Re: Spinal Fluid/fromConnie

[Guest guest]

In a message dated 11/29/2003 8:28:41 PM Eastern Standard Time,

gary.norton@... writes:

I was finally diagnosed with PLS in November ’02.

, I'm going to ask, even though I already know the answer. Was the

diagnoses made from the spinal tap? Connie

[Guest guest]

everything else is PLS,

so it seems.

...So it seems. We're all walking (?) around thinking we have this PLS

thing, and for all we know, or should I say for all the doctors know, it's some

other debilitating thing.

Connie

[Guest guest]

Connie,

I do not think PLS was diagnosed from the lumbar puncture, beings the

test was done several months before the announcement was made. My

understanding was they were looking for or eliminating other problems.

I was told they were looking for lyme disease and MS. Beings these

tests were negative and the fluid was clear, it could have changed their

thinking towards PLS. It seems tests are for the diagnoses of other

diseases and if not positive results or answers, everything else is PLS,

so it seems.

Norton

Re: Spinal Fluid/fromConnie

In a message dated 11/29/2003 8:28:41 PM Eastern Standard Time,

gary.norton@... writes:

I was finally diagnosed with PLS in November '02.

, I'm going to ask, even though I already know the answer. Was the

diagnoses made from the spinal tap? Connie

[Guest guest]

You are so right . There is a rare form of MS, PPMS, that will only

show up (but not all the time I was told) in a lumbar puncture. When

everything else rejects us, PLS/HSP will take us in ;-).

dale

Re: Spinal Fluid/fromConnie

>

> In a message dated 11/29/2003 8:28:41 PM Eastern Standard Time,

> gary.norton@... writes:

> I was finally diagnosed with PLS in November '02.

> , I'm going to ask, even though I already know the answer. Was the

> diagnoses made from the spinal tap? Connie

>

>

>

[Guest guest]

Connie,

I agree and sometimes I think they are trying to cover up the real

problems. My PLS, as they label it, came on real fast. Last Christmas,

my daughter was home from Durango, CO. and I had to take a business trip

to Denver in Feb. My daughter came to see me from Durango and she said,

" Dad, you are a lot worse now than at Christmas " . I really did not

think much about the remark because it was cold and snowing, a lot

different weather than where I live in Dallas. I agree with Dale, I

think the weather plays on this disease also. Thank Connie and have a

great evening.

Norton

Re: Spinal Fluid/fromConnie

everything else is PLS,

so it seems.

...So it seems. We're all walking (?) around thinking we have this

PLS

thing, and for all we know, or should I say for all the doctors know,

it's some

other debilitating thing.

Connie

[Guest guest]

Well if you get up here around again, let me know, I will get a quick

Connection set up here!

dale

Re: Spinal Fluid/fromConnie

>

> everything else is PLS,

> so it seems.

> ...So it seems. We're all walking (?) around thinking we have this

> PLS

> thing, and for all we know, or should I say for all the doctors know,

> it's some

> other debilitating thing.

> Connie

>

>

>

[Guest guest]

Dale, are you talking Denver or Durango?

Re: Spinal Fluid/fromConnie

Well if you get up here around again, let me know, I will get a quick

Connection set up here!

dale

Re: Spinal Fluid/fromConnie

>

> everything else is PLS,

> so it seems.

> ...So it seems. We're all walking (?) around thinking we have

this

> PLS

> thing, and for all we know, or should I say for all the doctors know,

> it's some

> other debilitating thing.

> Connie

>

>

>

[Guest guest]

Well most are on the east side of the mountains but we have one over by

Grand Junction...

Denver, bet I could get 6-8 people together pretty quick!

dale

Re: Spinal Fluid/fromConnie

> >

> > everything else is PLS,

> > so it seems.

> > ...So it seems. We're all walking (?) around thinking we have

> this

> > PLS

> > thing, and for all we know, or should I say for all the doctors know,

> > it's some

> > other debilitating thing.

> > Connie

> >

> >

> >

[Guest guest]

Dale, I was thinking that too! I must have e.s.p.! But that would be

fantastic to meet and anyone else that visits Denver, Colorado! It is

beautiful here and Durango, Co. is even more. Dale I could help with that

Connection! I make great reservations!

Re: Spinal Fluid/fromConnie

> >

> > everything else is PLS,

> > so it seems.

> > ...So it seems. We're all walking (?) around thinking we have this

> > PLS

> > thing, and for all we know, or should I say for all the doctors know,

> > it's some

> > other debilitating thing.

> > Connie

> >

> >

> >

[Guest guest]

Well if you get around here, let me know, especially if you would get to the

Denver area, I live in Col. Springs, my daughter goes to Col. State. We got

29 people at our official first meeting in July, so as you can see, we have

a ton of potential!

dale

Re: Spinal Fluid/fromConnie

>

> Well most are on the east side of the mountains but we have one over by

> Grand Junction...

>

> Denver, bet I could get 6-8 people together pretty quick!

>

> dale

>

> ur use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

[Guest guest]

Dale,

Colorado State in Fort or the Pueblo? My daughter-in-law

graduated from Pueblo and my son was stationed at before it

changed its name and they were married in the Springs.

Norton

Re: Spinal Fluid/fromConnie

Well if you get around here, let me know, especially if you would get to

the

Denver area, I live in Col. Springs, my daughter goes to Col. State. We

got

29 people at our official first meeting in July, so as you can see, we

have

a ton of potential!

dale

Re: Spinal Fluid/fromConnie

>

> Well most are on the east side of the mountains but we have one over

by

> Grand Junction...

>

> Denver, bet I could get 6-8 people together pretty quick!

>

> dale

>

> ur use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

[Guest guest]

Sorry, Ft. ... So maybe you will get out here even more!

dale

Re: Spinal Fluid/fromConnie

> >

> > Well most are on the east side of the mountains but we have one over

> by

> > Grand Junction...

> >

> > Denver, bet I could get 6-8 people together pretty quick!

> >

> > dale

> >

> > ur use of Yahoo! Groups is subject to the Yahoo! Terms of

> > <http://docs.yahoo.com/info/terms/> Service.

> >

> >

> >