Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 But what is your condition, if you can say? > Hi, > > Here is a link I thought you guys might find interesting. > > http://www.paincare.org/about/message.html > > After more conversations with my doctor's office (note, *not* my > doctor), the nurse suggested that I schedule surgery. When I asked > for details about it, it turns out that there has been nothing > published about this particular type of surgery, but it " has good > results with our patients. " She gave the the name and phone number of > another patient to call. > > I was told that it was " laser " surgery only, and not " invasive, " but > basically damages the nerves so they don't transmit the pain. > > Finally, after noting my reluctance to sign right up, she scheduled > another appointment to see my doctor, so I do get another chance to > discuss it. > > The nurse did sort of tentatively offer Neurontin, but then withdrew > it during the conversation, assuming I would have the same side > effects as those I experienced with the Effexor. Does anyone know > anything about that? She wouldn't even tell me what it was beyond " an > anti-seizure " medication. Well, I don't get seizures, but I have this > *pain*. > > Does this seem out of whack to any of you? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 > > Hi, > > > > Here is a link I thought you guys might find interesting. > > > > http://www.paincare.org/about/message.html > > > > After more conversations with my doctor's office (note, *not* my > > doctor), the nurse suggested that I schedule surgery. When I asked > > for details about it, it turns out that there has been nothing > > published about this particular type of surgery, but it " has good > > results with our patients. " She gave the the name and phone number > of > > another patient to call. > > > > I was told that it was " laser " surgery only, and not " invasive, " but > > basically damages the nerves so they don't transmit the pain. > > > > Finally, after noting my reluctance to sign right up, she scheduled > > another appointment to see my doctor, so I do get another chance to > > discuss it. > > > > The nurse did sort of tentatively offer Neurontin, but then withdrew > > it during the conversation, assuming I would have the same side > > effects as those I experienced with the Effexor. Does anyone know > > anything about that? She wouldn't even tell me what it was beyond > " an > > anti-seizure " medication. Well, I don't get seizures, but I have > this > > *pain*. > > > > Does this seem out of whack to any of you? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 I sort of get a clue, but I will look it up. No wonder they recommended antidepressants. Throwback to the reason for the word " hysteria. " Disgusting. > > > Hi, > > > > > > Here is a link I thought you guys might find interesting. > > > > > > http://www.paincare.org/about/message.html > > > > > > After more conversations with my doctor's office (note, *not* my > > > doctor), the nurse suggested that I schedule surgery. When I > asked > > > for details about it, it turns out that there has been nothing > > > published about this particular type of surgery, but it " has good > > > results with our patients. " She gave the the name and phone > number > > of > > > another patient to call. > > > > > > I was told that it was " laser " surgery only, and not " invasive, " > but > > > basically damages the nerves so they don't transmit the pain. > > > > > > Finally, after noting my reluctance to sign right up, she > scheduled > > > another appointment to see my doctor, so I do get another chance > to > > > discuss it. > > > > > > The nurse did sort of tentatively offer Neurontin, but then > withdrew > > > it during the conversation, assuming I would have the same side > > > effects as those I experienced with the Effexor. Does anyone know > > > anything about that? She wouldn't even tell me what it was beyond > > " an > > > anti-seizure " medication. Well, I don't get seizures, but I have > > this > > > *pain*. > > > > > > Does this seem out of whack to any of you? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Thanks, , for the link to the pain care website. When my partner gets up (it's still pretty early) I will show it to him, because pain management is top priority in his life. Yet there are a couple things that I wonder about in the statement the link takes us to. " In 35 years of practicing medicine, I have never encountered a physician who would sell prescriptions of opioids simply to make money. There may be doctors out there who do this, but I have never run into one. " I have to ask, Where has this doctor been? I knew such a doctor twenty five years ago. My partner (although at that time we hadn't met yet) knew him, too. The doctor got caught prescribing drugs for recreational purposes and was prosecuted. He had an alcohol and drug problem himself, and I met him in AA while he was out on bail, awaiting his jail sentence. My partner knew him as the doctor you go to when you want your recreational drugs. A couple weeks ago we were driving past the place that used to be the doctor's office, and my partner wondered why a doctor who was already making money as a legitimate doctor would jeopardize himself by being the local Doctor FeelGood providing fun 'n' games for anyone who wanted a good time. I replied that perhaps it might have been because he had his own drug problem, I dunno. And there was a psychiatrist twenty years ago who knowingly prescribed drugs to a known drug addict and lied about it. He was playing fast and loose there, and that's another story. I had quite a go-round with that shrink and his utter irresponsibility. Then I see in the message, " Every day I hear horror stories from legitimate pain patients who are treated with disrespect, disdain and disregard. They are given inadequate medications or doses, told to learn to live with the pain, and referred for expensive, sometimes dangerous, and commonly ineffective, invasive procedures. " That was certainly true for my partner before the mid-'nineties. He was getting to where he wanted to commit suicide. I remember one bitch of a doctor telling him, " Nobody ever died of pain. " But this situation is changing. What I was wondering, and I said so yesterday to my partner, is *where* this change is taking place. There is really good pain care here in the northeast now. But maybe there are other places where the change has not happened yet. How are things in your neck of the woods, ? " Often they are directed to " pain doctors " and pain " centers " where they are harangued, demeaned and bullied. They are told that they must " detox " off all drugs and become pure and " drug free " , in a kind of orgy of propaganda driven pseudo religion. " Where is this happening? Not around here in PA, and not in central NY State. There is really good pain control here. It sounds to me as if changes are coming, but these changes haven't reached all parts of the country as yet. It sounds as if we are in a transition, half way in and half way out, some places really great, but other places still in the Dark Ages. Cheers, nz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 > I sort of get a clue, but I will look it up. No wonder they > recommended antidepressants. Throwback to the reason for the word > " hysteria. " Disgusting. Actually I doubt that that is the reason. Just because a drug is labelled an antidperessant, it doesnt preclude its use for other things - it remains just a chemical which has utility in that respect, but its action may have benefit in other areas. A friend of mine is receiving an SSRI for a kind of " lazy eye " problem, and they can also be used in the treatemtn of migraine. Not to say that justifies witholding other drugs when appropriate, just thought I'd make the point. P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Kaye, After reading your post another thing came to mind. When I was having my early attacks and hospitalized, and the pain medication wasn't working. The docs always seemed to focus on increasing the dose rather than changing the medicine. I think if something doesn't work for you it won't matter how much f it they give you. Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Kaye, After reading your post another thing came to mind. When I was having my early attacks and hospitalized, and the pain medication wasn't working. The docs always seemed to focus on increasing the dose rather than changing the medicine. I think if something doesn't work for you it won't matter how much f it they give you. Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 Kaye, After reading your post another thing came to mind. When I was having my early attacks and hospitalized, and the pain medication wasn't working. The docs always seemed to focus on increasing the dose rather than changing the medicine. I think if something doesn't work for you it won't matter how much f it they give you. Rob Quote Link to comment Share on other sites More sharing options...
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