Re: ..more on Janet

[Guest guest]

Sorry to hear that Janet is loosing her hair. I have now completed my

fourth round of Folfox. My hair has been thinning more with each

round. They also told me I would not loose my hair. So difficult to

have this side affect also. Was wondering if anyone else has had this

problem. My nurse told me that alot have severe thinning. Has Janet

had the burning in her fingers and feet? This will only last a few

days if it goes like for me. I hope all the best for her. But

remember that when it is all done we have a better chance at

surviving this demon. Make sure she drinks plenty of liquids. I am

Praying for all of YOU!!!!

>

> First I want to thank you all again for your advice and support as

> well as prayers and well wishes. Hope your Holiday's have been free

> without too much worry and concerns. Thanks for being my outlet to

> vent.

> Janet started her second round of the chemo therapy today. Her

> white blood count is still down but they feel not low enough to

> delay anymore treatments. She will have to take the neupogen

> injections for the next ten days. They also thought that she would

> not have problems with losing her hair, however it is coming out in

> clumps even before the second installment of the chemo. So we are

> dealing with that.I guess that means the stuff is doing it's job.

> Kids are a little freaked.

> But as you know it is the nature of the beast.

> Anyway I will post later.

> Have a nice day and keep a good thought.

>

>

> Larry

[Guest guest]

Larry...

So sorry to hear about Janet losing her hair...that sux!! On top of

everything else!! Hope you still can console her and encourage her that her

hair

" just doesn't matter to you...you just want her to get better...whatever it

takes!!! Hugs to both of you...Glenn's hair is thinning slightly. He's had

his

3 rd round just this past Monday, after he got the platelets up...thank

goodness!!!

Donelle

[Guest guest]

They gave us all that stuff too. Promotional jazz.

The blanket is very cozy but we got regular Thinsulate gloves and Phil wears

a Sinatra style hat (LOL).

I don't think his hair has thinned but it is kind of hard to tell since he

wears a flat top and gets it cut every 2 weeks anyway (not my idea).

The only good thing about the flat top is people think I'm years younger than

him when we are actually BOTH 45. I'm even 3 months OLDER (ha ha)

As for Janet, Talk with the people at your cancer center. Some have programs

for the ladies on hair and makeup that really work during chemo. Most of the

ladies get discounts on wigs and truthfully when styled right you can't tell

they're wearing one. this may also be helpful with the children. There are sites

for this but unfortunately I lost my Internet Explorer files when I had a

virus last week. So until I get that and my CD drive fixed I can only do e-mail.

Looks like a new computer is in our future.

Thankfully this too will pass. And in time Janet's outer appearance will

again match her inner beauty.

Hang in there girl you're doing great!

and you are so lucky to have such a great guy in Larry

God Bless

Narice

[Guest guest]

Sorry to hear Janet's hair is thinning. Well if you are interested there is a

website devoted to " Chemo Caps " Yes I did a google and came up with all sorts

of head coverings for folks who lose their hair because of chemo. Trouble most

are knit and crochet patterns and while I can do both, the hat I was planning to

make for myself it using the new eyelash yarn or the fun fur and that is really

hard to work with, but the finish product looks like a really short hair cut.

The yarn come in a variety of fantastic colors and I think it is such a fun way

to get through this process. http://www.headhuggers.org/patterns/kpatt10.htm

If I can't manage the knit pattern - I will be in a funk. LOL.. Also many of

these hats are made using " wool " yarn. (Itchy itchy)... actually for me down

here in Texas is no way I could wear a hat like that when the weather is warner

(like right now).. Maybe I will look into some cute baseball caps.

I will have to go look at the photo. Well if the gloves help, the color is

immaterial but you would think they would pick a nice soothing color.. I wonder

what company my daughter in law works for..

Well I got a call yesterday.. Jan 3 I got in for lab work, and then on the 4th I

start the chemo. So we will see how it goes. I have a mild cold this week, hope

I can shake it by next week, or we will have more delays. Take care.... Jolene

[Guest guest]

Checked out the photo. Thanks.. Now know a bit of what I have to

look forward to... JOlene

> Anyway with permission from my wife I posted a pic of the unit

that delivers the Chemo if someone is interested in Janet photo's.

> Anyone has a question we would be glad to help.

> Larry

>

[Guest guest]

Here you go, Jolene!!! Thanks for looking...

Donelle

For CANCER GIFTS for the patient, survivor and care-giver, click on

_http://www.grandmommyandmecustomscrapbooks.com_

(http://www.grandmommyandmecustomscrapbooks.com/) and go to " Cancer

Gifts " ...all profits specifically designated

to RESEARCH, go to s Hopkins Hospital in Baltimore, MD and The American

Cancer Society. Awareness of this disease and your donations to research are

the only way we can ever hope to find the CURE!!!

(http://www.thebreastcancersite.com/)

[Guest guest]

DonelleGive me the url to your website... Yes I am curious. Jolene

[Guest guest]

I saw a really cute way to cover your head using a cutoff T-shirt using the

lower half (the tube part) and twisting it like in a figure 8 around your head.

This was a suggestion at a Look Good, Feel Better meeting in KS. If you can

find something like that, it's way, way cooler than a knit cap in TX. With the

temp 70 here right now, I can't imagine wearing a knit cap, and this is January!

[Guest guest]

Hey great Idea . I will have to experiment with that. Thanks... Jolene

Re: Re: ..more on Janet

I saw a really cute way to cover your head using a cutoff T-shirt using the

lower half (the tube part) and twisting it like in a figure 8 around your head.

This was a suggestion at a Look Good, Feel Better meeting in KS. If you can

find something like that, it's way, way cooler than a knit cap in TX. With the

temp 70 here right now, I can't imagine wearing a knit cap, and this is January!

[Guest guest]

In a message dated 1/2/2005 5:02:50 PM Eastern Standard Time,

lwg_art@... writes:

There has been a commercial running in some areas about a drug that

helps people with low white blood counts. Has anyone seen this? Just

curious.

Hi Larry...I believe the drug is " Procrit " for low blood count...not sure if

it's white or red, tho...I've seen it a million times and wished that was

Glenn's fatigue problem and a magic pill would help him. But, his blood counts

are fine!! We're on the 3rd round...trying to kick butt!!!

Hope Janet keeps doing well...as well as possible, that is!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

Colon resection 6/03, open wound for 2 months, chemo for 8 months

Mets to Liver found 4/04, inoperable " at the moment "

Chemo infiltration to chest 8/04 with severe side effects including severe

pain and muscle damage (permanent??), unable to eat, colon shut down,

hospitalization w/morphine 8 days

Fluid build-up and draining on a regular weekly basis

Now on 5FU/Leu/Oxaliplatin/Avastin " cocktails " 46 hr. infusions

TRYING TO KICK BUTT with this darn disease!!!

[Guest guest]

Procrit is an injection for low RED blood cell counts.

I get Procrit every Tuesday....I call it Procrit Tuesday....they want

to keep giving it to me until my Hemoglobin is above 14 and stays

there. I need to be " normal " before the surgery will be planned and

done.

I got PROCRIT throughout radiation/chemo and it seemed to help. Let

me keep working.

>

> In a message dated 1/2/2005 5:02:50 PM Eastern Standard Time,

> lwg_art@y... writes:

>

> There has been a commercial running in some areas about a drug

that

> helps people with low white blood counts. Has anyone seen this?

Just

> curious.

>

>

>

> Hi Larry...I believe the drug is " Procrit " for low blood

count...not sure if

> it's white or red, tho...I've seen it a million times and wished

that was

> Glenn's fatigue problem and a magic pill would help him. But, his

blood counts

> are fine!! We're on the 3rd round...trying to kick butt!!!

>

> Hope Janet keeps doing well...as well as possible, that is!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

> Colon resection 6/03, open wound for 2 months, chemo for 8 months

> Mets to Liver found 4/04, inoperable " at the moment "

> Chemo infiltration to chest 8/04 with severe side effects

including severe

> pain and muscle damage (permanent??), unable to eat, colon shut

down,

> hospitalization w/morphine 8 days

> Fluid build-up and draining on a regular weekly basis

> Now on 5FU/Leu/Oxaliplatin/Avastin " cocktails " 46 hr. infusions

> TRYING TO KICK BUTT with this darn disease!!!

>

>

>

[Guest guest]

The drug you refer to is Neulasta. Neulasta and Neuprogen are the same drug.

One is given over several days and the other is given once a week about 24

hours after chemo. Which one you'll get depends on how low the counts are. The

lower the counts the more likelihood it is dispensed over several days.

This works really well BUT they only dispense it if you need it as it can

have some nasty side effects.

Narice