New Member

[Guest guest]

Hi Cherie,

Welcome to the best source of Asherman’s

information and a place to vent. First of all, have you checked our A

List to see if your Dr. is on it? If not, I strongly recommend finding an

A List Dr. in your area to do the surgery … don’t fool around

like so many of us did regretfully. Secondly, you are absolutely right

that knowledge is power. Men have different ways of dealing with problems

and although it is frustrating for you not to have him fully on board, don’t

give up your pursuit of information. Unfortunately, when I found this

site, I felt like I was reading my own story over and over … so it is

YOUR situation. Your pelvic pain may mean that you have living endometrium

and could be a good sign … don’t give up hope. But do get to

an A list Doc. Asap. Best wishes.

Kim S.

[Guest guest]

Dear Ana,

Welcome to our group although I am sorry you need to be here.

Your story is so similar to my own. I too gave birth at 24 weeks and I also had two D & C's.

I see that Corinna has already been very helpful to you. I also wanted to tell you that I have contacted another of our members who lives in Spain and am waiting for her to get back to me. I have asked her who she is seeing in Spain and if she is happy with him. I'll let you know if I get a response.

At the moment, it only seems like Dr Gallinat is the closest and best A list doctor in your area. Many members have travelled to him with the help of Corinna who we have named our "Ambassador" in Germany.

Please ask us as many questions before you make your decision and we will all try to help you with your decision.

I know you are feeling very sad right now but I want you to know that it is quite normal especially as you are coming up to the first anniversay of the birth of your baby. I know how hard it is to get through this day because I have been through it myself. I remember doing something special for my baby on that day because I didn't want to just let the day pass without me thinking of what happened to me a year before.

Hope you get some answers soon.

Poly

[Guest guest]

Thanks for your advice. After I left my ob's office this afternoon I was heading to the hospital to have their blood work done. On a whim I decided to walk into this RE's office that has been recommended several times by friends - just to see what they would say. (I think he was recently on Dateline as a fertility expert) I ended up losing my marbles in front of his whole staff! I thought it would be a good idea to be diagnosed so that I would know something immediately rather than waiting to see an A list doctor when I don't know 100% what the problem is. They said that they just recently had a patient that had a clot that blocked her from menstruating. I guess I have a small glimmer of hope that that is all it is. I'm worried that if I do have lining that each month this goes on I risk blocking my tubes and having all kinds of endometriosis. I will definately wait to see an A list doc if it turns out I need surgery!

Do you have any advice on how to deal with insurance? I don't even know if they will cover this visit to the RE since I'm not being referred by my ob.

Re: New Member

Welcome to the group, I wish we were meeting for happier occasions.Yours sounds like a classic case of Asherman's. Please don't get too distraught by reading all the bad news only. I know when I first started reading, all the articles on the internet said AS can be treated if mild, but if severe there is little hope. You can see from the Pregnancy database that that comment is not true. Also, pain is usually considered to be a "good" sign as it can indicate that you have lining (the pain is from it not being able to escape out your cervix).You are lucky to be so close to A lists. Check the archives for messages re: Dr. Palter(you can find the A list of Doctors in the Database). He has been used by LOTS of people in the group and everyone seems to like him (and I think he studied under Dr. Olive at Yale??), although he sometimes bills your condition as infertility so that may cause insurance problems. Dr. Copperman has also been used by a few with very positive results.I would skip the RE and go directly to them since you seem pretty confident that you are ovulating and progesterone is not going to bring a period. I think either will get you in in about 6 weeks time, sooner if you can get a cancellation. Whatever you do, do not let someone do surgery on you unless you know they have experience!!!I had an OB do my first surgery, and at the time I had mild AS (symptoms very much like yours). When the symptoms came back she referred me to an RE and when he did the surgery I was 100% scarred. More harm than good can come from someone who doesn't know what they're doing!!! I'm sorry for your miscarriages. The other nice thing about this group is most of us have experienced a loss and can really relate. Asherman's is scary, and I know how frightening it is to not know what's in your uterus when you know "bad news" could be devastating. Many in this group have had to remind me to "take a deep breath".Please ask all the questions you want. Good luck on your diagnosis!!!

[Guest guest]

Welcome to the group, I wish we were meeting for happier occasions.

Yours sounds like a classic case of Asherman's. Please don't get too

distraught by reading all the bad news only. I know when I first

started reading, all the articles on the internet said AS can be

treated if mild, but if severe there is little hope. You can see

from the Pregnancy database that that comment is not true.

Also, pain is usually considered to be a " good " sign as it can

indicate that you have lining (the pain is from it not being able to

escape out your cervix).

You are lucky to be so close to A lists. Check the archives for

messages re: Dr. Palter(you can find the A list of Doctors in the

Database). He has been used by LOTS of people in the group and

everyone seems to like him (and I think he studied under Dr. Olive at

Yale??), although he sometimes bills your condition as infertility so

that may cause insurance problems. Dr. Copperman has also been used

by a few with very positive results.

I would skip the RE and go directly to them since you seem pretty

confident that you are ovulating and progesterone is not going to

bring a period. I think either will get you in in about 6 weeks

time, sooner if you can get a cancellation. Whatever you do, do not

let someone do surgery on you unless you know they have experience!!!

I had an OB do my first surgery, and at the time I had mild AS

(symptoms very much like yours). When the symptoms came back she

referred me to an RE and when he did the surgery I was 100% scarred.

More harm than good can come from someone who doesn't know what

they're doing!!!

I'm sorry for your miscarriages. The other nice thing about this

group is most of us have experienced a loss and can really relate.

Asherman's is scary, and I know how frightening it is to not know

what's in your uterus when you know " bad news " could be devastating.

Many in this group have had to remind me to " take a deep breath " .

Please ask all the questions you want. Good luck on your diagnosis!!!

[Guest guest]

Bernadette,

Welcome to the group and I am sorry that you have reason to be here.

You have been through so much and your feelings of devastation and

isolation are feelings that most of us have felt at one time or

another so you will find this group to be very informative but also

very supportive. Have you looked at the Database and under that is an

A-list of doctors who treat Asherman's. There is one in Australia but

I'm not sure if he is there right now or when he will be back. Maybe

someone who knows can fill you in on where he is at and when he will

be back. Hopefully if you do have AS, it is a mild case and may just

be that your cervix is scarred shut. Over 9mm of lining is good.

Please ask lots of questions and know that you are not alone. There

are many women here who have had babies after their AS was treated and

there are quite a few who are pregnant now. I wish you the best and

hope that you get some comfort from knowing that you are not alone.

Take care!

Roxie

[Guest guest]

Dawn,

Sorry for your loss in needing to join this group. You asked if the

scarring gets harder to remove: I think the answer is yes based on

the experience of some people in this group (Sara O), but your case

is still very " young " having only been 5 months since your D & C. You

can check under the database on the site for doctors near you.

I am impressed that your doctor gave you the balloon and estrogen

after your second D & C. I recently had a D & C for retained placenta

and despite my OB knowing I had just had AS, didn't do anything to

try to prevent it after my D & C.

Is there a doctor you can get there who will do an in-office

diagnostic hysteroscopy? That way they can see for sure what it is

that's in your uterus.

Ask any questions you have, this is a great group!!

[Guest guest]

Therese,

Welcome to the group. I'm sorry that you have reason to be here and

also for all of the pain that you have gone through. If you click on

the files section you will see an A-list and a B-list of doctors who

have had success with treating Asherman's. There are members who

have had severe AS and are now pregnant or have already had a baby,

so there is hope. I can't stress enough the importance of having

treatment from someone who deals with Asherman's alot. It is a very

delicate surgery and if it is performed by the wrong doctor, more

damage can be done. Do you have any type of monthly spotting or do

you have no bleeding but a lot of pain when it is time for your

period? Both of those symptoms are signs that there is endometrium

left which is good. There's also a list of questions that a doctor

should be able to answer before you allow treatment and that is also

under the files section. Please ask any questions. You will find

that this group is filled with caring women who know just how you are

feeling.

Roxie

[Guest guest]

Hi Bella,

Welcome to the group and sorry you have to be here. To find lists of

recommended doctors, click the " Databases " link, which is located on

the left side of the http://groups.yahoo.com/group/Ashermans page.

We maintain two lists, the " A-list " and the " B-list. " The A-list is

doctors who do a lot of Asherman's surgeries, have successfully

treated many members of this group, and have been recommended to us

by other doctors who also treat a lot of Asherman's. The B-list is

doctors whom individual group members have had success with and

liked; we need such a list because unfortunately not every part of

the world has an A-list doctor.

There is an excellent A-list doctor in your area, Dr. March

in Glendale. You can find his contact information by looking at the A-

list itself.

Best wishes,

G.

[Guest guest]

Hello Verena,

There is a good Asherman's doctor in Germany. He is Adolf Gallinat in

Hamburg. (0) 40-4328580 / (0) 40-43285858

www.tagesklinik-altonaer-strasse.de

You can find more information about him in our list of " A-list "

doctors. This is the list of doctors who are well known for treating

Asherman's and have been recommended by other doctors who also treat

a lot of Asherman's. To find the list, click the " Database " link at

the left side of the http://groups.yahoo.com/group/Ashermans

page.

I hope this helps.

Also, one of the most senior members of our group is a German member

named Corinna, maybe she can email you privately in German to help

you more, although your English seems very good. We can wait to see

if she answers your message, but if she doesn't see it, maybe we can

email her directly and ask her to talk to you, if you wish.

Best wishes,

G.

[Guest guest]

Welcome Liz. Here's my two cent:

Seems like an office hysteroscopy is in order. It's good that

endometrial lining is visible and that you have cyclical pain. It's

possible that only your cervix is scarred closed. That certainly

caused me some cyclical pain. I also want to mention ovarian cyst

related pain. The worst pain of my life has definitely been

attributed to cysts. Mine get up to 10cm and more. Placement seems

key with regard to how much pain they can cause. After a couple of

cyst related surgeries, I take them very seriously. I too have had

3 miscarriages. I'm terribly sorry to read that we have this in

common. I've done the birth control pill thing in hopes of

regulating or " causing " a period, but it was to no avail, however I

am now on b.c. to help control cysts. I might again ttc in another

year (as soon as we can complete our impending adoption) in which

case I'll clearly need to quit b.c. I don't have periods other than

1 day of light spotting, have little endometrium, and have a

chromosomal problem that makes miscarriage far more likely than

not. However, I sort of feel that if I could beat the odds to end

up with AS and an auto-immune condition (both things doctors were

initially " sure " I didn't have - same for the chromosomal imbalance)

I just might beat the odds to have a baby the biological route in

addition to the adoptive route. Time will tell. All my best to

you. Let's hope it's only minor blocking that can easily be taken

care of via hysteroscopy. I've been largely not dealing with AS for

several months now (last surgery in July) but I do highly recommend

Dr. Indman in Los Gatos. I know it's not in LA, but I traveled down

from Seattle and felt it was my first effect step toward getting

good answers - and peace of mind!

Take care,

J.

[Guest guest]

We have a 15 month old little boy- Gaaron. The day he was born was one of the most magical days of my life.

The days following- were not. I lost a lot of blood during delivery and seemed to bounce back before I went home 72 hours later. The day after we returned home I started hemriging - I literally thought my uterus was falling out. We trudged back to the hospital and had to have a D & C performed. The bleeding didn't slow down much and one month later I was out for my first trip to the mall- I started losing so much blood we needed to call an ambulance (What an experience)- needless to say I was once again hemriging. And I had to have anohter D & C to clean me out. The only explanation the doctor could give me was that I had a condition that the placenta was imbeded so deeply into my uterine walls- that even after they thought it was all out- it started to shed more. Crazy-

Now 15 months later and not a drop of a period since the delivery- The doctor started to do tests to see what is going on.

We were planning on conceiving our next child this summer. (looks like that isn't going to be the case)

The doctor first did an HSG with no success of getting any of the die into my uterus. This is when I first heard the words

Ashermans Syndrome. At that time my doctor said he could perform a D & C and hysterscope in order to try to cut out the scar tissue and take pictures of the inside of my Uterus.

I had done some research and this sounded pretty reasonable.

On April 23rd , 2003 I had the hysterscope and D & C performed. With not much success. To say the least, my doctor punctured my uterus with the scope after he got in and took some pictures. He said that my uterus is polluted with scar tissue and it appears my tubes are closed. He stated he has only ever punctured 2 uterus in his life- ( Mine happens to be one of them )

After the surgery at my follow up my doctor told me I need to see a specialist- He feels that he can't do any thing else for me.

I have made an appointment with a fertility specialist for direction in finding the best doctor for Ashermans. I am hoping to get the A list from this group.

Needless to say- I have been suffering some awful cramping since the procedure and was even in the hospital over night. (I did not see my normal doctor- but another doctor in the practice) Basically they have no explanation of the pain. I was to follow up with my normal OB- that was supposed to be last Friday- Thursday his nurse called me and told me that as long as I am not currenlty having pain- he didn't need to see me. I am convinced that my doctor doesn't want to answer any more questions.

I am looking for someone to turn to with some sort of direction in this.

Like I said I did make an appointment for a consultation with a fertility practice in Philadelphia PA however, I am willing to go anywhere to find the best doctor. According to the pictures I have and the explanation from my doctor- This is a very severe case.

I need direction and closure on all of this.

I could go on, however this seems like a pretty good place to stop.

Sincerly,

Chanon Bankowski

[Guest guest]

Chanon,

I'm so sorry to hear that you have AS. Does your insurance require a

referral or could you just go to see an A-list doctor without a

referral? However you do it, I think it's best to see an A-lister.

Since you're in Philly, the doctors in New York--there are a few A-

listers there--would probably be the best place to start.

Having a doctor who is very experienced in treating AS can make a

huge difference in your results. IMO, it's worth it to see the best

doctor possible right from the start.

I'm glad you found this board--it's a great source of information and

support.

Take care,

Terry M.

[Guest guest]

Dear Helle,

Wlcome to our group. It is a good thing that you were finally diagnosed. Make

sure the doctor that does your hysteroscopy is very familiar with Asherman's.

Have you looked at the A-list yet for a list of doctors?

Ask all the questions you would like!

[Guest guest]

Helle,

Welcome to our group! I am sorry to hear of all that you've been

through, but hopefully, your doctor will be able to successfully

treat your AS.

Take care,

Terry M.

[Guest guest]

Terry, Thanks for your reply! In your opinion should I go to

another doctor for the HSG or SHG? How long does it take to get

results back from these tests? I was wondering where to find your

story, because I am interested in where you are and what your

journey has been like. Thanks for your feedback. Hope

> Hope,

>

> Welcome to our group. I am so sorry to hear that you might have

AS. I

> remember all too well how agonizing it was to wait for my test

> results and I too felt convinced I had AS (and unfortunately, I

was

> right).

>

> Have you had an HSG or SHG? These are two tests commonly used to

> diagnose AS and are less invasive/less involved than a

hysteroscopy.

> It was an HSG that confirmed I had AS. I think most doctors do one

of

> these tests before doing a hysteroscopy.

>

> If you do have AS, I highly recommend that you see one of the A-

list

> doctor for treatment. The experience of your doctor can make a

huge

> difference and there are only a few doctors who are truly

experienced

> in dealing with AS.

>

> I have Blue Shield PPO and my surgery will be covered. Thankfully,

> Dr. March (an A-list doctor) is on my plan and he does not code AS

as

> infertility, which allows it to be covered.

>

> I do blame the doctor that performed my d & c for my AS.

>

> I'll be thinking of you.

>

> Take care,

>

> Terry M.

[Guest guest]

Hi Hope,

Welcome to the group! I really hope that you do have a bleed after

your course of estrogen but if not, you've find the right place for

support and information. I had a similar experience after a D & C

except that my periods were just incredibly light.

I wonder why your doctor wouldn't just schedule an SHG or HSG right

off the bat to check for scarring? It is possible to have AS

diagnosed and treated all in one procedure, but I don't think too

many women have gone that route--mainly because you don't want your

regular doctor to do the surgery. I think it's OK to let your OB do

the hysteroscopy as long as you make absolutely certain that he/she

is not going to do anything else (surgery). In this case, you might

want to get a video of the hysteroscopy to send to an A-list doctor.

Or of course you could go directly to an A-list for diagnosis and

treatment. It will probably depend on your location and your

insurance.

To answer your other questions...My insurance (HMO) did cover my

surgery, but it was with an in-network doctor and it had to be

precertified. I think a lot of it depends on how it is billed i.e.

amenorrhea vs. infertility. Yes, I do blame the OB who did my D & C.

I came out of that procedure with no endometrium on the majority of

the walls. I asked her not to scrape, but she did anyway.

Please don't feel devastated--it's much too early for that! There

are countless members in this group who thought at one time or

another that it was hopeless, only to go on to a healthy pregnancy.

My husband always says that until someone tells us otherwise, we just

have to assume the best! Still, I know how hard it is to stay

positive all the time. Try to just take baby steps for now and not

think too much about the " what ifs " . Focus on getting a proper

diagnosis for now.

Best wishes to you Hope!

Haley

[Guest guest]

> Hi Hope,

>

> I don't think it's absolutely necessary to see an A-lister for an

HSg

> since it's a relatively low-risk procedure. I scheduled mine

through

> my regular ob-gyn and the HSG itself was conducted by a

radiologist.

> It took my results over a week to come in, but I know some women

have

> got the results much sooner.

>

>

> Here's my story:

>

> I got married in June 2002. We have no children. I'm thirty years

old

> (will be 31 in October). I went off birth control pills in July,

> conceived in August, but miscarried around my 5th week, which went

> naturally. We waited one cycle to TTC, and then got pregnant again

on

> our next try. Unfortunately, I discovered in my 11th week that the

> fetus had died in its 6th week, and I required a d & c, which I

had

> in my 12th week. I had the fetal tissue tested, and the tests

> revealed trisomy 16--a random chromosomal problem that in no way

> affected our future chances of a successful pregnancy.

>

> After my d & c, I switched doctors since I was upset that my old

> doctor wasn't interested in running further tests on me to check

that

> everything was ok and his office staff was rude and incompetent.

My

> new doctor ran tests and discovered I have Graves' Disease--an

> autoimmune disease that causes my thyroid to go nuts. Graves' can

> also cause miscarriages, so it may have played a role in my first

> loss.

>

> After my d & c, my period didn't show, so my new doctor gave me

> provera to bring it on. That didn't work, so she had me get an

HSG,

> which revealed scarring. My doctor was shocked that I had scarring

> from just one d & c. She admitted she was not experienced enough

to

> treat AS and so referred me to a local RE. However, I soon found

this

> web site and decided to see an A-list doctor instead of the RE,

and

> I'm so glad I did.

>

> Since my HSG, I have had two periods, so my cycle is back on

track.

> However, my most recent period was lighter than normal.

>

> I saw Dr. March a couple of weeks ago. He has treated

> hundreds of patients with AS and is very capable. We need to wait

> until my Graves' Disease is under control to do a hysteroscopy

since

> there's a very slight risk that I could die while undergoing

surgery,

> and that's not a risk either of us wanted to take. I hope to treat

my

> Graves' with radiation sometime in the next few weeks. If the

> radiation treatment is successful (there's a 90% chance that it

will

> be), then I should be able to have surgery in about three months

or

> so.

>

> Dr. March will do my surgery--either a hysteroscopy or a combined

> laparoscopy/hysteroscopy if the scarring extends to the higher

> portion of my uterus. It was unclear from the HSG how deep the

> scarring extended. I am praying that one surgery will do the

trick.

> After the surgery, I'll do a couple months of hormone treatments

to

> help my lining. The earliest I will be able to TTC is January

2004,

> since I need to wait 6 months after the radiation treatment to

> conceive.

>

> That's about it. Right now for me it's just a waiting game since

I've

> got at least three months before I can do anything about my AS.

So,

> I'm just trying to focus as much as I can on eating healthy,

working

> out, and trying to recover mentally emotionally from all that has

> happened this past year.

>

> I know how scary the possibility of having AS is, but there are

lots

> of success stories, so keep the faith!

>

> Take care,

>

> Terry M.

Terry,

Thanks again for your reply. My heart hurts for what you have been

going through over the past year. It appears that you have been

keeping the faith and you inspire me to hold on! I believe that

with God nothing is impossible and He hears our crys. I pray your

upcoming radiation treatments will go well. I am going to call my

doc. and see if I can get the HSG. Thanks and take care of you.

Hope

[Guest guest]

> Hi Hope,

> Welcome to the group! I really hope that you do have a bleed

after

> your course of estrogen but if not, you've find the right place

for

> support and information. I had a similar experience after a D & C

> except that my periods were just incredibly light.

>

> I wonder why your doctor wouldn't just schedule an SHG or HSG

right

> off the bat to check for scarring? It is possible to have AS

> diagnosed and treated all in one procedure, but I don't think too

> many women have gone that route--mainly because you don't want

your

> regular doctor to do the surgery. I think it's OK to let your OB

do

> the hysteroscopy as long as you make absolutely certain that

he/she

> is not going to do anything else (surgery). In this case, you

might

> want to get a video of the hysteroscopy to send to an A-list

doctor.

> Or of course you could go directly to an A-list for diagnosis and

> treatment. It will probably depend on your location and your

> insurance.

>

> To answer your other questions...My insurance (HMO) did cover my

> surgery, but it was with an in-network doctor and it had to be

> precertified. I think a lot of it depends on how it is billed

i.e.

> amenorrhea vs. infertility. Yes, I do blame the OB who did my

D & C.

> I came out of that procedure with no endometrium on the majority

of

> the walls. I asked her not to scrape, but she did anyway.

>

> Please don't feel devastated--it's much too early for that! There

> are countless members in this group who thought at one time or

> another that it was hopeless, only to go on to a healthy

pregnancy.

> My husband always says that until someone tells us otherwise, we

just

> have to assume the best! Still, I know how hard it is to stay

> positive all the time. Try to just take baby steps for now and

not

> think too much about the " what ifs " . Focus on getting a proper

> diagnosis for now.

>

> Best wishes to you Hope!

> Haley

Haley,

Thank you for your reply. I am going to ask my doc. to see if he

will go ahead and do SHG or HSG before I finish the estrogen. Great

advice about getting a video tape of test! Thanks for your words of

encouragement and advice. I have been tearful for the past couple of

days and it helps to know I am not alone. Thank you, Hope

[Guest guest]

> Hope,

> I think Tery M did a great job at answering your questions. I

just

> wanted to ask if the doctor you are going to now is the same

doctor

> who did the D & C. If the answer is yes, I would find another

doctor.

> If not, I had my HSG done in radiology by an OB/GYN. I had my

results

> immediately because the OB was right there doing the procedure.

After

> finding out that I did have AS, I then contacted an A list doctor

and

> have had 2 surgeries so far and am awaiting my 3rd one. Another

thing

> I want to add is that the doctor who does the HSG should also

> prescribe antibiotics to prevent infection which can make the

scarring

> worse. I know all of this can be really scary and the pressure to

go

> to another doctor is hard. When I was first diagnosed all I

wanted to

> do was get it fixed ASAP. I'm so happy that I found this group

and

> the list of doctors who will be able to give the most hope. Some

> people do have a tendency to scar easier than others but I think a

lot

> of the cases are caused by overly aggressive D & C's especially when

> done on a recently pregnant uterus. Infection can also cause AS.

> That is my own opinion and in the USA, it is very hard to prove

from a

> legal standpoint. You mentioned taking estrogen. Did your doctor

> prescribe that right after the D & C or is this because of not

getting

> your period? Hang in there and I'm sure you will get other

responses.

> You have found the right place and there are many members who have

> gone on to have a baby or are pregnant right now after having

their AS

> treated. Also I have an HMO and I was able to get out of network

> coverage for all of my surgeries so far.

> Roxie

Roxie, I was going to go to the same doctor, but I know of two other

doctors I could go to. This doctor first put me on progesterone and

then started me on estrogen 2 days ago to help me start. Do you

mean that the doctor should put me on an antibiotic after the test

or after the surgery? What kind of experience have you had with

your doctor and your surgeries? Hope

[Guest guest]

Dear Hope,

Has your doctor done any test yet like an HSG or a sono-hyst?

You definitely want the right diagnosis and the right surgeon if you do have

AS!!!

Hugs,

D.

^'^ Angel Elijah 4/9/2003

[Guest guest]

Hi , I too was a patient through Shady Grove but in polis,

Md. after a D & C following a retained placenta from a full term

delivery (healthy 2 1/2 boy now). I then didn't get my period and my

OB did a hyster. with no luck. She then referred me to Shady Grove.

They also did a hysteroscopy with a little luck (some period but

still a lot of scarring). I then found this web site and went to Dr.

Issacson in Boston on the " A " list. He performed a hyster. and a lap.

with total success.

The gist of this is that I do feel fortunate that my Shady Grove Dr.

knew enough to stop before creating any damage and was extremely

encouraging when I went to Dr. Issacson. My Shady Grove Dr. then

continued with me for my follow-ups, ultrasounds and measuring. I am

absolutely thrilled with this doctor, especially his bedside manor so

hopefully you receive the same kind of treatment through your Shady

Grove Dr. but please don't forget at least look over the " A " list

doctors on this website. If I had done that first, I may have avoided

a surgery. The Doctor's name is Dr. Gil Mottla in polis and I

assure you he is now more familiar with Asherman's if another doctor

at Shady Grove would like to consult with him.

Best of luck,

>

[Guest guest]

Hi ,

Welcome - I'm so sorry for the losses you've experienced, and all

you've been through. Hopefully you're now on the right track. The

most important aspect of treatment is being treated by a physician

who is very experienced in the treatment of Ashermans. I believe

under the " files " section there is a list of questions to ask your

doctor regarding treatment. His/her answers may help you to

determine if this person is experienced enough. I know the people in

this group really encourage treatment by an A-list. At the

encouragement of members a few months ago, I fought my HMO for an

out-of-network referral to see an A-list (Dr. Olive), and am so

incredibly pleased with the decision. However, many members of our

group have been treated by other doctors with good outcomes. The

biggest key is finding someone who is very experienced in AS. (Some

of the A-list docs do as many as 15+ AS surgeries a month!) AS

surgery is a very delicate surgery especially since a uterus with

Ashermans can look completely different than a typical uterus.

Sounds like you're on the right track by researching and asking

questions. You've come to the right place. This group's knowledge

and incredible support have made all the difference for me both

physically and emotionally.

Best wishes to you,

Vicki

[Guest guest]

I appreciate your writing this. My 5 yo son has dh and when he gets glutened, he is a very difficult to handle little man. We have learned that a bath( more like a long soak) in natures gate herbal hair shampoo and a dose of benedryl do him a world of good. It seems to take forever for the lesions to go away and then the spots are left behind. I can only imagine how painful they are from seeing this sweet little guy change. GOD bless you!! As for mayonaise, he always uses hellmans to dip his veggies in. He carries a lunch and snack to pre K and has been doing well for a few months now. Lauretta

Hi everyone, I'm a newly diagnosed woman with CD. I have the DH form of the illness and in truth, I'm really PO'd. I've known for years (since I did the induction phase of dr Atkins many years ago) that my skin is great if I don't eat wheat. I tried rye and barley as cereal for breakfast and had instant breakouts - ugly, ugly zits which were very painful. Then late last year, I had a horrible symmetrical set of hives on my forearms. they looked like cold sores at one point and burned and itched and nearly drove me crazy. Nothing touched the pain/itch until I found a cream at the health food store which finally soothed it and allowed it to heal. Needless to say, I have ugly scars from them, since I scratched in my sleep and if I wasn't conscious of it. Ironically, no one has ever suggested a test for Celiac! Sheesh, how dumb are these doctors? I went to a walk in clinic with a boil. When I took off my jacket the doc asked how long I'd had Celiac's. when I asked for clarification, she pointed to the scars on my arms. When I said I didn't know, she immediately ordered a bunch of tests, which have come back positive. Duhhhh the good news is I haven't eaten wheat, rye or barley for some years, so I feel like I'm starting from a good place but I'm confused by a couple of things. Is vinegar (white vinegar made from malt) okay? Some books say it's not and others say it is. When I look at real mayo, vinegar is the only thing which seems to be a problem, but i thought I'd make my own for awhile and see how I feel (I'm exhausted all the time). What's the consensus about mayo, since it contains vinegar? Ditto for mustard? I'm going to study the files, but eating out seems to be a big problem. I travel to the US many times each year, on business, and am not certain if I should bring food, where I can, or take a chance. Any thoughts? I am really looking forward to getting over this fatigue. and the Osteopenia. So I'm willing to do whatever it takes to feel better.thanksLouise