Information

[Guest guest]

Once again, thank you all for your comments and suggestions. Very

helpful and supportive.

I have come to the conclusion after sitting here reading on and off

for the past few days that sometimes, we just have to grab a cup of

coffee, sit back and relax and laugh. I have noticed it only takes a

moment to read something new and/or disturbing, and even less time to

react strongly. But it takes 100X longer to reasearch it thoroughly

enough to gain enough understanding of the complete issue. Ex: The

devastation at hearing the word " tumor " and my uterus in the same

sentence. Our natural reaction is to fear the worst. However, once I

researched the term Fibroid Tumor, of course I realized how silly my

panic was. Doctors often forget the average person is not as

knowledgeable or able to comprehend mumbo jumbo without it being

broken down into plain english. (Especially when still in momentary

shock at the diagnosis...aka " All I heard was tumor and my brain

froze " . Mine are pretty good at explaining, and if not, I simply keeps

questioning until I get the answers I need.

Reading information here about fibroids and other health issues can

cause the same reaction. But rather than panic, I now keep 2 browsers

open. One to read here and the other to search and research....LOL. I

still get angry and often disgusted in regards to health care issues

now and then, but at least I don't panic near as much.

Thanks for the reassurance backed with eduacated insight and

information. You gals are great!

[Guest guest]

Jodi -- we're glad that you found us too. We know lots when it comes to PLS

but still have lots to learn since we are all different. Where does you dad

live? We have patient " Connections " all over the country and maybe he lives

close to where we have one scheduled. See http://sp-foundation.org/ At this

website you will find all kinds of

information. Also, see

http://www.geocities.com/freyerse/plsdb.html (a database where lots of PLSers

are listed)

Hopefully we'll hear from him.

Gentner

Fremont, CA

Alone we can do so little. Together we can do so much.

Helen Keller (1880-1968)

[Guest guest]

Jodi,

Your fathers case is so similar to so many here. If you have been reading

then you understand how frustrating it can be. This group really helps one cope.

A positive attitude is definitely the best defense.

[Guest guest]

Tell to come home to a family, for that is what we truly are. He is

blessed to have a child like you and I hope he comes on soon.

dale

Information

> HEllo,

> My dad just went to a specialist a week ago and they think he has

> PLS. Thank the Lord someone may know what is wrong with him and that

> it is not ALS. For about two years his Large motor skills have been

> going down hill. He started dragging his feet, then could not

> balance very well and would fall every once in awhile. His toes have

> been doing funky things and his legs cramp at night. His muscle mass

> is great and speech too. He has been wlking with a cane for months

> now and for the past year and a half he has been through every test

> many times. It is so frustrating that nobody can tell him what is

> wrong. The doctor last week said it may be PLS. So as a concerned

> dady's girl I immediately got on the internet and found this group.

> I have learned so much from all of you that today my brother and I

> are going to dad's to let him know what I found out. I wanted to be

> able to tell him positive stuff so he will go into this life style

> change with a positive attitude instead of negative. I just wnat to

> thank everyone who is speaking out on this disease because you have

> no idea how much this has helped me and will eventually help my dad.

> I will tell him about this group because I believe that he needs

> support from fellow PLS friends. His name is and I would

> apprecite any prayers from any of you to help him through this and to

> stay strong and positive!

> GOd bless!

> Jodi

>

>

>

>

>

[Guest guest]

Hi Jodi,

You are a great daughter. Your dad is very blessed. Yes, tell him that he

should come on board and spend time lurking first and if he likes what he sees

we welcome his comments. We are here for each other. I'm sure he will be happy

to know that he is not alone. Well, take care.

God Bless

Yolanda

Information

HEllo,

My dad just went to a specialist a week ago and they think he has

PLS. Thank the Lord someone may know what is wrong with him and that

it is not ALS. For about two years his Large motor skills have been

going down hill. He started dragging his feet, then could not

balance very well and would fall every once in awhile. His toes have

been doing funky things and his legs cramp at night. His muscle mass

is great and speech too. He has been wlking with a cane for months

now and for the past year and a half he has been through every test

many times. It is so frustrating that nobody can tell him what is

wrong. The doctor last week said it may be PLS. So as a concerned

dady's girl I immediately got on the internet and found this group.

I have learned so much from all of you that today my brother and I

are going to dad's to let him know what I found out. I wanted to be

able to tell him positive stuff so he will go into this life style

change with a positive attitude instead of negative. I just wnat to

thank everyone who is speaking out on this disease because you have

no idea how much this has helped me and will eventually help my dad.

I will tell him about this group because I believe that he needs

support from fellow PLS friends. His name is and I would

apprecite any prayers from any of you to help him through this and to

stay strong and positive!

GOd bless!

Jodi