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Re: Eilish

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Hi ,

salbutamol is a bronchodialator, a drug that widens the small airways and

hence reduces bronchoconstriction. It can cause side-effects like faster

heart-beat, shaky hands and such. Recently a new drug named Xopenex has been

developed without the side effects.

6% sodium chloride is pretty strong stuff. I have read somewhere, that high

concentrated sodium chloride can damage the cillies in the airways. What's

your doc's opinion about that?

I am baffled how much Eilish knows already about CF. Fiona only knows that

she has to take enzymes to prevent tummy aches.

Torsten Krafft

dad of Fiona almost 4wcf

e-mail: torstenkrafft@...

> I rand the hsp. last night about Eilish's cough. Her dr said to keep her

on the augmentin duo for 10 days and call him back if there is no

improvement. Also I had to drive in there to get some salbutamol liquid for

the neb. and to mix it with sodium chloride 6%, which is the first time

she's had this stuff. He said it will loosen up the mucus. She wasnt

impressed having to go back on the mask as she's been of it since Nov.

Almost as soon as she starts it she cough a few times. Would that be

because of a smell or is that the way its supposed to be? Gee I hope it

clears up, I dont think I could stand another admission so soon. This is

when I wish we lived within 30km radius of the hsp. then we could have home

IV's. Its a money issue with the hsp's. of course and they only have 1

physio who does the whole 30km radius. Oh yeah, the dr also said some kids

get agitated with salbutamol and if this is the case then stop that and just

give her the sodium chloride. Can anyone tell me what the difference or

benefit would be of giving both or just the one? Sorry for all the

questions, but this is totally unchartered stuff for us and I'd like to know

what it does.

> A little boy today asked me why Eilish takes tablets for food. So I told

Eilish that wanted to know. She said to him " I have cystic fibrosis

(she never says cf) and they help my poo's " . She then told him how that

when she is a big girl her lungs are going in the bin and then she's getting

new one's and then no more physio " . I thought that was cute. She's know's

about new lungs because we know so many who have had them and they told her

in nice terms. It funny the way kids are accepting of things when they have

had it all their lives and know no different.

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