Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 You should always read labels and if you have doubts you can call the manufacturer to check out questions. The files are a great place to look for ideas so you know where to start. If something is in the files I usually feel very comfortable just checking the labels. Some people have a reaction to the maltitol in chewing gum. It frequently causes gas and diarrhea in lots of folks – not just celiacs. Many don’t react at all. I don’t know if that is in the gum you tried. We chew Extra all the time. It has maltitol and it doesn’t bother us. I have 2 friends that won’t touch it – and it has nothing to do with gluten. Good Luck finding a gum that works for you. Becky From: SillyYaks [mailto:SillyYaks ] On Behalf Of Ian's Mimi Sent: Friday, February 10, 2006 10:39 AM To: SillyYaks Subject: FYI on files yesterday I requested info on chewing gum. I was directed to the silly yak files for candy and gum...........there I found Bazooka listed as a safe gum............today I am having gas and diarrhea .........no more files for me. By the way i had one piece of bazooka gum :-( Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 What does the ingredient list say for the Bazooka gum? Are there any mystery ingredients there? It would be extremely odd for it to actually have gluten. I think it is far more likely that you were contaminated by something else. Do you share a toaster oven, condiments, wooden utensils, pasta strainers, etc. with gluten eaters? These are very common sources for problems. I even make sure that my shampoo and conditioner don’t have wheat in them because I decided I was having issues with those in the past. It is hard to get a hold on these contamination issues at first. It is much easier if you go to an all gf kitchen but many people do not have that option. So, you have to be super careful – I was never even remotely inclined to be a clean freak in the past but I watch everything that happens in the kitchen now! Another thing I didn’t watch at first – and learned the hard way - is that even tea can have gluten. I don’t see it often but some flavored teas contain barley malt. It took me a while to figure out it was the tea that had contaminated me earlier this year. It was clearly written on the label – but my quick glimpse in the store didn’t notice – grrr! That was frustrating. But, I learned to check even on drinks. Becky From: SillyYaks [mailto:SillyYaks ] On Behalf Of Ian's Mimi Sent: Friday, February 10, 2006 8:02 PM To: SillyYaks Subject: Re: FYI on files All you say is true but my point is this a celiac list and you would think our files should have accurate info! Or they shouldn't be there at all...........I am a newly DX'd and I trusted this group and got ill because I did. Mimi richabec wrote: Food companies have the right to change their ingredients at any time. You cannot assume that something will remain gf forever just because it is right now. You always have to check labels. The thing I find most helpful is to get familiar with the food companies that will accurately label food without hiding any gluten ingredients. Kraft, Con Agra, General Mills, are some that come to my mind. I try to buy from companies I know that I can trust. I really don’t depend on lists – but – I find them very helpful late at night or on weekends when the option to call a company is not available. The lists are a great resource to go to for options – it is overwhelming at first to face a whole grocery store full of labels. The lists give you a starting point. As you become more familiar with the diet it will become much easier. You may also identify other ingredients that you are sensitive to as well. Not all bloating is due to gluten – though sometimes it is hard to tell the difference if you do not a very strong reaction to gluten. The only chewing gum that I have identified that actually does contain gluten is Altoids gum. There may be others – but I generally trust the labels on gum since most come from the large food companies. Becky From: SillyYaks [mailto:SillyYaks ] On Behalf Of Ian's Mimi Sent: Friday, February 10, 2006 6:51 PM To: SillyYaks Subject: Re: FYI on files Then what is the sense of the files if it is not a SAFE place to get answers? Then in reality all foods should be listed there, doesn't make sense at all. Mimi richabec wrote: You should always read labels and if you have doubts you can call the manufacturer to check out questions. The files are a great place to look for ideas so you know where to start. If something is in the files I usually feel very comfortable just checking the labels. Some people have a reaction to the maltitol in chewing gum. It frequently causes gas and diarrhea in lots of folks – not just celiacs. Many don’t react at all. I don’t know if that is in the gum you tried. We chew Extra all the time. It has maltitol and it doesn’t bother us. I have 2 friends that won’t touch it – and it has nothing to do with gluten. Good Luck finding a gum that works for you. Becky From: SillyYaks [mailto:SillyYaks ] On Behalf Of Ian's Mimi Sent: Friday, February 10, 2006 10:39 AM To: SillyYaks Subject: FYI on files yesterday I requested info on chewing gum. I was directed to the silly yak files for candy and gum...........there I found Bazooka listed as a safe gum............today I am having gas and diarrhea .........no more files for me. By the way i had one piece of bazooka gum :-( Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Mimi - In addition to the suggestion for you to look in the files, someone posted a recent email from Wrigley's on all their gum (dated 12-20-05). It is generally better to rely on recent manufacturer supplied information than on ANY list. Melonie and others put in a tremendous amount of time on the lists, and, short of making phone calls as a full time job, no one could do a better job keeping them current. Sue in Denver > > All you say is true but my point is this a celiac list and you would > think our files should have accurate info! Or they shouldn't be there at > all...........I am a newly DX'd and I trusted this group and got ill > because I did. > Mimi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Mimi, You should also know that being GF might not solve all of your problems. I had a (new and unfamiliar) knot in my guts for a full month after going GF (which means that the knot’s been gone for a week. I can drink coffee again, thank goodness.) I don’t know why. I’ll check with the GI on Monday to ask about other allergies or sensitivities. Tonight my ds (also gf) said, “Mom, this juice makes my stomach hurt as soon as I drink it.” I couldn’t figure out which ingredient offended (Twister Kiwi, not 100% juice) so I just tossed it. I wish there was a huge and definitive of everything we can safely eat. Maybe as labeling laws improve and Celiac becomes more known it will be easier. Laurie lbilyeu@... From: SillyYaks [mailto:SillyYaks ] On Behalf Of richabec Sent: Friday, February 10, 2006 10:49 PM To: SillyYaks Subject: RE: FYI on files What does the ingredient list say for the Bazooka gum? Are there any mystery ingredients there? It would be extremely odd for it to actually have gluten. I think it is far more likely that you were contaminated by something else. Do you share a toaster oven, condiments, wooden utensils, pasta strainers, etc. with gluten eaters? These are very common sources for problems. I even make sure that my shampoo and conditioner don’t have wheat in them because I decided I was having issues with those in the past. It is hard to get a hold on these contamination issues at first. It is much easier if you go to an all gf kitchen but many people do not have that option. So, you have to be super careful – I was never even remotely inclined to be a clean freak in the past but I watch everything that happens in the kitchen now! Another thing I didn’t watch at first – and learned the hard way - is that even tea can have gluten. I don’t see it often but some flavored teas contain barley malt. It took me a while to figure out it was the tea that had contaminated me earlier this year. It was clearly written on the label – but my quick glimpse in the store didn’t notice – grrr! That was frustrating. But, I learned to check even on drinks. Becky From: SillyYaks [mailto:SillyYaks ] On Behalf Of Ian's Mimi Sent: Friday, February 10, 2006 10:39 AM To: SillyYaks Subject: FYI on files yesterday I requested info on chewing gum. I was directed to the silly yak files for candy and gum...........there I found Bazooka listed as a safe gum............today I am having gas and diarrhea .........no more files for me. By the way i had one piece of bazooka gum :-( Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Your right, I consider it a lesson learned about using the files. I won't be making that mistake again. And yes I saw the Wrigley post the day after the other post. And I understand people put a lot of time into the files and I have no issue with that..........my point is accuracy. People got all crazy here a few days ago over Mc's and their lack of accuracy.....do you remember? LOL People wanted to shoot first and ask questions later! The bottom line is I will only trust myself to check out what is safe to eat from this point on. Tomorrow is another day and thankfully the side effects seemed to have subsided :-) Mimi zoemom2001 wrote: Mimi - In addition to the suggestion for you to look in the files, someone posted a recent email from Wrigley's on all their gum (dated 12-20-05). It is generally better to rely on recent manufacturer supplied information than on ANY list. Melonie and others put in a tremendous amount of time on the lists, and, short of making phone calls as a full time job, no one could do a better job keeping them current. Sue in Denver > > All you say is true but my point is this a celiac list and you would > think our files should have accurate info! Or they shouldn't be there at > all...........I am a newly DX'd and I trusted this group and got ill > because I did. > Mimi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 While similar I suppose in some ways, the two threads are completely different. McD's themselves provided the information that the fries were gluten free. That's a little different than a list compiled by volunteers (that, incidentally, comes with a clear disclaimer that you should always call the manufacturer). On the list, it also clearly indicates that Bazooka was contacted in Oct 2004. For me, that's not recent enough to be counted on. Short of preparing all your own food from scratch, you are going to get glutened no matter how careful you are. It sucks, but it happens. Sue in Denver > > > > > > All you say is true but my point is this a celiac list and you > > would > > > think our files should have accurate info! Or they shouldn't be > > there at > > > all...........I am a newly DX'd and I trusted this group and got > > ill > > > because I did. > > > Mimi > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Mcs was an excellent example of how companies can change ingredients without any public notification. The only way to keep files completely accurate would be to contact every company every day and make sure they haven’t changed they’re process. (They couldn’t even keep they’re list accurate) An impossible job. That’s what makes this list great, we get the benefits of others findings. Thanks, Judy Gettysburg PA From: SillyYaks [mailto:SillyYaks ] On Behalf Of Ian's Mimi Sent: Friday, February 10, 2006 11:22 PM To: SillyYaks Subject: Re: Re: FYI on files Your right, I consider it a lesson learned about using the files. I won't be making that mistake again. And yes I saw the Wrigley post the day after the other post. And I understand people put a lot of time into the files and I have no issue with that..........my point is accuracy. People got all crazy here a few days ago over Mc's and their lack of accuracy.....do you remember? LOL People wanted to shoot first and ask questions later! The bottom line is I will only trust myself to check out what is safe to eat from this point on. Tomorrow is another day and thankfully the side effects seemed to have subsided :-) Mimi zoemom2001 wrote: Mimi - In addition to the suggestion for you to look in the files, someone posted a recent email from Wrigley's on all their gum (dated 12-20-05). It is generally better to rely on recent manufacturer supplied information than on ANY list. Melonie and others put in a tremendous amount of time on the lists, and, short of making phone calls as a full time job, no one could do a better job keeping them current. Sue in Denver > > All you say is true but my point is this a celiac list and you would > think our files should have accurate info! Or they shouldn't be there at > all...........I am a newly DX'd and I trusted this group and got ill > because I did. > Mimi > No virus found in this outgoing message from ClubFlamingo. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.15.6/257 - Release Date: 2/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 A very good point and serious food for thought. Thank You, Mimi Judy wrote: Mcs was an excellent example of how companies can change ingredients without any public notification. The only way to keep files completely accurate would be to contact every company every day and make sure they haven’t changed they’re process. (They couldn’t even keep they’re list accurate) An impossible job. That’s what makes this list great, we get the benefits of others findings. Thanks, Judy Gettysburg PA From: SillyYaks [mailto:SillyYaks ] On Behalf Of Ian's Mimi Sent: Friday, February 10, 2006 11:22 PM To: SillyYaks Subject: Re: Re: FYI on files Your right, I consider it a lesson learned about using the files. I won't be making that mistake again. And yes I saw the Wrigley post the day after the other post. And I understand people put a lot of time into the files and I have no issue with that..........my point is accuracy. People got all crazy here a few days ago over Mc's and their lack of accuracy.....do you remember? LOL People wanted to shoot first and ask questions later! The bottom line is I will only trust myself to check out what is safe to eat from this point on. Tomorrow is another day and thankfully the side effects seemed to have subsided :-) Mimi zoemom2001 wrote: Mimi - In addition to the suggestion for you to look in the files, someone posted a recent email from Wrigley's on all their gum (dated 12-20-05). It is generally better to rely on recent manufacturer supplied information than on ANY list. Melonie and others put in a tremendous amount of time on the lists, and, short of making phone calls as a full time job, no one could do a better job keeping them current. Sue in Denver > > All you say is true but my point is this a celiac list and you would > think our files should have accurate info! Or they shouldn't be there at > all...........I am a newly DX'd and I trusted this group and got ill > because I did. > Mimi > No virus found in this outgoing message from ClubFlamingo. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.15.6/257 - Release Date: 2/10/2006 Quote Link to comment Share on other sites More sharing options...
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