Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 , I'm sorry to hear of your struggles. I really don't know what to say about the differing reports from the doctors. But obviously something is going very wrong and I know that they can see plenty from the tests. I had a GI tell me that my pancreas was in good shape 3 months before I was diagnosed with a stricture that completely closed my duct and chronic panc. I think that your instincts are right in not trustin the new doc. I know that I owe many doctors and hospitols money, including the ones that I go to now. However, the insurance pays the Lions share and I just owe extra charges, so they are still getting most of what I owe. Is there a possibility to talk to the doc about it. I wish I had some better advice. I'll keep you in my prayers. Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 , I'm sorry to hear of your struggles. I really don't know what to say about the differing reports from the doctors. But obviously something is going very wrong and I know that they can see plenty from the tests. I had a GI tell me that my pancreas was in good shape 3 months before I was diagnosed with a stricture that completely closed my duct and chronic panc. I think that your instincts are right in not trustin the new doc. I know that I owe many doctors and hospitols money, including the ones that I go to now. However, the insurance pays the Lions share and I just owe extra charges, so they are still getting most of what I owe. Is there a possibility to talk to the doc about it. I wish I had some better advice. I'll keep you in my prayers. Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 LOL.. You GO Mr. Mark! Wow! Where did this guy come from? Haha... Wow, I've never seen you get so worked up Mark - and I'm glad to see it come raging out in 's defense, 'tis a grand cause to which you come to assist. As you might recall we have very similar backgrounds in the respect of pancreatic enzyme production - in that we are simply unable to create enough to demonstrate elevated levels, in spite of what study that is twenty-some years old is being taught to doctors today. My pcp is a very good example - incredibly, amazingly bright man, celebrated locally, who knows absolutely NIL about the pancreas itself. I swear to you, his understanding of this organ's dysfunction has tripled at least in the past few weeks. The concept of non-elevated A & L levels based on pancreatic burnout was entirely new to him - and I had to largely pound it home, because it's nowhere in the textbooks from which he studied! , good advice... If your doc is being a jerk and (more importantly) not servicing you adequately or appropriately, go elsewhere... I like the prospect of not just jumping ship and heading across town, but rather going to a superior... I think that's WONDERFUL advice (assuming, of course, that option is available). Hitting the next doc down the street is going to do nothing to teach your current pcp about this illness. Going over his head might force him to be educated while giving you the healthcare that you are in need of. Plus, you've raised a flag, raised your voice and called attention to yourself - something I think we do remarkable too little of when it comes to our healthcare. The old adage " It's the squeaky wheel that gets the grease " is so true. They would FAR rather serve you in the manner that will allow you to leave a happy customer than they would have you leave as one big, miserable, loudly-complaining, very vocal " bad press " packette on your way to a major competitor... at least I surely do hope so! I know you have it in you , I've seen you in " Go Gettem " phase before .. So get after it. First, decide what you want... Do you want Dr. New to make a more thorough examination of your pancreas and get up-to-speed with what's really happening, or do you want Dr. Previous to continue working with you and not toss you out because of the money factor? If the latter is the case, I think some folks have suggested the solution already - get another opinion from the accounting department. Speak to a manager, or a credit counselor, etc... Surely they won't just cast you out because you owe them money... I would think they'd rather put you on a payment plan and hope to get paid a little at a time than send you away bitter and not-terribly-excited about paying them at all. Either way, , good luck to you.. I'll keep praying for you too, I know you wouldn't have brought it to the list if it weren't heavily weighing on you and causing you a great deal of pain and stress. God bless, Terry in KC << Hey . I am sorry you are having such a tough time with your new doctor. I have found that when a Dr. has an arrogance about him, I stay away. He think pancreatitis is cut and dry because of some Dye he shot into your pancreas. He is out of his mind. If that were the case then my Enzymes would be elevate while having an attack and that simply isn't true. I don't have enough pancreas left to create the enzymes. But I have had tons of Doc try and tell me that I am not having an attack right then because they were not elevate. They were all wrong. I would be at the ER bent over in Pain.....You know the pain I am talking about and this idiot Doc would come in and tell me that I am not having problems with my pancreas because I did not have elevate levels......What an idiot. You know years ago, I used to take stuff like that.......I don't anymore......I get upset and get in their faces.....I tell them that I want to see their boss......It would be like me hitting them with a ball bat in the knee and them being in killer pain...But since there is no outward sign of injury......They don't really hurt....lol.....It is time to go over this guys head.....I would take all my Records pertaining to your pancreatitis and go to the Chief of Staff.....Enough is enough.....Doctors need to get off their pedestal...If they need to get knocked off, so be it.. The Patient should be on the pedestal if anything..The patient needs compassion. Now don't get me wrong, there are good Doctors out there. I have three who treat me. It took me years to find them. I will not ever again get treated the way I used to get treated because I will get in their faces. I am not crazy, I am not a drug seeker, I am not an alcoholic. I am a person just like they are. Just because they live up on the Hill and drive a BMW. I don't care. I will knock them right off that Hill if they treat me with disrespect one more time. So should you. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 LOL.. You GO Mr. Mark! Wow! Where did this guy come from? Haha... Wow, I've never seen you get so worked up Mark - and I'm glad to see it come raging out in 's defense, 'tis a grand cause to which you come to assist. As you might recall we have very similar backgrounds in the respect of pancreatic enzyme production - in that we are simply unable to create enough to demonstrate elevated levels, in spite of what study that is twenty-some years old is being taught to doctors today. My pcp is a very good example - incredibly, amazingly bright man, celebrated locally, who knows absolutely NIL about the pancreas itself. I swear to you, his understanding of this organ's dysfunction has tripled at least in the past few weeks. The concept of non-elevated A & L levels based on pancreatic burnout was entirely new to him - and I had to largely pound it home, because it's nowhere in the textbooks from which he studied! , good advice... If your doc is being a jerk and (more importantly) not servicing you adequately or appropriately, go elsewhere... I like the prospect of not just jumping ship and heading across town, but rather going to a superior... I think that's WONDERFUL advice (assuming, of course, that option is available). Hitting the next doc down the street is going to do nothing to teach your current pcp about this illness. Going over his head might force him to be educated while giving you the healthcare that you are in need of. Plus, you've raised a flag, raised your voice and called attention to yourself - something I think we do remarkable too little of when it comes to our healthcare. The old adage " It's the squeaky wheel that gets the grease " is so true. They would FAR rather serve you in the manner that will allow you to leave a happy customer than they would have you leave as one big, miserable, loudly-complaining, very vocal " bad press " packette on your way to a major competitor... at least I surely do hope so! I know you have it in you , I've seen you in " Go Gettem " phase before .. So get after it. First, decide what you want... Do you want Dr. New to make a more thorough examination of your pancreas and get up-to-speed with what's really happening, or do you want Dr. Previous to continue working with you and not toss you out because of the money factor? If the latter is the case, I think some folks have suggested the solution already - get another opinion from the accounting department. Speak to a manager, or a credit counselor, etc... Surely they won't just cast you out because you owe them money... I would think they'd rather put you on a payment plan and hope to get paid a little at a time than send you away bitter and not-terribly-excited about paying them at all. Either way, , good luck to you.. I'll keep praying for you too, I know you wouldn't have brought it to the list if it weren't heavily weighing on you and causing you a great deal of pain and stress. God bless, Terry in KC << Hey . I am sorry you are having such a tough time with your new doctor. I have found that when a Dr. has an arrogance about him, I stay away. He think pancreatitis is cut and dry because of some Dye he shot into your pancreas. He is out of his mind. If that were the case then my Enzymes would be elevate while having an attack and that simply isn't true. I don't have enough pancreas left to create the enzymes. But I have had tons of Doc try and tell me that I am not having an attack right then because they were not elevate. They were all wrong. I would be at the ER bent over in Pain.....You know the pain I am talking about and this idiot Doc would come in and tell me that I am not having problems with my pancreas because I did not have elevate levels......What an idiot. You know years ago, I used to take stuff like that.......I don't anymore......I get upset and get in their faces.....I tell them that I want to see their boss......It would be like me hitting them with a ball bat in the knee and them being in killer pain...But since there is no outward sign of injury......They don't really hurt....lol.....It is time to go over this guys head.....I would take all my Records pertaining to your pancreatitis and go to the Chief of Staff.....Enough is enough.....Doctors need to get off their pedestal...If they need to get knocked off, so be it.. The Patient should be on the pedestal if anything..The patient needs compassion. Now don't get me wrong, there are good Doctors out there. I have three who treat me. It took me years to find them. I will not ever again get treated the way I used to get treated because I will get in their faces. I am not crazy, I am not a drug seeker, I am not an alcoholic. I am a person just like they are. Just because they live up on the Hill and drive a BMW. I don't care. I will knock them right off that Hill if they treat me with disrespect one more time. So should you. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 LOL.. You GO Mr. Mark! Wow! Where did this guy come from? Haha... Wow, I've never seen you get so worked up Mark - and I'm glad to see it come raging out in 's defense, 'tis a grand cause to which you come to assist. As you might recall we have very similar backgrounds in the respect of pancreatic enzyme production - in that we are simply unable to create enough to demonstrate elevated levels, in spite of what study that is twenty-some years old is being taught to doctors today. My pcp is a very good example - incredibly, amazingly bright man, celebrated locally, who knows absolutely NIL about the pancreas itself. I swear to you, his understanding of this organ's dysfunction has tripled at least in the past few weeks. The concept of non-elevated A & L levels based on pancreatic burnout was entirely new to him - and I had to largely pound it home, because it's nowhere in the textbooks from which he studied! , good advice... If your doc is being a jerk and (more importantly) not servicing you adequately or appropriately, go elsewhere... I like the prospect of not just jumping ship and heading across town, but rather going to a superior... I think that's WONDERFUL advice (assuming, of course, that option is available). Hitting the next doc down the street is going to do nothing to teach your current pcp about this illness. Going over his head might force him to be educated while giving you the healthcare that you are in need of. Plus, you've raised a flag, raised your voice and called attention to yourself - something I think we do remarkable too little of when it comes to our healthcare. The old adage " It's the squeaky wheel that gets the grease " is so true. They would FAR rather serve you in the manner that will allow you to leave a happy customer than they would have you leave as one big, miserable, loudly-complaining, very vocal " bad press " packette on your way to a major competitor... at least I surely do hope so! I know you have it in you , I've seen you in " Go Gettem " phase before .. So get after it. First, decide what you want... Do you want Dr. New to make a more thorough examination of your pancreas and get up-to-speed with what's really happening, or do you want Dr. Previous to continue working with you and not toss you out because of the money factor? If the latter is the case, I think some folks have suggested the solution already - get another opinion from the accounting department. Speak to a manager, or a credit counselor, etc... Surely they won't just cast you out because you owe them money... I would think they'd rather put you on a payment plan and hope to get paid a little at a time than send you away bitter and not-terribly-excited about paying them at all. Either way, , good luck to you.. I'll keep praying for you too, I know you wouldn't have brought it to the list if it weren't heavily weighing on you and causing you a great deal of pain and stress. God bless, Terry in KC << Hey . I am sorry you are having such a tough time with your new doctor. I have found that when a Dr. has an arrogance about him, I stay away. He think pancreatitis is cut and dry because of some Dye he shot into your pancreas. He is out of his mind. If that were the case then my Enzymes would be elevate while having an attack and that simply isn't true. I don't have enough pancreas left to create the enzymes. But I have had tons of Doc try and tell me that I am not having an attack right then because they were not elevate. They were all wrong. I would be at the ER bent over in Pain.....You know the pain I am talking about and this idiot Doc would come in and tell me that I am not having problems with my pancreas because I did not have elevate levels......What an idiot. You know years ago, I used to take stuff like that.......I don't anymore......I get upset and get in their faces.....I tell them that I want to see their boss......It would be like me hitting them with a ball bat in the knee and them being in killer pain...But since there is no outward sign of injury......They don't really hurt....lol.....It is time to go over this guys head.....I would take all my Records pertaining to your pancreatitis and go to the Chief of Staff.....Enough is enough.....Doctors need to get off their pedestal...If they need to get knocked off, so be it.. The Patient should be on the pedestal if anything..The patient needs compassion. Now don't get me wrong, there are good Doctors out there. I have three who treat me. It took me years to find them. I will not ever again get treated the way I used to get treated because I will get in their faces. I am not crazy, I am not a drug seeker, I am not an alcoholic. I am a person just like they are. Just because they live up on the Hill and drive a BMW. I don't care. I will knock them right off that Hill if they treat me with disrespect one more time. So should you. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 , find another doctor. If Dr. Siegel will not see you, ask him for a recommendation of another physician. He sounds like he know what he is doing so he probably knows more of the " experts " in the area. Why doesn't he just put you on a payment plan or something? Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Hey Terry. I try to keep to stay mellow, but the warrior of my youth does appear on occasion. I understand Frustration and I hate it. Education can prevent frustration. Education on the Doctors part and education on our part. I feel a kinship towards people in this group and don't like it when someone is mistreated. My dad was a great man. He taught me to stand up and fight for what you believe in even though I am bent over in pain sometimes, I still force myself to stand up and look them in the eye. lol...... I hope this finds you and yours well Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International Re: Frustration > LOL.. You GO Mr. Mark! Wow! Where did this guy come from? > Haha... Wow, I've never seen you get so worked up Mark - and I'm glad to > see it come raging out in 's defense, 'tis a grand cause to which you > come to assist. As you might recall we have very similar backgrounds in the > respect of pancreatic enzyme production - in that we are simply unable to > create enough to demonstrate elevated levels, in spite of what study that is > twenty-some years old is being taught to doctors today. My pcp is a very > good example - incredibly, amazingly bright man, celebrated locally, who > knows absolutely NIL about the pancreas itself. I swear to you, his > understanding of this organ's dysfunction has tripled at least in the past > few weeks. > The concept of non-elevated A & L levels based on pancreatic burnout was > entirely new to him - and I had to largely pound it home, because it's > nowhere in the textbooks from which he studied! > , good advice... If your doc is being a jerk and (more importantly) > not servicing you adequately or appropriately, go elsewhere... I like the > prospect of not just jumping ship and heading across town, but rather going > to a superior... I think that's WONDERFUL advice (assuming, of course, that > option is available). Hitting the next doc down the street is going to do > nothing to teach your current pcp about this illness. Going over his head > might force him to be educated while giving you the healthcare that you are > in need of. Plus, you've raised a flag, raised your voice and called > attention to yourself - something I think we do remarkable too little of when > it comes to our healthcare. > The old adage " It's the squeaky wheel that gets the grease " is so true. > They would FAR rather serve you in the manner that will allow you to leave a > happy customer than they would have you leave as one big, miserable, > loudly-complaining, very vocal " bad press " packette on your way to a major > competitor... at least I surely do hope so! > I know you have it in you , I've seen you in " Go Gettem " phase before > . So get after it. First, decide what you want... Do you want Dr. New to > make a more thorough examination of your pancreas and get up-to-speed with > what's really happening, or do you want Dr. Previous to continue working with > you and not toss you out because of the money factor? > If the latter is the case, I think some folks have suggested the solution > already - get another opinion from the accounting department. Speak to a > manager, or a credit counselor, etc... Surely they won't just cast you out > because you owe them money... I would think they'd rather put you on a > payment plan and hope to get paid a little at a time than send you away > bitter and not-terribly-excited about paying them at all. > Either way, , good luck to you.. I'll keep praying for you too, I > know you wouldn't have brought it to the list if it weren't heavily weighing > on you and causing you a great deal of pain and stress. > God bless, > Terry in KC > > > > > << Hey . I am sorry you are having such a tough time with your new > doctor. I have found that when a Dr. has an arrogance about him, I stay > away. He think pancreatitis is cut and dry because of some Dye he shot into > your pancreas. He is out of his mind. If that were the case then my > Enzymes would be elevate while having an attack and that simply isn't true. > I don't have enough pancreas left to create the enzymes. But I have had > tons of Doc try and tell me that I am not having an attack right then > because they were not elevate. They were all wrong. I would be at the ER > bent over in Pain.....You know the pain I am talking about and this idiot > Doc would come in and tell me that I am not having problems with my pancreas > because I did not have elevate levels......What an idiot. You know years > ago, I used to take stuff like that.......I don't anymore......I get upset > and get in their faces.....I tell them that I want to see their boss......It > would be like me hitting them with a ball bat in the knee and them being in > killer pain...But since there is no outward sign of injury......They don't > really hurt....lol.....It is time to go over this guys head.....I would take > all my Records pertaining to your pancreatitis and go to the Chief of > Staff.....Enough is enough.....Doctors need to get off their pedestal...If > they need to get knocked off, so be it.. The Patient should be on the > pedestal if anything..The patient needs compassion. Now don't get me > wrong, there are good Doctors out there. I have three who treat me. It > took me years to find them. I will not ever again get treated the way I > used to get treated because I will get in their faces. I am not crazy, I am > not a drug seeker, I am not an alcoholic. I am a person just like they > are. Just because they live up on the Hill and drive a BMW. I don't care. > I will knock them right off that Hill if they treat me with disrespect one > more time. So should you. >> > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis@... > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Hey Terry. I try to keep to stay mellow, but the warrior of my youth does appear on occasion. I understand Frustration and I hate it. Education can prevent frustration. Education on the Doctors part and education on our part. I feel a kinship towards people in this group and don't like it when someone is mistreated. My dad was a great man. He taught me to stand up and fight for what you believe in even though I am bent over in pain sometimes, I still force myself to stand up and look them in the eye. lol...... I hope this finds you and yours well Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International Re: Frustration > LOL.. You GO Mr. Mark! Wow! Where did this guy come from? > Haha... Wow, I've never seen you get so worked up Mark - and I'm glad to > see it come raging out in 's defense, 'tis a grand cause to which you > come to assist. As you might recall we have very similar backgrounds in the > respect of pancreatic enzyme production - in that we are simply unable to > create enough to demonstrate elevated levels, in spite of what study that is > twenty-some years old is being taught to doctors today. My pcp is a very > good example - incredibly, amazingly bright man, celebrated locally, who > knows absolutely NIL about the pancreas itself. I swear to you, his > understanding of this organ's dysfunction has tripled at least in the past > few weeks. > The concept of non-elevated A & L levels based on pancreatic burnout was > entirely new to him - and I had to largely pound it home, because it's > nowhere in the textbooks from which he studied! > , good advice... If your doc is being a jerk and (more importantly) > not servicing you adequately or appropriately, go elsewhere... I like the > prospect of not just jumping ship and heading across town, but rather going > to a superior... I think that's WONDERFUL advice (assuming, of course, that > option is available). Hitting the next doc down the street is going to do > nothing to teach your current pcp about this illness. Going over his head > might force him to be educated while giving you the healthcare that you are > in need of. Plus, you've raised a flag, raised your voice and called > attention to yourself - something I think we do remarkable too little of when > it comes to our healthcare. > The old adage " It's the squeaky wheel that gets the grease " is so true. > They would FAR rather serve you in the manner that will allow you to leave a > happy customer than they would have you leave as one big, miserable, > loudly-complaining, very vocal " bad press " packette on your way to a major > competitor... at least I surely do hope so! > I know you have it in you , I've seen you in " Go Gettem " phase before > . So get after it. First, decide what you want... Do you want Dr. New to > make a more thorough examination of your pancreas and get up-to-speed with > what's really happening, or do you want Dr. Previous to continue working with > you and not toss you out because of the money factor? > If the latter is the case, I think some folks have suggested the solution > already - get another opinion from the accounting department. Speak to a > manager, or a credit counselor, etc... Surely they won't just cast you out > because you owe them money... I would think they'd rather put you on a > payment plan and hope to get paid a little at a time than send you away > bitter and not-terribly-excited about paying them at all. > Either way, , good luck to you.. I'll keep praying for you too, I > know you wouldn't have brought it to the list if it weren't heavily weighing > on you and causing you a great deal of pain and stress. > God bless, > Terry in KC > > > > > << Hey . I am sorry you are having such a tough time with your new > doctor. I have found that when a Dr. has an arrogance about him, I stay > away. He think pancreatitis is cut and dry because of some Dye he shot into > your pancreas. He is out of his mind. If that were the case then my > Enzymes would be elevate while having an attack and that simply isn't true. > I don't have enough pancreas left to create the enzymes. But I have had > tons of Doc try and tell me that I am not having an attack right then > because they were not elevate. They were all wrong. I would be at the ER > bent over in Pain.....You know the pain I am talking about and this idiot > Doc would come in and tell me that I am not having problems with my pancreas > because I did not have elevate levels......What an idiot. You know years > ago, I used to take stuff like that.......I don't anymore......I get upset > and get in their faces.....I tell them that I want to see their boss......It > would be like me hitting them with a ball bat in the knee and them being in > killer pain...But since there is no outward sign of injury......They don't > really hurt....lol.....It is time to go over this guys head.....I would take > all my Records pertaining to your pancreatitis and go to the Chief of > Staff.....Enough is enough.....Doctors need to get off their pedestal...If > they need to get knocked off, so be it.. The Patient should be on the > pedestal if anything..The patient needs compassion. Now don't get me > wrong, there are good Doctors out there. I have three who treat me. It > took me years to find them. I will not ever again get treated the way I > used to get treated because I will get in their faces. I am not crazy, I am > not a drug seeker, I am not an alcoholic. I am a person just like they > are. Just because they live up on the Hill and drive a BMW. I don't care. > I will knock them right off that Hill if they treat me with disrespect one > more time. So should you. >> > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis@... > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 Hey Terry. I try to keep to stay mellow, but the warrior of my youth does appear on occasion. I understand Frustration and I hate it. Education can prevent frustration. Education on the Doctors part and education on our part. I feel a kinship towards people in this group and don't like it when someone is mistreated. My dad was a great man. He taught me to stand up and fight for what you believe in even though I am bent over in pain sometimes, I still force myself to stand up and look them in the eye. lol...... I hope this finds you and yours well Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International Re: Frustration > LOL.. You GO Mr. Mark! Wow! Where did this guy come from? > Haha... Wow, I've never seen you get so worked up Mark - and I'm glad to > see it come raging out in 's defense, 'tis a grand cause to which you > come to assist. As you might recall we have very similar backgrounds in the > respect of pancreatic enzyme production - in that we are simply unable to > create enough to demonstrate elevated levels, in spite of what study that is > twenty-some years old is being taught to doctors today. My pcp is a very > good example - incredibly, amazingly bright man, celebrated locally, who > knows absolutely NIL about the pancreas itself. I swear to you, his > understanding of this organ's dysfunction has tripled at least in the past > few weeks. > The concept of non-elevated A & L levels based on pancreatic burnout was > entirely new to him - and I had to largely pound it home, because it's > nowhere in the textbooks from which he studied! > , good advice... If your doc is being a jerk and (more importantly) > not servicing you adequately or appropriately, go elsewhere... I like the > prospect of not just jumping ship and heading across town, but rather going > to a superior... I think that's WONDERFUL advice (assuming, of course, that > option is available). Hitting the next doc down the street is going to do > nothing to teach your current pcp about this illness. Going over his head > might force him to be educated while giving you the healthcare that you are > in need of. Plus, you've raised a flag, raised your voice and called > attention to yourself - something I think we do remarkable too little of when > it comes to our healthcare. > The old adage " It's the squeaky wheel that gets the grease " is so true. > They would FAR rather serve you in the manner that will allow you to leave a > happy customer than they would have you leave as one big, miserable, > loudly-complaining, very vocal " bad press " packette on your way to a major > competitor... at least I surely do hope so! > I know you have it in you , I've seen you in " Go Gettem " phase before > . So get after it. First, decide what you want... Do you want Dr. New to > make a more thorough examination of your pancreas and get up-to-speed with > what's really happening, or do you want Dr. Previous to continue working with > you and not toss you out because of the money factor? > If the latter is the case, I think some folks have suggested the solution > already - get another opinion from the accounting department. Speak to a > manager, or a credit counselor, etc... Surely they won't just cast you out > because you owe them money... I would think they'd rather put you on a > payment plan and hope to get paid a little at a time than send you away > bitter and not-terribly-excited about paying them at all. > Either way, , good luck to you.. I'll keep praying for you too, I > know you wouldn't have brought it to the list if it weren't heavily weighing > on you and causing you a great deal of pain and stress. > God bless, > Terry in KC > > > > > << Hey . I am sorry you are having such a tough time with your new > doctor. I have found that when a Dr. has an arrogance about him, I stay > away. He think pancreatitis is cut and dry because of some Dye he shot into > your pancreas. He is out of his mind. If that were the case then my > Enzymes would be elevate while having an attack and that simply isn't true. > I don't have enough pancreas left to create the enzymes. But I have had > tons of Doc try and tell me that I am not having an attack right then > because they were not elevate. They were all wrong. I would be at the ER > bent over in Pain.....You know the pain I am talking about and this idiot > Doc would come in and tell me that I am not having problems with my pancreas > because I did not have elevate levels......What an idiot. You know years > ago, I used to take stuff like that.......I don't anymore......I get upset > and get in their faces.....I tell them that I want to see their boss......It > would be like me hitting them with a ball bat in the knee and them being in > killer pain...But since there is no outward sign of injury......They don't > really hurt....lol.....It is time to go over this guys head.....I would take > all my Records pertaining to your pancreatitis and go to the Chief of > Staff.....Enough is enough.....Doctors need to get off their pedestal...If > they need to get knocked off, so be it.. The Patient should be on the > pedestal if anything..The patient needs compassion. Now don't get me > wrong, there are good Doctors out there. I have three who treat me. It > took me years to find them. I will not ever again get treated the way I > used to get treated because I will get in their faces. I am not crazy, I am > not a drug seeker, I am not an alcoholic. I am a person just like they > are. Just because they live up on the Hill and drive a BMW. I don't care. > I will knock them right off that Hill if they treat me with disrespect one > more time. So should you. >> > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis@... > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 LOL! I hear ya' loud and clear! I'll be making those cookies as soon as the p-nut butter cookies are gone. - got any good bread (machine) recipes?? Margie R In South Central PA...on the Mason Dixon Line > Margie!!!! ALWAYS--I REPEAT ALWAYS do what says!! Her recipes > are the BEST!! I hoard them and I print them up forty times so I > don't loose one! > She saved the holidays for us in our house! Listen to the > girl! : ) You can't go > wrong with this one!! I'm thinking the guys are going to get > another batch of > CC cookies real soon!!!!!!!!! > > kathi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 In , on 02/07/06 at 09:20 AM, Margie RN typed: >When making DS's lunch for school, I opened the new bread I was able to >find this weekend. It's the brown rice yeast free bread from Ener- g. >When I was getting it out of the bag, a small piece of the crust fell >off, so I tasted it. I have never gagged on a piece of bread before, >until today! That stuff is HORRIBLE!!!!! That brand new loaf of bread >went immediately into the trash can!! Bread: 1. If you are near a Whole Foods, check out their GF bread offerings. 2. Get books by Fenster and Hagman and bake your own. The WF bread was the ONLY edible store-bought bread we've seen. -- n : jt@... http://jt-mj.net In the beautiful Finger Lakes Wine Country of New York State! Warpstock X - October 12-15 2006; Windsor, Ont. I'll be there - will you? -- -- We do precision guesswork. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 I know I’m a little late hopping into this topic.... Not to offend the people who like it....but if given a choice, my family would rather eat cardboard than Enger-G bread. Some of it can be eatable, if toasted.....as sandwich bread, YUCK!....and the shelf-life scares me. I urge you to start baking your own bread, and freeze the left-overs. I make Betty Hagman’s four flour bread.....my kids really like it. I’ve also make Betty Hagman’s tapioca bread (yum!..I believe its in the recipe files) and Irene’s sorghum bread (good too, but sorghum can be hard for me to find in large quantities). The grittiness is from the rice flour. Some manufacturers grind it to a consistency which brings to mind eating sand. If you have time to make your own mixes, buy your rice flour from a local asian grocery. The asian flour is the texture of powdered sugar and you will no longer have “grit” in your baked goods. Sometimes you will have to try a few recipes or mixes, before you find a “winner”. Its very frustrating, but don’t give up. Some of the more experienced bakers in the group can pass on tried and true recipes, if you ask. Keep your chin up!! Jill -----Original Message----- When making DS's lunch for school, I opened the new bread I was able to find this weekend. It's the brown rice yeast free bread from Ener- g. When I was getting it out of the bag, a small piece of the crust fell off, so I tasted it. I have never gagged on a piece of bread before, until today! That stuff is HORRIBLE!!!!! That brand new loaf of bread went immediately into the trash can!! I also got one of their Tapioca loaves, so that may end up in there too. Last night, we had the chocolate cake that I had made for DH's birthday. What an interesting cake that was! It got so HUGE in the oven, and eventually fell to what I believe was lower than when I initially put the batter in the baking dish. That was the gummmiest cake ever! I'm glad I had also made a pan of brownies - from a mix, of course! Which brings up the next question: Why is everything so gritty?? I had made choc chip cookie (actually made it into bar cookies) from a mix, and they were gritty too. Are we now doomed to a life of gritty and gummy??? If we are, I'll be honest. I'm not going to be able to keep this family GF. DD will, because she's the one with the stomach pains, but the rest of us that are asymptomatic would rather enjoy life more than this! Tell me this gets better! Margie R In South Central PA...on the Mason Dixon Line Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 I'm sorry you threw the bread out -- bread not suitable for sandwiches still makes good bread crumbs to add to meatloaf or meatballs or crab cakes something like that. I buy the Light Brown Rice w/ yeast and it is okay. Not terrific, but warmed it is good for toast w/ cinnamon and sugar, grilled cheese, etc. I'm still working on bread for everyday eating for sandwiches, fortunately my little guy doesn't like bread, so I'm in no hurry. Rejoyce Winchester, VA > > >When making DS's lunch for school, I opened the new bread I was able to > >find this weekend. It's the brown rice yeast free bread from Ener- g. > >When I was getting it out of the bag, a small piece of the crust fell > >off, so I tasted it. I have never gagged on a piece of bread before, > >until today! That stuff is HORRIBLE!!!!! That brand new loaf of bread > >went immediately into the trash can!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Not to offend the people who like it....but if given a choice, my family would rather eat cardboard than Enger-G bread. Some of it can be eatable, if toasted.....as sandwich bread, YUCK!.... There is only one bread from Enger-G that I find OK - and that is the Tapioca bread. I agree - the rest remind me of cardboard...... :-) http://www.ener-g.com/store/detail.aspx?sn=BreadProducts & id=11 & cat=2 http://www.ener-g.com/store/detail.aspx?sn=BunsRollsAndPizzaShells & id=54 & cat=5 -patrick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Our neighbors have a pond in their back yard. There are some Canadian Geese that are braving our winter - smart since it's been a very mild winter. But, nonetheless, they were brave to stay here in what could have been a nasty winter. I wouldn't have even fed this bread to those brave " warrior " geese. I can hear our neighbors now; " Winter didn't kill our geese, the neighbor's nasty bread is what did it! " <chuckle!> Sorry - but that bread was so nasty that I just hope the garbage men will take it off my hands. Margie R In South Central PA...on the Mason Dixon Line > I'm sorry you threw the bread out -- bread not suitable for sandwiches > still makes good bread crumbs to add to meatloaf or meatballs or crab > cakes something like that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 I would stop ordering the tapioca bread except I have a 10 year old daughter who was kept gluten free from birth to two per doctor's order, and had limited exposure to gluten after her 2nd birthday. She reacted to the gluten and has been gluten free since then. She calls tapioca bread "regular bread" and eats it right out of the package. The rest of us thinks she's a little strange for doing that. She doesn't like any of the bread that I've made. The rest of the family prefers homemade, but will make sandwiches with toasted tapioca loaf. Jupiter, FL and Jill McCutcheon wrote: I know I’m a little late hopping into this topic.... Not to offend the people who like it....but if given a choice, my family would rather eat cardboard than Enger-G bread. Some of it can be eatable, if toasted.....as sandwich bread, YUCK!....and the shelf-life scares me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 In my pursuit to find a bread that is edible I have returned many loaves to the grocery store for a full refund. So instead of pitchng it, return it!!! Those loaves cost an arm and a leg! Mimi Margie RN wrote: Our neighbors have a pond in their back yard. There are some Canadian Geese that are braving our winter - smart since it's been a very mild winter. But, nonetheless, they were brave to stay here in what could have been a nasty winter. I wouldn't have even fed this bread to those brave "warrior" geese. I can hear our neighbors now; "Winter didn't kill our geese, the neighbor's nasty bread is what did it!" <chuckle!> Sorry - but that bread was so nasty that I just hope the garbage men will take it off my hands. Margie R In South Central PA...on the Mason Dixon Line > I'm sorry you threw the bread out -- bread not suitable for sandwiches > still makes good bread crumbs to add to meatloaf or meatballs or crab > cakes something like that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Hi Margie, We buy kinnikinnick white sandwich bread, my daughter loves it. Hope this helps Beth > > > Date: 2006/02/07 Tue AM 06:20:38 PST > To: SillyYaks > Subject: Frustration > > When making DS's lunch for school, I opened the new bread I was able to find this weekend. It's the brown rice yeast free bread from Ener- g. When I was getting it out of the bag, a small piece of the crust fell off, so I tasted it. I have never gagged on a piece of bread before, until today! That stuff is HORRIBLE!!!!! That brand new loaf of bread went immediately into the trash can!! I also got one of their Tapioca loaves, so that may end up in there too. Last night, we had the chocolate cake that I had made for DH's birthday. What an interesting cake that was! It got so HUGE in the oven, and eventually fell to what I believe was lower than when I initially put the batter in the baking dish. That was the gummmiest cake ever! I'm glad I had also made a pan of brownies - from a mix, of course! Which brings up the next question: Why is everything so gritty?? I had made choc chip cookie (actually made it into bar cookies) from a mix, and they were gritty too. Are we now doomed to a life of gritty and gummy??? If we are, I'll be honest. I'm not going to be able to keep this family GF. DD will, because she's the one with the stomach pains, but the rest of us that are asymptomatic would rather enjoy life more than this! Tell me this gets better! Margie R In South Central PA...on the Mason Dixon Line Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Oh i buy their brown bread and love i toasted for sandwiches next i will try their white bread! Mimi beth.hardy@... wrote: Hi Margie, We buy kinnikinnick white sandwich bread, my daughter loves it. Hope this helps Beth > > > Date: 2006/02/07 Tue AM 06:20:38 PST > To: SillyYaks > Subject: Frustration > > When making DS's lunch for school, I opened the new bread I was able to find this weekend. It's the brown rice yeast free bread from Ener- g. When I was getting it out of the bag, a small piece of the crust fell off, so I tasted it. I have never gagged on a piece of bread before, until today! That stuff is HORRIBLE!!!!! That brand new loaf of bread went immediately into the trash can!! I also got one of their Tapioca loaves, so that may end up in there too. Last night, we had the chocolate cake that I had made for DH's birthday. What an interesting cake that was! It got so HUGE in the oven, and eventually fell to what I believe was lower than when I initially put the batter in the baking dish. That was the gummmiest cake ever! I'm glad I had also made a pan of brownies - from a mix, of course! Which brings up the next question: Why is everything so gritty?? I had made choc chip cookie (actually made it into bar cookies) from a mix, and they were gritty too. Are we now doomed to a life of gritty and gummy??? If we are, I'll be honest. I'm not going to be able to keep this family GF. DD will, because she's the one with the stomach pains, but the rest of us that are asymptomatic would rather enjoy life more than this! Tell me this gets better! Margie R In South Central PA...on the Mason Dixon Line Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 I have not made any cakes from scratch, but I have had good luck with Pamela's Chocolate Cake mix, Kinnikinick (sp?) White Cake mix, and le's Chocolate Cake mix. But check the cakes with a toothpick before you pull them out of the oven, they sometimes require 5 or 10 minutes more than what the directions on the package state. And the non-celiacs in my family have enjoyed them as well! Maureen in NH > > We also just had a birthday. We did a chocolate mix from Miss Roben's > everyone non-celiac commented on how good it was. Not gritty but dries > out quickly. Hy-Vee in our area also decorated it with gluten free > whip frosting. The decorator has a celiac grandson. Good for us-bad > for him. My husband reminded me as he got seconds for the cake about > the first gf cake I made. It was rubber and could have bounced. We had > a birthday about 2 weeks after being diagnosed. Also, have you tried > this option for bread? The best flavor for purchased bread we've found. > http://www.kinnikinnick.com/ Just hang in there-it does get better. > We are going on 4 years with it. It's just a challenge. > > > > Darla > > Iowa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 I can certainly relate. The only bread I've found that I really like is the Whole Foods Prairie Bread. It's quite expensive though. Since I'm the only GF person around and I only eat 2-4 pieces per week, I'm fine with it. I've discovered that I prefer making things that were already GF or close to it - cheesecake with a ground nut crust or ice cream sundaes, for example. But I certainly made some interesting desserts when first diagnosed! You should have seen the cake I made using potato starch when the recipe called for potato flour (or was it the other way around?) Smelled great - felt like rubber. Ewwww! It will definitely get better with time. And corn tortillas will become your friends! Trudy > > > > When making DS's lunch for school, I opened the new bread I was > able > > to find this weekend. It's the brown rice yeast free bread from > Ener- > > g. When I was getting it out of the bag, a small piece of the > crust > > fell off, so I tasted it. I have never gagged on a piece of > bread > > before, until today! That stuff is HORRIBLE!!!!! That brand new > > loaf of bread went immediately into the trash can!! I also got > one > > of their Tapioca loaves, so that may end up in there too. > > Last night, we had the chocolate cake that I had made for DH's > > birthday. What an interesting cake that was! It got so HUGE in > the > > oven, and eventually fell to what I believe was lower than when I > > initially put the batter in the baking dish. That was the > gummmiest > > cake ever! I'm glad I had also made a pan of brownies - from a > mix, > > of course! Which brings up the next question: Why is everything > so > > gritty?? I had made choc chip cookie (actually made it into bar > > cookies) from a mix, and they were gritty too. Are we now doomed > to > > a life of gritty and gummy??? If we are, I'll be honest. I'm > not > > going to be able to keep this family GF. DD will, because she's > the > > one with the stomach pains, but the rest of us that are > asymptomatic > > would rather enjoy life more than this! > > > > Tell me this gets better! > > > > > > Margie R > > In South Central PA...on the Mason Dixon Line > > > Quote Link to comment Share on other sites More sharing options...
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