Re: Eilish home

March 14, 2001

,

I am glad Eilish is home, and I hope the little one feels better soon.

As for being the unwanted parents, lol, I think we have all been there when

it comes to our kids, maybe one day the nurses will learn that mommie and

daddies are right, lol. Glad she is home, take care.

, mommy of 4, , 16 and begging to drive the family auto, (I

dont need more grey hair here) Caleb, 6 wishing to be 3 again, and the

worrier of the family,

, 5 and the next famous artist, and , 19 months with CF and reflux

and a beautiful smile and bright blue eyes, whose greatest passions are

dancing and Elmo.

March 14, 2001

Hi , I'm so glad to hear that Eilish is home today! I just know how

hard it is to leave your children in the hospital even over night. I guess

that's just the protective mother in me. I feel like a mother is a better

nurse, more attentive and knows the patient better than complete strangers

in a hospital taking care of lots of other people. Plus I think it helps

the spirit sleeping in your very own bed in your own comfortable

surroundings. When Shantell has had to go in for a couple of days, we take

EVERYTHING with us, and I mean everything! Her pillows, her blankets, her

soap, her music and every other item but the kitchen sink. She loves being

home, and hates the hospital. Even the brand new state of the art Mayo

Hospital that we go to (they even bring heated warm blankets). Do not feel

bad about ticking off a couple of nurses, I've done more than my share of

that over the past 19 years and who cares? It's not their baby, just a job!

How did Eilish catch this other virus in the hospital? She didn't have to

share a room with another CF patient did she? I always demand a private

room, no matter if it's CF or any other problem...if they are sick, they are

contagious. When Shantell was sick last month her fevers ran 104 and night

sweats all night. I stayed up most of the night with cool wash clothes on

her face so she could sleep, but I also gave her tylenol with codein just so

she could sleep. The lack of sleep was really bringing her down fast. That

made all the difference in her, by the next day she looked so much better.

She's done with her PICC line, and she looks and feels great. I took her to

California for spring break last weekend and she met up with two of her

girlfriends. I hope Elish is feeling better soon so you can all relax some

too. Keep us posted!

, mom of Shantell 19wcf

Eilish home

Eilish finally got home today. They did a nose test thing with those tubes

to detect anything, we'll receive the results in 24-48 hours. She still has

a temp. but if it's a virus we can keep her more comfortable at home as the

hsp. has stupid rules re;- paracetamol etc.

blew his stack there last night and so were not the most popular

patients with 2 nurses, but who cares.

March 14, 2001

WELCOME HOME,

EILISH, AND CONGR

ATULATIONS, BRIAN

FOR BLOWING YOUR STACK, THAT IS!

n Rojas who readily blows her stack whenever the occasion justifies it,

i.e.,

at general medical incompetence, etc..

March 14, 2001

Glad to hear Eilish is home....I hope you can stay away from the hospital for a

good bit.

Stein

Eilish home

Eilish finally got home today. They did a nose test thing with those tubes to

detect anything, we'll receive the results in 24-48 hours. She still has a

temp. but if it's a virus we can keep her more comfortable at home as the hsp.

has stupid rules re;- paracetamol etc.

blew his stack there last night and so were not the most popular

patients with 2 nurses, but who cares.

March 14, 2001

,

Eilish still is unwell. I called the hsp. to check on her nasal thing and

they said it showed nothing and her bloods showed nothing, but she's still

sick. Her temp is still going up but not as much, probably only to 38.5 or

so but her nose is running like a tap, her eyes are moist and heavy and

she's miserable. They said she's probably got a virus but not one they test

for, which is not very encouraging. I feel like shaking them as they dont

seem concerned but I am as she's worse know than 2 weeks ago.

Re: Eilish home

> ,

>

> I am glad Eilish is home, and I hope the little one feels better soon.

> As for being the unwanted parents, lol, I think we have all been there

when

> it comes to our kids, maybe one day the nurses will learn that mommie and

> daddies are right, lol. Glad she is home, take care.

>

> , mommy of 4, , 16 and begging to drive the family auto, (I

> dont need more grey hair here) Caleb, 6 wishing to be 3 again, and the

> worrier of the family,

> , 5 and the next famous artist, and , 19 months with CF and

reflux

> and a beautiful smile and bright blue eyes, whose greatest passions are

> dancing and Elmo.

>

March 15, 2001

---

At least you still have your sense of humor. I too am sick with a cold

and its awful trying to care for children when your sick. If one more person

askes me for apple juice I will scream. I am glad Eilish is home.

Rosemary in New York with 3 kids with CF ages 10, 8 and 4! If I had a dog it

would probably have CF! I have the luck of the Irish!

March 15, 2001

,

Eilish had her own room, but I suppose if you walk around the hsp. like to

the canteen or anything there's always a chance of getting something. Plus

our season's are starting to change and it's hot one day cooler the next, so

I know at work (in a clinic) alot of people have fluey symptoms. Her temps

are doing okay now but her eyes and nose are still runny. She in such a

awful mood I feel like throtteling her but have to refrain. She wont

huff,blow or cough with physio, as Im typing this I can hear telling

her to do it, but she wont. I feel like Im getting something to, my lips

are sore and my nose is dripping, so maybe its a cold sort of thing. At

least she's not greedy and sharing it around!

Eilish home

>

> Eilish finally got home today. They did a nose test thing with those

tubes

> to detect anything, we'll receive the results in 24-48 hours. She still

has

> a temp. but if it's a virus we can keep her more comfortable at home as

the

> hsp. has stupid rules re;- paracetamol etc.

> blew his stack there last night and so were not the most popular

> patients with 2 nurses, but who cares.

>

March 16, 2001

Rosemary,

I think Eilish is on the mend. Her nose is still runny, but no fever. And

a more important side is she's back to her mood swings (god help us when

she's a teenager).

When she's naughty and mean to her brother then I know she's feeling better,

but it makes us feel worse. Hope your cold gets better too.

Re: Eilish home

> ---

> At least you still have your sense of humor. I too am sick with a

cold

> and its awful trying to care for children when your sick. If one more

person

> askes me for apple juice I will scream. I am glad Eilish is home.

>

> Rosemary in New York with 3 kids with CF ages 10, 8 and 4! If I had a dog

it

> would probably have CF! I have the luck of the Irish!

>

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March 16, 2001

and Rosemary, so sorry you both are under the weather! It's not fair

that WE can't get sick (no time, no one to take care of us and serve us

apple juice)! I'm very lucky, I only get sick with sinus maybe once every

other year. But every time there is a change in the weather for Shantell,

she gets sick. Even with the slightest change her asthma kicks in. That's

why I moved to Arizona, it basically stays about 65 to 90 degrees until she

goes to Alaska for two months in the summertime. So, she stays with good

weather year round. I just want to say that it is so nice talking to you

all here on this list, I feel so much better. Even though Shantell is older

than most of your children, we all have a lot in common. I still read the

Cystic-L for information, but it seems like every time I put in my two bits

I get flamed, even when I talked about my thyroid problem to someone who

asked. I feel very niave compared to most on that list because even though

Shantell is older, she really didn't start getting seriously ill until 16.

That's not to say that I didn't have a lifetime of colds, bronchitis, flu

and respiratory infections (because we did, her lung even collapsed at 6),

but we really (and I mean really) worked on her therapy and diet. Everyone

on this list really spends their energy caring for their children, and this

is such a nice place to vent your frustrations to others who know what you

are going through. Shantell actually had a date last night, although I had

to PRY it out of her what his name was etc...She says he's just a friend,

but they went to the movies together and he picked her up. She's 19 and

never really had a boyfriend, because she's very, very picky (like her

mother). I want so bad for her to have a " normal " life and it seems like

I'm the one who is in a hurry for her to find all the happiness in the

world. We practically grew up together because I had her when I was 19yr.

My first born, , I had when I was 17yr. I'm very close to my kids

because I really think that I was just a kid myself. The past couple of

years have been hard because I met the man of my dreams and married him last

year. Shantell has had a hard time accepting him because he interfered with

our life together. I want her to find a boyfriend so she understands the

difference, because I tell her I don't want to be old and alone! Hope your

both feeling better soon, eat lots of chicken noodle soup!

, mom to Shantell 19yr, and you want to talk about an attitude,

...just wait!LOL!