Re: Any suggestions on giving enzymes through g-tube

[Guest guest]

Since she is Gtube fed, have they considered progestimil? I am no expert,

but was under the impression that is was predigested and therefore you don't

need the enzymes. (I also understand it is NASTY, which would not be an

issue for Gtube feeds, of course)

Again, I am not an expert on this, but seems like I have heard this several

times.

Jen

[Guest guest]

Pacreacarb enzymes are approved to go through the tube and are the smallest

that I've seen. We used them down Eme's Mickey tube and didn't have any

problems once we got our very " non " standard routine down. Ask your doc

about using these and then if you have questions on how to get them down

email me and I'll tell you about our odd but functional way of doing this.

good luck!

Kris in Idaho

Mo and Eme wcf

Any suggestions on giving enzymes through g-tube

>My daughter is 13 months with CF and Downs and does not eat anything

>by mouth. We had been using Viacase for her enzymes but that didn't

>seem to be working anymore so we have started with Creon 5. The

>problem is getting it into her. I have tried to give it with some

>applesauce but that is rarely successful. And the beads don't go

>down the g-tube that well. Is there anyone else that has a child

>that won't eat? If so, how do you give the enzymes?

>

>

>

>PLEASE do not post religious emails to the list.

>

>

>-------------------------------------------

>

>

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

>--------------------------------------------------

>

>

>

[Guest guest]

She is on Neocate, which from what I understand is even more

predigested than pregestamil. I could be wrong about that but that

is the impression 's drs gave me. There was some question as to

whether or not she needed enzymes, but now it appears as though she

does. If she continues to have problems, we may try to switch though.

> Since she is Gtube fed, have they considered progestimil? I am no

expert,

> but was under the impression that is was predigested and therefore

you don't

> need the enzymes. (I also understand it is NASTY, which would not

be an

> issue for Gtube feeds, of course)

> Again, I am not an expert on this, but seems like I have heard this

several

> times.

> Jen

[Guest guest]

Thanks, that is really good to know. I will talk with the

nutritionist tomorrow and will ask her about switching to

Pacreacarb. Everyone on the list seems to have such good things to

say about it and if it is easier to get through the tube that would

be so wonderful.

Georgianna

> Pacreacarb enzymes are approved to go through the tube and are the

smallest

> that I've seen. We used them down Eme's Mickey tube and didn't

have any

> problems once we got our very " non " standard routine down. Ask

your doc

> about using these and then if you have questions on how to get them

down

> email me and I'll tell you about our odd but functional way of

doing this.

> good luck!

> Kris in Idaho

> Mo and Eme wcf

> Any suggestions on giving enzymes through g-

tube

>

>

> >My daughter is 13 months with CF and Downs and does not eat

anything

> >by mouth. We had been using Viacase for her enzymes but that

didn't

> >seem to be working anymore so we have started with Creon 5. The

> >problem is getting it into her. I have tried to give it with some

> >applesauce but that is rarely successful. And the beads don't go

> >down the g-tube that well. Is there anyone else that has a child

> >that won't eat? If so, how do you give the enzymes?

> >

> >

> >

> >PLEASE do not post religious emails to the list.

> >

> >

> >-------------------------------------------

> >

> >

> >The opinions and information exchanged on this list should

> >IN NO WAY

> >be construed as medical advice.

> >

> >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> >--------------------------------------------------

> >

> >

> >

[Guest guest]

try mushed up banana, that was my trick. Chad only had a sweet tooth when he

was a lil one, so i indulged it to get him to eat.

April D nocf mom of Chad 9 wcf

and Terry 7 nocf

Any suggestions on giving enzymes through g-tube

> My daughter is 13 months with CF and Downs and does not eat anything

> by mouth. We had been using Viacase for her enzymes but that didn't

> seem to be working anymore so we have started with Creon 5. The

> problem is getting it into her. I have tried to give it with some

> applesauce but that is rarely successful. And the beads don't go

> down the g-tube that well. Is there anyone else that has a child

> that won't eat? If so, how do you give the enzymes?

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Just a note, we use pregestimil with Eme's tube feeds, but still have to use

enzymes. The formula is more broken down but still needs enzymes to absorb

most of the fats in it. There are several elemental formulas/mixes that are

elemental that do not require enzymes, very expensive and not covered by

most insurances.

Kris in Idaho

Mo and Eme wcf

Re: Any suggestions on giving enzymes through g-tube

>Since she is Gtube fed, have they considered progestimil? I am no expert,

>but was under the impression that is was predigested and therefore you

don't

>need the enzymes. (I also understand it is NASTY, which would not be an

>issue for Gtube feeds, of course)

>Again, I am not an expert on this, but seems like I have heard this several

>times.

>Jen

>

>

>

>PLEASE do not post religious emails to the list.

>

>

>-------------------------------------------

>

>

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

>--------------------------------------------------

>

>

>

[Guest guest]

Do you know what these formulas are? is on Neocate, which is

supposedly as elemental as it gets, and she still needs enzymes. And

you are right, it is very expensive, but we have managed to get it

paid for, thank goodness.

> Just a note, we use pregestimil with Eme's tube feeds, but still

have to use

> enzymes. The formula is more broken down but still needs enzymes to

absorb

> most of the fats in it. There are several elemental formulas/mixes

that are

> elemental that do not require enzymes, very expensive and not

covered by

> most insurances.

> Kris in Idaho

> Mo and Eme wcf

> Re: Any suggestions on giving enzymes through

g-tube

>

>

> >Since she is Gtube fed, have they considered progestimil? I am no

expert,

> >but was under the impression that is was predigested and therefore

you

> don't

> >need the enzymes. (I also understand it is NASTY, which would not

be an

> >issue for Gtube feeds, of course)

> >Again, I am not an expert on this, but seems like I have heard

this several

> >times.

> >Jen

> >

> >

> >

> >PLEASE do not post religious emails to the list.

> >

> >

> >-------------------------------------------

> >

> >

> >The opinions and information exchanged on this list should

> >IN NO WAY

> >be construed as medical advice.

> >

> >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> >--------------------------------------------------

> >

> >

> >

[Guest guest]

Hi Georgianna,

I just read your message. We have the exact same

issue - fortunately, they are still able to use

the viocase and are gaining weight well. However,

since the enteric-coated enzymes are so much better

than viocase, we tried them on a new formulation

from Pancrecarb. It is Pancrecarb MS-4. It is a

smaller bead and unlike the creon or larger

formulation of pancrecarb, it does go down the tubes.

It's a bit of a struggle even then, however. We found

that Mick's 16 French button handled it better than

Alli's 14 French button, which is the smallest

that will allow the enzymes to go down.

Here are some tips I managed to come up with -

1. You need to mix your formula with apple juice,

and the amount depends on how many capsules you'll

use and what formula your child is on. They didn't

test it with pregestimil, which is what our kids are

on, but we used the same ratio as prescribed for

another formula that is partially digested.

2. I found that warming the apple juice/formula

mixture works better than trying to mix the enzymes

in cold. Warm formula/apple juice seems to loosen

the enzymes a bit, though they'll still clump at the

base of the tube or at the tip of the feeding

syringe.

3. When the enzymes clump at the tube, where it meets

the button, I massage it a bit, then draw the syringe

plunger back up to draw up a bit of the formula and

some stomach juices. If you can get the stomach

juices up, they kind of fizz and help loosen the

enzymes, and then you can push it back down the tube.

This usually does the trick, though sometimes you

have to do the pull - push thing a few times.

We've gone back to the Viocase because it was just

too stressful to do the other enzymes, but I'd put

up with it if the kids weren't gaining weight on

the viocase.

Hope this helps.

mommy to Mick and Alli, 15 mo twins wcf, born

14 weeks premature, and eating nothing by mouth

--- Georgianna Blanchard

wrote:

> My daughter is 13 months with CF and Downs and does

> not eat anything

> by mouth. We had been using Viacase for her enzymes

> but that didn't

> seem to be working anymore so we have started with

> Creon 5. The

> problem is getting it into her. I have tried to

> give it with some

> applesauce but that is rarely successful. And the

> beads don't go

> down the g-tube that well. Is there anyone else

> that has a child

> that won't eat? If so, how do you give the enzymes?

>

>

__________________________________________________

[Guest guest]

Hi Jen,

My twins are on pregestimil, but they still need

the enzymes. Unfortunately, although the formula

is partially digested, you still need to get the

body to absorb the nutrients, and that's what the

enzymes do.

mommy to Mick and Alli, 15 mo twins wcf

--- ron88jen@... wrote:

> Since she is Gtube fed, have they considered

> progestimil? I am no expert,

> but was under the impression that is was predigested

> and therefore you don't

> need the enzymes. (I also understand it is NASTY,

> which would not be an

> issue for Gtube feeds, of course)

> Again, I am not an expert on this, but seems like I

> have heard this several

> times.

> Jen

>

__________________________________________________

[Guest guest]

I am not sure what the names are of the elemental formulas, I should have

written them down. Does your daughter go to a cf clinic? if so you can call

the dietician or the gastroenterologist that covers the cf kids and they

will know. It seems to me that one of the formulas is blue colored, because

we joked about it being smurf soup.

Kris in Idaho

Mo and Eme bwcf

>> >--------------------------------------------------

>> >

>> >

>> >

[Guest guest]

My daughter Sydney won't eat either, but she is on Peptamen Jr. (predigested

formula) and has been off the enzymes for some time, and is gaining weight.

Peptamen is expensive, but our state's medicaid program covers it. The doctor

wants us to put her back on enzymes, but while she was on Viokase she had some

bowel problems and elevated lipase levels, so we are concerned about going back

on. I'm encourage to hear people are putting enzymes down g-tubes though, as

the doctor told us we couldn't do this without clogging it. Syd will not take

the enzymes orally.

Has anyone put creon through a bard g-tube (24 french)? I know there's

protocol for doing it with a Mic-key tube.

Thanks,

Mom to Syd, 3 w/cf

> --- Georgianna Blanchard

> wrote:

> > My daughter is 13 months with CF and Downs and does

> > not eat anything

> > by mouth. We had been using Viacase for her enzymes

> > but that didn't

> > seem to be working anymore so we have started with

> > Creon 5. The

> > problem is getting it into her. I have tried to

> > give it with some

> > applesauce but that is rarely successful. And the

> > beads don't go

> > down the g-tube that well. Is there anyone else

> > that has a child

> > that won't eat? If so, how do you give the enzymes?

> >

> >

>

>

> __________________________________________________

>