Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 , Eilish is around 2 yrs , right. looking back over the years, i can remember brandon had alot of times where he would have a mucus plug come loose(not from ballet or anything like that haha) and i thought he was dying then but he was able to startd breathing again . after he reached 5-6 years old and was able to cough and continue bringing mucus up everytime he did chest pt then the dislodging of mucus plugs stopped. and then i was able to breath again without worry(ya right i am able to not worry right now I wish ) do you know how to help with a mucus plug when it becomes dislodged? if not learn. and if it did happen you can take conrtol of the situation and not have other kids becoming afraid. all the coughing is more than likely from her being so active in that amnner , because she is just starting, she will get use to it and the coughing will decrease. before she goes in the doors to class, do a quick treatment and cpt with her, maybe it will help lesson the cough will becoming a premadonna. best of luck and i am sure she is just an angel out on that wooden floor chris mom of 3 brandon 12 yrs old On Fri, 09 Feb 2001 20:02:12 +1030, cfparents wrote: > Does anybody girls do dancing? Eilish started tap and ballet tonight and she looked so cute. She did her little stretches and other stuff, but boy did she cough her little heart out. She never stopped even when coughing but I saw other people looking, so I explained that they couldnt catch anything and about her having cf. I also needed to explain this morning as she also had gymnastics and when she was tumbling and jumping her coughing started again. I also explained to 'Miss Alana' her dance teacher that for the next three Fridays she will have a drip in her arm and that she still should be ok to dance. They said that was fine. What about gymnastics, does anyone think she might dislodge something with gym? > I dont mind driving the hour home as long as she can still do her 'normal' stuff. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 started gymnastics about three months ago when she first came out of hospital. In the beginning she coughed so much people began asking if she was a severe asthmatic etc etc and she needed breaks and lots of bricynal etc. But now she very rarely coughs (only really when I ask her to). She has not had a mucus plug as such so far and in my opinion, gymnastics is the best thing she has done in a long time and will continue to do it. I treat it as a part of her therapy now. She goes for two hours on Tuesday afternoons and 1 hour on Thursday mornings. Hope this helps and look forward to reading about Eilish's recovery. (Australia wcf 4 1/2 yrs) exercise > Does anybody girls do dancing? Eilish started tap and ballet tonight and she looked so cute. She did her little stretches and other stuff, but boy did she cough her little heart out. She never stopped even when coughing but I saw other people looking, so I explained that they couldnt catch anything and about her having cf. I also needed to explain this morning as she also had gymnastics and when she was tumbling and jumping her coughing started again. I also explained to 'Miss Alana' her dance teacher that for the next three Fridays she will have a drip in her arm and that she still should be ok to dance. They said that was fine. What about gymnastics, does anyone think she might dislodge something with gym? > I dont mind driving the hour home as long as she can still do her 'normal' stuff. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 OUR ERIN did and still does gymnastics. Is on the trampoline EVERYDAY..........It is wonderful for them.Sure helps the cough come up ..then , keeps her clear. She is 16+ now. never been in hospital (since birth ).Docs will tell you if not for her BUT, I bet they say GREAT!!! LOVE & HUGS, GrandmomBEV exercise Does anybody girls do dancing? Eilish started tap and ballet tonight and she looked so cute. She did her little stretches and other stuff, but boy did she cough her little heart out. She never stopped even when coughing but I saw other people looking, so I explained that they couldnt catch anything and about her having cf. I also needed to explain this morning as she also had gymnastics and when she was tumbling and jumping her coughing started again. I also explained to 'Miss Alana' her dance teacher that for the next three Fridays she will have a drip in her arm and that she still should be ok to dance. They said that was fine. What about gymnastics, does anyone think she might dislodge something with gym? I dont mind driving the hour home as long as she can still do her 'normal' stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 My daughter Madison who is 12 has taken some sort of dance class for the past 6 years. The last 2 have been ballet which is her favorite. Sometimes she coughs during class and sometimes not. She gets a little embarrassed but keeps on going. She likes to do the albuterol and CPT an hour before going so she can get stuff up before class. She says it helps her not to cough as much during class. In November she chose not to go to class with her PICC line in but that was completely out of embarrassment. I tried to get her to wear long sleeves but she just didn't want to -- teens <sigh> I'm not sure about the gymnastics but would think it would be fine as long as the PICC line is wrapped up good. It would take a lot of effort to get those things out. If it's a regular IV line you might want to ask her doc first. Whenever Madi has had an IV it comes out easily. At the Salt Lake hospital they do physical therapy with the cf kids. They do stuff like basketball, relay races and obstacle courses. The obstacle courses are running up stairs, crawling through those long round kid tubes, stuff like that. All this with the PICC's in. yvonne price Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 > What kinds of exercises are reasonable for Graves' people? My > daughter likes to bike but with her heart rate averaging 108 during > the day, I'm unsure of what's all right for her to do. Opinions? > Experiences? Our entire family enjoy walking; how about that? > > Thanks! Amy's Pam You should really check with your doc. I wasn't allowed any excercise until my heart mellowed out, and then I was instructed to start low impact...I chose yoga and am still working from there since my heart is back to it's wacky kooky things Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 OK, I didn't know about resting for ten minutes before taking a reading. Maybe that's why the doctor's office always makes us wait forever. . . :-) I've been getting Amy to sit still for a bit, but will now have her sit for ten minutes before taking a pulse. I'll see if there's a difference. On that pulse note, it appears she might be responding somewhat to the Tapazole. Her rate average last week was 110, but in the last two days she's come down a few points, and doesn't seem quite so tired. After that bike ride she was exhausted; I'm sure she overdid that one. It makes sense to me that a person needs some decent, mild exercise to help the heart muscle remain strong, thereby keeping the rate lower, but I want to proceed with caution. Amy's Pam > The problem I have with taking my pulse, is you are supposed to be sitting > and resting > (including lack of mental stress) for at least 10 min. before taking a > reading. When I do > this I see a big difference in the numbers. Something to think about. > I want to be the kind of friend Jesus would call, at the end of the day, just to talk about nothing.-Wayne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 OK, I didn't know about resting for ten minutes before taking a reading. Maybe that's why the doctor's office always makes us wait forever. . . :-) I've been getting Amy to sit still for a bit, but will now have her sit for ten minutes before taking a pulse. I'll see if there's a difference. On that pulse note, it appears she might be responding somewhat to the Tapazole. Her rate average last week was 110, but in the last two days she's come down a few points, and doesn't seem quite so tired. After that bike ride she was exhausted; I'm sure she overdid that one. It makes sense to me that a person needs some decent, mild exercise to help the heart muscle remain strong, thereby keeping the rate lower, but I want to proceed with caution. Amy's Pam > The problem I have with taking my pulse, is you are supposed to be sitting > and resting > (including lack of mental stress) for at least 10 min. before taking a > reading. When I do > this I see a big difference in the numbers. Something to think about. > I want to be the kind of friend Jesus would call, at the end of the day, just to talk about nothing.-Wayne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 OK, I didn't know about resting for ten minutes before taking a reading. Maybe that's why the doctor's office always makes us wait forever. . . :-) I've been getting Amy to sit still for a bit, but will now have her sit for ten minutes before taking a pulse. I'll see if there's a difference. On that pulse note, it appears she might be responding somewhat to the Tapazole. Her rate average last week was 110, but in the last two days she's come down a few points, and doesn't seem quite so tired. After that bike ride she was exhausted; I'm sure she overdid that one. It makes sense to me that a person needs some decent, mild exercise to help the heart muscle remain strong, thereby keeping the rate lower, but I want to proceed with caution. Amy's Pam > The problem I have with taking my pulse, is you are supposed to be sitting > and resting > (including lack of mental stress) for at least 10 min. before taking a > reading. When I do > this I see a big difference in the numbers. Something to think about. > I want to be the kind of friend Jesus would call, at the end of the day, just to talk about nothing.-Wayne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Pam, Well, I'd have her steer away from much exercise. Walking is a good idea, but check with your doc specifically on this one. B exercise > What kinds of exercises are reasonable for Graves' people? My > daughter likes to bike but with her heart rate averaging 108 during > the day, I'm unsure of what's all right for her to do. Opinions? > Experiences? Our entire family enjoy walking; how about that? > > Thanks! Amy's Pam > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Amys Pam, My doctor told me to train, not strain ! But then he could tell from looking at me (I was very sick and feeling weak in the beginning) that it was unlikely I would be going out and running a marathon. LOL He left it up to me to set the pace, but encouraged exercise. I quickly learned what my body was capable of. If I did to much, I was completely wiped out for a few days afterwards. How has Amy been the day after a bike ride ? Is she able to go at her own pace? If so, this would be a good thing . The problem I have with taking my pulse, is you are supposed to be sitting and resting (including lack of mental stress) for at least 10 min. before taking a reading. When I do this I see a big difference in the numbers. Something to think about. Just looked at my BP cuff instructions...it says a normal resting heart rate is 60 to 100 bpm. Do the rest of you agree with this ? -Pam- #1 :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Amys Pam, My doctor told me to train, not strain ! But then he could tell from looking at me (I was very sick and feeling weak in the beginning) that it was unlikely I would be going out and running a marathon. LOL He left it up to me to set the pace, but encouraged exercise. I quickly learned what my body was capable of. If I did to much, I was completely wiped out for a few days afterwards. How has Amy been the day after a bike ride ? Is she able to go at her own pace? If so, this would be a good thing . The problem I have with taking my pulse, is you are supposed to be sitting and resting (including lack of mental stress) for at least 10 min. before taking a reading. When I do this I see a big difference in the numbers. Something to think about. Just looked at my BP cuff instructions...it says a normal resting heart rate is 60 to 100 bpm. Do the rest of you agree with this ? -Pam- #1 :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Amys Pam, My doctor told me to train, not strain ! But then he could tell from looking at me (I was very sick and feeling weak in the beginning) that it was unlikely I would be going out and running a marathon. LOL He left it up to me to set the pace, but encouraged exercise. I quickly learned what my body was capable of. If I did to much, I was completely wiped out for a few days afterwards. How has Amy been the day after a bike ride ? Is she able to go at her own pace? If so, this would be a good thing . The problem I have with taking my pulse, is you are supposed to be sitting and resting (including lack of mental stress) for at least 10 min. before taking a reading. When I do this I see a big difference in the numbers. Something to think about. Just looked at my BP cuff instructions...it says a normal resting heart rate is 60 to 100 bpm. Do the rest of you agree with this ? -Pam- #1 :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Pam - My resting heartrate was originally 90-100, and while the doc said that was not _too_ bad, it should be lower. One of the docs I saw (can't remember which one) said that 80 and under is more what you should see for resting heartrate. So, for whatever that's worth. Re: exercise >Hi Amys Pam, > > My doctor told me to train, not strain ! But then he could tell from looking at me (I >was very sick and feeling weak in the beginning) that it was unlikely I would be going out >and running a marathon. LOL He left it up to me to set the pace, but encouraged exercise. > I quickly learned what my body was capable of. If I did to much, I was completely wiped >out for a few days afterwards. How has Amy been the day after a bike ride ? >Is she able to go at her own pace? If so, this would be a good thing . > >The problem I have with taking my pulse, is you are supposed to be sitting and resting >(including lack of mental stress) for at least 10 min. before taking a reading. When I do >this I see a big difference in the numbers. Something to think about. > >Just looked at my BP cuff instructions...it says a normal resting heart rate is 60 to 100 >bpm. Do the rest of you agree with this ? > >-Pam- #1 :-) > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Pam - My resting heartrate was originally 90-100, and while the doc said that was not _too_ bad, it should be lower. One of the docs I saw (can't remember which one) said that 80 and under is more what you should see for resting heartrate. So, for whatever that's worth. Re: exercise >Hi Amys Pam, > > My doctor told me to train, not strain ! But then he could tell from looking at me (I >was very sick and feeling weak in the beginning) that it was unlikely I would be going out >and running a marathon. LOL He left it up to me to set the pace, but encouraged exercise. > I quickly learned what my body was capable of. If I did to much, I was completely wiped >out for a few days afterwards. How has Amy been the day after a bike ride ? >Is she able to go at her own pace? If so, this would be a good thing . > >The problem I have with taking my pulse, is you are supposed to be sitting and resting >(including lack of mental stress) for at least 10 min. before taking a reading. When I do >this I see a big difference in the numbers. Something to think about. > >Just looked at my BP cuff instructions...it says a normal resting heart rate is 60 to 100 >bpm. Do the rest of you agree with this ? > >-Pam- #1 :-) > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Pam - My resting heartrate was originally 90-100, and while the doc said that was not _too_ bad, it should be lower. One of the docs I saw (can't remember which one) said that 80 and under is more what you should see for resting heartrate. So, for whatever that's worth. Re: exercise >Hi Amys Pam, > > My doctor told me to train, not strain ! But then he could tell from looking at me (I >was very sick and feeling weak in the beginning) that it was unlikely I would be going out >and running a marathon. LOL He left it up to me to set the pace, but encouraged exercise. > I quickly learned what my body was capable of. If I did to much, I was completely wiped >out for a few days afterwards. How has Amy been the day after a bike ride ? >Is she able to go at her own pace? If so, this would be a good thing . > >The problem I have with taking my pulse, is you are supposed to be sitting and resting >(including lack of mental stress) for at least 10 min. before taking a reading. When I do >this I see a big difference in the numbers. Something to think about. > >Just looked at my BP cuff instructions...it says a normal resting heart rate is 60 to 100 >bpm. Do the rest of you agree with this ? > >-Pam- #1 :-) > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
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