Re: I want to have another child

[Guest guest]

Angie,

I think it is a hard decision to have a 2nd kid with or without CF as a

concern! Having more than 1 kid is tough even when the kids don't have CF.

It is tougher having 2 with CF I feel I am constantly at the doctors office

but then again I was always there with Maureen when she was a baby and we did

not know she had CF.

It takes time to make the choice and CF does make it tougher but I am able to

stay home and with your schedule I would make sure, no matter what the

health, that I had as much help as I could. Newborns are wonderful in so

many ways but it's 11 weeks and I have only gotten 2 nights of him sleeping

through the night

Meg

Mom of 3

Moe 10yowcf, Kate 5yowocf & Jack infant wcf

[Guest guest]

Hi Angie,

I have two children one with cf and without. We really didn't plan on having

anymore children after our first who was diagnosed with cf at birth only

because we were scared. Our second child was a bit of a surprise. We had

a CVS test done at 6 weeks and it took about 2 weeks to get the results. I

did nothing but worry those weeks. My family and some of my friends

critcized me to no end for even getting pregnant with the second child. We

did have friends that gave us lots of support.

Having only two children has made the hospital stays easier as the hospital

has let my youngest stay with me each time. I do have family members and

friends that could have helped out if I had more children.

I would think waiting til after you finish school might be a little easier on

you.

Sounds like you and your husband are doing a lot of talking about the

different scenarios.

yvonne

[Guest guest]

Hi!

I hate the Dr. words " they are present different " but its true. My older and

youngest are pulmonary my middle one is GI and pulm. go figure.

I know many who risk it - 25% each pregnancy - to have a " healthy " child.

Don't worry about what others think. I don't know what I would have done.

I found out about my first two at the same time when I was 7 months pregnant

with my third!

Life is a gamble. I would think about the care and treatments involved in

caring for your child with CF and how you will care for a newborn. I would

think about Center visits and a " healthy " child. Think about the healthy

child's life - if the child does have CF - it, in somes ways is easier for

" siblings " .....

There is a lot to think about. I panic when once is real sick and I feel

like I am not adequately caring for others. CF is time consuming and I feel

guilty at times.

Good Luck. Remember, you MUST do what is good for you and you only. Family

and friends will come and go but you will be the one caring for your children.

Rosemary in New York with 3 kids with CF ages 10, 8 and 4! If I had a dog it

would probably have CF! I have the luck of the Irish!

[Guest guest]

Angie,

We have two kids but the youngest has cf. So for us we didnt even know

anything about it when our second was born, until we received that'wondeful'

phone call at three weeks of age.

We too wanted another child last year(2000). So since 1998 we had been in

the IVF program. It cost alot of money and in the end we didnt get

anything. It was a really long complicated thing with alot of time needed,

but we were well prepared to pay in thime and cash for an unaffected child,

if only we could have done it for Eilish. We had 6 embroys take and out of

that six 3 had cf, 2 were carriers and 1 they were not sure about. So we

decided to only use the carriers. Unfortunately they didnt survive the

freezing and thawing process. So after 2 years of running around we didnt

even get an implant. The rest of the embroys we donated for research.

Youre very brave for not minding if your other child has cf. I couldnt cope

with it. I still feel guilty for Eilish having it and think alot about the

'if only's'! But I love her to death and wouldnt trade her for anything

(only when shes really naughty), but if I could turn the clock back and new

about cf before I would hav gone through the IVF for her to be free from

this bloody disease.

Good luck in whatever you decide to do.

I want to have another child

> I have a son with CF who is 22 months old. My husband and I are

> seriously considering another child (like very soon).

>

> My son's CF is mild.(I guess). He only gets one PT per day, no

> breathing treatments unless he is sick (usually 1 time per year), and

> takes enzymes with meals. He is very healthy.

>

> We want another child, and do not care if the next child has CF or

> not. The problems is, I am afraid I will have another child with CF

> that may have a worse case of CF, and I will not be able to handle

> taking care of 2. I work full time and am a part-time student. I

> cannot afford to stay home from work full time if the need arose.

>

> For those of you who have more than one child with CF, are your

> children similar in the area of severeness of CF? Is it hard raising

> more than one child with CF?

>

> For those of you with more than one child, and only one has CF, did

> you have the same thoughts as me? How did you resolve them? What

> did your friends and family say?

>

> Please help

> Angie

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

[Guest guest]

Hi Angie,

sorry to play devil's advocate here, but just a few keywords to consider:

cross-infection between CF-siblings

additional financial burden

Organizing the possible hospital stays. When you already say, that you can't

afford to stay away from work, what are your options? Can you rely on other

family members?

Have you thought about PID (prenatal implantation diagnosis)?

Have you thought about adoption?

Regarding the severeness, it gets more and more obvious, that other genes

besides the CF gene have an impact on the severity of the CF. There are a few CF

mutations, which are positively correlated with a mild course of the disease,

but for the vast majority of the mutations the severity differs widely.

There are many on this list with more than one child wcf and they will encourage

you to go on. So please allow me to represent the other side of the story. I

wouldn't take the risk, but it has to be the decision of you and your hubby.

And no, we are not happy that Fiona will be an only child.

Bye-bye

Torsten, dad of Fiona 3.5wcf

e-mail: aberdeen95@...

[Guest guest]

, I can only tell you how I feel as a child grown-up without any

siblings. I always wondered if my parents never had more because I was

sick. Thank God they reassured me enough that now I know with all my

heart that is was beyond their control to have more kids or not. Having

more children with CF is a handful, maybe you should wait till you

finish school. I don't know. All I do know is that you should do what

you want for you not for your kids. Having more because you don't want

them to be lonely is silly. People make friends in life and are never

totally alone. Not having kids because you blame yourself for passing

on a disease you never even knew you carried in you is totaling wrong as

well. If you want more children but are worried about having another

one CF + then maybe look into adoption. But if kids is what you want

then look into your heart and your life with your hubby closely and see

what you both can handle now and into the future.

Just to give you a little lift I want to tell you I am 25 years old and

a mother of a 2 1/2 year old that is CF free. She is the light of my

life ( when behaving) I had her naturally( No insamintaion((sp)) )

I went to collage before her for four years and worked for two. I don't

work now but I made the choice to stay home and live a healthier life.

Rather then work and be sick more often. I believe that even though my

daughter will have to test her children in the future for CF that she

could look at me and my life and know that a person with CF can live a

full and active life.

I don't want to stress you out but I do want to just let you know there

are people who do live somewhat happily with CF

[Guest guest]

Angie

I think it is a very personal decision that your family has to make. For us

personally, we left such decision making up to our own beliefs. We didn't

find out that had CF til Mallory was already born, and didn't know

Mallory had CF til I was already pregnant with ph......but we certainly

did know it would be a possibility when we got pregnant with ph. I

personally would not change a thing. Yes, sometimes there are really hard

months, when they are all three sick, CF related or not. But then things

with our other kiddos deal us cards we did not expect, either..... with

life, and kids, there are no guarantees on anything. Who would have thought

that a child we took in for supposedly 6 weeks we'd end up adopting 4 years

later.......and surely who would have thought that she would end up having

Type 1 (juvenile ) diabetes..... but she does, and we cope and deal with it

(though, its much much easier than CF care)

I don't really know how to answer the severity thing, except that it does

seem that each kid is pretty different. has been really pretty

healthy overall, though we have always done much more nebs and cpt than you

describe (he was already on nebs when diagnosed b/c the ped thought he had

asthma). Mallory has always been our sicker one and seems to have more lung

involvement. ph is only 19 months, so it might be too soon to know

except that mostly he seems weight affected with some lung involvement,

though minimal, I think at this point. Certainly, he has never been

hospitalized nor needed ivs, though he does have pseudo and H. Flu. Heck,

for that matter, I suppose it could be that we could have a kid without CF

who would be sicker in general than one with CF, so there is really no way to

predict all those factors.

I guess the other thing I would say is that if you are prepared to handle it

regardless of the outcome, then you are way better off than say, the parent

who has never heard of CF whose child is diagnosed. While we certainly were

sad and not happy about ph having CF, it didn't bring near the shock that

hearing had it brought on.....

If you have any other questions, feel free to ask......

Take care,

Jen

Mommy of 7, including ph 19 months with CF, Mallory 3 with CF, RAD, GERD,

OSA, port-a-cath; 4 with CF, asthma, port-a-cath; 6, Miranda 9,

Brittany 7 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon

to be adopted by us; ERica 4 yo foster daughter, soon to be adopted by us

also ; also aunt to 3 yo with CF

[Guest guest]

Helena,

Thanks for the post. Im not sure if youre combining two posts here, but Im

not at school. I left a good 15 years ago, plus my daughter isnt an only

child. They lady I replied to I think has an only child. Yes I fully agree

that each person needs to look into themselves to see what they can cope

with. I have some truly wonderful friends who have cf, two of them have had

transplants and one had a heart/double lung transplant. The reason we

actually decided to stay with just our two and not anymore is because one

day I sat & listened to all these wonderful friends with cf and realise

that they are happy, fulfilled and enjoying their life and have no plans to

die any time soon. They gave me such a boost and such hope for my daughter

that we decided that we will have her for a long time. Up until that point

everyone (medical) we spoke to kept harping on about 'life expectancy' and

that was playing on my mind all the time. So now we have two wonderful kids

and however long or short their or our lives may be we will try our best to

make it wonderful. Since we decided this we have coped so much better, bu

putting the 'life expectancy' thing out of our minds, and living each day,

not consumed by cf but just having it as our 'normal'life.

Im so glad your doing well. Another friend has cf and she has a 4 year old

little boy. She's hardly done physio in her life and takes nothing except

enzymes. But she does work with horses and gets alot of exercise, she's

great.

Take Care....julie

Re: I want to have another child

> , I can only tell you how I feel as a child grown-up without any

> siblings. I always wondered if my parents never had more because I was

> sick. Thank God they reassured me enough that now I know with all my

> heart that is was beyond their control to have more kids or not. Having

> more children with CF is a handful, maybe you should wait till you

> finish school. I don't know. All I do know is that you should do what

> you want for you not for your kids. Having more because you don't want

> them to be lonely is silly. People make friends in life and are never

> totally alone. Not having kids because you blame yourself for passing

> on a disease you never even knew you carried in you is totaling wrong as

> well. If you want more children but are worried about having another

> one CF + then maybe look into adoption. But if kids is what you want

> then look into your heart and your life with your hubby closely and see

> what you both can handle now and into the future.

> Just to give you a little lift I want to tell you I am 25 years old and

> a mother of a 2 1/2 year old that is CF free. She is the light of my

> life ( when behaving) I had her naturally( No insamintaion((sp)) )

> I went to collage before her for four years and worked for two. I don't

> work now but I made the choice to stay home and live a healthier life.

> Rather then work and be sick more often. I believe that even though my

> daughter will have to test her children in the future for CF that she

> could look at me and my life and know that a person with CF can live a

> full and active life.

>

> I don't want to stress you out but I do want to just let you know there

> are people who do live somewhat happily with CF

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

[Guest guest]

your friend sounds like me. I never liked to do physio( don't tell the

kids this) But I take enzymes regularly. my active life depends mostly

on weather. But I'm glad your choice was a good one. I know the doc's

really like to stress life expectancy, which I hate because what, I have

only 5 years left. I don't plan on it. There is a 69 year old at the

BC St. s clinic, which I hope I can live as long as he or she has.

Now that is a good number! :c)

Baxter wrote:

>

> Helena,

>

> Thanks for the post. Im not sure if youre combining two posts here, but Im

> not at school. I left a good 15 years ago, plus my daughter isnt an only

> child. They lady I replied to I think has an only child. Yes I fully agree

> that each person needs to look into themselves to see what they can cope

> with. I have some truly wonderful friends who have cf, two of them have had

> transplants and one had a heart/double lung transplant. The reason we

> actually decided to stay with just our two and not anymore is because one

> day I sat & listened to all these wonderful friends with cf and realise

> that they are happy, fulfilled and enjoying their life and have no plans to

> die any time soon. They gave me such a boost and such hope for my daughter

> that we decided that we will have her for a long time. Up until that point

> everyone (medical) we spoke to kept harping on about 'life expectancy' and

> that was playing on my mind all the time. So now we have two wonderful kids

> and however long or short their or our lives may be we will try our best to

> make it wonderful. Since we decided this we have coped so much better, bu

> putting the 'life expectancy' thing out of our minds, and living each day,

> not consumed by cf but just having it as our 'normal'life.

> Im so glad your doing well. Another friend has cf and she has a 4 year old

> little boy. She's hardly done physio in her life and takes nothing except

> enzymes. But she does work with horses and gets alot of exercise, she's

> great.

>

> Take Care....julie

> Re: I want to have another child

>

> > , I can only tell you how I feel as a child grown-up without any

> > siblings. I always wondered if my parents never had more because I was

> > sick. Thank God they reassured me enough that now I know with all my

> > heart that is was beyond their control to have more kids or not. Having

> > more children with CF is a handful, maybe you should wait till you

> > finish school. I don't know. All I do know is that you should do what

> > you want for you not for your kids. Having more because you don't want

> > them to be lonely is silly. People make friends in life and are never

> > totally alone. Not having kids because you blame yourself for passing

> > on a disease you never even knew you carried in you is totaling wrong as

> > well. If you want more children but are worried about having another

> > one CF + then maybe look into adoption. But if kids is what you want

> > then look into your heart and your life with your hubby closely and see

> > what you both can handle now and into the future.

> > Just to give you a little lift I want to tell you I am 25 years old and

> > a mother of a 2 1/2 year old that is CF free. She is the light of my

> > life ( when behaving) I had her naturally( No insamintaion((sp)) )

> > I went to collage before her for four years and worked for two. I don't

> > work now but I made the choice to stay home and live a healthier life.

> > Rather then work and be sick more often. I believe that even though my

> > daughter will have to test her children in the future for CF that she

> > could look at me and my life and know that a person with CF can live a

> > full and active life.

> >

> > I don't want to stress you out but I do want to just let you know there

> > are people who do live somewhat happily with CF

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > --------------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

> >

> >

> >

>

> ***********************

> This is a secular list.

> ***********************

>

> PLEASE do not post religious emails to the list.

>

> --------------------------------------------------

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

--

-----------------------------------------------------

Click here for Free Video!!

http://www.gohip.com/free_video/

[Guest guest]

Helena,

69 is a good number for everyone. How old is your child. Is he/she a

carrier. My 6 year old son,Liam isnt a carrier, so when Eilish was born it

was a total unknown. I also hate the life expectancy thing to. Our doctor

is wonderful but never has any encouraging thing to say, he said its because

he doesnt want to give false hope. Damn it I want hope! But in every other

way he is good. Eilish (3year old wcf) had a rotten year last year with 4

admissions but touch wood sounds good this year (so far). Father Christmas

bought a huge trampoline and they had been on this nearly every day (only

when its early monring or when its late afternoon) because its to hot

otherwise. Thats done her the world of good.

Take care and keep well ....

Re: I want to have another child

> >

> > > , I can only tell you how I feel as a child grown-up without any

> > > siblings. I always wondered if my parents never had more because I

was

> > > sick. Thank God they reassured me enough that now I know with all my

> > > heart that is was beyond their control to have more kids or not.

Having

> > > more children with CF is a handful, maybe you should wait till you

> > > finish school. I don't know. All I do know is that you should do

what

> > > you want for you not for your kids. Having more because you don't

want

> > > them to be lonely is silly. People make friends in life and are never

> > > totally alone. Not having kids because you blame yourself for passing

> > > on a disease you never even knew you carried in you is totaling wrong

as

> > > well. If you want more children but are worried about having another

> > > one CF + then maybe look into adoption. But if kids is what you want

> > > then look into your heart and your life with your hubby closely and

see

> > > what you both can handle now and into the future.

> > > Just to give you a little lift I want to tell you I am 25 years old

and

> > > a mother of a 2 1/2 year old that is CF free. She is the light of my

> > > life ( when behaving) I had her naturally( No insamintaion((sp)) )

> > > I went to collage before her for four years and worked for two. I

don't

> > > work now but I made the choice to stay home and live a healthier life.

> > > Rather then work and be sick more often. I believe that even though

my

> > > daughter will have to test her children in the future for CF that she

> > > could look at me and my life and know that a person with CF can live a

> > > full and active life.

> > >

> > > I don't want to stress you out but I do want to just let you know

there

> > > are people who do live somewhat happily with CF

> > >

> > > ***********************

> > > This is a secular list.

> > > ***********************

> > >

> > >

> > > PLEASE do not post religious emails to the list.

> > >

> > >

> > > --------------------------------------------------

> > >

> > >

> > > The opinions and information exchanged on this list should

> > > IN NO WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > >

> > > --------------------------------------------------

> > >

> > >

> > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > >

> > > _________________________________________________

> > > Post message: cfparentsegroups

> > > Subscribe: cfparents-subscribeegroups

> > > Unsubscribe: cfparents-unsubscribeegroups

> > > List owner: cfparents-owneregroups

> > > _________________________________________________

> > >

> > > WE HAVE A CHAT PAGE!!!

> > > /chat/cfparents

> > > _________________________________________________

> > >

> > >

> > >

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> > PLEASE do not post religious emails to the list.

> >

> > --------------------------------------------------

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

> >

> > --------------------------------------------------

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

>

> --

> -----------------------------------------------------

> Click here for Free Video!!

> http://www.gohip.com/free_video/

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

[Guest guest]

Just my 2 cents I think this is a very personal decision. Rearing any

child while working full time and going to school is a plateful. You're asking

yourself many questions that truly do not have one answer. Perhaps your next

child will not have cf; perhaps the child will; perhaps the cf will be severe,

perhaps it won't; perhaps the cf will become severe, perhaps it never will.

Your child may be born with a different disease or ailment; have an accident

throughout his/her life that disables him/her. Oh, how boring life would be if

we were able to answer all the " what ifs. " Although cf is a definite concern

when making this decision, being able to afford a second or a third or a fourth

child, rarely has anything to do with whether or not that child will have

cystic fibrosis. Finances are a concern of most parents. If stopping work is

your concern just now, maybe you could wait until you're on better footing

before making any life changing decisions. While you're waiting and saving for

that better footing, take time for yourself, process your thoughts, yes, 'your'

thoughts - not your family's. In 6 months, re-read this post that you have

written -- I'll guarantee you won't come close to asking the same questions.

Hugs,

Lou

camelot@...

h@... wrote:

> I have a son with CF who is 22 months old. My husband and I are

> seriously considering another child (like very soon).

>

> My son's CF is mild.(I guess). He only gets one PT per day, no

> breathing treatments unless he is sick (usually 1 time per year), and

> takes enzymes with meals. He is very healthy.

>

> We want another child, and do not care if the next child has CF or

> not. The problems is, I am afraid I will have another child with CF

> that may have a worse case of CF, and I will not be able to handle

> taking care of 2. I work full time and am a part-time student. I

> cannot afford to stay home from work full time if the need arose.

>

> For those of you who have more than one child with CF, are your

> children similar in the area of severeness of CF? Is it hard raising

> more than one child with CF?

>

> For those of you with more than one child, and only one has CF, did

> you have the same thoughts as me? How did you resolve them? What

> did your friends and family say?

>

> Please help

> Angie

>

> ***********************

> This is a secular list.

> ***********************

>

> PLEASE do not post religious emails to the list.

>

> --------------------------------------------------

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

[Guest guest]

my DD is 2 will be 3 in March. That is great about the trampoline. I

always wanted one when I was a kid. My dad thought it was more

important to have a vegetable garden instead of a yard. I did play in

the front yard though

Baxter wrote:

>

> Helena,

>

> 69 is a good number for everyone. How old is your child. Is he/she a

> carrier. My 6 year old son,Liam isnt a carrier, so when Eilish was born it

> was a total unknown. I also hate the life expectancy thing to. Our doctor

> is wonderful but never has any encouraging thing to say, he said its because

> he doesnt want to give false hope. Damn it I want hope! But in every other

> way he is good. Eilish (3year old wcf) had a rotten year last year with 4

> admissions but touch wood sounds good this year (so far). Father Christmas

> bought a huge trampoline and they had been on this nearly every day (only

> when its early monring or when its late afternoon) because its to hot

> otherwise. Thats done her the world of good.

>

> Take care and keep well ....

> Re: I want to have another child

> > >

> > > > , I can only tell you how I feel as a child grown-up without any

> > > > siblings. I always wondered if my parents never had more because I

> was

> > > > sick. Thank God they reassured me enough that now I know with all my

> > > > heart that is was beyond their control to have more kids or not.

> Having

> > > > more children with CF is a handful, maybe you should wait till you

> > > > finish school. I don't know. All I do know is that you should do

> what

> > > > you want for you not for your kids. Having more because you don't

> want

> > > > them to be lonely is silly. People make friends in life and are never

> > > > totally alone. Not having kids because you blame yourself for passing

> > > > on a disease you never even knew you carried in you is totaling wrong

> as

> > > > well. If you want more children but are worried about having another

> > > > one CF + then maybe look into adoption. But if kids is what you want

> > > > then look into your heart and your life with your hubby closely and

> see

> > > > what you both can handle now and into the future.

> > > > Just to give you a little lift I want to tell you I am 25 years old

> and

> > > > a mother of a 2 1/2 year old that is CF free. She is the light of my

> > > > life ( when behaving) I had her naturally( No insamintaion((sp)) )

> > > > I went to collage before her for four years and worked for two. I

> don't

> > > > work now but I made the choice to stay home and live a healthier life.

> > > > Rather then work and be sick more often. I believe that even though

> my

> > > > daughter will have to test her children in the future for CF that she

> > > > could look at me and my life and know that a person with CF can live a

> > > > full and active life.

> > > >

> > > > I don't want to stress you out but I do want to just let you know

> there

> > > > are people who do live somewhat happily with CF

> > > >

> > > > ***********************

> > > > This is a secular list.

> > > > ***********************

> > > >

> > > >

> > > > PLEASE do not post religious emails to the list.

> > > >

> > > >

> > > > --------------------------------------------------

> > > >

> > > >

> > > > The opinions and information exchanged on this list should

> > > > IN NO WAY

> > > > be construed as medical advice.

> > > >

> > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > > TREATMENTS.

> > > >

> > > > --------------------------------------------------

> > > >

> > > >

> > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > >

> > > > _________________________________________________

> > > > Post message: cfparentsegroups

> > > > Subscribe: cfparents-subscribeegroups

> > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > List owner: cfparents-owneregroups

> > > > _________________________________________________

> > > >

> > > > WE HAVE A CHAT PAGE!!!

> > > > /chat/cfparents

> > > > _________________________________________________

> > > >

> > > >

> > > >

> > >

> > > ***********************

> > > This is a secular list.

> > > ***********************

> > >

> > > PLEASE do not post religious emails to the list.

> > >

> > > --------------------------------------------------

> > >

> > > The opinions and information exchanged on this list should

> > > IN NO WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> > >

> > > --------------------------------------------------

> > >

> > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > >

> > > _________________________________________________

> > > Post message: cfparentsegroups

> > > Subscribe: cfparents-subscribeegroups

> > > Unsubscribe: cfparents-unsubscribeegroups

> > > List owner: cfparents-owneregroups

> > > _________________________________________________

> > >

> > > WE HAVE A CHAT PAGE!!!

> > > /chat/cfparents

> > > _________________________________________________

> >

> > --

> > -----------------------------------------------------

> > Click here for Free Video!!

> > http://www.gohip.com/free_video/

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > --------------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

> >

> >

> >

>

> ***********************

> This is a secular list.

> ***********************

>

> PLEASE do not post religious emails to the list.

>

> --------------------------------------------------

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

--

-----------------------------------------------------

Click here for Free Video!!

http://www.gohip.com/free_video/

[Guest guest]

You really must decide what is best for your family, and where you'd be

willing to give should the need arise. My son is 29 months, and he is a very

healthy cfer as well. In about 3 months we will have a daughter who we hope

doesn't have cf at all, but we will deal if she does.

Mandy

mom of Terr 8,Seth 2 cf

Madison not born, don't

know

>From: carfish@...

>Reply-To: cfparentsegroups

>To: cfparentsegroups

>Subject: I want to have another child

>Date: Sun, 07 Jan 2001 20:23:22 -0000

>

>I have a son with CF who is 22 months old. My husband and I are

>seriously considering another child (like very soon).

>

>My son's CF is mild.(I guess). He only gets one PT per day, no

>breathing treatments unless he is sick (usually 1 time per year), and

>takes enzymes with meals. He is very healthy.

>

>We want another child, and do not care if the next child has CF or

>not. The problems is, I am afraid I will have another child with CF

>that may have a worse case of CF, and I will not be able to handle

>taking care of 2. I work full time and am a part-time student. I

>cannot afford to stay home from work full time if the need arose.

>

>For those of you who have more than one child with CF, are your

>children similar in the area of severeness of CF? Is it hard raising

>more than one child with CF?

>

>For those of you with more than one child, and only one has CF, did

>you have the same thoughts as me? How did you resolve them? What

>did your friends and family say?

>

>Please help

>Angie

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Helena,

My cfer is my 3 year old (going on 33) daughter called Eilish. Our biggest

worry at present is her awful appetite or lack of. I hate meal times its

like a battlefield.

Re: I want to have another child

> > > >

> > > > > , I can only tell you how I feel as a child grown-up without

any

> > > > > siblings. I always wondered if my parents never had more because

I

> > was

> > > > > sick. Thank God they reassured me enough that now I know with all

my

> > > > > heart that is was beyond their control to have more kids or not.

> > Having

> > > > > more children with CF is a handful, maybe you should wait till you

> > > > > finish school. I don't know. All I do know is that you should do

> > what

> > > > > you want for you not for your kids. Having more because you don't

> > want

> > > > > them to be lonely is silly. People make friends in life and are

never

> > > > > totally alone. Not having kids because you blame yourself for

passing

> > > > > on a disease you never even knew you carried in you is totaling

wrong

> > as

> > > > > well. If you want more children but are worried about having

another

> > > > > one CF + then maybe look into adoption. But if kids is what you

want

> > > > > then look into your heart and your life with your hubby closely

and

> > see

> > > > > what you both can handle now and into the future.

> > > > > Just to give you a little lift I want to tell you I am 25 years

old

> > and

> > > > > a mother of a 2 1/2 year old that is CF free. She is the light of

my

> > > > > life ( when behaving) I had her naturally( No

insamintaion((sp)) )

> > > > > I went to collage before her for four years and worked for two. I

> > don't

> > > > > work now but I made the choice to stay home and live a healthier

life.

> > > > > Rather then work and be sick more often. I believe that even

though

> > my

> > > > > daughter will have to test her children in the future for CF that

she

> > > > > could look at me and my life and know that a person with CF can

live a

> > > > > full and active life.

> > > > >

> > > > > I don't want to stress you out but I do want to just let you know

> > there

> > > > > are people who do live somewhat happily with CF

> > > > >

> > > > > ***********************

> > > > > This is a secular list.

> > > > > ***********************

> > > > >

> > > > >

> > > > > PLEASE do not post religious emails to the list.

> > > > >

> > > > >

> > > > > --------------------------------------------------

> > > > >

> > > > >

> > > > > The opinions and information exchanged on this list should

> > > > > IN NO WAY

> > > > > be construed as medical advice.

> > > > >

> > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > > > TREATMENTS.

> > > > >

> > > > > --------------------------------------------------

> > > > >

> > > > >

> > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > > >

> > > > > _________________________________________________

> > > > > Post message: cfparentsegroups

> > > > > Subscribe: cfparents-subscribeegroups

> > > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > > List owner: cfparents-owneregroups

> > > > > _________________________________________________

> > > > >

> > > > > WE HAVE A CHAT PAGE!!!

> > > > > /chat/cfparents

> > > > > _________________________________________________

> > > > >

> > > > >

> > > > >

> > > >

> > > > ***********************

> > > > This is a secular list.

> > > > ***********************

> > > >

> > > > PLEASE do not post religious emails to the list.

> > > >

> > > > --------------------------------------------------

> > > >

> > > > The opinions and information exchanged on this list should

> > > > IN NO WAY

> > > > be construed as medical advice.

> > > >

> > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > > >

> > > > --------------------------------------------------

> > > >

> > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > >

> > > > _________________________________________________

> > > > Post message: cfparentsegroups

> > > > Subscribe: cfparents-subscribeegroups

> > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > List owner: cfparents-owneregroups

> > > > _________________________________________________

> > > >

> > > > WE HAVE A CHAT PAGE!!!

> > > > /chat/cfparents

> > > > _________________________________________________

> > >

> > > --

> > > -----------------------------------------------------

> > > Click here for Free Video!!

> > > http://www.gohip.com/free_video/

> > >

> > > ***********************

> > > This is a secular list.

> > > ***********************

> > >

> > >

> > > PLEASE do not post religious emails to the list.

> > >

> > >

> > > --------------------------------------------------

> > >

> > >

> > > The opinions and information exchanged on this list should

> > > IN NO WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > >

> > > --------------------------------------------------

> > >

> > >

> > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > >

> > > _________________________________________________

> > > Post message: cfparentsegroups

> > > Subscribe: cfparents-subscribeegroups

> > > Unsubscribe: cfparents-unsubscribeegroups

> > > List owner: cfparents-owneregroups

> > > _________________________________________________

> > >

> > > WE HAVE A CHAT PAGE!!!

> > > /chat/cfparents

> > > _________________________________________________

> > >

> > >

> > >

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> > PLEASE do not post religious emails to the list.

> >

> > --------------------------------------------------

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

> >

> > --------------------------------------------------

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

>

> --

> -----------------------------------------------------

> Click here for Free Video!!

> http://www.gohip.com/free_video/

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

[Guest guest]

Angie,

Deciding on whether to have another child naturally is, as some other

messages have noted is a family decision - something only you and your

partner can decide. However, since you have brought this into the public

domain and so many of the messages have said think about the financial and

time burden let me mention one more thing (and I know that this will not be

popular).

Remember -

1. CF is fatal.

2. People with CF can be very ill a lot of the time.

3. It can be avoided with specialised IVF treatment.

To say that you " don't care " whether you next child has Cf or not is

shocking. Go back and look at the archives of this list and read the emails

of those who have lost children, spouses, friends etc. Then when you have

read those check out the ones of those who have been so ill that friends

have had to send in the updates.

Don't get me wrong I love my son Harry very much - I just wish he didn't

have Cf and that I didn't have to cry every time I think about the

possibility of having to one day losing him.

If my oldest, Jack, had been born with Cf my wife and I would have had Harry

through IVF.

Barry

Father of Harry 12 weeks old wcf and Jack 5 wocf

I want to have another child

I have a son with CF who is 22 months old. My husband and I are

seriously considering another child (like very soon).

My son's CF is mild.(I guess). He only gets one PT per day, no

breathing treatments unless he is sick (usually 1 time per year), and

takes enzymes with meals. He is very healthy.

We want another child, and do not care if the next child has CF or

not. The problems is, I am afraid I will have another child with CF

that may have a worse case of CF, and I will not be able to handle

taking care of 2. I work full time and am a part-time student. I

cannot afford to stay home from work full time if the need arose.

For those of you who have more than one child with CF, are your

children similar in the area of severeness of CF? Is it hard raising

more than one child with CF?

For those of you with more than one child, and only one has CF, did

you have the same thoughts as me? How did you resolve them? What

did your friends and family say?

Please help

Angie

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

/chat/cfparents

_________________________________________________

[Guest guest]

I cannot imagine only having one child -- if fertility is not an issue. I

know I am setting up a flame war here, but since we're on the subject -- my

philosophy is since you CAN prevent a down-the-line pain and loss of TWO

children, and since CVS at 10 weeks is virtually painless, there is no other

option. I believe that the higher being gave us the technology to prevent

such sadness and loss, thus justifying my invoking it. Fortunately, our

daughter was ' " ONLY " a carrier. And I must admit it was a very difficult 10

days waiting for the results of the CVS. You must make the decision

yourself. But there was no question for me. Good luck. Kathleen

[Guest guest]

Angie,

Lets' be realistic...

your son of 22 months is in good shape... but frankly I doubt this " state of

grace " will last forever, unless you may know he has a very mild mutation. I

guess we parents of young Cf'ers tend to be fooled a little bit, because

they usually are quite healthy at this young age... but the illness takes

its course and almost invariably worsens...

Your son will most probably have to start one day IV treatments, he will be

sick more often, you will need more time for his treatments etc...

If you multiply this by 2 kids...your hands will be full, needless to tell

the worries...

So I guess, when considering having a second child who may have Cf as well,

you should have in mind that overall picture and not just focus on how your

son is doing at the moment.

, Mom to Leo 2wcf and 5 months pregnant of a carrier

-----Message d'origine-----

De : carfish@...

Envoyé : dimanche, 7. janvier 2001 14:23

À : cfparentsegroups

Objet : I want to have another child

I have a son with CF who is 22 months old. My husband and I are

seriously considering another child (like very soon).

My son's CF is mild.(I guess). He only gets one PT per day, no

breathing treatments unless he is sick (usually 1 time per year), and

takes enzymes with meals. He is very healthy.

We want another child, and do not care if the next child has CF or

not. The problems is, I am afraid I will have another child with CF

that may have a worse case of CF, and I will not be able to handle

taking care of 2. I work full time and am a part-time student. I

cannot afford to stay home from work full time if the need arose.

For those of you who have more than one child with CF, are your

children similar in the area of severeness of CF? Is it hard raising

more than one child with CF?

For those of you with more than one child, and only one has CF, did

you have the same thoughts as me? How did you resolve them? What

did your friends and family say?

Please help

Angie

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

/chat/cfparents

_________________________________________________

[Guest guest]

something I learned as a parent, my " normal " kid has a terrible appetite

also. Can't blame CF on this one but, I found the more I forced, argued

and yelled the less she ate. Rather I just leave the food out. she may

not eat when the rest of us are eating but boy does she like cold food(

YUCK) she usually eats 1/2 after us. I'm not sure why. All kids hate

being told to eat.

I do find she eats better at my parents house. She might not eat real

meals, a soup here, a thing of potatoes there and later a yogurt or

two. But not all at once. I'm beginning to think my parents might be

on to something here.

Baxter wrote:

>

> Helena,

>

> My cfer is my 3 year old (going on 33) daughter called Eilish. Our biggest

> worry at present is her awful appetite or lack of. I hate meal times its

> like a battlefield.

>

>

> Re: I want to have another child

> > > > >

> > > > > > , I can only tell you how I feel as a child grown-up without

> any

> > > > > > siblings. I always wondered if my parents never had more because

> I

> > > was

> > > > > > sick. Thank God they reassured me enough that now I know with all

> my

> > > > > > heart that is was beyond their control to have more kids or not.

> > > Having

> > > > > > more children with CF is a handful, maybe you should wait till you

> > > > > > finish school. I don't know. All I do know is that you should do

> > > what

> > > > > > you want for you not for your kids. Having more because you don't

> > > want

> > > > > > them to be lonely is silly. People make friends in life and are

> never

> > > > > > totally alone. Not having kids because you blame yourself for

> passing

> > > > > > on a disease you never even knew you carried in you is totaling

> wrong

> > > as

> > > > > > well. If you want more children but are worried about having

> another

> > > > > > one CF + then maybe look into adoption. But if kids is what you

> want

> > > > > > then look into your heart and your life with your hubby closely

> and

> > > see

> > > > > > what you both can handle now and into the future.

> > > > > > Just to give you a little lift I want to tell you I am 25 years

> old

> > > and

> > > > > > a mother of a 2 1/2 year old that is CF free. She is the light of

> my

> > > > > > life ( when behaving) I had her naturally( No

> insamintaion((sp)) )

> > > > > > I went to collage before her for four years and worked for two. I

> > > don't

> > > > > > work now but I made the choice to stay home and live a healthier

> life.

> > > > > > Rather then work and be sick more often. I believe that even

> though

> > > my

> > > > > > daughter will have to test her children in the future for CF that

> she

> > > > > > could look at me and my life and know that a person with CF can

> live a

> > > > > > full and active life.

> > > > > >

> > > > > > I don't want to stress you out but I do want to just let you know

> > > there

> > > > > > are people who do live somewhat happily with CF

> > > > > >

> > > > > > ***********************

> > > > > > This is a secular list.

> > > > > > ***********************

> > > > > >

> > > > > >

> > > > > > PLEASE do not post religious emails to the list.

> > > > > >

> > > > > >

> > > > > > --------------------------------------------------

> > > > > >

> > > > > >

> > > > > > The opinions and information exchanged on this list should

> > > > > > IN NO WAY

> > > > > > be construed as medical advice.

> > > > > >

> > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > > > > TREATMENTS.

> > > > > >

> > > > > > --------------------------------------------------

> > > > > >

> > > > > >

> > > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > > > >

> > > > > > _________________________________________________

> > > > > > Post message: cfparentsegroups

> > > > > > Subscribe: cfparents-subscribeegroups

> > > > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > > > List owner: cfparents-owneregroups

> > > > > > _________________________________________________

> > > > > >

> > > > > > WE HAVE A CHAT PAGE!!!

> > > > > > /chat/cfparents

> > > > > > _________________________________________________

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > > ***********************

> > > > > This is a secular list.

> > > > > ***********************

> > > > >

> > > > > PLEASE do not post religious emails to the list.

> > > > >

> > > > > --------------------------------------------------

> > > > >

> > > > > The opinions and information exchanged on this list should

> > > > > IN NO WAY

> > > > > be construed as medical advice.

> > > > >

> > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > > TREATMENTS.

> > > > >

> > > > > --------------------------------------------------

> > > > >

> > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > > >

> > > > > _________________________________________________

> > > > > Post message: cfparentsegroups

> > > > > Subscribe: cfparents-subscribeegroups

> > > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > > List owner: cfparents-owneregroups

> > > > > _________________________________________________

> > > > >

> > > > > WE HAVE A CHAT PAGE!!!

> > > > > /chat/cfparents

> > > > > _________________________________________________

> > > >

> > > > --

> > > > -----------------------------------------------------

> > > > Click here for Free Video!!

> > > > http://www.gohip.com/free_video/

> > > >

> > > > ***********************

> > > > This is a secular list.

> > > > ***********************

> > > >

> > > >

> > > > PLEASE do not post religious emails to the list.

> > > >

> > > >

> > > > --------------------------------------------------

> > > >

> > > >

> > > > The opinions and information exchanged on this list should

> > > > IN NO WAY

> > > > be construed as medical advice.

> > > >

> > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > > TREATMENTS.

> > > >

> > > > --------------------------------------------------

> > > >

> > > >

> > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > >

> > > > _________________________________________________

> > > > Post message: cfparentsegroups

> > > > Subscribe: cfparents-subscribeegroups

> > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > List owner: cfparents-owneregroups

> > > > _________________________________________________

> > > >

> > > > WE HAVE A CHAT PAGE!!!

> > > > /chat/cfparents

> > > > _________________________________________________

> > > >

> > > >

> > > >

> > >

> > > ***********************

> > > This is a secular list.

> > > ***********************

> > >

> > > PLEASE do not post religious emails to the list.

> > >

> > > --------------------------------------------------

> > >

> > > The opinions and information exchanged on this list should

> > > IN NO WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> > >

> > > --------------------------------------------------

> > >

> > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > >

> > > _________________________________________________

> > > Post message: cfparentsegroups

> > > Subscribe: cfparents-subscribeegroups

> > > Unsubscribe: cfparents-unsubscribeegroups

> > > List owner: cfparents-owneregroups

> > > _________________________________________________

> > >

> > > WE HAVE A CHAT PAGE!!!

> > > /chat/cfparents

> > > _________________________________________________

> >

> > --

> > -----------------------------------------------------

> > Click here for Free Video!!

> > http://www.gohip.com/free_video/

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > --------------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

> >

> >

> >

>

> ***********************

> This is a secular list.

> ***********************

>

> PLEASE do not post religious emails to the list.

>

> --------------------------------------------------

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

> --------------------------------------------------

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

--

-----------------------------------------------------

Click here for Free Video!!

http://www.gohip.com/free_video/

[Guest guest]

that was very well put.

when i had brandon he was born with a ruptured intestine , so he had

surgery and was in hosp for 2 mo. , me and his father had problems and

parted. me and my husband had talked about it and he was tested to see if he

was a carrier since we knew i was , becsause if he was we were not having

anymore children. i can not go thru it with more than brandon . it is to

hard .

i love him with all my heart and wouldn't trade him but i wouldn't have more

cf children.

look into other options.

chris

mom of 3

brandon 12 yrs

On Mon, 8 Jan 2001 09:16:34 -0000 , cfparentsegroups wrote:

> Angie,

>

> Deciding on whether to have another child naturally is, as some other

> messages have noted is a family decision - something only you and your

> partner can decide. However, since you have brought this into the public

> domain and so many of the messages have said think about the financial

and

> time burden let me mention one more thing (and I know that this will not

be

> popular).

>

> Remember -

> 1. CF is fatal.

> 2. People with CF can be very ill a lot of the time.

> 3. It can be avoided with specialised IVF treatment.

>

> To say that you " don't care " whether you next child has Cf or not is

> shocking. Go back and look at the archives of this list and read the

emails

> of those who have lost children, spouses, friends etc. Then when you have

> read those check out the ones of those who have been so ill that friends

> have had to send in the updates.

> Don't get me wrong I love my son Harry very much - I just wish he didn't

> have Cf and that I didn't have to cry every time I think about the

> possibility of having to one day losing him.

> If my oldest, Jack, had been born with Cf my wife and I would have had

Harry

> through IVF.

>

> Barry

> Father of Harry 12 weeks old wcf and Jack 5 wocf

> I want to have another child

>

>

> I have a son with CF who is 22 months old. My husband and I are

> seriously considering another child (like very soon).

>

> My son's CF is mild.(I guess). He only gets one PT per day, no

> breathing treatments unless he is sick (usually 1 time per year), and

> takes enzymes with meals. He is very healthy.

>

> We want another child, and do not care if the next child has CF or

> not. The problems is, I am afraid I will have another child with CF

> that may have a worse case of CF, and I will not be able to handle

> taking care of 2. I work full time and am a part-time student. I

> cannot afford to stay home from work full time if the need arose.

>

> For those of you who have more than one child with CF, are your

> children similar in the area of severeness of CF? Is it hard raising

> more than one child with CF?

>

> For those of you with more than one child, and only one has CF, did

> you have the same thoughts as me? How did you resolve them? What

> did your friends and family say?

>

> Please help

> Angie

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

_______________________________________________________

Send a cool gift with your E-Card

http://www.bluemountain.com/giftcenter/

[Guest guest]

Have another child, have more children.

CF is not everything. A single focus list like this is not a good

place to ask for balanced opinion.

How soon is real soon. next wek? 12 months?

Oh and practice making babies. practice practice practice....

Leon

[Guest guest]

Mandy

I had wondered how you were doing...... at least you aren't hot, as in a

summer pregnancy, lol.....

take care and hoping all goes great for you. Good luck with the rest of your

pregnancy. For some reason, I actually really like the last 5 months of

pregnancy.

Take care,

Jen

Mommy of 7, including ph 19 months with CF, Mallory 3 with CF, RAD, GERD,

OSA, port-a-cath; 4 with CF, asthma, port-a-cath; 6, Miranda 9,

Brittany 7 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon

to be adopted by us; ERica 4 yo foster daughter, soon to be adopted by us

also ; also aunt to 3 yo with CF

[Guest guest]

Helena,

My two are the same. Weve been at the swimming pool all day today and all

they have eaten has been a couple of fruit bars and a bag of chips. Now

they want hot chips and sausage rolls for tea, not the healthiest of days.

But I give them usually what they want otherwise I end up giving the dog and

cat the food.

Re: I want to have another child

> > > > > >

> > > > > > > , I can only tell you how I feel as a child grown-up

without

> > any

> > > > > > > siblings. I always wondered if my parents never had more

because

> > I

> > > > was

> > > > > > > sick. Thank God they reassured me enough that now I know with

all

> > my

> > > > > > > heart that is was beyond their control to have more kids or

not.

> > > > Having

> > > > > > > more children with CF is a handful, maybe you should wait till

you

> > > > > > > finish school. I don't know. All I do know is that you

should do

> > > > what

> > > > > > > you want for you not for your kids. Having more because you

don't

> > > > want

> > > > > > > them to be lonely is silly. People make friends in life and

are

> > never

> > > > > > > totally alone. Not having kids because you blame yourself for

> > passing

> > > > > > > on a disease you never even knew you carried in you is

totaling

> > wrong

> > > > as

> > > > > > > well. If you want more children but are worried about having

> > another

> > > > > > > one CF + then maybe look into adoption. But if kids is what

you

> > want

> > > > > > > then look into your heart and your life with your hubby

closely

> > and

> > > > see

> > > > > > > what you both can handle now and into the future.

> > > > > > > Just to give you a little lift I want to tell you I am 25

years

> > old

> > > > and

> > > > > > > a mother of a 2 1/2 year old that is CF free. She is the

light of

> > my

> > > > > > > life ( when behaving) I had her naturally( No

> > insamintaion((sp)) )

> > > > > > > I went to collage before her for four years and worked for

two. I

> > > > don't

> > > > > > > work now but I made the choice to stay home and live a

healthier

> > life.

> > > > > > > Rather then work and be sick more often. I believe that even

> > though

> > > > my

> > > > > > > daughter will have to test her children in the future for CF

that

> > she

> > > > > > > could look at me and my life and know that a person with CF

can

> > live a

> > > > > > > full and active life.

> > > > > > >

> > > > > > > I don't want to stress you out but I do want to just let you

know

> > > > there

> > > > > > > are people who do live somewhat happily with CF

> > > > > > >

> > > > > > > ***********************

> > > > > > > This is a secular list.

> > > > > > > ***********************

> > > > > > >

> > > > > > >

> > > > > > > PLEASE do not post religious emails to the list.

> > > > > > >

> > > > > > >

> > > > > > > --------------------------------------------------

> > > > > > >

> > > > > > >

> > > > > > > The opinions and information exchanged on this list should

> > > > > > > IN NO WAY

> > > > > > > be construed as medical advice.

> > > > > > >

> > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS

OR

> > > > > > TREATMENTS.

> > > > > > >

> > > > > > > --------------------------------------------------

> > > > > > >

> > > > > > >

> > > > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > > > > >

> > > > > > > _________________________________________________

> > > > > > > Post message: cfparentsegroups

> > > > > > > Subscribe: cfparents-subscribeegroups

> > > > > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > > > > List owner: cfparents-owneregroups

> > > > > > > _________________________________________________

> > > > > > >

> > > > > > > WE HAVE A CHAT PAGE!!!

> > > > > > > /chat/cfparents

> > > > > > > _________________________________________________

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > > > ***********************

> > > > > > This is a secular list.

> > > > > > ***********************

> > > > > >

> > > > > > PLEASE do not post religious emails to the list.

> > > > > >

> > > > > > --------------------------------------------------

> > > > > >

> > > > > > The opinions and information exchanged on this list should

> > > > > > IN NO WAY

> > > > > > be construed as medical advice.

> > > > > >

> > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > > > TREATMENTS.

> > > > > >

> > > > > > --------------------------------------------------

> > > > > >

> > > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > > > >

> > > > > > _________________________________________________

> > > > > > Post message: cfparentsegroups

> > > > > > Subscribe: cfparents-subscribeegroups

> > > > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > > > List owner: cfparents-owneregroups

> > > > > > _________________________________________________

> > > > > >

> > > > > > WE HAVE A CHAT PAGE!!!

> > > > > > /chat/cfparents

> > > > > > _________________________________________________

> > > > >

> > > > > --

> > > > > -----------------------------------------------------

> > > > > Click here for Free Video!!

> > > > > http://www.gohip.com/free_video/

> > > > >

> > > > > ***********************

> > > > > This is a secular list.

> > > > > ***********************

> > > > >

> > > > >

> > > > > PLEASE do not post religious emails to the list.

> > > > >

> > > > >

> > > > > --------------------------------------------------

> > > > >

> > > > >

> > > > > The opinions and information exchanged on this list should

> > > > > IN NO WAY

> > > > > be construed as medical advice.

> > > > >

> > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > > > TREATMENTS.

> > > > >

> > > > > --------------------------------------------------

> > > > >

> > > > >

> > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > > >

> > > > > _________________________________________________

> > > > > Post message: cfparentsegroups

> > > > > Subscribe: cfparents-subscribeegroups

> > > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > > List owner: cfparents-owneregroups

> > > > > _________________________________________________

> > > > >

> > > > > WE HAVE A CHAT PAGE!!!

> > > > > /chat/cfparents

> > > > > _________________________________________________

> > > > >

> > > > >

> > > > >

> > > >

> > > > ***********************

> > > > This is a secular list.

> > > > ***********************

> > > >

> > > > PLEASE do not post religious emails to the list.

> > > >

> > > > --------------------------------------------------

> > > >

> > > > The opinions and information exchanged on this list should

> > > > IN NO WAY

> > > > be construed as medical advice.

> > > >

> > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > > >

> > > > --------------------------------------------------

> > > >

> > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > > >

> > > > _________________________________________________

> > > > Post message: cfparentsegroups

> > > > Subscribe: cfparents-subscribeegroups

> > > > Unsubscribe: cfparents-unsubscribeegroups

> > > > List owner: cfparents-owneregroups

> > > > _________________________________________________

> > > >

> > > > WE HAVE A CHAT PAGE!!!

> > > > /chat/cfparents

> > > > _________________________________________________

> > >

> > > --

> > > -----------------------------------------------------

> > > Click here for Free Video!!

> > > http://www.gohip.com/free_video/

> > >

> > > ***********************

> > > This is a secular list.

> > > ***********************

> > >

> > >

> > > PLEASE do not post religious emails to the list.

> > >

> > >

> > > --------------------------------------------------

> > >

> > >

> > > The opinions and information exchanged on this list should

> > > IN NO WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > >

> > > --------------------------------------------------

> > >

> > >

> > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> > >

> > > _________________________________________________

> > > Post message: cfparentsegroups

> > > Subscribe: cfparents-subscribeegroups

> > > Unsubscribe: cfparents-unsubscribeegroups

> > > List owner: cfparents-owneregroups

> > > _________________________________________________

> > >

> > > WE HAVE A CHAT PAGE!!!

> > > /chat/cfparents

> > > _________________________________________________

> > >

> > >

> > >

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> > PLEASE do not post religious emails to the list.

> >

> > --------------------------------------------------

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

> >

> > --------------------------------------------------

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

>

> --

> -----------------------------------------------------

> Click here for Free Video!!

> http://www.gohip.com/free_video/

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

[Guest guest]

Barry,

We tried for number three through IVF and it cost alot of money, thousands

of dollars. But to us every cent was well worth it if it could give us a

healthy child or a carrier child. I would spend anything to fix Eilish as

youall would. But I guess alot of people cant afford it or dont believe in

it and therefore its not an option. Anyway number three isnt happening

anymore so our money went down the drain. But if we decided we'd like

another again then IVF is the way for us. But we've made our decision and

everyone needs to see how they could cope and I know I couldnt. I could

physically but mentally I'd be a write off.

Anyway is going in for the " brick treatment " as he calls is next

month, so then it wont be an issue.

I want to have another child

>

>

> I have a son with CF who is 22 months old. My husband and I are

> seriously considering another child (like very soon).

>

> My son's CF is mild.(I guess). He only gets one PT per day, no

> breathing treatments unless he is sick (usually 1 time per year), and

> takes enzymes with meals. He is very healthy.

>

> We want another child, and do not care if the next child has CF or

> not. The problems is, I am afraid I will have another child with CF

> that may have a worse case of CF, and I will not be able to handle

> taking care of 2. I work full time and am a part-time student. I

> cannot afford to stay home from work full time if the need arose.

>

> For those of you who have more than one child with CF, are your

> children similar in the area of severeness of CF? Is it hard raising

> more than one child with CF?

>

> For those of you with more than one child, and only one has CF, did

> you have the same thoughts as me? How did you resolve them? What

> did your friends and family say?

>

> Please help

> Angie

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

[Guest guest]

,

Good luck to , I have thought about the 'Brick treatment' as we don't

want to risk a 'little accident' I think I will be brave enough soon (you

know how cowardly we men are!) - it makes my eyes water just thinking about

it!

Barry

Re: I want to have another child

Barry,

We tried for number three through IVF and it cost alot of money, thousands

of dollars. But to us every cent was well worth it if it could give us a

healthy child or a carrier child. I would spend anything to fix Eilish as

youall would. But I guess alot of people cant afford it or dont believe in

it and therefore its not an option. Anyway number three isnt happening

anymore so our money went down the drain. But if we decided we'd like

another again then IVF is the way for us. But we've made our decision and

everyone needs to see how they could cope and I know I couldnt. I could

physically but mentally I'd be a write off.

Anyway is going in for the " brick treatment " as he calls is next

month, so then it wont be an issue.

I want to have another child

>

>

> I have a son with CF who is 22 months old. My husband and I are

> seriously considering another child (like very soon).

>

> My son's CF is mild.(I guess). He only gets one PT per day, no

> breathing treatments unless he is sick (usually 1 time per year), and

> takes enzymes with meals. He is very healthy.

>

> We want another child, and do not care if the next child has CF or

> not. The problems is, I am afraid I will have another child with CF

> that may have a worse case of CF, and I will not be able to handle

> taking care of 2. I work full time and am a part-time student. I

> cannot afford to stay home from work full time if the need arose.

>

> For those of you who have more than one child with CF, are your

> children similar in the area of severeness of CF? Is it hard raising

> more than one child with CF?

>

> For those of you with more than one child, and only one has CF, did

> you have the same thoughts as me? How did you resolve them? What

> did your friends and family say?

>

> Please help

> Angie

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

/chat/cfparents

_________________________________________________

[Guest guest]

Barry,

When he went to get the referral and the dr. suggested that he could do it

in the surgery nearly fainted. He said he needed to be totally

knocked out. He even got knocked out once to have two fillings! But when

it comes to do suppositories or boogie sucking or anything for Eilish

(except taking her to theatre) he's great. I'll let you know how he

survives.

I want to have another child

> >

> >

> > I have a son with CF who is 22 months old. My husband and I are

> > seriously considering another child (like very soon).

> >

> > My son's CF is mild.(I guess). He only gets one PT per day, no

> > breathing treatments unless he is sick (usually 1 time per year), and

> > takes enzymes with meals. He is very healthy.

> >

> > We want another child, and do not care if the next child has CF or

> > not. The problems is, I am afraid I will have another child with CF

> > that may have a worse case of CF, and I will not be able to handle

> > taking care of 2. I work full time and am a part-time student. I

> > cannot afford to stay home from work full time if the need arose.

> >

> > For those of you who have more than one child with CF, are your

> > children similar in the area of severeness of CF? Is it hard raising

> > more than one child with CF?

> >

> > For those of you with more than one child, and only one has CF, did

> > you have the same thoughts as me? How did you resolve them? What

> > did your friends and family say?

> >

> > Please help

> > Angie

> >

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > --------------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

> >

> >

> >

> > ***********************

> > This is a secular list.

> > ***********************

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > --------------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> > Our webpage is at http://www.eohio.net/malbright/cfparents.htm

> >

> > _________________________________________________

> > Post message: cfparentsegroups

> > Subscribe: cfparents-subscribeegroups

> > Unsubscribe: cfparents-unsubscribeegroups

> > List owner: cfparents-owneregroups

> > _________________________________________________

> >

> > WE HAVE A CHAT PAGE!!!

> > /chat/cfparents

> > _________________________________________________

> >

> >

> >

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>

> ***********************

> This is a secular list.

> ***********************

>

>

> PLEASE do not post religious emails to the list.

>

>

> --------------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

> Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

> _________________________________________________

> Post message: cfparentsegroups

> Subscribe: cfparents-subscribeegroups

> Unsubscribe: cfparents-unsubscribeegroups

> List owner: cfparents-owneregroups

> _________________________________________________

>

> WE HAVE A CHAT PAGE!!!

> /chat/cfparents

> _________________________________________________

>

>

>