Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Over the past few years I have started to show protein and blood in my urine. The loss of protein seemed to start after the birth of my first son 3 years ago when I had severe pre-eclampsia and Hellp syndrome, although I have always had traces of blood in my urine since I was a child (always unexplained). My mother has polycystic kidney disease so I always assumed it was related to this. However, recent ultrasounds have indicated that I have only 1 cyst on one kidney (at the age of 32) which my nephrologist says is not typical of polycystic kidneys. The ultrasound shows " increased cortical echogenicity consistent with medical renal disease " . My nephrologist says he thinks I have IgA and I am waiting for the blood tests to confirm. He said we would then discuss a biopsy. I am not very familiar with this disease and I was wondering if any of you have had similar ultrasound results or symptoms? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Before, I had my biopsy...I had an ultrasound. And I had one cyst but that was it and I was told by the internist that that was fairly common. Actually, the internist never mentioned IgA, but did recommend I see a nephrologist. She ordered the biopsy due to my reduced kidney function at the time and to rule out lupus. The internist thought the issues I was having were my heart...when I had a 24 hour blood pressure monitor, my heart rate didn't go much higher than 54bpm...even when walking...no wonder I was suffering dizziness and nausea. My pacemaker was set to 50bpm at the time, I have since had it elevated to 60bpm and now my heart seems to constantly be around 60-64bpm. Weird thing was, well not too weird, it actually makes sense...but when they increased my heart rate with the pacer...my blood pressure went down slightly. It turned out too that my heart muscle had grown slightly due to the extra work it was doing. I still need the ramipril though to really control the blood pressure. Anyway...they first noticed the protein and blood in my urine with my first pregnancy and I had mild hypertension that went away after she was born and again with each of my two boys. We have no family history of HPB or kidney disease, but all kinds of other issues. Good luck with your tests. I am new to this too and learning more everyday. But I am so relieved to know I am not alone and there are others I can talk to about the tests, treatments, support etc. S ________________________________ From: bkoehler12 Sent: Thursday, August 19, 2004 12:58 PM To: iga-nephropathy Subject: not formally diagnosed Over the past few years I have started to show protein and blood in my urine. The loss of protein seemed to start after the birth of my first son 3 years ago when I had severe pre-eclampsia and Hellp syndrome, although I have always had traces of blood in my urine since I was a child (always unexplained). My mother has polycystic kidney disease so I always assumed it was related to this. However, recent ultrasounds have indicated that I have only 1 cyst on one kidney (at the age of 32) which my nephrologist says is not typical of polycystic kidneys. The ultrasound shows " increased cortical echogenicity consistent with medical renal disease " . My nephrologist says he thinks I have IgA and I am waiting for the blood tests to confirm. He said we would then discuss a biopsy. I am not very familiar with this disease and I was wondering if any of you have had similar ultrasound results or symptoms? To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 I don't know of any ultrasound test for IgAN at all. Protein loss is common with kidney disease though, regardless of the type of kidney disease. In a message dated 8/19/2004 1:49:17 PM Pacific Daylight Time, BKoehler@... writes: > I am not very > familiar with this disease and I was wondering if any of you have had > similar ultrasound results or symptoms? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Well, I had a few kidney ultrasounds in my time. " increased echogenicity of upper cortex of both kidneys correlate with chronic glomerulonephritis " .. is what the man said. Pierre Re: not formally diagnosed > > I don't know of any ultrasound test for IgAN at all. Protein loss is common > with kidney disease though, regardless of the type of kidney disease. > > > > In a message dated 8/19/2004 1:49:17 PM Pacific Daylight Time, > BKoehler@... writes: > > > I am not very > > familiar with this disease and I was wondering if any of you have had > > similar ultrasound results or symptoms? > > > > Quote Link to comment Share on other sites More sharing options...
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