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RE: Harry

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Hello Barry,

has gotten thrush from the antibiotics, and from the sounds of it,

Harry has been on the antibiotics for awhile now. If he is on Nystatin for

his mouth, you could try using a piece of gauze and putting the med on that

and wiping his mouth, sounds gross I know, but it may help. They also make

little spongy things that you can use to dip the med in and let him suck on

it, it keeps the med in the mouth a little longer.

Glad to hear that the PA is gone for now. Take care.

, mommy of 4, , 16 and begging to drive the family auto, (I

dont need more grey hair here) Caleb, 6 wishing to be 3 again, and the

worrier of the family,

, 5 and the next famous artist, and , 17months with CF and reflux

and a beautiful smile and bright blue eyes, whose greatest passions are

dancing and Elmo.

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Barry

Thrush can happen in babies with Cf and babies without CF. All of my kids

had it as infants, at one time or another. Typically, it is related to

antibiotic use, as the antibiotics also decrease the good bacteria in the

mouth, basically, and allow for over growth of candida albicans, which is

yeast....and that is what causes thrush. It is also pretty common in nursing

babies. I also understand that use of oral steroids can also lead to thrush,

which is why they tell you to rinse their mouth really well after nebs. I

would imagine that Tobi might have this affect, also, if you dont' rinse

their mouth well. Hope this helps....

Also, I saw your post about Cf and having future children. Your baby is

still really young. He may do well, or he may not....all that depends on

lord only knows what. Our Mallory has been our sicker one, and she is still

pretty young, but the other kids do pretty well. There is so much more hope

for children with Cf these days......the treatments are so much better, and

there is much more hope. Just another perspective. Please don't give up on

your son quite so soon.

Take care

Jen

Mommy of 7, including ph 19 months with CF, Mallory 3 with CF, RAD, GERD,

OSA, port-a-cath; 4 with CF, asthma, port-a-cath; 6, Miranda 9,

Brittany 7 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon

to be adopted by us; ERica 4 yo foster daughter, soon to be adopted by us

also ; also aunt to 3 yo with CF

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OH, Barry, I forgot, if the nystatin doesn't work, and ginga violet doesn't

work (spelled wrong???), then Diflucan always did the trick for my kids.

(the only thing was, we had to stop the propulsid when they were on

diflucan.....but that should not be an issue these days, since its off the

market anyway...)

Jen

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,

Thanks for the tip, I assumed that he got the thrush because of the hard

balls of the enzymes scrapping his mouth I didn't realise that the

antibiotics could cause it.

Barry

Re: Harry

Hello Barry,

has gotten thrush from the antibiotics, and from the sounds of it,

Harry has been on the antibiotics for awhile now. If he is on Nystatin for

his mouth, you could try using a piece of gauze and putting the med on that

and wiping his mouth, sounds gross I know, but it may help. They also make

little spongy things that you can use to dip the med in and let him suck on

it, it keeps the med in the mouth a little longer.

Glad to hear that the PA is gone for now. Take care.

, mommy of 4, , 16 and begging to drive the family auto, (I

dont need more grey hair here) Caleb, 6 wishing to be 3 again, and the

worrier of the family,

, 5 and the next famous artist, and , 17months with CF and reflux

and a beautiful smile and bright blue eyes, whose greatest passions are

dancing and Elmo.

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Jen,

Thanks for the post, the Dr's never told us to rinse his mouth after the

NEB's so that may have caused it. We always give him his Fluclucilin and

cipro just before his feed so that he swallowed them so if it was due to

antibiotics it must have been the NEB's. Next time we will rinse his mouth

out after the NEB's and see if it helps.

Please don't get me wrong about Harry, I have not given up on him, my wife

and I will fight to get him the best treatment and give him the best chance

of survival. However I am a realist and I feel that you should hope for the

best and prepare for the worst.

Regards,

Barry

Re: Harry

Barry

Thrush can happen in babies with Cf and babies without CF. All of my kids

had it as infants, at one time or another. Typically, it is related to

antibiotic use, as the antibiotics also decrease the good bacteria in the

mouth, basically, and allow for over growth of candida albicans, which is

yeast....and that is what causes thrush. It is also pretty common in

nursing

babies. I also understand that use of oral steroids can also lead to

thrush,

which is why they tell you to rinse their mouth really well after nebs. I

would imagine that Tobi might have this affect, also, if you dont' rinse

their mouth well. Hope this helps....

Also, I saw your post about Cf and having future children. Your baby is

still really young. He may do well, or he may not....all that depends on

lord only knows what. Our Mallory has been our sicker one, and she is still

pretty young, but the other kids do pretty well. There is so much more hope

for children with Cf these days......the treatments are so much better, and

there is much more hope. Just another perspective. Please don't give up on

your son quite so soon.

Take care

Jen

Mommy of 7, including ph 19 months with CF, Mallory 3 with CF, RAD,

GERD,

OSA, port-a-cath; 4 with CF, asthma, port-a-cath; 6, Miranda 9,

Brittany 7 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon

to be adopted by us; ERica 4 yo foster daughter, soon to be adopted by us

also ; also aunt to 3 yo with CF

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