RE: Chris, s mom(grandmombev)

[Guest guest]

sure will, what state are you in. as long as you are in a warm state then ok

because we will come to you to get out of this real messed up weather we are

having here. today it is like 40 degrees but windy, and the past few days it

has been in the 40's also but then tomorrow it is to snow. go figure. and

hopefully brandon won't get ill. but usually we all get sick but him. and we

are thankful for that.

chris

mom of 3

brandon 12 yrs old

On Sat, 10 Feb 2001 09:48:38 -0500, cfparents wrote:

> SOUNDS GREAT TO ME, Do you want to adopt a grandmom?????????

>

> have a great weekend....

>

> LOVE & HUGS, GrandmomBEV

>

> Re: s mom

>

>

>

> I agree with you about giving all you can. That's what made us

> decide not tohave any more (even after an IVF attempt). We decided that

> both the kids should be able to do whatever they want, like in sports,

music

> etc. and that costs alot of money. We also are planning a trip to

Scotland

> in the next two years (costs alot from all the way over here) so with

more

> kids it costs more. I know to alot of people this sounds materialistic,

but

> I want my kids to enjoy everything we can possibily do, without being

spoilt

> brats.

>

>

> Re: s mom

>

>

> > ,

> > After reading your post to me, here is my reply .

> >

> > After i had brandon and then it all sunk in about cf . He was probably

> > around 6-8 months old. and i made a promise either to him or me which

ever

> > because he wasn't able to comprehend what i was talking to him

about,but i

> > have always said i will give him the world as long as i was able to

afford

> > it. and so far i think i have done a great deal in his worldly

influences.

> > a few years ago we went around the U.S. on a 3 week trip and the kids

had

> so

> > much fun. i think we are going to do it again.

> > i try to give him everything(not meaning to spoil him he's not like

> > that)everything that i would want for myself in this day and age. also

> about

> > 6 years ago he wanted to move to the ocean . so you know what we did,

we

> > moved to florida within a matter of 2 weeks we took care of business

here

> in

> > PA and moved to daytona beach.

> > he was on ssi at the time and they asked me why we moved and i said

> because

> > my son wanted to , if you can picture their faces. they said what do

you

> > mean. and i said,my son has cf and he said move so we moved.

> > then my mother became very ill (strokes) and we moved backed to PA in

and

> > ice storm in january it was horrible Fl weather was 50 degree and PA

> weather

> > was - 15 oh my was it hard staying here then.

> > another move to St.louis won't make a difference to me. there is not

> really

> > anything here in PA for us the family, besides my father(my mother

passed

> > away)

> > The only thing is ,is we are able to afford this and we have been lucky

in

> > that situation,because there are people at clinic that have a hard time

> > affording to make it to clinic.

> > but i want him to see everything that i have seen , did, going to do.

> > i would work 4 jobs if i had to so he could do whatever in his life.

> > and if he lives to be 100, then he can tell his great-grandchildren

that

> his

> > mother was the greatest and gave up alot so he could see the world.

> > oh in april we go to aruba for 1 week(that is my pick, i want the

crystal

> > blue water) i could give a rats a$$ less if he goes or not.all i know

is i

> > am going and it is about time.

> > my worst fear is that he will die before me and i don't want that .

that

> is

> > not how it is suppose to work, i go and then the kids get to greive for

> me.

> > and me and my husband have been thru the crying part and we are back to

> > reality and we must take care of his life and make it better so we all

can

> > con't as a family.

> > i don't want to sound as if i have no conscience or whatever but i

> > understand what he has(cf) and what he will die from and approximately

> > around what age(they say 25 yrs) and that is what i hope to receive, if

we

> > have more than that i am very greatful, but i don't what to be robbed

of

> any

> > time. we have cried and cried and cried and cried i can't cry

> anymore(right

> > now at least maybe later)now we have to go and get the next step in our

> life

> > ready .

> > well this let out alot of built-up emotions and i feel good.

> >

> > people learn the hard way and the hard way in cf . and the hard way

does

> do

> > damage to their lungs and you can't reverse damage.

> > damage con't and con't. even if you don't make mistakes , so cf have

> worse

> > cases and damage their lungs , and we learn from that.

> >

> > so when a dr says it will affect them maybe not today but 5 years down

the

> > road BELEIVE them. because what you do today affects you 5 yrs later.

> >

> >

> > hopefully you made it all this way

> >

> > chris

> > mom of 3

> > brandon 12 yrs old

> >

> >

> >

> >

> > On Fri, 9 Feb 2001 00:27:50 EST, cfparents wrote:

> >

> > > Hello

> > >

> > > I read this post, and couldnt help but cry. My biggest fear is what

> you

> > and

> > > your son are going through now, it breaks my heart. I dont mean to

be

> a

> > > downer here, but I just dont know how you can handle hearing that,

> except

> > for

> > > the fact that you will do whatever necessary for your little boy,

even

> > > though he is 12, he is still a little boy.

> > > It is this type of thing that I tell my inlaws, to make them realize

> that

> >

> > > this disease is horrible, regardless of the medical breakthroughs,

and

> > the

> > > " median life expectancy " , both of which I dont like to think about.

> >

> > > is real, and what he needs to live is real, and that is what I tell

> them,

> > I

> > > use no names, but I make them aware of the seriousness of this, so

they

> > will

> > > know the reality of it,

> > > Sorry if this sounds horrible, but I just couldnt stop typing here.

> > > Take care, and hugs to you and .

> > >

> > > , mommy of 4, , 16 and begging to drive the family

auto,

> (I

> >

> > > dont need more grey hair here) Caleb, 6 wishing to be 3 again, and

the

> > > worrier of the family,

> > > , 5 and the next famous artist, and , 17months with CF and

> > reflux

> > > and a beautiful smile and bright blue eyes, whose greatest passions

are

> > > dancing and Elmo.

> > >

> > >

> > >

[Guest guest]

I am in Orlando, Fl. , the home of Disney World, Sea World, Epcot.Universal,

Daytona Bch, Cypress Gardens, Busch Gardens,DogTracks,Car Racing, Cruise

Lines and you name every other theme park in the world.....One is here or

near here ! ! ! Plus .30 + malls-every know store /brand in the world too.,

I don't go there ---hahaha...It is 81 * today, Goes down in evening to

50/60's. Very nice for sleeping. we will have some more cooler (60's( yet

maybe .After Feb.......we wont tho,its really beautiful...NO I don't work

for chamber.haha:):) But, I do love it here..COME ON DOWN....the waters

fine & so is the weather.

LOVE & HUGS, GrandmomBEV

Re: s mom

>

>

>

> I agree with you about giving all you can. That's what made us

> decide not tohave any more (even after an IVF attempt). We decided that

> both the kids should be able to do whatever they want, like in sports,

music

> etc. and that costs alot of money. We also are planning a trip to

Scotland

> in the next two years (costs alot from all the way over here) so with

more

> kids it costs more. I know to alot of people this sounds materialistic,

but

> I want my kids to enjoy everything we can possibily do, without being

spoilt

> brats.

>

>

> Re: s mom

>

>

> > ,

> > After reading your post to me, here is my reply .

> >

> > After i had brandon and then it all sunk in about cf . He was probably

> > around 6-8 months old. and i made a promise either to him or me which

ever

> > because he wasn't able to comprehend what i was talking to him

about,but i

> > have always said i will give him the world as long as i was able to

afford

> > it. and so far i think i have done a great deal in his worldly

influences.

> > a few years ago we went around the U.S. on a 3 week trip and the kids

had

> so

> > much fun. i think we are going to do it again.

> > i try to give him everything(not meaning to spoil him he's not like

> > that)everything that i would want for myself in this day and age. also

> about

> > 6 years ago he wanted to move to the ocean . so you know what we did,

we

> > moved to florida within a matter of 2 weeks we took care of business

here

> in

> > PA and moved to daytona beach.

> > he was on ssi at the time and they asked me why we moved and i said

> because

> > my son wanted to , if you can picture their faces. they said what do

you

> > mean. and i said,my son has cf and he said move so we moved.

> > then my mother became very ill (strokes) and we moved backed to PA in

and

> > ice storm in january it was horrible Fl weather was 50 degree and PA

> weather

> > was - 15 oh my was it hard staying here then.

> > another move to St.louis won't make a difference to me. there is not

> really

> > anything here in PA for us the family, besides my father(my mother

passed

> > away)

> > The only thing is ,is we are able to afford this and we have been lucky

in

> > that situation,because there are people at clinic that have a hard time

> > affording to make it to clinic.

> > but i want him to see everything that i have seen , did, going to do.

> > i would work 4 jobs if i had to so he could do whatever in his life.

> > and if he lives to be 100, then he can tell his great-grandchildren

that

> his

> > mother was the greatest and gave up alot so he could see the world.

> > oh in april we go to aruba for 1 week(that is my pick, i want the

crystal

> > blue water) i could give a rats a$$ less if he goes or not.all i know

is i

> > am going and it is about time.

> > my worst fear is that he will die before me and i don't want that .

that

> is

> > not how it is suppose to work, i go and then the kids get to greive for

> me.

> > and me and my husband have been thru the crying part and we are back to

> > reality and we must take care of his life and make it better so we all

can

> > con't as a family.

> > i don't want to sound as if i have no conscience or whatever but i

> > understand what he has(cf) and what he will die from and approximately

> > around what age(they say 25 yrs) and that is what i hope to receive, if

we

> > have more than that i am very greatful, but i don't what to be robbed

of

> any

> > time. we have cried and cried and cried and cried i can't cry

> anymore(right

> > now at least maybe later)now we have to go and get the next step in our

> life

> > ready .

> > well this let out alot of built-up emotions and i feel good.

> >

> > people learn the hard way and the hard way in cf . and the hard way

does

> do

> > damage to their lungs and you can't reverse damage.

> > damage con't and con't. even if you don't make mistakes , so cf have

> worse

> > cases and damage their lungs , and we learn from that.

> >

> > so when a dr says it will affect them maybe not today but 5 years down

the

> > road BELEIVE them. because what you do today affects you 5 yrs later.

> >

> >

> > hopefully you made it all this way

> >

> > chris

> > mom of 3

> > brandon 12 yrs old

> >

> >

> >

> >

> > On Fri, 9 Feb 2001 00:27:50 EST, cfparents wrote:

> >

> > > Hello

> > >

> > > I read this post, and couldnt help but cry. My biggest fear is what

> you

> > and

> > > your son are going through now, it breaks my heart. I dont mean to

be

> a

> > > downer here, but I just dont know how you can handle hearing that,

> except

> > for

> > > the fact that you will do whatever necessary for your little boy,

even

> > > though he is 12, he is still a little boy.

> > > It is this type of thing that I tell my inlaws, to make them realize

> that

> >

> > > this disease is horrible, regardless of the medical breakthroughs,

and

> > the

> > > " median life expectancy " , both of which I dont like to think about.

> >

> > > is real, and what he needs to live is real, and that is what I tell

> them,

> > I

> > > use no names, but I make them aware of the seriousness of this, so

they

> > will

> > > know the reality of it,

> > > Sorry if this sounds horrible, but I just couldnt stop typing here.

> > > Take care, and hugs to you and .

> > >

> > > , mommy of 4, , 16 and begging to drive the family

auto,

> (I

> >

> > > dont need more grey hair here) Caleb, 6 wishing to be 3 again, and

the

> > > worrier of the family,

> > > , 5 and the next famous artist, and , 17months with CF and

> > reflux

> > > and a beautiful smile and bright blue eyes, whose greatest passions

are

> > > dancing and Elmo.

> > >

> > >

> > >

[Guest guest]

my uncle lives in oveido. and we lived in daytona beach 6 years age. i did

not like the palmetto bugs. my cousins work at disney. and we get free

tickets.

been there done that but will be back in the area the area is nice.

chris

On Sat, 10 Feb 2001 16:53:01 -0500, cfparents wrote:

>

> I am in Orlando, Fl. , the home of Disney World, Sea World,

Epcot.Universal,

> Daytona Bch, Cypress Gardens, Busch Gardens,DogTracks,Car Racing, Cruise

> Lines and you name every other theme park in the world.....One is here or

> near here ! ! ! Plus .30 + malls-every know store /brand in the world

too.,

> I don't go there ---hahaha...It is 81 * today, Goes down in evening to

> 50/60's. Very nice for sleeping. we will have some more cooler (60's( yet

> maybe .After Feb.......we wont tho,its really beautiful...NO I don't work

> for chamber.haha:):) But, I do love it here..COME ON DOWN....the waters

> fine & so is the weather.

>

>

> LOVE & HUGS, GrandmomBEV

>

> Re: s mom

> >

> >

> >

> > I agree with you about giving all you can. That's what made

us

> > decide not tohave any more (even after an IVF attempt). We decided

that

> > both the kids should be able to do whatever they want, like in sports,

> music

> > etc. and that costs alot of money. We also are planning a trip to

> Scotland

> > in the next two years (costs alot from all the way over here) so with

> more

> > kids it costs more. I know to alot of people this sounds

materialistic,

> but

> > I want my kids to enjoy everything we can possibily do, without being

> spoilt

> > brats.

> >

> >

> > Re: s mom

> >

> >

> > > ,

> > > After reading your post to me, here is my reply .

> > >

> > > After i had brandon and then it all sunk in about cf . He was

probably

> > > around 6-8 months old. and i made a promise either to him or me

which

> ever

> > > because he wasn't able to comprehend what i was talking to him

> about,but i

> > > have always said i will give him the world as long as i was able to

> afford

> > > it. and so far i think i have done a great deal in his worldly

> influences.

> > > a few years ago we went around the U.S. on a 3 week trip and the

kids

> had

> > so

> > > much fun. i think we are going to do it again.

> > > i try to give him everything(not meaning to spoil him he's not like

> > > that)everything that i would want for myself in this day and age.

also

> > about

> > > 6 years ago he wanted to move to the ocean . so you know what we

did,

> we

> > > moved to florida within a matter of 2 weeks we took care of business

> here

> > in

> > > PA and moved to daytona beach.

> > > he was on ssi at the time and they asked me why we moved and i said

> > because

> > > my son wanted to , if you can picture their faces. they said what do

> you

> > > mean. and i said,my son has cf and he said move so we moved.

> > > then my mother became very ill (strokes) and we moved backed to PA

in

> and

> > > ice storm in january it was horrible Fl weather was 50 degree and PA

> > weather

> > > was - 15 oh my was it hard staying here then.

> > > another move to St.louis won't make a difference to me. there is not

> > really

> > > anything here in PA for us the family, besides my father(my mother

> passed

> > > away)

> > > The only thing is ,is we are able to afford this and we have been

lucky

> in

> > > that situation,because there are people at clinic that have a hard

time

> > > affording to make it to clinic.

> > > but i want him to see everything that i have seen , did, going to

do.

> > > i would work 4 jobs if i had to so he could do whatever in his life.

> > > and if he lives to be 100, then he can tell his great-grandchildren

> that

> > his

> > > mother was the greatest and gave up alot so he could see the world.

> > > oh in april we go to aruba for 1 week(that is my pick, i want the

> crystal

> > > blue water) i could give a rats a$$ less if he goes or not.all i

know

> is i

> > > am going and it is about time.

> > > my worst fear is that he will die before me and i don't want that .

> that

> > is

> > > not how it is suppose to work, i go and then the kids get to greive

for

> > me.

> > > and me and my husband have been thru the crying part and we are back

to

> > > reality and we must take care of his life and make it better so we

all

> can

> > > con't as a family.

> > > i don't want to sound as if i have no conscience or whatever but i

> > > understand what he has(cf) and what he will die from and

approximately

> > > around what age(they say 25 yrs) and that is what i hope to receive,

if

> we

> > > have more than that i am very greatful, but i don't what to be

robbed

> of

> > any

> > > time. we have cried and cried and cried and cried i can't cry

> > anymore(right

> > > now at least maybe later)now we have to go and get the next step in

our

> > life

> > > ready .

> > > well this let out alot of built-up emotions and i feel good.

> > >

> > > people learn the hard way and the hard way in cf . and the hard way

> does

> > do

> > > damage to their lungs and you can't reverse damage.

> > > damage con't and con't. even if you don't make mistakes , so cf

have

> > worse

> > > cases and damage their lungs , and we learn from that.

> > >

> > > so when a dr says it will affect them maybe not today but 5 years

down

> the

> > > road BELEIVE them. because what you do today affects you 5 yrs

later.

> > >

> > >

> > > hopefully you made it all this way

> > >

> > > chris

> > > mom of 3

> > > brandon 12 yrs old

> > >

> > >

> > >

> > >

> > > On Fri, 9 Feb 2001 00:27:50 EST, cfparents wrote:

> > >

> > > > Hello

> > > >

> > > > I read this post, and couldnt help but cry. My biggest fear is

what

> > you

> > > and

> > > > your son are going through now, it breaks my heart. I dont mean

to

> be

> > a

> > > > downer here, but I just dont know how you can handle hearing

that,

> > except

> > > for

> > > > the fact that you will do whatever necessary for your little

boy,

> even

> > > > though he is 12, he is still a little boy.

> > > > It is this type of thing that I tell my inlaws, to make them

realize

> > that

> > >

> > > > this disease is horrible, regardless of the medical

breakthroughs,

> and

> > > the

> > > > " median life expectancy " , both of which I dont like to think

about.

> > >

> > > > is real, and what he needs to live is real, and that is what I

tell

> > them,

> > > I

> > > > use no names, but I make them aware of the seriousness of this,

so

> they

> > > will

> > > > know the reality of it,

> > > > Sorry if this sounds horrible, but I just couldnt stop typing

here.

> > > > Take care, and hugs to you and .

> > > >

> > > > , mommy of 4, , 16 and begging to drive the family

> auto,

> > (I

> > >

> > > > dont need more grey hair here) Caleb, 6 wishing to be 3 again,

and

> the

> > > > worrier of the family,

> > > > , 5 and the next famous artist, and , 17months with CF

and

> > > reflux

> > > > and a beautiful smile and bright blue eyes, whose greatest

passions

> are

> > > > dancing and Elmo.

> > > >

> > > >

> > > >

[Guest guest]

OVIEDO IS ALMOST PART OF ORLANDO NOW. Everything between has

been filled in with homes, malls, big corporations are moving their home

offices here & around here. etc.

I haven't seen a palmetto bug in years......in fact, I haven't seen an ant

,except

at the park in years. I haven't even had them on my patio, & that isn't

screened

even.With little ponds in it as well.

Most everyone has their lawns/grounds sprayed each month...kinda like other

have their homes done. That keeps all bugs away from the houses/homes,etc.

I guess we're learning.:) I hate bugs too. Creepy, crawly, stuff is

yuck to me

too.Anyway. I would just spray them if they ever come around me & they

would

be dead!! just like the commercial says...... " kills them dead " !..ha:):)

LOVE, GRANDMOMBEV

Re: s mom

> >

> >

> >

> > I agree with you about giving all you can. That's what made

us

> > decide not tohave any more (even after an IVF attempt). We decided

that

> > both the kids should be able to do whatever they want, like in sports,

> music

> > etc. and that costs alot of money. We also are planning a trip to

> Scotland

> > in the next two years (costs alot from all the way over here) so with

> more

> > kids it costs more. I know to alot of people this sounds

materialistic,

> but

> > I want my kids to enjoy everything we can possibily do, without being

> spoilt

> > brats.

> >

> >

> > Re: s mom

> >

> >

> > > ,

> > > After reading your post to me, here is my reply .

> > >

> > > After i had brandon and then it all sunk in about cf . He was

probably

> > > around 6-8 months old. and i made a promise either to him or me

which

> ever

> > > because he wasn't able to comprehend what i was talking to him

> about,but i

> > > have always said i will give him the world as long as i was able to

> afford

> > > it. and so far i think i have done a great deal in his worldly

> influences.

> > > a few years ago we went around the U.S. on a 3 week trip and the

kids

> had

> > so

> > > much fun. i think we are going to do it again.

> > > i try to give him everything(not meaning to spoil him he's not like

> > > that)everything that i would want for myself in this day and age.

also

> > about

> > > 6 years ago he wanted to move to the ocean . so you know what we

did,

> we

> > > moved to florida within a matter of 2 weeks we took care of business

> here

> > in

> > > PA and moved to daytona beach.

> > > he was on ssi at the time and they asked me why we moved and i said

> > because

> > > my son wanted to , if you can picture their faces. they said what do

> you

> > > mean. and i said,my son has cf and he said move so we moved.

> > > then my mother became very ill (strokes) and we moved backed to PA

in

> and

> > > ice storm in january it was horrible Fl weather was 50 degree and PA

> > weather

> > > was - 15 oh my was it hard staying here then.

> > > another move to St.louis won't make a difference to me. there is not

> > really

> > > anything here in PA for us the family, besides my father(my mother

> passed

> > > away)

> > > The only thing is ,is we are able to afford this and we have been

lucky

> in

> > > that situation,because there are people at clinic that have a hard

time

> > > affording to make it to clinic.

> > > but i want him to see everything that i have seen , did, going to

do.

> > > i would work 4 jobs if i had to so he could do whatever in his life.

> > > and if he lives to be 100, then he can tell his great-grandchildren

> that

> > his

> > > mother was the greatest and gave up alot so he could see the world.

> > > oh in april we go to aruba for 1 week(that is my pick, i want the

> crystal

> > > blue water) i could give a rats a$$ less if he goes or not.all i

know

> is i

> > > am going and it is about time.

> > > my worst fear is that he will die before me and i don't want that .

> that

> > is

> > > not how it is suppose to work, i go and then the kids get to greive

for

> > me.

> > > and me and my husband have been thru the crying part and we are back

to

> > > reality and we must take care of his life and make it better so we

all

> can

> > > con't as a family.

> > > i don't want to sound as if i have no conscience or whatever but i

> > > understand what he has(cf) and what he will die from and

approximately

> > > around what age(they say 25 yrs) and that is what i hope to receive,

if

> we

> > > have more than that i am very greatful, but i don't what to be

robbed

> of

> > any

> > > time. we have cried and cried and cried and cried i can't cry

> > anymore(right

> > > now at least maybe later)now we have to go and get the next step in

our

> > life

> > > ready .

> > > well this let out alot of built-up emotions and i feel good.

> > >

> > > people learn the hard way and the hard way in cf . and the hard way

> does

> > do

> > > damage to their lungs and you can't reverse damage.

> > > damage con't and con't. even if you don't make mistakes , so cf

have

> > worse

> > > cases and damage their lungs , and we learn from that.

> > >

> > > so when a dr says it will affect them maybe not today but 5 years

down

> the

> > > road BELEIVE them. because what you do today affects you 5 yrs

later.

> > >

> > >

> > > hopefully you made it all this way

> > >

> > > chris

> > > mom of 3

> > > brandon 12 yrs old

> > >

> > >

> > >

> > >

> > > On Fri, 9 Feb 2001 00:27:50 EST, cfparents wrote:

> > >

> > > > Hello

> > > >

> > > > I read this post, and couldnt help but cry. My biggest fear is

what

> > you

> > > and

> > > > your son are going through now, it breaks my heart. I dont mean

to

> be

> > a

> > > > downer here, but I just dont know how you can handle hearing

that,

> > except

> > > for

> > > > the fact that you will do whatever necessary for your little

boy,

> even

> > > > though he is 12, he is still a little boy.

> > > > It is this type of thing that I tell my inlaws, to make them

realize

> > that

> > >

> > > > this disease is horrible, regardless of the medical

breakthroughs,

> and

> > > the

> > > > " median life expectancy " , both of which I dont like to think

about.

> > >

> > > > is real, and what he needs to live is real, and that is what I

tell

> > them,

> > > I

> > > > use no names, but I make them aware of the seriousness of this,

so

> they

> > > will

> > > > know the reality of it,

> > > > Sorry if this sounds horrible, but I just couldnt stop typing

here.

> > > > Take care, and hugs to you and .

> > > >

> > > > , mommy of 4, , 16 and begging to drive the family

> auto,

> > (I

> > >

> > > > dont need more grey hair here) Caleb, 6 wishing to be 3 again,

and

> the

> > > > worrier of the family,

> > > > , 5 and the next famous artist, and , 17months with CF

and

> > > reflux

> > > > and a beautiful smile and bright blue eyes, whose greatest

passions

> are

> > > > dancing and Elmo.

> > > >

> > > >

> > > >

[Guest guest]

when we lived in daytona beach of course you know it is mostly tourist and

the hotels and everything. the bugs over there are horrible. in pa when you

have cockroaches it usually means that you are filthy and don't take care of

your environment. not the case in fl the heat is the major factor. but when

you move from pa to fl it is hard to get use to and i just could not get use

to the bugs it was disgusting. but of course my mother had (bad) strokes and

we came back home . and after a long battle she has died since but thats a

different story.

but i love to visit fl.

another thing that scared me was the alligators. we had seen them and i was

very afraid of them.

chris

On Sat, 10 Feb 2001 20:03:46 -0500, cfparents wrote:

> OVIEDO IS ALMOST PART OF ORLANDO NOW. Everything between has

> been filled in with homes, malls, big corporations are moving their home

> offices here & around here. etc.

> I haven't seen a palmetto bug in years......in fact, I haven't seen an

ant

> ,except

> at the park in years. I haven't even had them on my patio, & that isn't

> screened

> even.With little ponds in it as well.

> Most everyone has their lawns/grounds sprayed each month...kinda like

other

> have their homes done. That keeps all bugs away from the

houses/homes,etc.

> I guess we're learning.:) I hate bugs too. Creepy, crawly, stuff is

> yuck to me

> too.Anyway. I would just spray them if they ever come around me & they

> would

> be dead!! just like the commercial says...... " kills them

dead " !..ha:):)

>

> LOVE, GRANDMOMBEV

>

> Re: s mom

> > >

> > >

> > >

> > > I agree with you about giving all you can. That's what

made

> us

> > > decide not tohave any more (even after an IVF attempt). We decided

> that

> > > both the kids should be able to do whatever they want, like in

sports,

> > music

> > > etc. and that costs alot of money. We also are planning a trip to

> > Scotland

> > > in the next two years (costs alot from all the way over here) so

with

> > more

> > > kids it costs more. I know to alot of people this sounds

> materialistic,

> > but

> > > I want my kids to enjoy everything we can possibily do, without

being

> > spoilt

> > > brats.

> > >

> > >

> > > Re: s mom

> > >

> > >

> > > > ,

> > > > After reading your post to me, here is my reply .

> > > >

> > > > After i had brandon and then it all sunk in about cf . He was

> probably

> > > > around 6-8 months old. and i made a promise either to him or me

> which

> > ever

> > > > because he wasn't able to comprehend what i was talking to him

> > about,but i

> > > > have always said i will give him the world as long as i was able

to

> > afford

> > > > it. and so far i think i have done a great deal in his worldly

> > influences.

> > > > a few years ago we went around the U.S. on a 3 week trip and the

> kids

> > had

> > > so

> > > > much fun. i think we are going to do it again.

> > > > i try to give him everything(not meaning to spoil him he's not

like

> > > > that)everything that i would want for myself in this day and age.

> also

> > > about

> > > > 6 years ago he wanted to move to the ocean . so you know what we

> did,

> > we

> > > > moved to florida within a matter of 2 weeks we took care of

business

> > here

> > > in

> > > > PA and moved to daytona beach.

> > > > he was on ssi at the time and they asked me why we moved and i

said

> > > because

> > > > my son wanted to , if you can picture their faces. they said what

do

> > you

> > > > mean. and i said,my son has cf and he said move so we moved.

> > > > then my mother became very ill (strokes) and we moved backed to

PA

> in

> > and

> > > > ice storm in january it was horrible Fl weather was 50 degree and

PA

> > > weather

> > > > was - 15 oh my was it hard staying here then.

> > > > another move to St.louis won't make a difference to me. there is

not

> > > really

> > > > anything here in PA for us the family, besides my father(my

mother

> > passed

> > > > away)

> > > > The only thing is ,is we are able to afford this and we have been

> lucky

> > in

> > > > that situation,because there are people at clinic that have a

hard

> time

> > > > affording to make it to clinic.

> > > > but i want him to see everything that i have seen , did, going to

> do.

> > > > i would work 4 jobs if i had to so he could do whatever in his

life.

> > > > and if he lives to be 100, then he can tell his

great-grandchildren

> > that

> > > his

> > > > mother was the greatest and gave up alot so he could see the

world.

> > > > oh in april we go to aruba for 1 week(that is my pick, i want the

> > crystal

> > > > blue water) i could give a rats a$$ less if he goes or not.all i

> know

> > is i

> > > > am going and it is about time.

> > > > my worst fear is that he will die before me and i don't want that

..

> > that

> > > is

> > > > not how it is suppose to work, i go and then the kids get to

greive

> for

> > > me.

> > > > and me and my husband have been thru the crying part and we are

back

> to

> > > > reality and we must take care of his life and make it better so

we

> all

> > can

> > > > con't as a family.

> > > > i don't want to sound as if i have no conscience or whatever but

i

> > > > understand what he has(cf) and what he will die from and

> approximately

> > > > around what age(they say 25 yrs) and that is what i hope to

receive,

> if

> > we

> > > > have more than that i am very greatful, but i don't what to be

> robbed

> > of

> > > any

> > > > time. we have cried and cried and cried and cried i can't cry

> > > anymore(right

> > > > now at least maybe later)now we have to go and get the next step

in

> our

> > > life

> > > > ready .

> > > > well this let out alot of built-up emotions and i feel good.

> > > >

> > > > people learn the hard way and the hard way in cf . and the hard

way

> > does

> > > do

> > > > damage to their lungs and you can't reverse damage.

> > > > damage con't and con't. even if you don't make mistakes , so cf

> have

> > > worse

> > > > cases and damage their lungs , and we learn from that.

> > > >

> > > > so when a dr says it will affect them maybe not today but 5 years

> down

> > the

> > > > road BELEIVE them. because what you do today affects you 5 yrs

> later.

> > > >

> > > >

> > > > hopefully you made it all this way

> > > >

> > > > chris

> > > > mom of 3

> > > > brandon 12 yrs old

> > > >

> > > >

> > > >

> > > >

> > > > On Fri, 9 Feb 2001 00:27:50 EST, cfparents wrote:

> > > >

> > > > > Hello

> > > > >

> > > > > I read this post, and couldnt help but cry. My biggest fear

is

> what

> > > you

> > > > and

> > > > > your son are going through now, it breaks my heart. I dont

mean

> to

> > be

> > > a

> > > > > downer here, but I just dont know how you can handle hearing

> that,

> > > except

> > > > for

> > > > > the fact that you will do whatever necessary for your little

> boy,

> > even

> > > > > though he is 12, he is still a little boy.

> > > > > It is this type of thing that I tell my inlaws, to make them

> realize

> > > that

> > > >

> > > > > this disease is horrible, regardless of the medical

> breakthroughs,

> > and

> > > > the

> > > > > " median life expectancy " , both of which I dont like to think

> about.

> > > >

> > > > > is real, and what he needs to live is real, and that is what I

> tell

> > > them,

> > > > I

> > > > > use no names, but I make them aware of the seriousness of

this,

> so

> > they

> > > > will

> > > > > know the reality of it,

> > > > > Sorry if this sounds horrible, but I just couldnt stop typing

> here.

> > > > > Take care, and hugs to you and .

> > > > >

> > > > > , mommy of 4, , 16 and begging to drive the

family

> > auto,

> > > (I

> > > >

> > > > > dont need more grey hair here) Caleb, 6 wishing to be 3 again,

> and

> > the

> > > > > worrier of the family,

> > > > > , 5 and the next famous artist, and , 17months with

CF

> and

> > > > reflux

> > > > > and a beautiful smile and bright blue eyes, whose greatest

> passions

> > are

> > > > > dancing and Elmo.

> > > > >

> > > > >

> > > > >

[Guest guest]

OK OK. Quit teasing us northerners who are freezing . I lived in yuma AZ,

so we have been from extreme tyo extrme. Been to FL too. Nice place. Went

all the way to Key West. BEAUTIFUL!!!!!!!

>

>Reply-To: cfparents

>To: <cfparents >

>Subject: RE: s mom(grandmombev)

>Date: Sat, 10 Feb 2001 20:03:46 -0500

>

>OVIEDO IS ALMOST PART OF ORLANDO NOW. Everything between has

> been filled in with homes, malls, big corporations are moving their home

> offices here & around here. etc.

> I haven't seen a palmetto bug in years......in fact, I haven't seen an

>ant

>,except

> at the park in years. I haven't even had them on my patio, & that isn't

>screened

> even.With little ponds in it as well.

> Most everyone has their lawns/grounds sprayed each month...kinda like

>other

> have their homes done. That keeps all bugs away from the

>houses/homes,etc.

> I guess we're learning.:) I hate bugs too. Creepy, crawly, stuff is

>yuck to me

> too.Anyway. I would just spray them if they ever come around me & they

>would

> be dead!! just like the commercial says...... " kills them dead " !..ha:):)

>

>LOVE, GRANDMOMBEV

>

> Re: s mom

> > >

> > >

> > >

> > > I agree with you about giving all you can. That's what made

>us

> > > decide not tohave any more (even after an IVF attempt). We decided

>that

> > > both the kids should be able to do whatever they want, like in

>sports,

> > music

> > > etc. and that costs alot of money. We also are planning a trip to

> > Scotland

> > > in the next two years (costs alot from all the way over here) so

>with

> > more

> > > kids it costs more. I know to alot of people this sounds

>materialistic,

> > but

> > > I want my kids to enjoy everything we can possibily do, without

>being

> > spoilt

> > > brats.

> > >

> > >

> > > Re: s mom

> > >

> > >

> > > > ,

> > > > After reading your post to me, here is my reply .

> > > >

> > > > After i had brandon and then it all sunk in about cf . He was

>probably

> > > > around 6-8 months old. and i made a promise either to him or me

>which

> > ever

> > > > because he wasn't able to comprehend what i was talking to him

> > about,but i

> > > > have always said i will give him the world as long as i was able

>to

> > afford

> > > > it. and so far i think i have done a great deal in his worldly

> > influences.

> > > > a few years ago we went around the U.S. on a 3 week trip and the

>kids

> > had

> > > so

> > > > much fun. i think we are going to do it again.

> > > > i try to give him everything(not meaning to spoil him he's not

>like

> > > > that)everything that i would want for myself in this day and age.

>also

> > > about

> > > > 6 years ago he wanted to move to the ocean . so you know what we

>did,

> > we

> > > > moved to florida within a matter of 2 weeks we took care of

>business

> > here

> > > in

> > > > PA and moved to daytona beach.

> > > > he was on ssi at the time and they asked me why we moved and i

>said

> > > because

> > > > my son wanted to , if you can picture their faces. they said what

>do

> > you

> > > > mean. and i said,my son has cf and he said move so we moved.

> > > > then my mother became very ill (strokes) and we moved backed to PA

>in

> > and

> > > > ice storm in january it was horrible Fl weather was 50 degree and

>PA

> > > weather

> > > > was - 15 oh my was it hard staying here then.

> > > > another move to St.louis won't make a difference to me. there is

>not

> > > really

> > > > anything here in PA for us the family, besides my father(my mother

> > passed

> > > > away)

> > > > The only thing is ,is we are able to afford this and we have been

>lucky

> > in

> > > > that situation,because there are people at clinic that have a hard

>time

> > > > affording to make it to clinic.

> > > > but i want him to see everything that i have seen , did, going to

>do.

> > > > i would work 4 jobs if i had to so he could do whatever in his

>life.

> > > > and if he lives to be 100, then he can tell his

>great-grandchildren

> > that

> > > his

> > > > mother was the greatest and gave up alot so he could see the

>world.

> > > > oh in april we go to aruba for 1 week(that is my pick, i want the

> > crystal

> > > > blue water) i could give a rats a$$ less if he goes or not.all i

>know

> > is i

> > > > am going and it is about time.

> > > > my worst fear is that he will die before me and i don't want that

>.

> > that

> > > is

> > > > not how it is suppose to work, i go and then the kids get to

>greive

>for

> > > me.

> > > > and me and my husband have been thru the crying part and we are

>back

>to

> > > > reality and we must take care of his life and make it better so we

>all

> > can

> > > > con't as a family.

> > > > i don't want to sound as if i have no conscience or whatever but i

> > > > understand what he has(cf) and what he will die from and

>approximately

> > > > around what age(they say 25 yrs) and that is what i hope to

>receive,

>if

> > we

> > > > have more than that i am very greatful, but i don't what to be

>robbed

> > of

> > > any

> > > > time. we have cried and cried and cried and cried i can't cry

> > > anymore(right

> > > > now at least maybe later)now we have to go and get the next step

>in

>our

> > > life

> > > > ready .

> > > > well this let out alot of built-up emotions and i feel good.

> > > >

> > > > people learn the hard way and the hard way in cf . and the hard

>way

> > does

> > > do

> > > > damage to their lungs and you can't reverse damage.

> > > > damage con't and con't. even if you don't make mistakes , so cf

>have

> > > worse

> > > > cases and damage their lungs , and we learn from that.

> > > >

> > > > so when a dr says it will affect them maybe not today but 5 years

>down

> > the

> > > > road BELEIVE them. because what you do today affects you 5 yrs

>later.

> > > >

> > > >

> > > > hopefully you made it all this way

> > > >

> > > > chris

> > > > mom of 3

> > > > brandon 12 yrs old

> > > >

> > > >

> > > >

> > > >

> > > > On Fri, 9 Feb 2001 00:27:50 EST, cfparents wrote:

> > > >

> > > > > Hello

> > > > >

> > > > > I read this post, and couldnt help but cry. My biggest fear is

>what

> > > you

> > > > and

> > > > > your son are going through now, it breaks my heart. I dont

>mean

>to

> > be

> > > a

> > > > > downer here, but I just dont know how you can handle hearing

>that,

> > > except

> > > > for

> > > > > the fact that you will do whatever necessary for your little

>boy,

> > even

> > > > > though he is 12, he is still a little boy.

> > > > > It is this type of thing that I tell my inlaws, to make them

>realize

> > > that

> > > >

> > > > > this disease is horrible, regardless of the medical

>breakthroughs,

> > and

> > > > the

> > > > > " median life expectancy " , both of which I dont like to think

>about.

> > > >

> > > > > is real, and what he needs to live is real, and that is what I

>tell

> > > them,

> > > > I

> > > > > use no names, but I make them aware of the seriousness of this,

>so

> > they

> > > > will

> > > > > know the reality of it,

> > > > > Sorry if this sounds horrible, but I just couldnt stop typing

>here.

> > > > > Take care, and hugs to you and .

> > > > >

> > > > > , mommy of 4, , 16 and begging to drive the

>family

> > auto,

> > > (I

> > > >

> > > > > dont need more grey hair here) Caleb, 6 wishing to be 3 again,

>and

> > the

> > > > > worrier of the family,

> > > > > , 5 and the next famous artist, and , 17months with

>CF

>and

> > > > reflux

> > > > > and a beautiful smile and bright blue eyes, whose greatest

>passions

> > are

> > > > > dancing and Elmo.

> > > > >

> > > > >

> > > > >

[Guest guest]

Gosh, It wasnt to tase you'al.........it was an invite to " come on fown "

while your weather is sooooooo cold. Actually, the snow is really beautifil

too..and if your dressed really warm.....Lots OF FUN!!!..your right about

the two extremes. those are great examples too!!

Have a great day. get some good movies OR sit here and write to all of

us:):)

LOVE, GRDMOMBEV

Re: s mom

> > >

> > >

> > >

> > > I agree with you about giving all you can. That's what made

>us

> > > decide not tohave any more (even after an IVF attempt). We decided

>that

> > > both the kids should be able to do whatever they want, like in

>sports,

> > music

> > > etc. and that costs alot of money. We also are planning a trip to

> > Scotland

> > > in the next two years (costs alot from all the way over here) so

>with

> > more

> > > kids it costs more. I know to alot of people this sounds

>materialistic,

> > but

> > > I want my kids to enjoy everything we can possibily do, without

>being

> > spoilt

> > > brats.

> > >

> > >

> > > Re: s mom

> > >

> > >

> > > > ,

> > > > After reading your post to me, here is my reply .

> > > >

> > > > After i had brandon and then it all sunk in about cf . He was

>probably

> > > > around 6-8 months old. and i made a promise either to him or me

>which

> > ever

> > > > because he wasn't able to comprehend what i was talking to him

> > about,but i

> > > > have always said i will give him the world as long as i was able

>to

> > afford

> > > > it. and so far i think i have done a great deal in his worldly

> > influences.

> > > > a few years ago we went around the U.S. on a 3 week trip and the

>kids

> > had

> > > so

> > > > much fun. i think we are going to do it again.

> > > > i try to give him everything(not meaning to spoil him he's not

>like

> > > > that)everything that i would want for myself in this day and age.

>also

> > > about

> > > > 6 years ago he wanted to move to the ocean . so you know what we

>did,

> > we

> > > > moved to florida within a matter of 2 weeks we took care of

>business

> > here

> > > in

> > > > PA and moved to daytona beach.

> > > > he was on ssi at the time and they asked me why we moved and i

>said

> > > because

> > > > my son wanted to , if you can picture their faces. they said what

>do

> > you

> > > > mean. and i said,my son has cf and he said move so we moved.

> > > > then my mother became very ill (strokes) and we moved backed to PA

>in

> > and

> > > > ice storm in january it was horrible Fl weather was 50 degree and

>PA

> > > weather

> > > > was - 15 oh my was it hard staying here then.

> > > > another move to St.louis won't make a difference to me. there is

>not

> > > really

> > > > anything here in PA for us the family, besides my father(my mother

> > passed

> > > > away)

> > > > The only thing is ,is we are able to afford this and we have been

>lucky

> > in

> > > > that situation,because there are people at clinic that have a hard

>time

> > > > affording to make it to clinic.

> > > > but i want him to see everything that i have seen , did, going to

>do.

> > > > i would work 4 jobs if i had to so he could do whatever in his

>life.

> > > > and if he lives to be 100, then he can tell his

>great-grandchildren

> > that

> > > his

> > > > mother was the greatest and gave up alot so he could see the

>world.

> > > > oh in april we go to aruba for 1 week(that is my pick, i want the

> > crystal

> > > > blue water) i could give a rats a$$ less if he goes or not.all i

>know

> > is i

> > > > am going and it is about time.

> > > > my worst fear is that he will die before me and i don't want that

>.

> > that

> > > is

> > > > not how it is suppose to work, i go and then the kids get to

>greive

>for

> > > me.

> > > > and me and my husband have been thru the crying part and we are

>back

>to

> > > > reality and we must take care of his life and make it better so we

>all

> > can

> > > > con't as a family.

> > > > i don't want to sound as if i have no conscience or whatever but i

> > > > understand what he has(cf) and what he will die from and

>approximately

> > > > around what age(they say 25 yrs) and that is what i hope to

>receive,

>if

> > we

> > > > have more than that i am very greatful, but i don't what to be

>robbed

> > of

> > > any

> > > > time. we have cried and cried and cried and cried i can't cry

> > > anymore(right

> > > > now at least maybe later)now we have to go and get the next step

>in

>our

> > > life

> > > > ready .

> > > > well this let out alot of built-up emotions and i feel good.

> > > >

> > > > people learn the hard way and the hard way in cf . and the hard

>way

> > does

> > > do

> > > > damage to their lungs and you can't reverse damage.

> > > > damage con't and con't. even if you don't make mistakes , so cf

>have

> > > worse

> > > > cases and damage their lungs , and we learn from that.

> > > >

> > > > so when a dr says it will affect them maybe not today but 5 years

>down

> > the

> > > > road BELEIVE them. because what you do today affects you 5 yrs

>later.

> > > >

> > > >

> > > > hopefully you made it all this way

> > > >

> > > > chris

> > > > mom of 3

> > > > brandon 12 yrs old

> > > >

> > > >

> > > >

> > > >

> > > > On Fri, 9 Feb 2001 00:27:50 EST, cfparents wrote:

> > > >

> > > > > Hello

> > > > >

> > > > > I read this post, and couldnt help but cry. My biggest fear is

>what

> > > you

> > > > and

> > > > > your son are going through now, it breaks my heart. I dont

>mean

>to

> > be

> > > a

> > > > > downer here, but I just dont know how you can handle hearing

>that,

> > > except

> > > > for

> > > > > the fact that you will do whatever necessary for your little

>boy,

> > even

> > > > > though he is 12, he is still a little boy.

> > > > > It is this type of thing that I tell my inlaws, to make them

>realize

> > > that

> > > >

> > > > > this disease is horrible, regardless of the medical

>breakthroughs,

> > and

> > > > the

> > > > > " median life expectancy " , both of which I dont like to think

>about.

> > > >

> > > > > is real, and what he needs to live is real, and that is what I

>tell

> > > them,

> > > > I

> > > > > use no names, but I make them aware of the seriousness of this,

>so

> > they

> > > > will

> > > > > know the reality of it,

> > > > > Sorry if this sounds horrible, but I just couldnt stop typing

>here.

> > > > > Take care, and hugs to you and .

> > > > >

> > > > > , mommy of 4, , 16 and begging to drive the

>family

> > auto,

> > > (I

> > > >

> > > > > dont need more grey hair here) Caleb, 6 wishing to be 3 again,

>and

> > the

> > > > > worrier of the family,

> > > > > , 5 and the next famous artist, and , 17months with

>CF

>and

> > > > reflux

> > > > > and a beautiful smile and bright blue eyes, whose greatest

>passions

> > are

> > > > > dancing and Elmo.

> > > > >

> > > > >

> > > > >