Cathy- GSH, - Pulmozyme & Health Care Card - DHA

January 15, 2001

, Yes I would like to find out a little more info on GSH, just

another thing to ask my pead about and watch him squirm. He doesn't

really approve of these sorts of things but he is willing to discuss

them with me.

. Pulmozyme trialling is because of the high cost of the

medication, I know that before it was on the PBS there were a number of

families paying around a $1000 a month to have their children on it. My

understanding is that CF patients will receive a health care card, but

then again politicians are politicians and who can believe a word they

say.

Here in Tassie they take a very " cautious " approach and don't use the

Danish method, be interested to know about WA and NSW approaches, but

then again I'm sure the different clinics in Sydney would do different

things as well.

. Earlier this year I started Ainslie on flaxseed oil capsules,

with in a couple of days the night-time cough that she had disappeared.

There was a 2 week break from it a one stage and she coughed every night

for the second week, so I started her on it again and no nighttime

coughs since. Then our naturopath recommended an Omega 3-6-9 which

contains linseed oil (flaxseed) 500mg, Starflower oil 50mg, Blackcurrant

seed oil 50mg, Vitamin E 33.6mg, Rosemary oil 10mg. This seems to have

an even better effect on her sinuses. Again I gave it about a months

break (used just the flaxseed oil) and she came down with a nasty sinus

infection, since that I won't take her off this 3-6-9 even though it is

double the price of the plain flaxseed oil. The doctors are fully aware

that Ainslie is on this and before trying ANYTHING I always check with

the pharmacy to make sure that it won't react with her other

medications.

Terri from Hobart mum to Ainslie 8 wcf and Connor 4 nocf

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