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In a message dated 12/28/2002 9:15:15 AM Eastern Standard Time,

msdarlin67@... writes:

> First, forgive me for ranting earlier. No, I do not try to self

> diagnose, nor do I think the worst. What I freak out about and what

> frightens me is not what I THINK I could possibly have, but the fact

> that so often I don't even consider it as a possibility (the " it could

> never happen to me " syndrome) and how often doctors can miss something

> when symptoms can be from so many other things.

>>>>>>>>>>>>>>>>>>>>

Have you gone to a doctor/gynecologist and asked for an ultrasound (vaginal

or otherwise) to see if you have fibroids or insisted that a doctor do the

test for ovarian cancer? I think you'd feel a whole lot better knowing what

your problem/s is. I read an article a while back that said folks who've had

health problems and not had them checked out will generally start to feel

better just by making a doctor's appointment. For all sorts of stupid

reasons, I didn't have a pap smear for 3 years. I was convinced that I'd have

cervical cancer--finally had the test last July and I was fine.

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I don't know if this is a possibility for any of you, but now they have these

free-standing CT centers where you can walk in and get a total body CT scan

any time you want. They are expensive, but they do take credit cards and

some also offer financing, on which you can make monthly payments. Maybe

that would be a possibility?

Take care,

Becc

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Tammidarlin:

My own experience has taught me that, ultimately, I am responsible for my own

health care. Doctors and other health care professionals are there to assist me

in my goals of obtaining better/optimal health.

You said that your current frustration stems from the fact that THEY have ruled

out the small stuff and have watched your health rapidly decline, they know your

family history and haven't even considered checking for other causes. You are

the main observant of your condition. It really is okay to do some research on

your own, taking into account your own family history, etc. It really is okay

to bring up your own concerns and suspicions regarding your health status based

on your research and family history. Don't take ALL your leads from your

doctor, i.e. if you think it is a possibility that you have ovarian cancer,

request that you be given the appropriate test. Don't wait for him/her to

suggest it. If your current health care professional refuses your request, then

find one who won't refuse. - If you believe that simple tests could rule out

certain conditions that are causing you real concern - then request the tests,

don't wait for the suggestion.

Joyce

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In a message dated 12/28/2002 9:14:59 AM Eastern Standard Time,

msdarlin67@... writes:

> My current anger and frustration stem from the fact that they HAVE

> ruled out the small stuff, they've watched my health rapidly decline,

> they see the excessive bloating, they know my family history, and have

> yet to even considered checking for other causes. Quite simply, I do

> not want to die. And knowing that, if nothing else, it IS a possibilty

> that I COULD have something like ovarian cancer, a simple CAT Scan

> could either confirm or rule it out. That's all. And if I sound

> cranky, I apologise. I am just so very tired of feeling sick and

> terribly uncomfortable all of the time.

>

Tammi:

In a situation such as yours, you really need and deserve to have a physician

in charge, overseeing your case, a medical advocate, directing your care.

And someone who will look at your case with fresh eyes.

Perhaps this means looking for another doctor if the current one is not as

proactive on your behalf as he/she should be.

I know this isn't an original thought--- but any chance you could pay for

the CT scan out of pocket. Should be about..... $300-600 ??? I don't know

your financial circumstances, but is there anyone who could loan you the

amount?

Meantime, I suggest you to start keeping a scrupulous diary of all of your

symptoms. Day by day, record your symptoms if and when they wax and wane.

What are they? When are they worst for you? What, if anything seems to make

them better?

Oh-and be sure to make a notation of every diagnostic test you've had until

now, and obtain photocopies of ALL your test results.

All the best,

Roma

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and by all means find a doc who is independent of the other doc for a second

opinion. gg

ARomaWithAView@... wrote:

> In a message dated 12/28/2002 9:14:59 AM Eastern Standard Time,

> msdarlin67@... writes:

>

> > My current anger and frustration stem from the fact that they HAVE

> > ruled out the small stuff, they've watched my health rapidly decline,

> > they see the excessive bloating, they know my family history, and have

> > yet to even considered checking for other causes. Quite simply, I do

> > not want to die. And knowing that, if nothing else, it IS a possibilty

> > that I COULD have something like ovarian cancer, a simple CAT Scan

> > could either confirm or rule it out. That's all. And if I sound

> > cranky, I apologise. I am just so very tired of feeling sick and

> > terribly uncomfortable all of the time.

> >

>

> Tammi:

>

> In a situation such as yours, you really need and deserve to have a physician

> in charge, overseeing your case, a medical advocate, directing your care.

> And someone who will look at your case with fresh eyes.

>

> Perhaps this means looking for another doctor if the current one is not as

> proactive on your behalf as he/she should be.

>

> I know this isn't an original thought--- but any chance you could pay for

> the CT scan out of pocket. Should be about..... $300-600 ??? I don't know

> your financial circumstances, but is there anyone who could loan you the

> amount?

>

> Meantime, I suggest you to start keeping a scrupulous diary of all of your

> symptoms. Day by day, record your symptoms if and when they wax and wane.

> What are they? When are they worst for you? What, if anything seems to make

> them better?

>

> Oh-and be sure to make a notation of every diagnostic test you've had until

> now, and obtain photocopies of ALL your test results.

>

> All the best,

> Roma

>

>

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