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Re: n: any tips on food/neurotic cook at work!/pontificates

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I AM THE ONLY MEMBER OF MY FAMILY WHO IS NOT LACTOSE INTOLERANT

OTHER THAN MY KID WITH CF. I guess I just worded that wrong. My g.i. doc,

who is a neighbor and personal friend at this point says that he thinks that

the likli-

hood of a cfer being intoleranct to any sugar: lactose, galactose, maltose,

the mono-

saccharides--you name it IS greater than in the average population not

because the

patient has inherited the classic lactose or whatever intolerance, but

because of the

nature of the pancreas in most, but not all, cf patients; some sugars, like

some fats

just can't be metabolized by some of us. In the general population, he says,

Asians

are most likely to be lactose intolerant, then persons of recent African

ancestry,

then Jewish persons (which explains the rest of my family), and other

asian-pacific

island populations such as Indonesia, Polynesia, Micronesia, Australian

native pop-

ulations and the Maori on the New Zealand islands. He's really into this,

but pointed

out that he has treated people from all demographic groups who seem to have

lactose intolerance; I know he is largely right; my husband's entire family

of German

and Austrian origin Jews are lactose intolerant as are many of my relatives

in Spain,

Portugal and Italy. If you type in Human Genome Project on Yahoo or Google,

you

can probaby, if you read carefully, find the " chromosome launchpad " --its real

name--

and choose the disease entity list and find on many chromosomes all the sugar

in-

tolerances. Dr. Wu feels that these are often inherited, whereas the fat/oil

intolerances are, except for the Mediterranean area, largely acquired and

eventually

become inherited.

So, you ask me a simple question--you get a whole pontification! That will

teach

you! Seriously, though, I hope this has been helpful. I have to leave again

before

you remember that this is " only the patient " speaking, and not a doctor, and

before

I get arrested for practicing medicine " with license, poetic that is! " Have

a safe new

year and eat a lot! (Chomp! Chomp!)

n

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I think another point here might be that people with CF and carriers of CF

tend to have more allergies, too. (thought not always). The lactose

intolerance could be linked to that.

Lori

Re: n: any tips on food/neurotic cook at

work!/pontificates

> I AM THE ONLY MEMBER OF MY FAMILY WHO IS NOT LACTOSE INTOLERANT

> OTHER THAN MY KID WITH CF. I guess I just worded that wrong. My g.i.

doc,

> who is a neighbor and personal friend at this point says that he thinks

that

> the likli-

> hood of a cfer being intoleranct to any sugar: lactose, galactose,

maltose,

> the mono-

> saccharides--you name it IS greater than in the average population not

> because the

> patient has inherited the classic lactose or whatever intolerance, but

> because of the

> nature of the pancreas in most, but not all, cf patients; some sugars,

like

> some fats

> just can't be metabolized by some of us. >

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

>

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Lori, my doc says that lactose intolerance is totally unrelated to allergy to

milk,

though there is no law that says that one cannot have both; my middle daughter

does, and as you remind us, she is one of thos marvelously " allergic to

everything "

people, " and she is a cf carrier. I have cf and am allergic only to

scallops--BIGTIME, and possibly to whole wheat and egg yolks--nothing

compared to my

middle daughter. Most of my cf relatives and friends have far more allergies

than

those in the non-cf population though and it just aggravates the whole

situation,

which is what led to my becoming " the neurotic cook at work, " I think. Good

luck

and good health to you in this new year,

n Rojas

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