Re: Good news on this front...

[Guest guest]

I'm grinning from ear to ear! Congratulations on the great results!!! Let's

hope he stays stable for a good long time.

good luck with Macbeth. I'm sure, like everything you do, you will be

wonderful in it. Congrats again!

Amy

Good news on this front...

did the monthly deed on Monday with labs and had a visit with the

neph today. Both of us were a little edgy because he's been working 12+

hour days all of July at the theater and eating a less than desirable diet.

Labs looked awesome. Protein-creatinine ratio was too low to calculate. C3

was down a bit, but still normal. C4 was up a bit (which is good). Perhaps

best of all was we saw a new attending who really, really liked. Was

good for him to see that not all nephs are like his!

Macbeth opens tomorrow. It is simply the best Shakespeare production I have

ever seen, bar none. The guy who plays Macbeth has this Marlon Brando-like

magnetism that is very, very effective. also looks great in kilts...

Cy

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[Guest guest]

Cool, cool, cool about 's labs. Can you imagine...pro/creat ratio too low

to calculate. Hooray!!!! Glad he liked his new attending. Great docs make all

the difference in the world. I'm so glad for both of you and your family. Take

lots of pictures at McBeth, and maybe post a couple on site if you get a chance.

Bonnie

Cy Webb wrote: did the monthly deed on

Monday with labs and had a visit with the

neph today. Both of us were a little edgy because he's been working 12+

hour days all of July at the theater and eating a less than desirable diet.

Labs looked awesome. Protein-creatinine ratio was too low to calculate. C3

was down a bit, but still normal. C4 was up a bit (which is good). Perhaps

best of all was we saw a new attending who really, really liked. Was

good for him to see that not all nephs are like his!

Macbeth opens tomorrow. It is simply the best Shakespeare production I have

ever seen, bar none. The guy who plays Macbeth has this Marlon Brando-like

magnetism that is very, very effective. also looks great in kilts...

Cy

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Cy, This is absolutely FANTASTIC news!!! Boy am I rejoicing with you. I can

hardly believe that I read his protein creatinine ratios were TOO LOW to

calculate :-) That just tickles me to no end. I am exceedingly happy for you

and

! Is remission common? I just know you both are breathing a sigh of

relief!

Tell him to break a leg in Macbeth.

In a message dated 8/3/2004 10:10:00 PM Pacific Daylight Time,

cyashleywebb@... writes:

> did the monthly deed on Monday with labs and had a visit with the

> neph today. Both of us were a little edgy because he's been working 12+

> hour days all of July at the theater and eating a less than desirable diet.

> Labs looked awesome. Protein-creatinine ratio was too low to calculate. C3

> was down a bit, but still normal. C4 was up a bit (which is good). Perhaps

> best of all was we saw a new attending who really, really liked. Was

> good for him to see that not all nephs are like his!

>

> Macbeth opens tomorrow. It is simply the best Shakespeare production I have

> ever seen, bar none. The guy who plays Macbeth has this Marlon Brando-like

> magnetism that is very, very effective. also looks great in kilts...

>

> Cy

[Guest guest]

and Rita,

Thank you! His neph was pretty tickled at that protein creatinine ratio

too!

It's hard to say how common remission is in MPGN. The rareness of MPGN

means that the research is very spotty. What little research exists really

is all over the map. There was a single research group in Cincinatti that

has gotten very good results, but these have never been replicated and the

lab chief has retired. Other labs associate MPGN with a high incidence of

steroid resistance and state that remission occurs in less than 5% of

patients (but then they never say how those patients were treated and how

exactly they are defining MPGN). There's even disagreement over the years

as to how to distinguish MPGN 1 from MPGN 2. Some places say there is an

MPGN 3 (and even another that suggests MPGN 4!), while others (admittedly a

very few) say there is just MPGN 1 and 2. The lack of good longitudinal

studies is frustrating. Most of the research involves MPGN associated with

hepititus (not exactly applicable here). All that aside, it's just good to

be where we are now.

Cy

Re: Good news on this front...

> Cy, This is absolutely FANTASTIC news!!! Boy am I rejoicing with you. I

can

> hardly believe that I read his protein creatinine ratios were TOO LOW to

> calculate :-) That just tickles me to no end. I am exceedingly happy for

you and

> ! Is remission common? I just know you both are breathing a sigh

of

> relief!

>

> Tell him to break a leg in Macbeth.

>

>

>

> In a message dated 8/3/2004 10:10:00 PM Pacific Daylight Time,

> cyashleywebb@... writes:

>

> > did the monthly deed on Monday with labs and had a visit with the

> > neph today. Both of us were a little edgy because he's been working 12+

> > hour days all of July at the theater and eating a less than desirable

diet.

> > Labs looked awesome. Protein-creatinine ratio was too low to calculate.

C3

> > was down a bit, but still normal. C4 was up a bit (which is good).

Perhaps

> > best of all was we saw a new attending who really, really liked.

Was

> > good for him to see that not all nephs are like his!

> >

> > Macbeth opens tomorrow. It is simply the best Shakespeare production I

have

> > ever seen, bar none. The guy who plays Macbeth has this Marlon

Brando-like

> > magnetism that is very, very effective. also looks great in

kilts...

> >

> > Cy

>

>

>

>

[Guest guest]

The lack of research has to be frustrating Cy. Are they considering

in remission? I pray that is true for him.

In a message dated 8/4/2004 11:35:35 PM Pacific Daylight Time,

cyashleywebb@... writes:

> and Rita,

>

> Thank you! His neph was pretty tickled at that protein creatinine ratio

> too!

>

> It's hard to say how common remission is in MPGN. The rareness of MPGN

> means that the research is very spotty. What little research exists really

> is all over the map. There was a single research group in Cincinatti that

> has gotten very good results, but these have never been replicated and the

> lab chief has retired. Other labs associate MPGN with a high incidence of

> steroid resistance and state that remission occurs in less than 5% of

> patients (but then they never say how those patients were treated and how

> exactly they are defining MPGN). There's even disagreement over the years

> as to how to distinguish MPGN 1 from MPGN 2. Some places say there is an

> MPGN 3 (and even another that suggests MPGN 4!), while others (admittedly a

> very few) say there is just MPGN 1 and 2. The lack of good longitudinal

> studies is frustrating. Most of the research involves MPGN associated with

> hepititus (not exactly applicable here). All that aside, it's just good to

> be where we are now.

>

> Cy

[Guest guest]

That's wonderful Cy.

Pierre

Good news on this front...

> did the monthly deed on Monday with labs and had a visit with the

> neph today. Both of us were a little edgy because he's been working 12+

> hour days all of July at the theater and eating a less than desirable

diet.

> Labs looked awesome. Protein-creatinine ratio was too low to calculate.

C3

> was down a bit, but still normal. C4 was up a bit (which is good).

Perhaps

> best of all was we saw a new attending who really, really liked.

Was

> good for him to see that not all nephs are like his!

>

> Macbeth opens tomorrow. It is simply the best Shakespeare production I

have

> ever seen, bar none. The guy who plays Macbeth has this Marlon

Brando-like

> magnetism that is very, very effective. also looks great in

kilts...

>

> Cy

>

[Guest guest]

Yes. Your prayers came true! On this side of the Atlantic (but not in

Europe and yes, people disagree here, too!) remission = normalization of

complement (C3 & C4) + improved proteinuria.

Cy

Re: Good news on this front...

> The lack of research has to be frustrating Cy. Are they considering

> in remission? I pray that is true for him.

>

>

>

> In a message dated 8/4/2004 11:35:35 PM Pacific Daylight Time,

>

> cyashleywebb@... writes:

>

> > and Rita,

> >

> > Thank you! His neph was pretty tickled at that protein creatinine ratio

> > too!

> >

> > It's hard to say how common remission is in MPGN. The rareness of MPGN

> > means that the research is very spotty. What little research exists

really

> > is all over the map. There was a single research group in Cincinatti

that

> > has gotten very good results, but these have never been replicated and

the

> > lab chief has retired. Other labs associate MPGN with a high incidence

of

> > steroid resistance and state that remission occurs in less than 5% of

> > patients (but then they never say how those patients were treated and

how

> > exactly they are defining MPGN). There's even disagreement over the

years

> > as to how to distinguish MPGN 1 from MPGN 2. Some places say there is

an

> > MPGN 3 (and even another that suggests MPGN 4!), while others

(admittedly a

> > very few) say there is just MPGN 1 and 2. The lack of good longitudinal

> > studies is frustrating. Most of the research involves MPGN associated

with

> > hepititus (not exactly applicable here). All that aside, it's just good

to

> > be where we are now.

> >

> > Cy

>

>

>

>

[Guest guest]

In that case, all I can say is Thank you God! He DOES answer prayers!

In a message dated 8/5/2004 7:53:15 PM Pacific Daylight Time,

cyashleywebb@... writes:

>

> Yes. Your prayers came true! On this side of the Atlantic (but not in

> Europe and yes, people disagree here, too!) remission = normalization of

> complement (C3 & C4) + improved proteinuria.

>

> Cy