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Re: Feeling odd...Flu shot - Huh?

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Hi

My neph never suggested it and I have never had a flu shot. But on a luckier

note I have never in my life had flu, not even a cold, and I am nearly 58.

W

In a message dated 8/27/2004 6:14:49 P.M. Eastern Daylight Time,

W4JC@... writes:

Hi ,

You asked about getting the flu shot, and I can share that my Neph told me

to make sure I do get on every year because any potential side effects of the

flu shots are much less than the impact on my kidneys is I should get the

flu. I always get a call to make sure I did get mine.

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Hi ,

You asked about getting the flu shot, and I can share that my Neph told me to

make sure I do get on every year because any potential side effects of the flu

shots are much less than the impact on my kidneys is I should get the flu. I

always get a call to make sure I did get mine.

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Wow Bill, what a terrifying ordeal! I am glad you wrote to underscore the

importance of getting our flu shots. None of us would wish to go through that.

I am so glad you pulled through.

In a message dated 8/27/2004 6:32:46 PM Pacific Daylight Time,

bkuhn@... writes:

> If you have limited kidney function, or IGAN which is directly related

> to your immune system's function, GET A FLU SHOT.

>

> I almost died in March 2002 from flu (real flu - not just runny nose and

> fever 'gee maybe I'll stay home from work tomorrow flu'). The flu hit me

> and put me in bed for about a week before my family realized I could no

> longer get out of bed on my own, hadn't urinated in a few days, and I

> was having hallucinations. Why? Apparently my kidneys shut down soon

> after the flu hit. On top of that I had pneumonia. When they did a blood

> workup on me I think they had to double check their equipment to see if

> it was working right.

>

> My kidneys were not in bad shape to begin with, by the way. I had IGAN,

> but my numbers were pretty good.

>

> My family got me to an emergency room where they realized how bad off I

> was - they stuck me in an ambulance to get me to an ICU in Topeka. I

> spent 3 days in ICU in an oxygen mask with a cardiac crash cart next to

> my bed while they waited to see if they could get enough oxygen in my so

> I wouldn't go into arrest. My doctors all prepped my wife for the

> possibility that I was going to die. During that time my nephrologists

> was pumping various combinations of drugs into me to see if he could

> make my kidneys come on line again (my wife and I had to sign waivers

> for that), while prepping me for the probability that I would be on

> dialysis within a couple of days if I survived.

>

> I'll hand it to my nephrologist - he managed to annoy my kidneys enough

> that they started working again.

>

> Anyway, I spent 3 days in ICU and another 12 in the hospital along with

> a couple of months trying to recuperate because I had the flu. We figure

> I spent 10 days without being able to eat and almost that without being

> able to drink (when your kidneys quit - urine builds in the blood -

> everything tastes like it at least in my case).

>

> If you want to chance it, it's up to you.

>

> I'm pretty much the first in line when flu shots come out now.

>

> _______________________________________________

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Now , that is what I call a tremendous blessing. I have never known

anyone who has not had even a cold in their lives. You are one of the

healthiest

people I have ever heard of.

Congratulations, and all I can say is keep doing what you are doing. I know

you are very careful with your diet, and I am sure that attributes to your

health and strong immune system.

In a message dated 8/27/2004 6:52:44 PM Pacific Daylight Time,

peterwhitaker@... writes:

> Hi

> My neph never suggested it and I have never had a flu shot. But on a

> luckier

> note I have never in my life had flu, not even a cold, and I am nearly 58.

>

> W

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Heck, you guys have all convinced this aged sceptic. Even though I never

have had flu, yet, maybe I should get a shot anyway.

Thanks for the horror stories and advice.

W

In a message dated 8/27/2004 9:32:46 P.M. Eastern Daylight Time,

bkuhn@... writes:

If you have limited kidney function, or IGAN which is directly related

to your immune system's function, GET A FLU SHOT.

I almost died in March 2002 from flu (real flu - not just runny nose and

fever 'gee maybe I'll stay home from work tomorrow flu'). The flu hit me

and put me in bed for about a week before my family realized I could no

longer get out of bed on my own, hadn't urinated in a few days, and I

was having hallucinations. Why? Apparently my kidneys shut down soon

after the flu hit. On top of that I had pneumonia. When they did a blood

workup on me I think they had to double check their equipment to see if

it was working right.

My kidneys were not in bad shape to begin with, by the way. I had IGAN,

but my numbers were pretty good.

My family got me to an emergency room where they realized how bad off I

was - they stuck me in an ambulance to get me to an ICU in Topeka. I

spent 3 days in ICU in an oxygen mask with a cardiac crash cart next to

my bed while they waited to see if they could get enough oxygen in my so

I wouldn't go into arrest. My doctors all prepped my wife for the

possibility that I was going to die. During that time my nephrologists

was pumping various combinations of drugs into me to see if he could

make my kidneys come on line again (my wife and I had to sign waivers

for that), while prepping me for the probability that I would be on

dialysis within a couple of days if I survived.

I'll hand it to my nephrologist - he managed to annoy my kidneys enough

that they started working again.

Anyway, I spent 3 days in ICU and another 12 in the hospital along with

a couple of months trying to recuperate because I had the flu. We figure

I spent 10 days without being able to eat and almost that without being

able to drink (when your kidneys quit - urine builds in the blood -

everything tastes like it at least in my case).

If you want to chance it, it's up to you.

I'm pretty much the first in line when flu shots come out now.

_______________________________________________

Bill Kuhn - MCSE, MCP+I

bkuhn@...

The Kuhn Group, Inc

A Microsoft Certified Partner

http://www.kuhngroup.com

info@...

_______________________________________________

Re: Feeling odd...

I've never had that, and I don't think it has anything to do with

IgAN. I've

heard of it though: depersonalization and/or derealization. Anxiety

can

cause it.

Pierre

> > writes:

> > Before you ask Yes I already talked to my nephs nurse about

this....she

> > had no clue what could be causing it but didn't feel I should get

my

labs

> > done early (I go in on the 7th for them). Now onto my

question....has

> > anyone here ever experienced an " out of body " type feeling? The

best

way

> > I can describe it is I can move everything but I can't really

" feel "

> > myself doing it. It's that light body feeling you get when say

mildly

> > drunk or (if you were bad like I was as a teenager) like when you

get

> > high on marijuana. Just a very odd feeling that comes and goes

lately.

> > It happened a bit when I was on very high doses of pred and I

wrote it

> > off as a 'prednisone thing' but hasn't really happened since

dropping my

> > dose so low. Perhaps it is just a prednisone thing but I was

wondering

> > if anyone else has this sort of strange out of body feeling and if

so do

> > you know what caused it? Thanks for any info.

> >

> > At least my flank pain is basically gone now.

> >

> > Amy

> >

> >

> >

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

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