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CF genes & misc.

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Hi all!

I haven't written in a long time, but have been reading posts.

Just wanted to update on Abigail's progress. She received the ABI vest in

October, and since then, whether it be coincidence or the vest, she has not been

sick this pre-school year. Last year she was sick in pre-school from October

thru May. Kindergarden registration is next week, and I'm a little apprehensive

about sending her. She sleeps 12 hours a night, and kindergarden is an all day

event. When will there be time to do nebs, vest, meds, bath, and eating before

she has to go to sleep?!?

About CF mutations... We're expecting another baby in a couple of months.

I had a CVS done and this baby is just a carrier. But...this is something that

I never knew, there is a chance (1 in 375) that this baby could mutate

a completely different gene and therefore have 2 CF genes and have CF. Has

anyone heard of that? I'd be curious to know, since I've gotten conflicting

answers from different docs.

Thanks

mom to Abigail almost 5 w/cf

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