RE: Patients of Dr. Armstrong needed

[Guest guest]

Dear Jen, I am sorry you are having such difficulty finding a doctor to help

you with your scleraderma. This disease is frightening enough when " everything

is going right " so I can only imagine how afraid you must be " hanging out in

limbo " , fighting for something for your own body which is being denied you.

Don't give up. I am one scleraderma patient on the AP and while I cannot say I

am getting totally well, I can tell you my disease is not as aggressive as many

others. So I will be pulling for you. And keep us all informed here how you

manage in regard to doctor and treatment. This is your family here - lots of

ups and downs and frustrations and nightmares. But there are highpoints and

good sides, too, and one of those is all the information to be gleaned from

others here and the other is that you are not alone. I only wish I had used the

doctor so I could help you there, but can't. Love,

Adlard wrote:

> This lady would like to talk to patients of Armstrong.

> Thanks, Chris.

> ****** Forwarded Message Follows *******

>

> Hi thank you so much for the list. Unfortunately, I have tried three

> of the doctors on the list and they have all refused to do it on scleroderma

> patients. They all agree that it works on RA, but say that there are no

> studies done on scleroderma, they believe I should continue to stay on the

> methotrexate. I feel so desperate and depressed. I haven't tried

> Armstrong yet-I will make an appt ASAP. Thanks for all your help. If you can

> link me up with one of her patients, that would be great! Thanks.

> Jen

>

> ------------------------------------------------------------------------

> To email plain text is conventional, to add graphics is devine.

> We'll show you how at www.supersig.com.

> 1/6811/0/_/532797/_/963290086/

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>

> To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Though minimal, studies have been done (MIRA). Dr. Trentham is conducting a

larger study presently.

Scleroderma Minocycline Study:

6 out of 11 patients with early, but severe diffuse scleroderma finished 1

year of minocycline. At the end of 1 year, 4 of the 6 had complete

resolution of their skin disease and 3 of the 4 had normal patient and

physician assessments. These results are significantly superior to those

normally seen in drug studies for scleroderma patients. C Le, A Morales, DE

Trentham, Minocycline in Early Diffuse Scleroderma, Lancet, 1998, 352:9142,

pgs. 1755-1756

rheumatic Patients of Dr. Armstrong needed

This lady would like to talk to patients of Armstrong.

Thanks, Chris.

****** Forwarded Message Follows *******

Hi thank you so much for the list. Unfortunately, I have tried three

of the doctors on the list and they have all refused to do it on scleroderma

patients. They all agree that it works on RA, but say that there are no

studies done on scleroderma, they believe I should continue to stay on the

methotrexate. I feel so desperate and depressed. I haven't tried

Armstrong yet-I will make an appt ASAP. Thanks for all your help. If you can

link me up with one of her patients, that would be great! Thanks.

Jen

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