Thanks for the Warm Welcome

[Guest guest]

My name is and I would like to introduce myself to the group. I just learned that I have a severe form of Ahsermans Syndrome. We only discovered this because of Infertility Testing.

My husband and I have been trying to conceive for the past 16 months. Last August we made the appt to see my OB in regards to our infertility issues. At that point we had been charting for about 6 months. We went through the battery of IF testing (bloodwork,ultrasounds, sperm analysis, and an HSG). I was told by my OB that everything was fine, and put on Clomid for 5 cycles, all with no success. During the past six months my cycles have become increasingly painful, it has been like having PMSX10 for my entire cycle. My OB assured me that these were simply the side effects of Clomid, and to stop worrying about it so much.

Well in January, I refused to take the Clomid anymore, and pretty much had to demand to see an RE. After much debate I finally got the referral I needed. After taking a very thorough history, she started reading my prior test results, all of which were normal, except for my HSG.

This test showed (and I am quoting from the test results) Upon deflation of the balloon and further opacification of the endometrial canal, a persistent linear area of filling defect is seen just to the left of the midline in the endometrial canal. Differential considerations include synechiae versus a blood clot or other endometrial growth such as a polyp. Note that this is a relatively stationary filling defect. Other smaller areas are noted in the right lower endometrial canal and lower uterine segment region. Further evaluation is recommended, possibly by hysteroscopy.

I was directed to have an SHG, which was performed March 11th, by Dr. Blacker at Henry Ford Medical Center, in Troy, Michigan. This confirmed her diagnosis of severe Ashermans Syndrome, with a very large lesion, almost separating my uterus, with several smaller lesions which are much lower. This makes my chances of conceiving without surgery slim to none.

I have scheduled a Surgical Hysteroscopy May 7th, to remove the lesions. She also wants to to a Laproscopy to rule out secondary endometriosis. I do not live anywhere near an approved Ahsermans Dr, and am now very apprehensive about the surgery. My RE explained it as a surgical removal of the lesions, with scissors. She also explained the use of the catheter to keep the uterus seperated after surgery, and hormone therapy to follow. So she sounds as if she knows what she is doing, I am just very nervous. She is the Head of Reproductive Encronology at Henry Ford Hospital, here in Michigan. I dont think I am going to find anyone better, although I am awaiting a referal for a consultation outside of Henry Ford.

I believe I got this condition from the birth of my first child, which after 48 hours of intense labor was finally delivered via c-section. I developed a very bad infection afterwards, and had to remain in the hospital for about 10 days after the birth of my son. This was followed by 3 months of severe abdominal pain and bleeding. I finally had to have a D & C to correct the situation, with a different OB. This was 14 years ago, and I was of course assured that the situation had been corrected and everything would be fine! I also had a miscarriage about a year and a half after the birth of my son, I was about 12 weeks, the reason was unexplained.

Since trying to conceive my first child with my husband, I have had three chemical pregnancies, all of which ended at about 5 weeks. Two of them were on Clomid, the last one was without Clomid.

My periods have always been very regular up until about 18 months ago. They became very erratic, and extremely painful. I also get very ill in the days proceeding my period. (Fever, vomiting, diarrhea, dizzy etc.) It was like getting the flu every month. I complained every yearly visit, no one ever checked anything, except by ultrasound, which of course showed nothing! It is now to the point where I am in continual pain through out out my cycle, and I cant remember the last time I felt well. I explain it as if I have PMSX10 the entire month.

So here I am. I am somewhat comforted knowing that I have something, it is very hard to be told over and over there is nothing wrong with you. Although I am also having a very hard time coping with this disease itself, I am hoping to learn more from you..

I am extremely angry that my OB chose to ignore this in my original HSG, (she stated yesterday that it appeared to be no BIG deal!) She then put us through six months of total hell, while trying to conceive on Clomid. I called her yesterday, and gave her a very large piece of my mind! It felt better to yell at someone!

Although I am still a basket case both physically and emotionally right now, and I just need to speak with someone else who has been through the same situation.

I am also very concerned about the RE scheduled to do the surgery, as I don't want to make anything worse, but I am so tired of being in pain all the time, not to mention the heartbreak that trying to conceive has caused.

Thanks for the warm welcome! I look forward to hearing from you.

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