Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 > I have been feeling not so great for awhile, was diagnosed with > Grave's in late December. I had the radioactive pill in February, > felt okay for awhile, now I'm feeling lousy again. The doc put me on > 10 mcg of unithroid, but I don't think it's working. I have had 2 > unrelated surgeries since the pill...could the stress of that be > causing my thyroid to go haywire? I feel really bad...if someone > wants to email me off-list to point me in the direction of a website > or something, please do. Just joined this list yesterday. Heck the stress could be hurting... But 10mcg of thyroid hormone isn't exactly a substantial dose, it is a tiny fraction of what a healthy thyroid puts out each day. Most people are probably on doses from 25mcg to 170 mcg daily, although it varies based on weight, and how much remaining thyroid function you have. Probably the first thing to do is get your thyroid test results, and post them here, and people will explain how to interpret them, and check you are not being under medicated. Websites there are lots - try www.thyroid.about.com for some background reading, and other forums. Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 I had the RAI in early April, and now take 125mcg of Synthroid daily. I think I'm getting close to my right dosage, and starting to feel better. There have been plenty of ups and downs, and I think regular testing of T3/FT4 are really, really important to getting this right. I am not familiar with unithroid, but I would not be at all suprised to find you are at way to low of a dose. -- in Fla. Simon Waters wrote: > > > I have been feeling not so great for awhile, was diagnosed with > > Grave's in late December. I had the radioactive pill in February, > > felt okay for awhile, now I'm feeling lousy again. The doc put me on > > 10 mcg of unithroid, but I don't think it's working. I have had 2 > > unrelated surgeries since the pill...could the stress of that be > > causing my thyroid to go haywire? I feel really bad...if someone > > wants to email me off-list to point me in the direction of a website > > or something, please do. Just joined this list yesterday. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 KJ, There are many people here who've struggled to feel normal or even better post-RAI. You're not alone in this. Many people have been under medicated, meaning they require more thyroid hormone than their doctors prescribe OR require another type of hormone or combination. Simon sends you to a great site: check out Shomon's web site on about.com. I'd also read her book: Living Well With Hypothyroidism. What RAI does is replace one set of physical problems (hyperthyroidism) wiht another (hypothyroidism). You now need to become an expert on hypothyroidism so you can closely monitor your treatment. Lots of help here. . . B new here > I have been feeling not so great for awhile, was diagnosed with > Grave's in late December. I had the radioactive pill in February, > felt okay for awhile, now I'm feeling lousy again. The doc put me on > 10 mcg of unithroid, but I don't think it's working. I have had 2 > unrelated surgeries since the pill...could the stress of that be > causing my thyroid to go haywire? I feel really bad...if someone > wants to email me off-list to point me in the direction of a website > or something, please do. Just joined this list yesterday. > Thanks, > kj > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Hi KJ, I don't have much advice for you, most what I know applies to people before RAI who are trying to achieve remission, but I wanted to welcome you and let you know you have found a great list... there are several people here who have done RAI and are hypo, so they will have some information for you, I'm sure! Welcome! Pam B. http://www.webmosaics.com/thyroid/ " Life is what happens when you are busy making other plans " - Lennon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Hi KJ: My Joe was diagnosed with Grave's in Feb and had RAI in March. He was put on Levoxyl (synthroid) 100mcg in June, but that wasn't helping as he felt horrible all of the time. About three weeks ago in mid-July he was put on 125mcg of Levoxyl and is feeling much better -- like his " Normal self " ... although with Grave's you must realize that it has been a very long time since he felt " normal " so this is very positive. I hope you are able to find a healthcare professional who will take new labs for you and get you on a thyroid replacement dose that works for you too. Hang in there! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Hi group! Thanks for all the welcomes and support. I'm going to my doc this week and will hopefully either find a new doc or have some kind of resolution. I cannot continue feeling this lousy...to quote Dana Carvey (as G.H.W.B.) " not gonna do it-wouldn't be prudent. " kj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Welcome to the group. Congratulations on your pregnancy and your awesome weight loss. EDD 5/13/03 - Its a GIRL!!! 2/26/02 lap RNY Mommy to (9/16/94), Lexie (7/2/96), (5/1/00) New here I just found this group through the WLS site so I decided to join. My doc just told me that I am 6 to 8 weeks pregnant. I already have a son who is 5,but this pregnancy after surgery is a whole new thing. I had gastric bypass surgery in August 1999 & have lost 215 pounds. As happy as I am to be pregnant,I must admit...I am scared to death! I am hoping this will be a good place to meet peole & gather some helpful information. Thank you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Good luck and best wishes in your pregnancy! Open RNY 2-18-02 down 130 lbs born 1-16-03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Welcome to the group, and congrats on your pregnancy! You have found an awesome group of women for support and advice. Best of luck to you! Marcy Wallis Mommy to 12/10/02 Mommy to Kaitlyn 05/01/94 Wifey to Neil!!! New here I just found this group through the WLS site so I decided to join. My doc just told me that I am 6 to 8 weeks pregnant. I already have a son who is 5,but this pregnancy after surgery is a whole new thing. I had gastric bypass surgery in August 1999 & have lost 215 pounds. As happy as I am to be pregnant,I must admit...I am scared to death! I am hoping this will be a good place to meet peole & gather some helpful information. Thank you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Congrats to you & your post op pregnancy. I am 33 weeks pregnant and post op 18 months. I lost -125lbs before getting pregnant. I too have a 5yo child (a daughter). I have found being pregnant this time is much more enjoyable. Like feeling the baby move sooner, getting around better, showing like I am pregnant- not just fat LOL, wearing maternity clothes. I weighed 311 lbs the day I delivered my 1st child (post op). I will only weigh about 200 lbs when I deliver this child. I have gained 25lbs this pregnancy compared to the 71 lbs I gained with my 1st. Good Luck. Just take your vitamins and keep hydrated. in PA scheduled c section 3/7/03 w/ girl #2 open rny 4/19/01 -125 lbs > " >Reply-To: OSSG-pregnant >To: OSSG-pregnant >Subject: New here >Date: Tue, 28 Jan 2003 06:00:27 -0000 > >I just found this group through the WLS site so I decided to join. My >doc just told me that I am 6 to 8 weeks pregnant. I already have a >son who is 5,but this pregnancy after surgery is a whole new thing. I >had gastric bypass surgery in August 1999 & have lost 215 pounds. As >happy as I am to be pregnant,I must admit...I am scared to death! I >am hoping this will be a good place to meet peole & gather some >helpful information. Thank you all! > > _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 I had surgery in Aug 99 also, and in Sept 02 delivered a healthy wonderful baby boy! Good Luck! Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Welcome , and congrats on your pregnancy! Marcy New here Hi group!! I was referred here by a " sister " on " Gastric Bypass Family " . I do not know if anyone here knows of, or belongs to, that group, but thought I would mention it. I have just subscribed, as in about a minute ago, so I haven't had time to look through many of the archives. I had Open RNY on 10/16/02, and I am 11 weeks pregnant. I have lost, so far, 65 pounds. I would like to know if there is anyone out here who is in a similar situation as I. I am scared, worried and stressed, and would like to share experiences if possible with anyone who can help me. Everyone I have talked to so far has had their babies far post op, as in a year or more afterwards. This was my intention, but my husband and I have been blessed a little earlier than anticipated. I was on BCP's, but was also on antibiotics for infection in my incision, and having a wisdom tooth pulled, and missed a pill as well, so I guess that is what could have done it, a combination of all, or just one. I am sure this will be a helpful group, and look forward to hearing from some of you. Thanks in advance, in Illinois. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 , Welcome and congrats! I was scared as well when I got pregnant at only 7 weeks post-op. My son was born on 1-16-03 and is just beautiful! This pregnancy was harder for me than my pre-op pregnancy but it all worked out well. I did decide to go to a Perinatologist (high risk OB) for this pregnancy. Any questions feel free to ask. This great group of woman helped me tremendously when I was nervous and pregnant. Dubin Open RNY 2-18-02 down 158lbs Mommy to: born 1-16-03 ~and~ andra Marie (born still at 36 weeks gestation on 3-14-98) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Hi , relax, hold on tight, enjoy the ride.....LOL I had the open RNY on 05/13/02 and am now 33 1/2 weeks pregnant. I got " lucky " about 8 weeks out of surgery. This is truly a miracle Baby for us. We have one daughter that will be 6 years old in May and were told without fertility drugs I would not be able to conceive again (by 5 different doctors)...well, here I am... I went into surgery with 284 pounds and am currently 184.8....I have been down to 181 pounds before, but my weight at this point of time is really fluctuating from week to week due to the pregnancy. Sometimes I have gained a pound....sometimes I have lost a pound. I was closely monitored by my surgeon and my OB Doctor and currently everything is on track. I am in a high risk category...BUT it has NOTHING to due with the gastric bypass surgery. My cervix is incompetent and I had to have a cerclage to hold Baby in at about 16 weeks. If you have any questions.....don't hesitate to ask.....I'll be more than happy to let you know what I had to do...... Good Luck....and again...don't stress...not good for the Baby....LOL Hugs, Petra > Hi group!! I was referred here by a " sister " on " Gastric Bypass > Family " . I do not know if anyone here knows of, or belongs to, that > group, but thought I would mention it. > > I have just subscribed, as in about a minute ago, so I haven't had > time to look through many of the archives. I had Open RNY on > 10/16/02, and I am 11 weeks pregnant. I have lost, so far, 65 pounds. > > I would like to know if there is anyone out here who is in a similar > situation as I. I am scared, worried and stressed, and would like to > share experiences if possible with anyone who can help me. Everyone I > have talked to so far has had their babies far post op, as in a year > or more afterwards. This was my intention, but my husband and I have > been blessed a little earlier than anticipated. I was on BCP's, but > was also on antibiotics for infection in my incision, and having a > wisdom tooth pulled, and missed a pill as well, so I guess that is > what could have done it, a combination of all, or just one. > > I am sure this will be a helpful group, and look forward to hearing > from some of you. > > Thanks in advance, > in Illinois. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi, I am . I had Lap RNY on July 26, 2002, and just found out 2 weeks ago that we were expecting our first child. At first, I was terrified, because I was only 6 months post op, but after discussing with my surgeon's office, OB doctor, and the high risk specialist, I feel a lot better. My starting weight was 233.5, and I am down to 158 (-76 pounds). Like you, doctors had told me that without losing a substantial amount of weight ( I am barely 5'2 " ), we would not be able to conceive, so we were quite shocked when it happened after trying for so many years prior to my surgery. I have Polycystic ovaries, and that was one of the main problems that was agravated further by being so much overweight. I am so glad that this website is available to share with people in the same situation with me. For those of you that got pregnant so soon post op, did you continue to lose weight or did you stop losing and gain some, etc.? Did your pouch stretch out while you were pregnant and how did you do after delivery? Did you lose weight fairly easily? Sorry for all of the questions, I just know that the best resource are people that have experienced first hand. I haven't gained any weight yet, but I am only going on 8 weeks. We are due 10/29/03. Have a great day! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Hi Jill, Welcome to the group! I certainly don't mind having you here at ALL! It's great having a place to come for information, even if you havent gotten to the " pregnant " stage yet. I have 2 children. My first was PRE WLS, and I got pregnant with my 2nd 1 year and 9 months after WLS. You have done a great job in your weight loss so far, keep up the good work. Depending on how much weight you want to lose, you don't necessarily have to wait the 18 months to try and conceive. But make sure you and your doctor are ok with you trying once you decide to after you have maximized your weight loss. Best of luck to you, and I look forward to watching your progress! Marcy Wallis lap rny 06/15/00 Mommy to 12/10/02 Mommy to Kaitlyn 05/01/94 Wifey to Neil!!! New Here Hi all, just wanted to introduce myself. My name is Jill, I'm 25 years old. I just had surgery 4 1/2 weeks ago. My new b-day is 2/28/03. I'm now down 58lbs. I started out at 352 and I'm now 294. Anyways, I'm married and we already have 3 children but we've decided we want to have one more. I know I have to wait at least 18 mos. but I want to find out about other womens experiences with everything. And try to be prepared for what's going to come when we're ready I hope nobody minds too much about my joining. I'm looking forward to meeting you all and making new friends. Take care. ~Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 It is best to see a resurfing doctor for an assessment. The data for BHR (Birmingham Hip Resurfacing, done in the UK and Europe) supports 12 years -- meaning that they've been putting them in that long and have no pattern of failure. Next year, they'll tell you 13 years. However, I was told that the expectation is that this should last the rest of my life. I'm 42. There are many factors at work here (bone stock, degree of deformity, etc., etc.) so your mileage will vary. Cheers, Jeff rBHR Aug. 1, 2001 Mr. McMinn >san anyome tell me..if everything was optimal..what kind of >longevity a surface hippie san expect out of the operation. is this >something that is expected to last like a thr..up to 20 years..i >mean if conditions are perfect? i understand the if's of >everything..but, is it assumed that at one point in your life you >will HAVE to HAVE a THR? >i am 52 and don't expect to live forever..70's would be nice >though...and i wonder if it COULD/MIGHT last that long? >what do the docs tell you guys? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 For what it is worth, we asked Dr. DeSmet the same question. While he would not promise more than the data supports, it was his instinct/best guess that our BhRs would last forever. This is just his instinct/educated guess - he would never make a claim to this effect, but Dr. DeSmet's instinct means alot to me. His educated guess is that the metal itself should last another 130 years at a minimum (discounted from 500 years for hard wear). As for bone stock issues, his experience was that bone quality in the neck of femur improves over time because of the way weight is loaded. He felt our natural hips are at much greater danger than our BHR hips. > >san anyome tell me..if everything was optimal..what kind of > >longevity a surface hippie san expect out of the operation. is this > >something that is expected to last like a thr..up to 20 years..i > >mean if conditions are perfect? i understand the if's of > >everything..but, is it assumed that at one point in your life you > >will HAVE to HAVE a THR? > >i am 52 and don't expect to live forever..70's would be nice > >though...and i wonder if it COULD/MIGHT last that long? > >what do the docs tell you guys? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 I wanted to say welcome, and good luck. you are scheduled for surgery the same day as i will have my baby...you are in my prayers Robin RNY 2/27/2002 Little 07/01/03 5 precious children to light the way Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 what does stage four mean? does stage four mean that it has spread? what were his first symptoms? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 It sounds as if your husband's tumor is fairly low. There are two reasons for waiting for surgery, as I think you probably know by now - first, doing radiation and chemo beforehand can shrink the tumor to where a colostomy is not required - the extra cm or so allows the surgeons to reconnect the rectum after taking out the tumor. Second - keep this in mind - it is also associated with lowering the chance of recurrance. Hopefully, surgery will be able to clean everything up and there will be no further evidence of metastatic disease or even lymph node involvement; if that is the case, the investment up front could have substantial dividends down the road. One thing that I can relate - the pump is for the birds. Depending on what is being delivered, if it is 5FU alone, you might consider asking about the pill, Xeloda. From what I read and from what my docs say (there have been some studies in the past six months or so further supporting it), it is just as effective and it is definitely more humane. Be strong and hang in there - you guys can and will beat it. As has been discussed fairly frequently in the forum, I would make sure that you find a board certified surgeon (colorectal, that is) to do the procedure. Joe http://www.cancerdaytoday.blogspot.com > > My husband was just diagnoses 2 weeks ago with rectal cancer. We > have been on a rollercoaster since. He has started chemo and > radiation last Thursday, chemo through a cont. pump. He will have to > wait until Jan or Feb to have surgery, we wish they would just take > the tumor out but they have to shrink it first. We would love to > here from anyone who was or is going through the same thing. > Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hello all I have recently found this board, and have been doing some reading. I hope I can keep you all straight, there are lots of names to remember. First of all, I want to say God bless you all! I am a colon cancer (stage 4) survivor. I was diagnosed in December 2003. I know you all know.. from the moment of my diagnosis it was many, many visits to Dr's, scans, tests, more tests and finally on December 22nd, 2003, I started a regimine of Chemo (5fu 24 x 7 pump) and 28 treatments of radiation. The cancer had spread to my lung, vaginal wall, and bladder. After radiation (damage) I had to have emergency surgery on February 20th, 2004. That was to fix a fistula that had develped from the radiation. It wasn't until I was on the operating table that it was discovered on my bladder. I have an EXCELLENT colo/rectal surgeon. She called a urologist to assist her in surgery once she determined it was on the bladder, he is an excellent doctor as well. My oncologist, who is also excellent put me on more chemo after recovery from surgery. Avastin was approved the week I was in the hospital. The surgeon got my tumor " with good margins " . That was great news to wake up to. I had a portacath put in prior to my new chemo regimine the end of April 2004. I had 13 treatments of 5fu/oxiliplatin/leukovoren. In September 2004 my pet scan showed clean. Due to another formed fistula, again becasue of radiation, I have had a leaky bladder since the last surgery. The bladder didn't heal. So, this past December 7th, 2004 I had surgery to attempt a repair of the leaky bladder, I am currently recobeing at home and have a cathedar, which will be removed on Monday, January 3rd. At that time, we will find out if it healed properly. I'm praying hard! While I was in for surgery..performed by the same colo/rectal surgeon, and urologist, they did some exploratory surgery while in there. There was no evidence of cancer in my abdomen. My original surgery casued me to have a colostomy. It's not such a bad thing to live with. I will add to this post I live in Minnesota, and am a 44 year old mommy to 3 elementary aged children, 2 boys and a girl, and have been married to Tom for 12 1/2 years.. he is a real trooper, and a huge support to me! A wonderful caregiver. I never know how to put in writing what I have endured over the last year.. and hope this post is easy to follow. I tend to skip around, because there is so much. My dear husband has made a website for me, if anyone is interested I can post it. It is so nice to meet all of you.. and I have room for each of you on my prayer list! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Wow .. You are surely and truly a survivor. I am glad you found this group. I will start my adventure next week. That guy of yours is definitely a keeper. How did the kids deal with the situation? I have grandkids living with me and they are pretty accepting about things. My youngest granddaughter loves to give shots. She makes sure I know they are going to hurt so I can yell. Kids!!! Be sure to keep us informed... Yes post the website. Hey I am orginally from North Dakota, have sis in Detroit Lakes... Cheers Jolene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 , What a sweet woman! And your warmth and friendliness is a wonderful addition to the group. I'm so sorry to hear about the radiation damage though - and a little angry about it too. I was warned, prior to having the radiation done, by a wonderful woman named Joyce, that to prevent that kind of damage to drink lots and lots of water while going through the treatments. Perhaps it couldn't be prevented in your case, but this is an opportunity to pass on the same knowledge to others that maybe facing this treatment. Even if it only lessens the trauma of the radiation treatment to the body it is worth mentioning. I am 43, with rectal cancer. I have a temporary ileostomy that hopefully will be reversed in a couple of weeks. I was stage IIIA at first, with one tumor and one lymph involved. The tumor was significantly reduced by chemo/rad concurrent treatment prior to surgery. Through all of this I feel I have been very fortunate with my treatments, though it hasn't been easy. The folks here and on other boards have been lifesavers! Your onc and surgeon are to be commended. Sounds as though they are working as a team and really trying to take the best care of you! I have no children, and can only imagine how much more difficult this course must be with worrying about them and it sounds like you have a great marriage as well. These are powerful incentives to hang on to! You have a found a good place for questions and support. Welcome, ! Blessings, Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 In a message dated 12/30/2004 6:13:20 PM Mountain Standard Time, scrappertt@... writes: http://www.sitelibrarian.com/teresa/.html<http://www.sitelibrarian.com/t eresa/.html Wonderful pictures! Thank you for sharing! Sheila Quote Link to comment Share on other sites More sharing options...
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