone not all of the ribs. My dr just told me to take my pain meds for the pain now and im on prednisone and since they felt it was caused by inflammation, they upped my pred for a week. Hasnt helped much with the rib pain though. A heating pad helps some but cant keep it on long, dont like the heat. ill keep you posted on if i find something else or find the cause. take care, adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 Thanks...do let me know if you come up with any other ideas or treatments. We're scratching our heads here... Barbara > Barbara, > Hi. The reason i dont think either of ours is costochondritis is because that > is usually pain near the breast bone not all of the ribs. My dr just told me > to take my pain meds for the pain now and im on prednisone and since they > felt it was caused by inflammation, they upped my pred for a week. Hasnt > helped much with the rib pain though. A heating pad helps some but cant keep > it on long, dont like the heat. ill keep you posted on if i find something > else or find the cause. > take care, > adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Dear Barbara, i don't know if I can contribute anything useful or not. i have a bad pain at the bottom of my rib cage, in the center that radiates straight through to my back.I had all the usual sort of ultrasounds, mris etc but everything organ wise seemed fine. Finally my gastroenterologist suggested it might be muscular. Mt PCP was hopeless in helping but my physio(ah, here comes Anne!) was very helpful and " diagnsoed " the problem as being to do with shortening of my rectus and/or ? abd muscles. Since then, she has even given me some exercises to try and stretch them out. In addition I use a TENS machine and a combination of trazadone and extra strength tylenol for pain (better i feel then the dimerol I was on). Anyway, I put it down to just another weird thing in my weird diesase, Celia- - In , " wheatchild2 <wheatchild@n...> " <wheatchild@n...> wrote: > Hi , > > Haven't been online much so just saw your message....bless your > heart. Thanks for thinking of me. The urologist decided my pain is > not being caused by the kidney stone...he also said it was not in a > good position for lithotripsy, so for now I am stuck with it. I am > still having a lot of pain...a band of pain in my ribs and around to > my back. Hard to sleep or move or do anything. It is getting worse > instead of better, which is discouraging. Positions that used to be > more comfortable no longer are. Last week, my internist said he > thought I had a nerve problem in my spine and that the nerve endings > that reach around to my ribs were irritated. Not sure that would > account for the deep soreness and aching thoughout my middle, but it > could explain the intermittent burning needles in my ribs. He did > not offer much treatment....said an anesthesiologist could do a > block, but I'm leary of that. I do have some pain meds I can take, > but they don't help that much and anyway I would prefer to treat > CAUSE.... Meanwhile trying to figure out what I can do to make the > pain better. Using heat, creams, etc. At times it affects my > breathing and I get tightness in the chest and coughing which I > think is due to muscle weakness in the chest. Lungs look okay on > xray. When I can, I'm going to email Anne the PT with more details > and ask for any PT suggestions that might help. She is always so > practical. > > Take care, and hope you are okay. > Barbara > > > > Hi Barbara, > > > > Just wanted to let you know that I have had you on my mind. > Hope you > > are getting some relief from the kidney stone pain you were > experiencing. Has > > anything changed for you? Hope this week is going well for you. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 Very interesting. Thanks, Celia! The last few days I have noticed that the rib pain is definitely worse when I lie flat--I feel a pulling, tightening sensation in the lower ribs and waist in addition to the pain--this is relieved somewhat by curling or bending my legs. Seems to take the pressure off the rib area. Hmmm.... Barbara > > > Hi Barbara, > > > > > > Just wanted to let you know that I have had you on my mind. > > Hope you > > > are getting some relief from the kidney stone pain you were > > experiencing. Has > > > anything changed for you? Hope this week is going well for you. > > > > > > Quote Link to comment Share on other sites More sharing options...
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