Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 I saw my dr today (my regular OB/gyn) and now she thinks that I don't have Asherman's. We looked over the results of my HSG and she said that it gives a good outline of my entire uterine cavity with only a slight asymmetry with irregularity in the area of that upper right corner, but that the entire cavity appears to be open. In addition, fluid was able to get to the right tube, but the tube is blocked about 1cm up. The left tube was OK. She also thinks that I don't have it because I am still spotting quite a bit - five days after the HSG, which means to her that I still have quite a bit of healthy lining in spite of the light periods. Her advice is to try to get pregnant and if I'm not pregnant within the next six months, then we'll look deeper into it. In the meantime, I've already sent all my records to Dr. Indman and I'm inclined to leave it that way. I can't count how many times I've heard that an HSG won't always diagnose it. However, I don't want to spend all the time and money getting to California if I don't have it. Do you think he'll make an opinion based on my records? My husband thinks we should do what my dr says and try a few months and see what happens. I'm kind of inclined to agree with him since my report from the radiologist specifically says, " No filling defects are visualized within the uterine canal. " What do you think? Kim K. (Phoenix) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Kim, I just posted a message to Dawn about my HSG. My cavity was mostly normal looking on the HSG but then when I had the hysteroscopy, it showed some problems with those open surfaces. She had a similar experience with a small filling defect that then turned out to be more pronounced when they got in to take a look. Also, I agree that " asymmetry and irregularity in the right corner " is a bit troubling. You might want to have Indman consult on this just to hear what he has to say. If you get pregnant with scar tissue in there, it could be a major problem to say the least. If your doctor doesn't think there is a problem, then how does she explain the light periods? After my D & C I can't tell you how many times I heard that " it takes a while for your body to get back on track after a miscarriage " . Well, I'm sorry but if you are ovulating normally it shouldn't take that long! My gut instinct was that there was a problem and I was right. Ask for an ultrasound to check the thickness of the lining. Ask for hormone tests to see if you are in fact ovulating normally (or better yet, do you chart temperatures?). I hope I don't sound too bossy here. I just remember what I went through last fall getting someone to take my concerns seriously and it was very difficult! What your doctor is saying is " just relax " and that really bugs me. Good luck! Haley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Kim, I understand your reluctance to travel to see an A-list doctor. It's a big expense, particularly since you have a doctor at home telling you you're fine. The part about the " irregularity " of your uterus has me a little worried, though. Do you think you could get your OB to do a diagnostic hysteroscopy? Or, could you find a local RE who could do a diagnostic hysteroscopy? That way you would know for sure if there's anything wrong. And if anything is wrong, then you could go to Dr. Indman. My RE here in Denver does diagnostic hysteroscopies in her office and it doesn't require anesthesia so it shouldn't be a big time and money suck that a visit to the hospital can be. My HSG appeared normal, but she still wants to do the diagnostic hyst. Of course, I've never been to see an A-list doctor. What does anyone else think? I know that everyone here says you should have an A-list doctor do your surgery, but how necessary is it for an A-list doctor to diagnose you? Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 Haley - Thanks for the advice. I totally agree with you. I'm not sure it's Asherman's, but I truly feel something is wrong. My periods shouldn't be so light and I also get quite a bit of cyclical pain in that corner of my uterus. You can't tell me either of those are normal. All of my records have been sent to Dr. Indman and he should have them by today. Once he's had a chance to look them over, someone from his office is supposed to call me to set up an appointment. I've already spoken with them, though, and they agreed that the HSG may have missed something so I'll probably still go to California for a hysteroscopy or some other further testing. Even if he says it's not Asherman's, I won't feel it was a wasted trip because I'll have the peace of mind that I know I am healthy and will have fewer worries about getting pregnant again. Kim K. (Phoenix) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 Fran - I'm over my reluctance, I think, and have decided to see Dr. Indman regardless. Since I live in Arizona, I can fly to see him in one day and the airfare is relatively inexpensive. I'm sure I could persuade my ob/gyn to do a hysteroscopy but I think I'd prefer Dr. Indman's expertise. This way, if I have it, I'm at the right place and if I don't, I'll have the peace of mind I was seeking before trying to conceive again. Thanks for the advice. Kim K. (Phoenix) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 Kim- I think it sounds wonderful that your uterus is open and you've been bleeding a lot- but that doesn't mean you might not still have scarring- and that can increase your chance of miscarriage (then another d & c etc) I hate that Dr's are so cavalier about our risk of loss and more harm- I'm sure others here will echo my feelings that your'e better off going into pg with the best possible uterine condition- I hope you'll still consult with Dr Indman! Best to you!! , Mike, Brenna Jordan Ross-born 9/26/97(VSD, PS- open heart surgery 1/29/98), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Colin Spencer Ross- born July 27, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogs Join us again next year in remembering the millions of people affected by CHD on 2/14/2003:Â "A Day for Hearts: Congenital Heart Defects Awareness Day!" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Sheri, We have a CafePress shop that has shirts that say " I only eat food from home. " You might want one of those so that people don't think you're starving her...LOL. (We make no profit from the store. Everything is sold at cost. Just posting this so no one gets the idea that I am profiting from it. I designed the items and they are sold at CafePress' lowest allowed price.) http://www.cafeshops.com/pecanbreadshop If you are concerned that dairy is an issue, just freeze the DCCC and wait until later to introduce it. And as for cheese, the same is true. Give her a few weeks to a couple of months on SCD before you introduce cheese (cow or goat) to give her system time to begin to heal. Then try it and see how she reacts. She may be just fine with it and then it can be a daily food item for her. The trick with SCD is " Slow and steady wins the race " . Just like the tortoise and the hare. Adding foods slowly and keeping a food journal really helps parents figure out what is working for their child and what their child is not quite ready for yet. Jody mom to -6 and -8 SCD 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Sheri, We have a CafePress shop that has shirts that say " I only eat food from home. " You might want one of those so that people don't think you're starving her...LOL. (We make no profit from the store. Everything is sold at cost. Just posting this so no one gets the idea that I am profiting from it. I designed the items and they are sold at CafePress' lowest allowed price.) http://www.cafeshops.com/pecanbreadshop If you are concerned that dairy is an issue, just freeze the DCCC and wait until later to introduce it. And as for cheese, the same is true. Give her a few weeks to a couple of months on SCD before you introduce cheese (cow or goat) to give her system time to begin to heal. Then try it and see how she reacts. She may be just fine with it and then it can be a daily food item for her. The trick with SCD is " Slow and steady wins the race " . Just like the tortoise and the hare. Adding foods slowly and keeping a food journal really helps parents figure out what is working for their child and what their child is not quite ready for yet. Jody mom to -6 and -8 SCD 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Sheri, I haven't looked at their website in a while, but I will tell you that you can use well-dripped yogurt in any recipe that calls for DCCC. We've been on SCD almost 2 years and I've never used DCCC. Jody mom to -6 and -8 SCD 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Sheri, I haven't looked at their website in a while, but I will tell you that you can use well-dripped yogurt in any recipe that calls for DCCC. We've been on SCD almost 2 years and I've never used DCCC. Jody mom to -6 and -8 SCD 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Sheri, I haven't looked at their website in a while, but I will tell you that you can use well-dripped yogurt in any recipe that calls for DCCC. We've been on SCD almost 2 years and I've never used DCCC. Jody mom to -6 and -8 SCD 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Great, anyone live near Columbus GA and want 10 containers of DCCC? Free to a good home LOL Thank You, Sheri mother to ASD/SCD 1-12-05 > Sheri, > > > I haven't looked at their website in a while, but I will tell you > that you can use well-dripped yogurt in any recipe that calls for > DCCC. We've been on SCD almost 2 years and I've never used DCCC. > > > Jody > mom to -6 and -8 > SCD 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Great, anyone live near Columbus GA and want 10 containers of DCCC? Free to a good home LOL Thank You, Sheri mother to ASD/SCD 1-12-05 > Sheri, > > > I haven't looked at their website in a while, but I will tell you > that you can use well-dripped yogurt in any recipe that calls for > DCCC. We've been on SCD almost 2 years and I've never used DCCC. > > > Jody > mom to -6 and -8 > SCD 23 months Quote Link to comment Share on other sites More sharing options...
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