Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Congratulations !!!! You're about to leave the 190s forever! Yay for you! Bette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 In a message dated 12/8/2003 11:48:12 AM Eastern Standard Time, mousikos@... writes: You're about to leave the 190s forever! I can't wait!! Thanks for your encouragement, it really helps! " Women and cats will do as they please, and men and dogs need to relax and get used to the idea. " - A. Heinlein Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 > My weigh in this morning was for 190, down 2 from last week and the first > good loss I've had in awhile! > > Happy, > > > 198/190/135 That's great, ! Keep up the great work!!! April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I switched internet servers and have been able to read, but couldnt get an email through....ugh... Anyway, my son, Cade(almost 10 yrs old) was diagnosed with IgAN last week. We spoke to the dr. today about his biopsy results and he says Cade has an aggressive type. Dr. says if he had to guess that he gives five to ten years before renal failure. He was put on Fish Oil (dr. didnt tell us how much to give him so I did some research and pediatric dose is 4000 mg a day, what do you all think of this?), He was also put on 30 mg Prednisone and 5 mg Enalapril (2.5 mg the first week then 5 mg). I am a very positive person, but this is thrown me for a loop and a half. I am upset. I feel I need to speak to other parents who have gone through this or are going through it. Cade already has scar tissue and protein is remaining high...though I forgot to ask what exactly it was today. We have another appt. in two months for check up on how he is handling the meds and dr. says that in four to six months we will be able to tell if meds are helping. I guess this is all for now...I hope you all have a peaceful night. Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Angel firstly welcome to the group I'm glad you found us and can now post! Secondly I am so sorry to hear of your son's diagnosis. It's hard to hear of another child diagnosed. We have quite a few parents of IgAN kids here. The up side is some kids seem to really respond well to treatment and can go into slow progression for a long time. I was also diagnosed with the aggressive form of the disease at the end of Sept '03 with much scaring to my kidneys. I've been on prednisone since Oct 1st, 2003 and it has kept my function stable and brought my protein spill way down. I hope your son has as much luck with the drug as I have. Welcome again and I hope you find strength in our numbers. Amy Yay! I switched internet servers and have been able to read, but couldnt get an email through....ugh... Anyway, my son, Cade(almost 10 yrs old) was diagnosed with IgAN last week. We spoke to the dr. today about his biopsy results and he says Cade has an aggressive type. Dr. says if he had to guess that he gives five to ten years before renal failure. He was put on Fish Oil (dr. didnt tell us how much to give him so I did some research and pediatric dose is 4000 mg a day, what do you all think of this?), He was also put on 30 mg Prednisone and 5 mg Enalapril (2.5 mg the first week then 5 mg). I am a very positive person, but this is thrown me for a loop and a half. I am upset. I feel I need to speak to other parents who have gone through this or are going through it. Cade already has scar tissue and protein is remaining high...though I forgot to ask what exactly it was today. We have another appt. in two months for check up on how he is handling the meds and dr. says that in four to six months we will be able to tell if meds are helping. I guess this is all for now...I hope you all have a peaceful night. Angel To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
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