Re: Re: Mc's French Fries on www.msnbc.com

[Guest guest]

My first reaction was.....gosh, it's really true. Time to find a new french fry source.

Donna in Littleton

Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

Just so we're clear - it's exactly what I and others said before - the LABELING has changed - NOT the fries. If you were eating them before with no reaction will the new label cause a reaction? Maybe I am allergic to labels instead of gluten? OMG, there is a label on this keyboard! EEEEEK! There is a label inside the back of my shirt too!!

--E Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

This is great for people who visibly react. My son does not, so I have no idea if he had problems with them or not. Other than going for another traumatic blood draw....

From: SillyYaks [mailto:SillyYaks ] On Behalf Of SlinkmanSent: Monday, February 13, 2006 2:45 PMTo: SillyYaks Subject: Re: Re: Mc's French Fries on www.msnbc.com

Just so we're clear - it's exactly what I and others said before - the LABELING has changed - NOT the fries. If you were eating them before with no reaction will the new label cause a reaction? Maybe I am allergic to labels instead of gluten? OMG, there is a label on this keyboard! EEEEEK! There is a label inside the back of my shirt too!!

--E Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

What would be interesting is a blind study of the psychosomatic effects of the new label. Would people react just based on the label? I bet they would. Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

....and when you are told something is GF you think it couldn't of been that bc they use a dedicated fryer, it's on their list, etc...so you think it's in your head or you think it's something else you ate!

From: SillyYaks [mailto:SillyYaks ] On Behalf Of cyebelSent: Monday, February 13, 2006 2:54 PMTo: SillyYaks Subject: Re: Mc's French Fries on www.msnbc.com

Quite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

Yet they still ate there? That's amazing to me.

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

No, but the label will explain my son's reaction to the Fries.

Re: Re: Mc's French Fries on www.msnbc.com

Just so we're clear - it's exactly what I and others said before - the LABELING has changed - NOT the fries. If you were eating them before with no reaction will the new label cause a reaction? Maybe I am allergic to labels instead of gluten? OMG, there is a label on this keyboard! EEEEEK! There is a label inside the back of my shirt too!!

[Guest guest]

Bc they were told that they were GF, and their location used a dedicated fryer...and when you have fries, you also have other things and many people don't react instantly, so it could've been anything you ate throughout the day. When you believe something is GF, and everyone is telling you it's gf, you try to figure out what you ate that isn't. It's not stupidity, or lack of being careful, it's just trust.

From: SillyYaks [mailto:SillyYaks ] On Behalf Of SlinkmanSent: Monday, February 13, 2006 2:59 PMTo: SillyYaks Subject: Re: Re: Mc's French Fries on www.msnbc.com

Yet they still ate there? That's amazing to me.

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

Yes, this disease is quite challenging and even more so when you include dealing with restaurants that are either ignorant of our needs or don't have the time and the educated staff to deal with it. I stand by my original assertion - you are never safe if you eat out. If you eat out you will get glutened from time to time - that is your choice to take that risk or not.

--E RE: Re: Mc's French Fries on www.msnbc.com

....and when you are told something is GF you think it couldn't of been that bc they use a dedicated fryer, it's on their list, etc...so you think it's in your head or you think it's something else you ate!

From: SillyYaks [mailto:SillyYaks ] On Behalf Of cyebelSent: Monday, February 13, 2006 2:54 PMTo: SillyYaks Subject: Re: Mc's French Fries on www.msnbc.com

Quite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

I also don't visibly react. So I have to read what the labels tell me and go from there. For me, this means no more Mc's fries.

Donna

Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

Just remember, it's not all about reaction. It's about what happens inside. So even if you never react, damage is being done. And when you've tried very hard to be as careful as possible, and thought you had an alternative you could trust, this sucks!! I know that you don't understand this, but it's true. I certainly don't think of McD's as a "real" restaurant, but given the fact that all other kid-friendly restaurants are definitely out this was one special treat I could give my son. Bc he's just a kid, at 4, and doesn't react this is very hard for me. I do my best to protect him, and think this is ok, and then I find out it may or may not be. It's hard to swallow. When it's just you, you make the decision for yourself and move on. When you are making a decision for a helpless kid, it feels like someone has kicked you in the gut when you hear something like this.

I know you don't mean to come across they way you are, but you are making me feel like a complete imbecile for (a) being worried about this now and ( feeding my kid such garbage. I'm a sarcastic person myself, so I'm sure you don't mean it. But it is starting to be a little offensive.

From: SillyYaks [mailto:SillyYaks ] On Behalf Of SlinkmanSent: Monday, February 13, 2006 2:52 PMTo: SillyYaks Subject: Re: Re: Mc's French Fries on www.msnbc.com

What would be interesting is a blind study of the psychosomatic effects of the new label. Would people react just based on the label? I bet they would. Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

Ok, now it makes sense and I think we are coming to an agreement. I don't trust any of these places to understand celiac, to prepare my food accordingly, and to be careful and educated enough to do everything correctly to keep me from being exposed to gluten. Their kitchens remind me of the DC Zoo and I have always just figured that if I am hungry enough to roll the dice and eat there I may get glutened as a result and it will be my own fault for eating there.

If I trusted them it would be a whole different animal and I can totally see your point.

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

The DC Zoo...now THAT is funny....!!!! I have this strange visual of monkey's and giraffe's preparing my food...and of course the sinister penguins ala Madagascar....

From: SillyYaks [mailto:SillyYaks ] On Behalf Of SlinkmanSent: Monday, February 13, 2006 3:11 PMTo: SillyYaks Subject: Re: Re: Mc's French Fries on www.msnbc.com

Ok, now it makes sense and I think we are coming to an agreement. I don't trust any of these places to understand celiac, to prepare my food accordingly, and to be careful and educated enough to do everything correctly to keep me from being exposed to gluten. Their kitchens remind me of the DC Zoo and I have always just figured that if I am hungry enough to roll the dice and eat there I may get glutened as a result and it will be my own fault for eating there.

If I trusted them it would be a whole different animal and I can totally see your point.

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

Actually, I totally mean to come off the way I am.. (just kidding). I also agree with you about choosing - I am the only celiac in my family and it is very easy for me to just decide to do something or not based on the available evidence. Choosing for someone else, esp. a child, has to be VERY hard.

--E Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

The only ones who know the truth regarding the MacD's fries are the folks at Mac's. Since they are less than forthcoming regarding this issue and have given out conflicting information to different callers - I will ere on the side of caution and avoid the fries until wheat is removed from the ingredient list. Kerri Slinkman wrote: What would be interesting is a blind study of the psychosomatic effects of the new label. Would people react just based on the label? I bet they would. Re: Mc's French Fries on www.msnbc.com My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

I still haven't broken the news to my son...I just keep avoiding his pleas....I suppose he should get used to disappointment, I am his mother after all and it will only get worse in the teenage years! ;-)

From: SillyYaks [mailto:SillyYaks ] On Behalf Of SlinkmanSent: Monday, February 13, 2006 3:13 PMTo: SillyYaks Subject: Re: Re: Mc's French Fries on www.msnbc.com

Actually, I totally mean to come off the way I am.. (just kidding). I also agree with you about choosing - I am the only celiac in my family and it is very easy for me to just decide to do something or not based on the available evidence. Choosing for someone else, esp. a child, has to be VERY hard.

--E Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

Yeah, I'm not happy about it either, but I am thankful I don't have a little one to break it too. Good luck and may you find some other fries just as good! (doubtful though...that's the real tragedy in this - the fries, although horrible for you and now featuring wheat ingredients, are just about the most delicious thing in the entire world.).

--E (I think I'll go have another Kinnikinnick donut and shut-up for a while).. Re: Mc's French Fries on www.msnbc.com

My own instant reaction was, "Ha! BUSTED!" :)C

[Guest guest]

Totally.. It scares me every time I eat in one of those places, but I have managed to avoid the Mc's since the news broke. Had lunch at PF Chang's on Sunday though...man, I love that place.

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

----- Original Message -----

> Yes, this disease is quite challenging and even more so when you include

dealing with restaurants that are either ignorant of our needs or don't have the

time and the educated staff to deal with it. I stand by my original assertion -

you are never safe if you eat out. If you eat out you will get glutened from

time to time - that is your choice to take that risk or not.

I'll take this a step further and assert that unless you grow/raise/process your

own food from start to finish, and keep a gluten free home (ie you live in a

bubble) you are not safe from being glutened. Yes, we read labels and call

manufacturing companies, but mistakes are made at all levels....during

manufacturing, storage of ingredients, information transfer (ie knowledge of

company reps about what is in their food), food prep, etc.

I have been sick (glutened) for the past two days. I tend to react w/i 12 hours

of ingestion. I had done all my own food prep during this time and for the week

prior. All labels have been rechecked and found to be " safe " . I still don't know

what got me. Maybe cross contamination since we do keep a " mixed " household? But

all the other family members are trained on keeping " mom " safe and I haven't had

a cross contamination reaction in about 8 months, so that doesn't seem real

likely either. I just don't know. I don't think it is possible to know all the

time.

Occasionally, no matter how careful, we will get gluten. Accurate

labeling/information and safe food prep methods (to reduce cross contamination)

are essential to minimize the frequency of glutening episodes.

Bottom line is, the way our society works, we *have* to place trust in others

where our food is concerned. We do what we can with the information

provided...when we find someone (or some corporation) has knowingly or

unknowingly withheld information necessary for us to make wise decisions for our

health, it is frustrating to say the least.

PS I'm 8 months pregnant.....it is especially awful to get glutened when

pregnant....ick, ick, ick...

[Guest guest]

I wish we had one...I'd LOVE to get chinese again with my son. That's what I miss most....welcome to VT, home of no good GF options for kids. Sigh....

From: SillyYaks [mailto:SillyYaks ] On Behalf Of SlinkmanSent: Monday, February 13, 2006 3:28 PMTo: SillyYaks Subject: Re: Re: Mc's French Fries on www.msnbc.com

Totally.. It scares me every time I eat in one of those places, but I have managed to avoid the Mc's since the news broke. Had lunch at PF Chang's on Sunday though...man, I love that place.

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

Yeah, I feel your pain. I tried to bring my La Choy into a local chinese place and I had to go through 3 different people before I got someone who understood that I wanted them to cook with my sauce. I still have no idea whether or not they used a separate pan, but I gave up after that until I found PF Chang's. Too risky, but even worse, it was extremely frustrating!

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

[Guest guest]

I completely agree. We choose what level of "gluten risk" (grisk.. we are willing to accept and we go with it. Either you live in your bubble with Mr. Travolta and the Seinfeld Bubble Boy or you eat whatever you want and ignore ingedients. Most of us fall somewhere in between. Re: Re: Mc's French Fries on www.msnbc.com----- Original Message ----- > Yes, this disease is quite challenging and even more so when you include dealing with restaurants that are either ignorant of our needs or don't have the time and the educated staff to deal with it. I stand by my original assertion - you are never safe if you eat out. If you eat out you will get

glutened from time to time - that is your choice to take that risk or not.I'll take this a step further and assert that unless you grow/raise/process your own food from start to finish, and keep a gluten free home (ie you live in a bubble) you are not safe from being glutened. Yes, we read labels and call manufacturing companies, but mistakes are made at all levels....during manufacturing, storage of ingredients, information transfer (ie knowledge of company reps about what is in their food), food prep, etc.I have been sick (glutened) for the past two days. I tend to react w/i 12 hours of ingestion. I had done all my own food prep during this time and for the week prior. All labels have been rechecked and found to be "safe". I still don't know what got me. Maybe cross contamination since we do keep a "mixed" household? But all the other family members are trained on keeping "mom" safe and I haven't had a cross contamination reaction in about 8 months, so

that doesn't seem real likely either. I just don't know. I don't think it is possible to know all the time. Occasionally, no matter how careful, we will get gluten. Accurate labeling/information and safe food prep methods (to reduce cross contamination) are essential to minimize the frequency of glutening episodes.Bottom line is, the way our society works, we *have* to place trust in others where our food is concerned. We do what we can with the information provided...when we find someone (or some corporation) has knowingly or unknowingly withheld information necessary for us to make wise decisions for our health, it is frustrating to say the least.PS I'm 8 months pregnant.....it is especially awful to get glutened when pregnant....ick, ick, ick...

[Guest guest]

Whoa... I'm baffled by all of this. During the great Mc's thread of 2006 I thought it was decided that the fries are still okay. Didn't some celiac nurse explain that the wheat and dairy is in the oil and is removed before it's used so it would still be fine for us? I was under the impression that they labeled it because at some point there was wheat and they had to. Kind of like how vodka is supposed to be okay because of all the distilling. And if a nurse with celiac says they're okay I'd tend to believe her. I haven't eaten there in months anyway, I'm just really confused about what is going on. Slinkman wrote: Totally.. It scares me every time I eat in one of those places, but I have managed to avoid the Mc's since the news broke. Had lunch at PF Chang's on Sunday though...man, I love that place. --E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

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[Guest guest]

You aren't the only one. I thought we put this to bed before, but someone dug up an article from MSNBC or the WSJ and resurrected it. At least we found that we are all passionate about our potato products!

--E Re: Mc's French Fries on www.msnbc.comQuite a few people have been reacting all along, even before the presence of a label. They just didn't have anything in writing to point to a source.C

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