Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 Hello, my name is Dawn. I wanted to tell you about us since we have joined your group recently. My husband's name is . We have 4 kids, 5, 4, Sammye 2, and Pattimae 2mo. The first three are a sibling group we adopted when we were told we couldn't have kids and wouldn't you know it Patti came along. Patti was diagnosed with CF in January and we still feel a little overwhelmed. We have all ready made our first hospital stay and we go back Feb. 12th for a check up. Do CF babies have to supplement with formula? We are on Pregestamil and breast milk. It seems like her reflux is worse on the formula than on breast milk. Is wheezing bad? She was doing that some when the initial diagnosis was made (we were there to investigate a cough). She wasn't doing it when we left the hospital and now she is doing it again. We have been very religious, and sometimes aggressive :-), about her treatments and meds since we have been home. We have also put out the cat got rid of the dog, and cleaned our home to the nines. Is there something we're not doing that we should? Quote Link to comment Share on other sites More sharing options...
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