Guest guest Posted November 8, 2000 Report Share Posted November 8, 2000 In a message dated 11/9/00 12:16:08 AM, duodenalswitchegroups writes: << He described in detail how he removed my gall bladder & at the time, I didn't have one!!!! :>p..... heidi >> I don't know, Heidi: Judging from your amazing stats, it could very well be that you grew a NEW one since the previous gallbladder removal! :) ROFL all the best, intial consult with Dr. Gagner, Mt. Sinai/NYC, Nov. 15 - can't wait - Next week - yahoo!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Why did I receive this e-mail? I think you sent it to me in error. Re: surgery Good Luck on your surgery, May God send his Angels to watch over you, and You'll do just fine. Are your Excited about the change? When did you start gaining all your extra weight? I'm 45 pounds over. What caused your weight gain? Let us know when you get out how it went. Pamm HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html SEND POST TO: fibromyalgia-cfs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Why are you sending me this E-mail? I think it was sent to me in error. Please change your records Re: surgery by any chance is your name Pam ? I knew one through my family growing up and just curious on your e-mail name. Thank you pamm HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html SEND POST TO: fibromyalgia-cfs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Why are you sending me this E-mail? I think it was sent to me in error. Please change your records Re: surgery by any chance is your name Pam ? I knew one through my family growing up and just curious on your e-mail name. Thank you pamm HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html SEND POST TO: fibromyalgia-cfs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Why are you sending me this E-mail? I think it was sent to me in error. Please change your records Re: surgery by any chance is your name Pam ? I knew one through my family growing up and just curious on your e-mail name. Thank you pamm HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html SEND POST TO: fibromyalgia-cfs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 - Sounds like everything must have gone well if you're home already! Take it easy and hope you start feeling better now! Tell us all about your surgery when you're feeling up to it - I'm sure there's others besides myself who'd like to know all about it. Get some rest! Surgery >Hi everyone, > >I came home from hospital yesterday after having a sub total thyroidectomy. > >I`m so pleased that it`s finally out of the way and i just hope i will feel better soon. > > > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue, I did it. Check out: http://groups.yahoo.com/group/graves_support/database? method=reportRows & tbl=6 to write your story. :)Pam > Hi Everyone > I just thought I'd pop in here as I am sooooooooooooo confused.......as we > are at the beginning. <grin> > I was chatting to one of my students yesterday who had been away and had > not started this year yet. She had heard that I had not been well and > started chatting to me about that. When I looked at her, really looked at > her, I noticed a hair line scar along the fold line in her neck and noticed > that her eyes were much more poppy than what is normal. (I had never taken > notice to this before) Then it dawned on me.....duh. I said 'you've had > your thyroid out!' And yes she has. She said last year when I was talking > in class about what I felt like, she almost said have your thyroid checked > out but didn't thinking that I would eventually get to the bottom of it. > I asked how she was feeling and she said good, however took some time to > get the medication right for her, her eyes have remained as they are and > has been told they probably will and she avoids caffine at all costs. > Now in this story she told me her mum has had hers out also. By the way > Glynis my student is about 52 years of age. Didn't ask what year she had > the thyroid out but seems quiet a lot of years ago. But the big blow out > is that her daughter who is about 22 and works at a pharmacy here in town > has just recently had RAI. I sat for a few minutes and didn't know what to > say. Well its too late to say anything especially when I asked how she is > doing and Glynis said 'great'. So I am confused. Back to my local doctor > who said, 'what a shame you have to take the tablets, RAI is better'. I > know I know you have 'all' stopped breathing at that, but he had it. He > said it helped him. > Is it different for men? > Now back to this young women. Could she be better? Is it possible that it > was the right desision for her? Could she feel great and never have any > trouble from here on in? Only time will tell. > I was just wondering with all the surveys just recently, has there been one > done for symptoms and what we were actually experiencing at the time of > finally being told we had GD. Just would be interesting to know on this > list especially how old, what symptoms and what medication, how long it > took to feel better, what reactions to the medication etc followed after. > I know probably way too big. LOL > Just a thought > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue, I did it. Check out: http://groups.yahoo.com/group/graves_support/database? method=reportRows & tbl=6 to write your story. :)Pam > Hi Everyone > I just thought I'd pop in here as I am sooooooooooooo confused.......as we > are at the beginning. <grin> > I was chatting to one of my students yesterday who had been away and had > not started this year yet. She had heard that I had not been well and > started chatting to me about that. When I looked at her, really looked at > her, I noticed a hair line scar along the fold line in her neck and noticed > that her eyes were much more poppy than what is normal. (I had never taken > notice to this before) Then it dawned on me.....duh. I said 'you've had > your thyroid out!' And yes she has. She said last year when I was talking > in class about what I felt like, she almost said have your thyroid checked > out but didn't thinking that I would eventually get to the bottom of it. > I asked how she was feeling and she said good, however took some time to > get the medication right for her, her eyes have remained as they are and > has been told they probably will and she avoids caffine at all costs. > Now in this story she told me her mum has had hers out also. By the way > Glynis my student is about 52 years of age. Didn't ask what year she had > the thyroid out but seems quiet a lot of years ago. But the big blow out > is that her daughter who is about 22 and works at a pharmacy here in town > has just recently had RAI. I sat for a few minutes and didn't know what to > say. Well its too late to say anything especially when I asked how she is > doing and Glynis said 'great'. So I am confused. Back to my local doctor > who said, 'what a shame you have to take the tablets, RAI is better'. I > know I know you have 'all' stopped breathing at that, but he had it. He > said it helped him. > Is it different for men? > Now back to this young women. Could she be better? Is it possible that it > was the right desision for her? Could she feel great and never have any > trouble from here on in? Only time will tell. > I was just wondering with all the surveys just recently, has there been one > done for symptoms and what we were actually experiencing at the time of > finally being told we had GD. Just would be interesting to know on this > list especially how old, what symptoms and what medication, how long it > took to feel better, what reactions to the medication etc followed after. > I know probably way too big. LOL > Just a thought > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue - It is confusing when you think you know what you want to do and hear accounts of people's differing experiences! Wow - that is an amazing family history of GD that Glynis has! Makes you wonder when her _mother_ had her thyroid out! Sure, it's entirely possible that her 22 year old daughter is fine after having RAI. Personally, I don't think I'd want to have RAI at 22. There is so much that is not known about future fertility issues and RAI. Which is why in other countries RAI is not recommended for women of childbearing age. The other thing to consider is everyone has a different definition of " fine " . I met one lady who had RAI years before and said she was " fine " after it. Then she proceeded to tell me about how she had problems getting her synthyroid dosage right, and all the aches and pains she's had recently, headaches she never had before, and oh, she's been having a little trouble with eye pain lately. Now, maybe to her, this is relatively " fine " or maybe she just didn't attribute any of her recent problems to the fact that she had RAI previously. Who knows? Also, maybe this is just my observation, but it seems that people who have had RAI fairly recently are those most likely to say they are " fine " . Maybe they are. Maybe they felt so lousy when they were hyper that now that they aren't, they feel better than they did before RAI. Maybe it hasn't been long enough since they had the RAI to have experienced some of the problems that seem to surface with time, such as problems getting the replacement hormone dosage just right, difficulties with Graves' opthamology, etc. Again, who knows? There are people for whom RAI was the right choice and they really are just fine. I think that's terrific and I would wish everyone was that fortunate. The only other piece of info I can add is that whenever I meet someone who has had GD now, I ask what they did and if they have any regrets about it. Granted I have met more that have done RAI than surgery, but what I found was this: of those people who had RAI, the majority of them said that they did regret it, but all those who had surgery have said they haven't regretted it. To me, that was the most revealing statistic of all. The most important thing is that after weighing all information, you have to decide what is right for YOU. It's the getting all the information to make your decision that seems to be the hard part, and the part that some people don't get the chance to do because they are pressured into a decision by their doctors, or simple not given enough information. Sorry, didn't mean to make this seem like a novel! Hope you can find at least something that's useful to you! Re: Re: Surgery >Hi Everyone >I just thought I'd pop in here as I am sooooooooooooo confused.......as we >are at the beginning. <grin> >I was chatting to one of my students yesterday who had been away and had >not started this year yet. She had heard that I had not been well and >started chatting to me about that. When I looked at her, really looked at >her, I noticed a hair line scar along the fold line in her neck and noticed >that her eyes were much more poppy than what is normal. (I had never taken >notice to this before) Then it dawned on me.....duh. I said 'you've had >your thyroid out!' And yes she has. She said last year when I was talking >in class about what I felt like, she almost said have your thyroid checked >out but didn't thinking that I would eventually get to the bottom of it. >I asked how she was feeling and she said good, however took some time to >get the medication right for her, her eyes have remained as they are and >has been told they probably will and she avoids caffine at all costs. >Now in this story she told me her mum has had hers out also. By the way >Glynis my student is about 52 years of age. Didn't ask what year she had >the thyroid out but seems quiet a lot of years ago. But the big blow out >is that her daughter who is about 22 and works at a pharmacy here in town >has just recently had RAI. I sat for a few minutes and didn't know what to >say. Well its too late to say anything especially when I asked how she is >doing and Glynis said 'great'. So I am confused. Back to my local doctor >who said, 'what a shame you have to take the tablets, RAI is better'. I >know I know you have 'all' stopped breathing at that, but he had it. He >said it helped him. >Is it different for men? >Now back to this young women. Could she be better? Is it possible that it >was the right desision for her? Could she feel great and never have any >trouble from here on in? Only time will tell. >I was just wondering with all the surveys just recently, has there been one >done for symptoms and what we were actually experiencing at the time of >finally being told we had GD. Just would be interesting to know on this >list especially how old, what symptoms and what medication, how long it >took to feel better, what reactions to the medication etc followed after. >I know probably way too big. LOL >Just a thought >Sue > > > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue - It is confusing when you think you know what you want to do and hear accounts of people's differing experiences! Wow - that is an amazing family history of GD that Glynis has! Makes you wonder when her _mother_ had her thyroid out! Sure, it's entirely possible that her 22 year old daughter is fine after having RAI. Personally, I don't think I'd want to have RAI at 22. There is so much that is not known about future fertility issues and RAI. Which is why in other countries RAI is not recommended for women of childbearing age. The other thing to consider is everyone has a different definition of " fine " . I met one lady who had RAI years before and said she was " fine " after it. Then she proceeded to tell me about how she had problems getting her synthyroid dosage right, and all the aches and pains she's had recently, headaches she never had before, and oh, she's been having a little trouble with eye pain lately. Now, maybe to her, this is relatively " fine " or maybe she just didn't attribute any of her recent problems to the fact that she had RAI previously. Who knows? Also, maybe this is just my observation, but it seems that people who have had RAI fairly recently are those most likely to say they are " fine " . Maybe they are. Maybe they felt so lousy when they were hyper that now that they aren't, they feel better than they did before RAI. Maybe it hasn't been long enough since they had the RAI to have experienced some of the problems that seem to surface with time, such as problems getting the replacement hormone dosage just right, difficulties with Graves' opthamology, etc. Again, who knows? There are people for whom RAI was the right choice and they really are just fine. I think that's terrific and I would wish everyone was that fortunate. The only other piece of info I can add is that whenever I meet someone who has had GD now, I ask what they did and if they have any regrets about it. Granted I have met more that have done RAI than surgery, but what I found was this: of those people who had RAI, the majority of them said that they did regret it, but all those who had surgery have said they haven't regretted it. To me, that was the most revealing statistic of all. The most important thing is that after weighing all information, you have to decide what is right for YOU. It's the getting all the information to make your decision that seems to be the hard part, and the part that some people don't get the chance to do because they are pressured into a decision by their doctors, or simple not given enough information. Sorry, didn't mean to make this seem like a novel! Hope you can find at least something that's useful to you! Re: Re: Surgery >Hi Everyone >I just thought I'd pop in here as I am sooooooooooooo confused.......as we >are at the beginning. <grin> >I was chatting to one of my students yesterday who had been away and had >not started this year yet. She had heard that I had not been well and >started chatting to me about that. When I looked at her, really looked at >her, I noticed a hair line scar along the fold line in her neck and noticed >that her eyes were much more poppy than what is normal. (I had never taken >notice to this before) Then it dawned on me.....duh. I said 'you've had >your thyroid out!' And yes she has. She said last year when I was talking >in class about what I felt like, she almost said have your thyroid checked >out but didn't thinking that I would eventually get to the bottom of it. >I asked how she was feeling and she said good, however took some time to >get the medication right for her, her eyes have remained as they are and >has been told they probably will and she avoids caffine at all costs. >Now in this story she told me her mum has had hers out also. By the way >Glynis my student is about 52 years of age. Didn't ask what year she had >the thyroid out but seems quiet a lot of years ago. But the big blow out >is that her daughter who is about 22 and works at a pharmacy here in town >has just recently had RAI. I sat for a few minutes and didn't know what to >say. Well its too late to say anything especially when I asked how she is >doing and Glynis said 'great'. So I am confused. Back to my local doctor >who said, 'what a shame you have to take the tablets, RAI is better'. I >know I know you have 'all' stopped breathing at that, but he had it. He >said it helped him. >Is it different for men? >Now back to this young women. Could she be better? Is it possible that it >was the right desision for her? Could she feel great and never have any >trouble from here on in? Only time will tell. >I was just wondering with all the surveys just recently, has there been one >done for symptoms and what we were actually experiencing at the time of >finally being told we had GD. Just would be interesting to know on this >list especially how old, what symptoms and what medication, how long it >took to feel better, what reactions to the medication etc followed after. >I know probably way too big. LOL >Just a thought >Sue > > > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue - It is confusing when you think you know what you want to do and hear accounts of people's differing experiences! Wow - that is an amazing family history of GD that Glynis has! Makes you wonder when her _mother_ had her thyroid out! Sure, it's entirely possible that her 22 year old daughter is fine after having RAI. Personally, I don't think I'd want to have RAI at 22. There is so much that is not known about future fertility issues and RAI. Which is why in other countries RAI is not recommended for women of childbearing age. The other thing to consider is everyone has a different definition of " fine " . I met one lady who had RAI years before and said she was " fine " after it. Then she proceeded to tell me about how she had problems getting her synthyroid dosage right, and all the aches and pains she's had recently, headaches she never had before, and oh, she's been having a little trouble with eye pain lately. Now, maybe to her, this is relatively " fine " or maybe she just didn't attribute any of her recent problems to the fact that she had RAI previously. Who knows? Also, maybe this is just my observation, but it seems that people who have had RAI fairly recently are those most likely to say they are " fine " . Maybe they are. Maybe they felt so lousy when they were hyper that now that they aren't, they feel better than they did before RAI. Maybe it hasn't been long enough since they had the RAI to have experienced some of the problems that seem to surface with time, such as problems getting the replacement hormone dosage just right, difficulties with Graves' opthamology, etc. Again, who knows? There are people for whom RAI was the right choice and they really are just fine. I think that's terrific and I would wish everyone was that fortunate. The only other piece of info I can add is that whenever I meet someone who has had GD now, I ask what they did and if they have any regrets about it. Granted I have met more that have done RAI than surgery, but what I found was this: of those people who had RAI, the majority of them said that they did regret it, but all those who had surgery have said they haven't regretted it. To me, that was the most revealing statistic of all. The most important thing is that after weighing all information, you have to decide what is right for YOU. It's the getting all the information to make your decision that seems to be the hard part, and the part that some people don't get the chance to do because they are pressured into a decision by their doctors, or simple not given enough information. Sorry, didn't mean to make this seem like a novel! Hope you can find at least something that's useful to you! Re: Re: Surgery >Hi Everyone >I just thought I'd pop in here as I am sooooooooooooo confused.......as we >are at the beginning. <grin> >I was chatting to one of my students yesterday who had been away and had >not started this year yet. She had heard that I had not been well and >started chatting to me about that. When I looked at her, really looked at >her, I noticed a hair line scar along the fold line in her neck and noticed >that her eyes were much more poppy than what is normal. (I had never taken >notice to this before) Then it dawned on me.....duh. I said 'you've had >your thyroid out!' And yes she has. She said last year when I was talking >in class about what I felt like, she almost said have your thyroid checked >out but didn't thinking that I would eventually get to the bottom of it. >I asked how she was feeling and she said good, however took some time to >get the medication right for her, her eyes have remained as they are and >has been told they probably will and she avoids caffine at all costs. >Now in this story she told me her mum has had hers out also. By the way >Glynis my student is about 52 years of age. Didn't ask what year she had >the thyroid out but seems quiet a lot of years ago. But the big blow out >is that her daughter who is about 22 and works at a pharmacy here in town >has just recently had RAI. I sat for a few minutes and didn't know what to >say. Well its too late to say anything especially when I asked how she is >doing and Glynis said 'great'. So I am confused. Back to my local doctor >who said, 'what a shame you have to take the tablets, RAI is better'. I >know I know you have 'all' stopped breathing at that, but he had it. He >said it helped him. >Is it different for men? >Now back to this young women. Could she be better? Is it possible that it >was the right desision for her? Could she feel great and never have any >trouble from here on in? Only time will tell. >I was just wondering with all the surveys just recently, has there been one >done for symptoms and what we were actually experiencing at the time of >finally being told we had GD. Just would be interesting to know on this >list especially how old, what symptoms and what medication, how long it >took to feel better, what reactions to the medication etc followed after. >I know probably way too big. LOL >Just a thought >Sue > > > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue, >>>When I looked at her, really looked at her, I noticed a hair line scar >>>along the fold line in her neck and noticed that her eyes were much more >>>poppy than what is normal. (I had never taken notice to this before)<<< This made me laugh, as I can now spot a goiter a mile away on other people LOL...and I *ALWAYS* look at everyones neck and eyes now <grin>...maybe I am weird like that and now one else in group does it, I don't know, but I sure do look! >>>But the big blow out is that her daughter who is about 22 and works at a >>>pharmacy here in town has just recently had RAI. I sat for a few minutes >>>and didn't know what to say. Well its too late to say anything >>>especially when I asked how she is doing and Glynis said 'great'. So I >>>am confused. Back to my local doctor who said, 'what a shame you have to >>>take the tablets, RAI is better'. I know I know you have 'all' stopped >>>breathing at that, but he had it<<< As for this young woman, you said her mom said *recently* done the RAI. It is probably way to soon to tell how she is going to do long term. Most of us with problems have them 2/3-10 years down the road. U. had RAI at age 24, and still fights infertility today. No one can prove it was the RAI that did this to them, but it sure appears to be...and is married to a doc. I truly hope this young girl is one of the *lucky* ones who has no problems, but 10 years down the road, I wouldn't count on it. The I-131 is taken up by different organs and glands such as the reproductive organs, the kidneys, and the pancreas. Elaine has talked about on one of the boards (don't remember which one) how it has affected her pancreas. She is probably doing *great* because the hyper symptoms are disappearing, and that is a relief for all of us when that happens. It is the long term that we must consider, and I just wouldn't take chances on RAI being a *good* thing 10 years down the road...my road took only 6 months to feel the negative effects. As to how it affects men, I have no clue...men don't have as many hormonal fluctuations as women and maybe that is why some seem to do better. I know we have several men in this group, some who have done RAI, maybe they will jump in here and give comment. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue, >>>When I looked at her, really looked at her, I noticed a hair line scar >>>along the fold line in her neck and noticed that her eyes were much more >>>poppy than what is normal. (I had never taken notice to this before)<<< This made me laugh, as I can now spot a goiter a mile away on other people LOL...and I *ALWAYS* look at everyones neck and eyes now <grin>...maybe I am weird like that and now one else in group does it, I don't know, but I sure do look! >>>But the big blow out is that her daughter who is about 22 and works at a >>>pharmacy here in town has just recently had RAI. I sat for a few minutes >>>and didn't know what to say. Well its too late to say anything >>>especially when I asked how she is doing and Glynis said 'great'. So I >>>am confused. Back to my local doctor who said, 'what a shame you have to >>>take the tablets, RAI is better'. I know I know you have 'all' stopped >>>breathing at that, but he had it<<< As for this young woman, you said her mom said *recently* done the RAI. It is probably way to soon to tell how she is going to do long term. Most of us with problems have them 2/3-10 years down the road. U. had RAI at age 24, and still fights infertility today. No one can prove it was the RAI that did this to them, but it sure appears to be...and is married to a doc. I truly hope this young girl is one of the *lucky* ones who has no problems, but 10 years down the road, I wouldn't count on it. The I-131 is taken up by different organs and glands such as the reproductive organs, the kidneys, and the pancreas. Elaine has talked about on one of the boards (don't remember which one) how it has affected her pancreas. She is probably doing *great* because the hyper symptoms are disappearing, and that is a relief for all of us when that happens. It is the long term that we must consider, and I just wouldn't take chances on RAI being a *good* thing 10 years down the road...my road took only 6 months to feel the negative effects. As to how it affects men, I have no clue...men don't have as many hormonal fluctuations as women and maybe that is why some seem to do better. I know we have several men in this group, some who have done RAI, maybe they will jump in here and give comment. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Sue, >>>When I looked at her, really looked at her, I noticed a hair line scar >>>along the fold line in her neck and noticed that her eyes were much more >>>poppy than what is normal. (I had never taken notice to this before)<<< This made me laugh, as I can now spot a goiter a mile away on other people LOL...and I *ALWAYS* look at everyones neck and eyes now <grin>...maybe I am weird like that and now one else in group does it, I don't know, but I sure do look! >>>But the big blow out is that her daughter who is about 22 and works at a >>>pharmacy here in town has just recently had RAI. I sat for a few minutes >>>and didn't know what to say. Well its too late to say anything >>>especially when I asked how she is doing and Glynis said 'great'. So I >>>am confused. Back to my local doctor who said, 'what a shame you have to >>>take the tablets, RAI is better'. I know I know you have 'all' stopped >>>breathing at that, but he had it<<< As for this young woman, you said her mom said *recently* done the RAI. It is probably way to soon to tell how she is going to do long term. Most of us with problems have them 2/3-10 years down the road. U. had RAI at age 24, and still fights infertility today. No one can prove it was the RAI that did this to them, but it sure appears to be...and is married to a doc. I truly hope this young girl is one of the *lucky* ones who has no problems, but 10 years down the road, I wouldn't count on it. The I-131 is taken up by different organs and glands such as the reproductive organs, the kidneys, and the pancreas. Elaine has talked about on one of the boards (don't remember which one) how it has affected her pancreas. She is probably doing *great* because the hyper symptoms are disappearing, and that is a relief for all of us when that happens. It is the long term that we must consider, and I just wouldn't take chances on RAI being a *good* thing 10 years down the road...my road took only 6 months to feel the negative effects. As to how it affects men, I have no clue...men don't have as many hormonal fluctuations as women and maybe that is why some seem to do better. I know we have several men in this group, some who have done RAI, maybe they will jump in here and give comment. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Thanks . Your novel was just great! LOL. No seriously thank you for the support. I know that I am responding because I feel so much better, so hopefully I am not asked to have RAI. Thank you again Sue PS I will keep your findings close > Sure, it's entirely possible that her >22 year old daughter is fine after > having RAI. Personally, I don't think >I'd want to have RAI at 22. There is > so much that is not known about >future fertility issues and RAI. Which is > why in other countries RAI is >not recommended for women of childbearing age. > > The other thing to >consider is everyone has a different definition of > " " " " > after it. Then she proceeded to tell me about how she had problems getting > her synthyroid dosage right, and all the aches and pains she's had recently, > headaches she never had before, and oh, she's been having a little trouble > " " or maybe > she just didn't attribute any of her recent problems to the fact that she > had RAI previously. Who knows? > > Also, maybe this is just my observation, but it seems that people who have > " " . Maybe > they are. Maybe they felt so lousy when they were hyper that now that they > aren't, they feel better than they did before RAI. Maybe it hasn't been long > enough since they had the RAI to have experienced some of the problems that > seem to surface with time, such as problems getting the replacement hormone > dosage just right, difficulties with Graves' opthamology, etc. Again, who > knows? > > There are people for whom RAI was the right choice and they really are just > fine. I think that's terrific and I would wish everyone was that fortunate. > The only other piece of info I can add is that whenever I meet someone who > has had GD now, I ask what they did and if they have any regrets about it. > Granted I have met more that have done RAI than surgery, but what I found > was this: of those people who had RAI, the majority of them said that they > did regret it, but all those who had surgery have said they haven't > regretted it. To me, that was the most revealing statistic of all. > > The most important thing is that after weighing all information, you have to > decide what is right for YOU. It's the getting all the information to make > your decision that seems to be the hard part, and the part that some people > don't get the chance to do because they are pressured into a decision by > their doctors, or simple not given enough information. > > Sorry, didn't mean to make this seem like a novel! Hope you can find at > least something that's useful to you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Thanks . Your novel was just great! LOL. No seriously thank you for the support. I know that I am responding because I feel so much better, so hopefully I am not asked to have RAI. Thank you again Sue PS I will keep your findings close > Sure, it's entirely possible that her >22 year old daughter is fine after > having RAI. Personally, I don't think >I'd want to have RAI at 22. There is > so much that is not known about >future fertility issues and RAI. Which is > why in other countries RAI is >not recommended for women of childbearing age. > > The other thing to >consider is everyone has a different definition of > " " " " > after it. Then she proceeded to tell me about how she had problems getting > her synthyroid dosage right, and all the aches and pains she's had recently, > headaches she never had before, and oh, she's been having a little trouble > " " or maybe > she just didn't attribute any of her recent problems to the fact that she > had RAI previously. Who knows? > > Also, maybe this is just my observation, but it seems that people who have > " " . Maybe > they are. Maybe they felt so lousy when they were hyper that now that they > aren't, they feel better than they did before RAI. Maybe it hasn't been long > enough since they had the RAI to have experienced some of the problems that > seem to surface with time, such as problems getting the replacement hormone > dosage just right, difficulties with Graves' opthamology, etc. Again, who > knows? > > There are people for whom RAI was the right choice and they really are just > fine. I think that's terrific and I would wish everyone was that fortunate. > The only other piece of info I can add is that whenever I meet someone who > has had GD now, I ask what they did and if they have any regrets about it. > Granted I have met more that have done RAI than surgery, but what I found > was this: of those people who had RAI, the majority of them said that they > did regret it, but all those who had surgery have said they haven't > regretted it. To me, that was the most revealing statistic of all. > > The most important thing is that after weighing all information, you have to > decide what is right for YOU. It's the getting all the information to make > your decision that seems to be the hard part, and the part that some people > don't get the chance to do because they are pressured into a decision by > their doctors, or simple not given enough information. > > Sorry, didn't mean to make this seem like a novel! Hope you can find at > least something that's useful to you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Thanks . Your novel was just great! LOL. No seriously thank you for the support. I know that I am responding because I feel so much better, so hopefully I am not asked to have RAI. Thank you again Sue PS I will keep your findings close > Sure, it's entirely possible that her >22 year old daughter is fine after > having RAI. Personally, I don't think >I'd want to have RAI at 22. There is > so much that is not known about >future fertility issues and RAI. Which is > why in other countries RAI is >not recommended for women of childbearing age. > > The other thing to >consider is everyone has a different definition of > " " " " > after it. Then she proceeded to tell me about how she had problems getting > her synthyroid dosage right, and all the aches and pains she's had recently, > headaches she never had before, and oh, she's been having a little trouble > " " or maybe > she just didn't attribute any of her recent problems to the fact that she > had RAI previously. Who knows? > > Also, maybe this is just my observation, but it seems that people who have > " " . Maybe > they are. Maybe they felt so lousy when they were hyper that now that they > aren't, they feel better than they did before RAI. Maybe it hasn't been long > enough since they had the RAI to have experienced some of the problems that > seem to surface with time, such as problems getting the replacement hormone > dosage just right, difficulties with Graves' opthamology, etc. Again, who > knows? > > There are people for whom RAI was the right choice and they really are just > fine. I think that's terrific and I would wish everyone was that fortunate. > The only other piece of info I can add is that whenever I meet someone who > has had GD now, I ask what they did and if they have any regrets about it. > Granted I have met more that have done RAI than surgery, but what I found > was this: of those people who had RAI, the majority of them said that they > did regret it, but all those who had surgery have said they haven't > regretted it. To me, that was the most revealing statistic of all. > > The most important thing is that after weighing all information, you have to > decide what is right for YOU. It's the getting all the information to make > your decision that seems to be the hard part, and the part that some people > don't get the chance to do because they are pressured into a decision by > their doctors, or simple not given enough information. > > Sorry, didn't mean to make this seem like a novel! Hope you can find at > least something that's useful to you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Hi Jody Thank you for responding. I will see Glynis again this Friday and will ask her some more questions even suggest that she and her daughter join this group. It will be interesting to see if the daughter does have trouble. Will keep you all posted. I am too new at this to look at necks, however I guess I will from here on in. <grin> Sue At 05:49 PM 1/03/2002 -0500, you wrote: > Hi Sue, >>>>When I looked at her, really looked at her, I noticed a hair > linscar >>>>along the fold line in her neck and noticed that her eyes >were much more >>>><<< > > This made me laugh, as I can now spot a goiter >a mile away on other people ><>...maybe I am > weird like that and now >one else in group does it, I don't know, but I sure > do look! > >>>>But >the big blow out is that her daughter who is about 22 and works at a >>>> >I sat for a few minutes >>>> Well its too late to say anything >>>> So >I >>>> Back to my local doctor who said, 'what a shame you have to >>>> >I know I know you have 'all' stopped >>>><<< > > It > Most of > us with problems have them 2/3-10 years down the road. U. had RAI at > age 24, and still fights infertility today. No one can prove it was the RAI > that did this to them, but it sure appears to be...and is married to a > I truly hope this young girl is one of the *lucky* ones who has no > The I-131 is > taken up by different organs and glands such as the reproductive organs, the > Elaine has talked about on one of the boards > (don't remember which one) how it has affected her pancreas. > > She is probably doing *great* because the hyper symptoms are disappearing, > and that is a relief for all of us when that happens. It is the long term > that we must consider, and I just wouldn't take chances on RAI being a > *good* thing 10 years down the road...my road took only 6 months to feel the > negative effects. > > As to how it affects men, I have no clue...men don't have as many hormonal > I know > we have several men in this group, some who have done RAI, maybe they will > jump in here and give comment. > Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Hi Jody Thank you for responding. I will see Glynis again this Friday and will ask her some more questions even suggest that she and her daughter join this group. It will be interesting to see if the daughter does have trouble. Will keep you all posted. I am too new at this to look at necks, however I guess I will from here on in. <grin> Sue At 05:49 PM 1/03/2002 -0500, you wrote: > Hi Sue, >>>>When I looked at her, really looked at her, I noticed a hair > linscar >>>>along the fold line in her neck and noticed that her eyes >were much more >>>><<< > > This made me laugh, as I can now spot a goiter >a mile away on other people ><>...maybe I am > weird like that and now >one else in group does it, I don't know, but I sure > do look! > >>>>But >the big blow out is that her daughter who is about 22 and works at a >>>> >I sat for a few minutes >>>> Well its too late to say anything >>>> So >I >>>> Back to my local doctor who said, 'what a shame you have to >>>> >I know I know you have 'all' stopped >>>><<< > > It > Most of > us with problems have them 2/3-10 years down the road. U. had RAI at > age 24, and still fights infertility today. No one can prove it was the RAI > that did this to them, but it sure appears to be...and is married to a > I truly hope this young girl is one of the *lucky* ones who has no > The I-131 is > taken up by different organs and glands such as the reproductive organs, the > Elaine has talked about on one of the boards > (don't remember which one) how it has affected her pancreas. > > She is probably doing *great* because the hyper symptoms are disappearing, > and that is a relief for all of us when that happens. It is the long term > that we must consider, and I just wouldn't take chances on RAI being a > *good* thing 10 years down the road...my road took only 6 months to feel the > negative effects. > > As to how it affects men, I have no clue...men don't have as many hormonal > I know > we have several men in this group, some who have done RAI, maybe they will > jump in here and give comment. > Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Hi Jody Thank you for responding. I will see Glynis again this Friday and will ask her some more questions even suggest that she and her daughter join this group. It will be interesting to see if the daughter does have trouble. Will keep you all posted. I am too new at this to look at necks, however I guess I will from here on in. <grin> Sue At 05:49 PM 1/03/2002 -0500, you wrote: > Hi Sue, >>>>When I looked at her, really looked at her, I noticed a hair > linscar >>>>along the fold line in her neck and noticed that her eyes >were much more >>>><<< > > This made me laugh, as I can now spot a goiter >a mile away on other people ><>...maybe I am > weird like that and now >one else in group does it, I don't know, but I sure > do look! > >>>>But >the big blow out is that her daughter who is about 22 and works at a >>>> >I sat for a few minutes >>>> Well its too late to say anything >>>> So >I >>>> Back to my local doctor who said, 'what a shame you have to >>>> >I know I know you have 'all' stopped >>>><<< > > It > Most of > us with problems have them 2/3-10 years down the road. U. had RAI at > age 24, and still fights infertility today. No one can prove it was the RAI > that did this to them, but it sure appears to be...and is married to a > I truly hope this young girl is one of the *lucky* ones who has no > The I-131 is > taken up by different organs and glands such as the reproductive organs, the > Elaine has talked about on one of the boards > (don't remember which one) how it has affected her pancreas. > > She is probably doing *great* because the hyper symptoms are disappearing, > and that is a relief for all of us when that happens. It is the long term > that we must consider, and I just wouldn't take chances on RAI being a > *good* thing 10 years down the road...my road took only 6 months to feel the > negative effects. > > As to how it affects men, I have no clue...men don't have as many hormonal > I know > we have several men in this group, some who have done RAI, maybe they will > jump in here and give comment. > Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 If you`ve had all those operations then i`m sure you will find it no problem! I went in on the Monday afternoon and i came home on Thursday morning. I didn`t have my Carbimazole on the day of the operation. They kept meon 10mg of Carbimazole until i started going slighty underactive which they said they wanted as it made the operation easier. I had a blood test about 4 days before the operation to check my levels. I haven`t heard about what happens if you are allergic to the anti thyroid drugs but your endo will probably no a bit more about that. I know it sounds a bit selfish but you really have to just think of whats best for you at a time like this. It`s not fair if yur endo gives you a hard time. It`s not an easy decision to make as you can`t really change your mind once it`s done! I hope it all goes well for you and keep us updated on your situation. > > > Date: Fri, 01 Mar 2002 20:43:51 -0000 > To: graves_support > Subject: Re: Surgery > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 If you`ve had all those operations then i`m sure you will find it no problem! I went in on the Monday afternoon and i came home on Thursday morning. I didn`t have my Carbimazole on the day of the operation. They kept meon 10mg of Carbimazole until i started going slighty underactive which they said they wanted as it made the operation easier. I had a blood test about 4 days before the operation to check my levels. I haven`t heard about what happens if you are allergic to the anti thyroid drugs but your endo will probably no a bit more about that. I know it sounds a bit selfish but you really have to just think of whats best for you at a time like this. It`s not fair if yur endo gives you a hard time. It`s not an easy decision to make as you can`t really change your mind once it`s done! I hope it all goes well for you and keep us updated on your situation. > > > Date: Fri, 01 Mar 2002 20:43:51 -0000 > To: graves_support > Subject: Re: Surgery > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 If you`ve had all those operations then i`m sure you will find it no problem! I went in on the Monday afternoon and i came home on Thursday morning. I didn`t have my Carbimazole on the day of the operation. They kept meon 10mg of Carbimazole until i started going slighty underactive which they said they wanted as it made the operation easier. I had a blood test about 4 days before the operation to check my levels. I haven`t heard about what happens if you are allergic to the anti thyroid drugs but your endo will probably no a bit more about that. I know it sounds a bit selfish but you really have to just think of whats best for you at a time like this. It`s not fair if yur endo gives you a hard time. It`s not an easy decision to make as you can`t really change your mind once it`s done! I hope it all goes well for you and keep us updated on your situation. > > > Date: Fri, 01 Mar 2002 20:43:51 -0000 > To: graves_support > Subject: Re: Surgery > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Sonya, I have started on the lowest dose of Thyroxine hormone and at first i will have to go back every few weeks for a blood test until they get me on the correct dose that my body needs. After that i think i need to go back about once every 6 months or a year. > > > Date: Fri, 1 Mar 2002 14:47:41 -0600 > To: graves_support > Subject: RE: Re: Surgery > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 All the best for your recovery . I had surgery in 2000 and the worst part for me was the anaesthetic and some problems with calcium deficiency caused by damaged to my parathyroids. But having the surgery was a good decision for me. Take Care of yourself and rest plenty Cheers Caroline wrote: > Hi everyone, > > I came home from hospital yesterday after having a sub total thyroidectomy. > > I`m so pleased that it`s finally out of the way and i just hope i will feel better soon. > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > --------------------------------------------------------------------------------\ ------ > > Quote Link to comment Share on other sites More sharing options...
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