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I have had the palpatations in my neck area and also under my breast/right

side. Same thing with my gp and also the tech when i had the scan, go figure.

I' m just waiting this out for awhile.

Zelinski wrote: I guess I did not mention in my original

post that my GP wanted me to get the RAI as soon as he diagnosed the graves

disease. I asked him about the ATDs and he said that a side effect taking that

treatment route is a low white blood cell count which would be worse than the

graves disease. Needless to say he scared me into not taking that route right

away! I told him that I did not like the idea of killing off part of my

thyroid, and would prefer to take the least aggressive form of treatment to

start with. I have had issues with controlling my blood pressure the last few

years, it tends to run high 140/90 is normal for me. He ruled out

pheochromacytoma ( a tumor of the adrenal gland) before putting me on the beta

blocker. One my symptoms has been like a palpitation (feeling my heart racing)

but in my throat area. Has anyone else had that symptom? I get it in my chest

also but more often in my throat area. The beta blocker has stopped that from

happening most of the time although it does still happen a few times a day for a

short duration. I do not think that I have the eye problems yet. I do not have

any protrusion although I have been getting a pain off and on in my right eye

and wateriness. I am having surgery tomorrow to have an unrelated lump in my

breast removed. At least I think it is unrelated :) After that I plan on

looking for an endocrinologist who specializes in thyroid treatment. If anyone

is from the Chicago, Illinois area and knows of good one please let me know.

-

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Hi ,

Try this site to find a doctor. Patients recommend doctors here, the

more referrals the greater the chance of finding a good one. It

doesn't work for everyone, some have had problems with doctors listed

on the site, but for me it was a wonderful place. I found my 3rd, and

current endo here, who is not allowed to die or retire before I do ;-)

http://thyroid.about.com/library/weekly/bldoc1.htm

As for the white count, it is rare for this to happen, I can't

remember the exact percent, but it is in Elaines Graves Disease book.

Doctors who don't have a clue for properly monitoring us on atd's

generally use this as a scare tactic into RAI, which is more

convenient for them <sigh>

Before starting on atd's, a liver panel and white blood cell count is

in order. If a doctor doesn't order them, insist on them before

starting the pills...and get copies of your labs so you can have the

results handy when you need them. Graves Disease can affect these

labs on it's own without being on atd's, that is why it is very

important to have the tests before starting them.

Take care,

Jody

> I guess I did not mention in my original post that my GP wanted me

to get the RAI as soon as he diagnosed the graves disease. I asked

him about the ATDs and he said that a side effect taking that

treatment route is a low white blood cell count which would be worse

than the graves disease. Needless to say he scared me into not taking

that route right away! I told him that I did not like the idea of

killing off part of my thyroid, and would prefer to take the least

aggressive form of treatment to start with. I have had issues with

controlling my blood pressure the last few years, it tends to run high

140/90 is normal for me. He ruled out pheochromacytoma ( a tumor of

the adrenal gland) before putting me on the beta blocker. One my

symptoms has been like a palpitation (feeling my heart racing) but in

my throat area. Has anyone else had that symptom? I get it in my

chest also but more often in my throat area. The beta blocker has

stopped that from happening most of the time although it does still

happen a few times a day for a short duration. I do not think that I

have the eye problems yet. I do not have any protrusion although I

have been getting a pain off and on in my right eye and wateriness. I

am having surgery tomorrow to have an unrelated lump in my breast

removed. At least I think it is unrelated :) After that I plan on

looking for an endocrinologist who specializes in thyroid treatment.

If anyone is from the Chicago, Illinois area and knows of good one

please let me know.

>

> -

>

>

>

>

>

>

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Zelinski wrote:

>

> I guess I did not mention in my original post that my GP wanted me to get the

RAI as soon as he diagnosed the graves disease. I asked him about the ATDs and

he said that a side effect taking that treatment route is a low white blood cell

count which would be worse than the graves disease.

Well you can scare anyone with the worst symptoms of a

treatment, did he mention RAI causes cancer of the thyroid and

intestine, can worsen or provokes Grave's eye disease, and has a

poor record with strokes and heart attacks?

Even if RAI works (often two doses are required) you have a 86%

chance of lifelong hypothyroidism, 60%+ of patients being

treated with the conventional treatment for hypothyroidism

report that not all symptoms are resolved. So with RAI you seem

to be voting for a better that 50% chance of lifelong symptoms

of hypothyroidism. The doctors aren't mad (well not completely),

hypothyroidism is easier to treat, but you could well end up

with two diseases instead of one, as RAI doesn't resolve the

antibodies causing Grave's which might decide to attack your

eyes at anytime. Giving you Graves eye disease and hypothyroid

symptoms to contend with.

If we just go on the worst results of treatments we wouldn't

take any medication, apart from homeopathy (at 200cc dilution it

is just water - trust me on that).

What is important is risk versus benefits - yes ATD are linked

to some very nasty side effects, including one that can even

necessitate a liver transplant. But most of nastiest side

effects are incredibly rare and usually give you plenty of hints

something bad is happening in the first few months of treatment.

> One my symptoms has been like a palpitation (feeling my heart racing) but in

my throat area. Has anyone else had that symptom?

Okay a wush wush sound in a goiter (swollen thyroid), with heart

beat, is a classic Grave's disease symptom, indeed one textbook

claims this symptom is unique to Grave's disease! This would

tend to confirm the diagnosis ;)

Try the drugs unless there is some specific reason for you not

to. The usual one is pregnancy or planning to get pregnant,

where many doctors recommend surgical treatment as it avoids the

risks to offspring of both the RAI and ATD, although the

antithyroid drug PTU is consider relatively safe for use in

pregnancy.

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Hi and all the other new members I may have missed,

Welcome to the group. To me graves disease was an emotional roller coaster

that was hard to understand. Then I found this support group not long after

buying my first computer. I've learned so much since joining this group,

but more important there are others out there that feel the same way I do.

I'm not alone.

I've not only learned a lot, but I learn something new each time a new

member joins. There's so much information here.

Debbie R.

5.5 yrs. on ATDs (antithyroid drugs) my levels have tested normal for 24

months.

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Hi Mike,

Welcome to this group! We do have a few male members here, though some are

just quiet. But I'm sure Simon will jump in soon, and he has wonderful

posts in the archives.

>>>I was wondering if anyone else out there has Grave's with

normal thyroid function. I have all the occular symptons, and I do

tend to flush very easily, but my RAI test shows normal thyroid

function.<<<

This does happen, I just haven't heard of it often but have read about it.

Ask your doctor to run the thyroid autoantibodies panel including the TSI,

which is probably going to be elevated since you already have signs of the

eye disease. Be insistent to get all of your antibodies testing done.

Chances are that down the road you will end up with full blown graves if I

am remembing my reading correctly. I will suggest you get Graves Disease; A

Practical Guide by Elaine , I know it does discuss this situation in

her book as well as every other aspect of graves disease and will give you a

heads up now, rather than later, if it should turn out you end up with

graves.

Get copies of all of your labs, these will be extemely beneficial for you as

you make your journey, even if it never gets past the eye stage, which I

hope is the case for you.

Take care, keep reading, keep asking questions, and again, welcome to the

group,

Jody

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Hi Mike,

Wow, we had a lot of new people today. I hope you are not feeling left out.

Here is a link you may find useful. You may even want to print this one out.

:-)

http://www.suite101.com/article.cfm/graves_disease/62032

We did have someone recently... in the last month or two, with euthyroid

Graves' , the same as you. Perhaps you can find those posts in the archives

?

Does anyone here remember the name of that person? That would help Mike.

The part I remember was for the gal to keep a close check on her thyroid

levels forever, as it 'could' turn into a thyroid problem, and this way it

is caught early, when it is much easier to treat.

You will also find many stories of our eye disease in the archives and our

tips on taking care of our eyes.

-Pam L -

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  • 6 months later...

In a message dated 1/26/03 11:10:54 PM Eastern Daylight Time,

grammarho@... writes:

> . Yet, I've read about women getting pregnant sooner

> and having healthy pregnancies

Dear Kim,

Please remember that there are no follow-up studies on the children born to

post-WLS women who have gotten pregnant before their one-year anniversary.

Yes, those babies are born healthy according to the apgar scores. However,

there are other factors that apgar scores cannot measure such as neurological

damage.

We are told not to get pregnant until our one-year anniversaries. If it

happens sooner, then it happens for a reason. I have read so many postings

in the past few months from women who want to get pregnant before their

one-year marks. If this is against medical advice, shouldn't someone tell

them this instead of saying " Go for it. "

Recently, I read the list of FAQs that was compiled for this group. I

thought I read that there were no follow-up studies of the children born to

post-WLS women who got pregnant before their one-year marks. I am sorry if I

misunderstood the information in that FAQ. I am also sorry if I am not

understanding the purpose of this group. I don't want to offend anyone with

my posting, and I think I already have.

Shoshannah

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I got pregnant by surprise at 5.5 months postop. While everything is going well

with the baby thus far it is not something I would recommend to anyone. I know

you are looking for someone to tell you to go for it but I think it is a

decision best made with medical professionals. I have heard that if you work

really hard on the weight loss and get down close to goal and/or have your

weight stabilized that some doctors will give the green-light to start trying to

conceive before the one year mark.

New Member

I know a woman who got pregnant two months post-op, miscarried, then

got pregnant again five months post-op and had a healthy baby. I

know it can be done. I guess I'm just looking for personal stories

and support. This is a hard decision for me to make, whether or not

to wait. Rationally, I know waiting is the best choice. However,

I'm thinking with my heart not my brain right now.

I look forward to talking to all of you.

Kim

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  • 1 month later...

Nicky,

Welcome! I can't help you with the lap band, because I had the lap rny. But as

far as being able to conceive after wls, ABSOLUTELY!

There are a lot of women with secondary infertility that conceive very easily

after wls. I wish you the best, and I have a feeling once you make your

decision regarding surgery, you will be on the right track!

Good luck!

Marcy Wallis

lap rny 06/15/00

Mommy to 12/10/02 (post wls)

Mommy to Kaitlyn 05/01/94 (pre wls)

Wifey to Neil!!!

new member

Hi everyone my name is Nicky and I'm a 32 yr old extremely overweight

mum to a 4 yr old boy. I am in the process of checking out lap ban

surgery sometime this year. I am so happy to have found this group as

(sorry for you all but good for me :) )as you will be able to help me

out here. The one thing that was putting me off the surgery was TTC or

the lack of ability. I wasn't sure if you still could TTC, if that

makes sense. With the initial emails I received the FAQ were fantastic

that is such a great idea. I am actually suffering from secondary

infertility so I'm hoping that the weight loss does help with

conceiving again. I do not want to go through anymore fertility

treatment I've had enough of it.

Anyway I'm babbling. Oh yeah I'm in Australia.

Look forward to getting to know you all

Take care

Nicky

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Thanks Marcie. I think I really have made up my mind on the surgery I

just need to get the ball rolling on it all. I have an appt with the

nurse counsellor on the 12th March. It is great to see that there are

no extra problems with conceiving. I actually thought that you

wouldn't even be able to conceive if you had WLS. So it is such a

relief and kind of makes my mind up about it all. Now I really don't

have anything stopping me.

Anyway thanks again for the welcome

Take care

Nicky

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  • 1 month later...
Guest guest

Hi Joanie,

Welcome to the group and congrats on your pregnancy!!!

I had an 8 year old daughter (prior to wls) when I got pregnant with my 4 month

old son. So we were kind of in the same boat.

I did have the issues of not wanting to gain weight and not fit into my clothes

as well, but that went away in time. I am wearing most of my pre pregnancy

clothes now, and even if I weren't, my son was worth ALL of it! Best of luck to

you!!!

Marcy Wallis

lap rny 06/15/00

Mommy to 12/10/02

Mommy to Kaitlyn 05/01/94

Wifey to Neil!!!

New Member

Hi all,

I am a new member to this pregnancy group and I'm thrilled to have

found you all. Had my WLS almost 2 years ago...lost 160 lbs. Now,

I'm pregnant. It's my second pregnancy...our son is 7 years old

now. I never could get pregnant after he was born because I was so

damn fat! Once the weight came off, no problem! :-)

Now, that I really am preg, I'm a little scared at times. But, I

talk to others and they make me feel better. My reasons for being

scared are selfish, but they are real. My fears are that I'm going

to gain too much weight and then won't be able to get it off. I also

feel sad that my clothes are beginning to not fit...the ones that I

worked so hard to get into...size 8's! AT any rate, I wanted to be

pregnant and I will deal with these feelings when they arise. I'm

sure some of you experienced these same feelings?!?!

I'm 13 weeks pregnant...due Oct. 12th! Will have an amnio in 3 weeks

since I'm 35 years old. Will keep you all posted. Yes, I want to

know the sex of the baby!!! :-)

~Joanie

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Welcome Juli,

You are so lucky to be Blessed with another child.You have found the

right group to recieve advise,support and wisdom.

GOOD LUCK!!!!

Sharon_H.

TTC #4.

115lbs.

WLS215lbs (DOT)

> Hi everyone, my name is Juli. I am 6 months post-op and down 90

> Lbs. We just found out 2 days ago we are pregnant with our 3rd

> child. My first one since my LAP RNY. We were shocked because we

> have been using protection. We did want another one, we were just

> going to wait til I was out a year first. I am happy. I really

> don't want to gain much weight. I have heard of woman loosing

while

> pregnant in the beginning then just putting on a few in the later

> months. I feel so selfish. At this time I can't hold down a thing.

I

> have had no problem with food really until now. They told me I

> really don't need pre natels because I am on my kids vitamins,

> calcium citrate, b-12 shots monthly and they don't want me to have

to

> many vitamins. The Dr. (ob/gyn) is not worried about my food

intake

> at this point but it worries me that the baby won't get enough.

They

> are doing a sonogram on May 7th because we had 2 miscarriages one

in

> 98 and one last year so I am keeping everything crossed that we get

a

> heart beat. We never got one last year. My EDD is Nov. 29th.

> I am so happy I found this group so I can speak to women that are

> going through the same thing as me and I can come for advice.

> Juli

> LAP RNY 9/25/02

> EDD 11/29/03

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Welcome, We have a lot of fun in this group. I am currently TTC(trying to

conceive).My husband and I also worried about how soon, but after finding

this site the worries are gone. I am 21 months post-op and this is my 4th

child. Losing all the weight really put my family and marriage in new

prospective. We have a 15yr., 10yr.,and a 6 yr., we really were not planning

more children, but happiness makes you take different paths in life. I wish

you all the luck in getting pregnant. You will find great support, advise,

and knowledge in this group.

God Bless!!

Sharon_H.

TTC#4.

115lbs.

WLS215lbs (DOT)

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Welcome and congrats Juli. I got pregnant at 7 weeks psot-op. Thruought my

pregnancy I couldn't tolerate the chewable pre-natal vitamins and I was on 2

flinstones a day and every other day I took 3. I did just fine. Again Best

Wishes and Congrats!!!

D.

Open RNY 2-18-02 down 166lbs

Mommy to:

born 1-16-03

~and~

andra Marie (born stillborn at 36 weeks gestation following a car accident

on 3-14-98)

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Well, first I wouldn't worry until you were confirmed pregnant.

Second, I got pregnant at 4.5 months post op and am now 27 weeks PG.

Baby is doing fine. You definately won't hear any of that lecturing

from this site.....everyone is extremely supportive! So keep us

posted.

mommy to , 2 yrs old

27 weeks PG, due 7/15/03

> This is my first post. I am 4 mos post op. I have not been able to

> reach my surgeon yet and I am freaking out about this. Worried

about

> his response, my and my baby's health, etc. Thank God for this

site.

> At least I know I am not the only one. I am 38 yrs old and NOT

> expecting another child. But, my 5 yr old son told me we would be

> having a baby.??? He is the only reason I went and bought a test in

> the first place. I never have periods anymore, and have had only

one

> since surgery. And...yes we were using protection, etc. I am not

> looking forward to all the " you were told not to get pregnant "

> lectures. Someone please advise!! Suzy Freeman Mesquite Tx

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  • 3 weeks later...
Guest guest

hi I live in seattle and am 48/m

new to this and am very interested in

resurfacing.

I was wondering like you all if in seattle there is anyone that does

this or is dr.vail in s.c the only one.

I see alot of you going out of the country to do this but isn't the

cost very expensive. Also how long do you have to stay before you can

come home.

Any help or some one I could call to talk to would be very helpful.

Thanks Tug

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  • 1 year later...

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