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Hi Dianne,

My little girl Ellie got her hearing aids at 2 1/2 months and I had the

same problem you are having. We tried hats but that seemed to make them

squeal and we tried the huggies but that just gave her a handle to pull on.

So eventually I went to a beauty supple store and bought toupee tape. I

would put a small strip behind each ear and they stayed on great. When we

would take them off her at night or for naps behind her ear would be a

little red but that would go away by the next time we went to put them on.

She never developed a rash. And the best thing was that they never flopped

around or flipped over her ear.

Good Luck.

mom to Ellie 3 going on 15.

Reply-To: Listen-Up

To: <Listen-Up >

Subject: New Member

Date: Mon, 8 Mar 2004 11:40:12 -0600

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I appreciate everyone's advice. I spoke with Liam's audiologist concerning

my frustration and she said that there is a good chance he outgrew his

molds. He will get fitted for new ones Thursday, but then we have to wait

for them to come in. Until then, I will try some of the suggestions

everyone has made. We have the huggies and I can't imagine them staying on

at all without them but I will try it too. We have the Critter Clip but

took it off the day we got the HAs. I will look into the Safe N Sound

clips. The toupee tape is an interesting suggestion - we will try anything!

We tried using a hat to keep them on - I asked the audie if a hat would

muffle the sound and she didn't seem to think so. Checking it with the

testing scope is a good idea too. It is comforting knowing that it isn't

something that I am doing wrong! I'm sure this is just the first of the

many struggles we will face.

New Member

Date: Mon, 8 Mar 2004 11:40:12 -0600

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I appreciate everyone's advice. I spoke with Liam's audiologist concerning

my frustration and she said that there is a good chance he outgrew his

molds. He will get fitted for new ones Thursday, but then we have to wait

for them to come in. Until then, I will try some of the suggestions

everyone has made. We have the huggies and I can't imagine them staying on

at all without them but I will try it too. We have the Critter Clip but

took it off the day we got the HAs. I will look into the Safe N Sound

clips. The toupee tape is an interesting suggestion - we will try anything!

We tried using a hat to keep them on - I asked the audie if a hat would

muffle the sound and she didn't seem to think so. Checking it with the

testing scope is a good idea too. It is comforting knowing that it isn't

something that I am doing wrong! I'm sure this is just the first of the

many struggles we will face.

New Member

Date: Mon, 8 Mar 2004 11:40:12 -0600

_________________________________________________________________

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http://clk.atdmt.com/AVE/go/onm00200413ave/direct/01/

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Dianne-

Don't become anxious that it will be a long struggle to keep Liam in his aids.

When earmolds don't fit, they can be uncomfortable, or at least annoying. This

may be especially true for Liam, as his ears haven't had the opportunity to

" toughen up " (no, he won't develop huge calluses in his ears! the skin will

just become used to have the slight pressure of the earmold). Have you been

lubricating his molds? When molds are a tighter fit, we have used KY jelly to

slide them in (Vaseline, OtoEase and lanolin can also work, but we have the best

success with KY, plus you can buy the small tubes that are easy to cart around).

When molds are loose and/or when there is feedback, we use OtoFerm to help the

molds stick to the ears.

A pediatric audiologist is well used to earmolds that are outgrown within

minutes. We have gone through times when we have done molds every 10 days or

so, depending on Hadley's growth spurts. More often than not, we make

impressions every time we pick up new molds, just to be on the safe side.

Hadley is now 2 1/2 years and is still flying through molds; our audi just tries

different techniques from time to time to get a better fit, but the fact is, her

face is changing and her body is growing, so she'll grow out of molds quickly

(I'm amazed about the 3 year old who hasn't had new molds in almost a year--

we've done 5 sets in 6 months!).

In terms of the adjustment to the aids, you may want to be aware of the sounds

in the house when Liam is first starting to wear aids. Hadley was a little

older than Liam when she got her first set at 6 months, but we kept things quiet

for the first week or two so she would acclimate to the world of hearing. That

meant only running appliances at night, not playing music, not being in large

groups of people (although she did tolerate a 50 person Easter celebration 5

days after getting them!), using quieter voices, etc. That might be harder to

do with another child in the house, but you could incorporate Jack into the game

of introducing Liam to sounds. Another approach we took was to spend several of

the early days focused on doing some of Hadley's favorite things (at the time,

reading, swinging, dancing, and holding her in a baby carrier). With her

attention diverted elsewhere, she was less likely to explore her ears.

If you become very frustrated with Liam taking off his molds, just remember--

all that practice with adjusting the aids, inserting them over and over, will

make you an expert very very quickly!

One more thing-- does Liam use a pediatric hook for his aids (the part that

connects the mold to the aid, some audis call them tone hooks or J hooks). An

adult sized hook will invariably flop the aids over his ears, but a pediatric

hook, which is about half the length, will keep them on nicely. Hadley used a

pediatric hook until about 2 years.

You also might want to check out the book " Not Deaf Enough " by

Cavendish. It's one of the few books out there specifically about a child with

a mild/moderate loss.

Best of luck to you!

Kerry

Mom to Hadley, 2 1/2, severe bilateral loss, Cx26, Siemen Triano SP, AVT

New Member

Date: Mon, 8 Mar 2004 11:40:12 -0600

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Guest guest

Thanks for the support! What is OtoFerm? Where can I get it? I have been

online and found the book Not Deaf Enough and wondered if it was any good. I

will look into getting it. I like the idea of having him fitted when we pick up

the new ones. I'll find out about that . Also, as a newbie, I am not familiar

with the notes written at the bottom of messeges; ie " Cx26, Siemen Triano SP,

AVT " . What does that mean? I'm still learning! Thanks again!

New Member

Date: Mon, 8 Mar 2004 11:40:12 -0600

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Guest guest

Hi Diane,

Our daughter Kate, has been aided since she was 4 months old. I can sure

sympathize with you about trying to keep those aids in!! Our audiologist

gave us samples of most of the items available for securing aids so we

could try them out. For us, most turned out to be awkward or

uncomfortable ... except: the critter clips (like glasses holders which

loop around each aid then clip to clothes) are what we used when leaving

the house, and dropping and losing the aids was a real concern - these do

tend to be another thing the child can grab onto though. Recently we

tried the Safe'n'Sound strap (not clip) to keep her new, bigger aids from

flopping, and found that to be really good. I think, unfortunately,

while the child is horizontal and rubbing his head all around, you'll

just be playing fetch'em a lot :) Then once he learns to take the aids

out and throw them to get your attention you'll be playing find'em AND

fetch'em!! ;)

Good luck, and welcome to the group - I have learned so much from all the

parents here!

in CO, mom to:

(4.9) - hearing

Kate (2.9) - mod/sev bi-lat, digital aids & glasses

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Guest guest

Hi Diane,

Our daughter Kate, has been aided since she was 4 months old. I can sure

sympathize with you about trying to keep those aids in!! Our audiologist

gave us samples of most of the items available for securing aids so we

could try them out. For us, most turned out to be awkward or

uncomfortable ... except: the critter clips (like glasses holders which

loop around each aid then clip to clothes) are what we used when leaving

the house, and dropping and losing the aids was a real concern - these do

tend to be another thing the child can grab onto though. Recently we

tried the Safe'n'Sound strap (not clip) to keep her new, bigger aids from

flopping, and found that to be really good. I think, unfortunately,

while the child is horizontal and rubbing his head all around, you'll

just be playing fetch'em a lot :) Then once he learns to take the aids

out and throw them to get your attention you'll be playing find'em AND

fetch'em!! ;)

Good luck, and welcome to the group - I have learned so much from all the

parents here!

in CO, mom to:

(4.9) - hearing

Kate (2.9) - mod/sev bi-lat, digital aids & glasses

________________________________________________________________

The best thing to hit the Internet in years - Juno SpeedBand!

Surf the Web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

Link to comment
Share on other sites

Guest guest

Hi Diane,

Our daughter Kate, has been aided since she was 4 months old. I can sure

sympathize with you about trying to keep those aids in!! Our audiologist

gave us samples of most of the items available for securing aids so we

could try them out. For us, most turned out to be awkward or

uncomfortable ... except: the critter clips (like glasses holders which

loop around each aid then clip to clothes) are what we used when leaving

the house, and dropping and losing the aids was a real concern - these do

tend to be another thing the child can grab onto though. Recently we

tried the Safe'n'Sound strap (not clip) to keep her new, bigger aids from

flopping, and found that to be really good. I think, unfortunately,

while the child is horizontal and rubbing his head all around, you'll

just be playing fetch'em a lot :) Then once he learns to take the aids

out and throw them to get your attention you'll be playing find'em AND

fetch'em!! ;)

Good luck, and welcome to the group - I have learned so much from all the

parents here!

in CO, mom to:

(4.9) - hearing

Kate (2.9) - mod/sev bi-lat, digital aids & glasses

________________________________________________________________

The best thing to hit the Internet in years - Juno SpeedBand!

Surf the Web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

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Share on other sites

  • 3 weeks later...
Guest guest

,

Welcome. My son has a mild loss, but acts as if he is deaf. He doesn't wear

hearing aids and we are trying to get him an FM. We also use TC. My son is 3

yrs. and has just started school in Jan. It's nice that you are here, I hope

you can get lots of support and info here.

New Member

Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

wears hearing aids and sometimes uses a FM at school. We are doing

total comunication. He is going to Pre-K. Next year he will be in

kindergarten. He has an interperter. We live in Purvis, MS.

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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Guest guest

,

Welcome. My son has a mild loss, but acts as if he is deaf. He doesn't wear

hearing aids and we are trying to get him an FM. We also use TC. My son is 3

yrs. and has just started school in Jan. It's nice that you are here, I hope

you can get lots of support and info here.

New Member

Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

wears hearing aids and sometimes uses a FM at school. We are doing

total comunication. He is going to Pre-K. Next year he will be in

kindergarten. He has an interperter. We live in Purvis, MS.

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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Guest guest

,

Welcome. My son has a mild loss, but acts as if he is deaf. He doesn't wear

hearing aids and we are trying to get him an FM. We also use TC. My son is 3

yrs. and has just started school in Jan. It's nice that you are here, I hope

you can get lots of support and info here.

New Member

Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

wears hearing aids and sometimes uses a FM at school. We are doing

total comunication. He is going to Pre-K. Next year he will be in

kindergarten. He has an interperter. We live in Purvis, MS.

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

------------------------------------------------------------------------------

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Guest guest

Hi ,

Welcome to this wonderful group... I have learned soooo much just

reading the posts! My son is hearing impaired and wears hearing aids.

He will be 4 in May and stays with me during the day at the nursery my

company provides. We go to auditory verbal therapy 1x a week. We are

only thinking about school... I am very nervous needless to say. (I see

you are from MS - We live in Alabama)

Tillery

Ian 3.8 yrs (Moderate/Severe_Aided)

Emma 8 (Hearing)

> Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

> wears hearing aids and sometimes uses a FM at school. We are doing

> total comunication. He is going to Pre-K. Next year he will be in

> kindergarten. He has an interperter. We live in Purvis, MS.

>

>

>

> All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject

> to copyright restrictions.

>

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Guest guest

Hi ,

Welcome to this wonderful group... I have learned soooo much just

reading the posts! My son is hearing impaired and wears hearing aids.

He will be 4 in May and stays with me during the day at the nursery my

company provides. We go to auditory verbal therapy 1x a week. We are

only thinking about school... I am very nervous needless to say. (I see

you are from MS - We live in Alabama)

Tillery

Ian 3.8 yrs (Moderate/Severe_Aided)

Emma 8 (Hearing)

> Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

> wears hearing aids and sometimes uses a FM at school. We are doing

> total comunication. He is going to Pre-K. Next year he will be in

> kindergarten. He has an interperter. We live in Purvis, MS.

>

>

>

> All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject

> to copyright restrictions.

>

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Guest guest

Welcome, !

My son, Ben, is also 5, severe-to-profound HOH since birth, wears Widex

Senso P38s and uses an FM at school. He's currently in an oral kindergarten

program specifically for kids with hearing, speech and language issues.

So glad you found this list -- it's a good one!

Stefanie

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Guest guest

Welcome, !

My son, Ben, is also 5, severe-to-profound HOH since birth, wears Widex

Senso P38s and uses an FM at school. He's currently in an oral kindergarten

program specifically for kids with hearing, speech and language issues.

So glad you found this list -- it's a good one!

Stefanie

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Share on other sites

Guest guest

Welcome, !

My son, Ben, is also 5, severe-to-profound HOH since birth, wears Widex

Senso P38s and uses an FM at school. He's currently in an oral kindergarten

program specifically for kids with hearing, speech and language issues.

So glad you found this list -- it's a good one!

Stefanie

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Guest guest

Welcome to the group . I'm een and I'm from northern Illinois. My son

Ian is 6 and has a profound loss in high frequencies only due to LVAS. He

doesn't wear aids because his hearing in the speech frequencies is good.

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Guest guest

Welcome to the group . I'm een and I'm from northern Illinois. My son

Ian is 6 and has a profound loss in high frequencies only due to LVAS. He

doesn't wear aids because his hearing in the speech frequencies is good.

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Guest guest

Welcome to the group . I'm een and I'm from northern Illinois. My son

Ian is 6 and has a profound loss in high frequencies only due to LVAS. He

doesn't wear aids because his hearing in the speech frequencies is good.

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Guest guest

I know exactly how you feel. My son has been going to Pre-Kindergarten

since he was 2, but next year he will be going to regular kindergarten. I am

dreading this. His teachers now says he will be fine. He has an interperter

and she will be moving up with him.

I don't know any parents from around here that has a child with deafness.

Last year, my son went to school with one but they moved and I don't know

where. But maybe I can find someone so he can play with.

-- Re: New Member

Hi ,

Welcome to this wonderful group... I have learned soooo much just

reading the posts! My son is hearing impaired and wears hearing aids.

He will be 4 in May and stays with me during the day at the nursery my

company provides. We go to auditory verbal therapy 1x a week. We are

only thinking about school... I am very nervous needless to say. (I see

you are from MS - We live in Alabama)

Tillery

Ian 3.8 yrs (Moderate/Severe_Aided)

Emma 8 (Hearing)

> Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

> wears hearing aids and sometimes uses a FM at school. We are doing

> total comunication. He is going to Pre-K. Next year he will be in

> kindergarten. He has an interperter. We live in Purvis, MS.

>

>

>

> All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject

> to copyright restrictions.

>

Link to comment
Share on other sites

Guest guest

I know exactly how you feel. My son has been going to Pre-Kindergarten

since he was 2, but next year he will be going to regular kindergarten. I am

dreading this. His teachers now says he will be fine. He has an interperter

and she will be moving up with him.

I don't know any parents from around here that has a child with deafness.

Last year, my son went to school with one but they moved and I don't know

where. But maybe I can find someone so he can play with.

-- Re: New Member

Hi ,

Welcome to this wonderful group... I have learned soooo much just

reading the posts! My son is hearing impaired and wears hearing aids.

He will be 4 in May and stays with me during the day at the nursery my

company provides. We go to auditory verbal therapy 1x a week. We are

only thinking about school... I am very nervous needless to say. (I see

you are from MS - We live in Alabama)

Tillery

Ian 3.8 yrs (Moderate/Severe_Aided)

Emma 8 (Hearing)

> Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

> wears hearing aids and sometimes uses a FM at school. We are doing

> total comunication. He is going to Pre-K. Next year he will be in

> kindergarten. He has an interperter. We live in Purvis, MS.

>

>

>

> All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject

> to copyright restrictions.

>

Link to comment
Share on other sites

Guest guest

I know exactly how you feel. My son has been going to Pre-Kindergarten

since he was 2, but next year he will be going to regular kindergarten. I am

dreading this. His teachers now says he will be fine. He has an interperter

and she will be moving up with him.

I don't know any parents from around here that has a child with deafness.

Last year, my son went to school with one but they moved and I don't know

where. But maybe I can find someone so he can play with.

-- Re: New Member

Hi ,

Welcome to this wonderful group... I have learned soooo much just

reading the posts! My son is hearing impaired and wears hearing aids.

He will be 4 in May and stays with me during the day at the nursery my

company provides. We go to auditory verbal therapy 1x a week. We are

only thinking about school... I am very nervous needless to say. (I see

you are from MS - We live in Alabama)

Tillery

Ian 3.8 yrs (Moderate/Severe_Aided)

Emma 8 (Hearing)

> Hi my name is . I have a deaf 5 yr. son. He was born deaf. He

> wears hearing aids and sometimes uses a FM at school. We are doing

> total comunication. He is going to Pre-K. Next year he will be in

> kindergarten. He has an interperter. We live in Purvis, MS.

>

>

>

> All messages posted to this list are private and confidential. Each

> post is the intellectual property of the author and therefore subject

> to copyright restrictions.

>

Link to comment
Share on other sites

Guest guest

My son is also severe-to-profound HOH since birth, he wears phonix hearing

aids and sometimes (when he will) uses an FM at school. My son is in Pre-K.

Next year he will be going to an regular Kindergarten but he also has an

interperter that will be moving up with him. I hope I learn something from

this site. Also if you have any advice or something you'd like to share, I'd

be glad to hear it. This is my only child, so I'm still new at this

-- Re: New Member

Welcome, !

My son, Ben, is also 5, severe-to-profound HOH since birth, wears Widex

Senso P38s and uses an FM at school. He's currently in an oral kindergarten

program specifically for kids with hearing, speech and language issues.

So glad you found this list -- it's a good one!

Stefanie

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

Link to comment
Share on other sites

Guest guest

My son is also severe-to-profound HOH since birth, he wears phonix hearing

aids and sometimes (when he will) uses an FM at school. My son is in Pre-K.

Next year he will be going to an regular Kindergarten but he also has an

interperter that will be moving up with him. I hope I learn something from

this site. Also if you have any advice or something you'd like to share, I'd

be glad to hear it. This is my only child, so I'm still new at this

-- Re: New Member

Welcome, !

My son, Ben, is also 5, severe-to-profound HOH since birth, wears Widex

Senso P38s and uses an FM at school. He's currently in an oral kindergarten

program specifically for kids with hearing, speech and language issues.

So glad you found this list -- it's a good one!

Stefanie

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

Link to comment
Share on other sites

Guest guest

My son is also severe-to-profound HOH since birth, he wears phonix hearing

aids and sometimes (when he will) uses an FM at school. My son is in Pre-K.

Next year he will be going to an regular Kindergarten but he also has an

interperter that will be moving up with him. I hope I learn something from

this site. Also if you have any advice or something you'd like to share, I'd

be glad to hear it. This is my only child, so I'm still new at this

-- Re: New Member

Welcome, !

My son, Ben, is also 5, severe-to-profound HOH since birth, wears Widex

Senso P38s and uses an FM at school. He's currently in an oral kindergarten

program specifically for kids with hearing, speech and language issues.

So glad you found this list -- it's a good one!

Stefanie

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

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