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An article in our local paper

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Each week our large newspaper includes a local community section and in

yesterdays was an article about a girl in the area who was diagnosed with cf

at the age of 17. The doctors thought she had asthma for years before

diagnosing her. She played basketball and volleyball throughout highschool.

She received a volleyball scholarship to UC Santa Barbara. She is now 20

and doing well.

The article took up about 1/2 a page and the title was in very large print

with the words cf in it so it was definately noticable.

Very positive, encouraging article.

yvonne price

mom to madi 12 wcf & ariel w/o

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It is always great to see the public becoming AWARE of CF ...It is great

that this young gal is doing so well and remaining active. It appears to be

happening more and more.This disease will be conquered !! The more folks

that know about it-----the more will be in the researching and also trial

participants.Thanks for the info .Best wishes for the young gal.

LOVE & HUGS,

GrandmomBEV

An article in our local paper

Each week our large newspaper includes a local community section and in

yesterdays was an article about a girl in the area who was diagnosed with cf

at the age of 17. The doctors thought she had asthma for years before

diagnosing her. She played basketball and volleyball throughout highschool.

She received a volleyball scholarship to UC Santa Barbara. She is now 20

and doing well.

The article took up about 1/2 a page and the title was in very large print

with the words cf in it so it was definately noticable.

Very positive, encouraging article.

yvonne price

mom to madi 12 wcf & ariel w/o

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Hi,

It is always very encouraging to read snippets on info printed in local and

community newspapers regarding cf.

We live in South Africa, where the incidence of cf amongs the white

population is even lower that the averages stated for the US and Europe -

you mention to folks that your daughter has cf and they stare at you as if

you are speaking a totally different language - most people are just plain

ignorant and assume that one " grows out of it " Remarks such as those are

very hurtful and painful and I am just grateful that my daughter is not old

enough to understand yet.

We had one such article in our local community paper and it really made me

thankful that maybe at least 1 more person was educated about cf because of

it!

Regards,

Karolina (Mum to 16 mo w/cf)

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