Introduction

[Guest guest]

Rita B, Woohoo, glad you found us!! We're happy to have you as part of the

DS family and are happy that you went to see Dr. Macura! Good luck on your

pre-op appointments and keep us posted on the progress towards your surgery!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

P.<A HREF= " apapararo@... " >apapararo@...</A>

BMI: 50.1, 5'7 " , 320, age 40

Pacificare/Sutter Medical Group/Approved

Dr. Rabkin/Dr. Jossart BPD/DS

SURGERY DATE: 11/27/00!!!

[Guest guest]

Hi Rita-

I don't know anything about Dr. Macura but just so you know there are a

group of Dr.'s that work out of Mt. Sinai in NYC. You can look them up on

www.surgicallyslim.com. Just some more infor for you to look at...

Best of luck in your search!

Meagan

Revision from VBG to BPD/DS

Dr. Gagner consult 11/8

Introduction

Hi,

I'm new to the list, I've been reading for a few days and wanted to into

myself. My name is Rita and I live in the Poconos of PA. I've been

overweight since early teens, now 54. Right now I'm about 390 with a BMI of

61.1

I have been reseaching WLS for a few months since it's imperitive that I

lose this weight for my health. I don't want to give you my whole life

story, but this last year I've been dieting with only a little lost at the

beginning and the rest of the year, I've been fighting with the same 5

pounds. I've got hypertension, thromophlbitis with leg ulcers, I suffer

from depression and anxiety attacts.

I was originally on the fobi-pouch mail list, I didn't even know about the

DS procedure until I had my first dr. visit on 10/17. I had assumed that

RNY was the only other procedure used. When I had the intake interview the

nutritionist said that the dr. would probabaly want to do the DS because he

feels it is better for someone my size.

I saw Dr. Jerzey Macura in Staten Island, NY (the only ones out here is

either in Philadelphia about the same distance). Anyone have experience

with Dr. Macura?

I have Medicare as my primary with GHI secondary as I am retired because of

disability. According to the office Medicare will automaticly approve as I

have " co-morbidities " .

Right now I am going to a bunch of doctors for various clearances. As soon

as they are completed I got back to Macura for a second visit and then they

put in for insurance. I hope to have the operation in January. I might get

the approval in Dec. but don't want to be a new post-op during the holidays.

Guess I waited this long, so I can wait another month.

Hugs to all those waiting for approval.

Rita B.

[Guest guest]

Welcome Dana.

, mommy of 4, , 15 with a much older mind, Caleb, 6 and a

kindergarten pro, finally, , 4 1/2 and the next famous artist, and

, 15months with CF and reflux and a beautiful smile and bright blue eyes

[Guest guest]

Hello, I am mother of 10yr.daughter w/cf and 4yr. son wo/cf.

was diagnosed at 2 mths and just got her g-tube on Dec.1.

As I read many of your letters I really can relate.

Dana

[Guest guest]

Hello to all from Chicago. This is a long one...

Thanks in advance for reading on.

After a year of being overwhelmed by my daughter

Anabelle's diagnosis with cf, I am emerging back - now

capable of communication. Anabelle is 20 months and

doing well. Her presentation thus far has been

exclusively GI (slow weight gain, low appetite,

vomiting). Though she sometimes gets a gurgly cough

which we treat w/antibiotics. ON the GI front - we

would have weeks where she would vomit more than 25

times. Mid December, this changed. She just stopped.

I consider it a miracle. It feels like one to all of

us. It may be that we stopped giving her as much fat,

it may be the herbal teas we began giving, who knows.

I am just so very very grateful for this respite. We

sorely needed it.

We, my husband Pablo and I, have been focused on

Anabelle's nutrition since her diagnosis. At five

months she was exclusively breast fed and " failed to

thrive " . After beginning enzyme treatment, our cf

team was unimpressed by her weight gain and took her

off enzymes. Her fecal fat test revealed pacreatic

sufficiency, but I suspect it was wrong because it was

based solely on breastfeeds, where I had to weigh her

before and after feeds -- and I sort of fudged it at

night. So she went for several months on tube feeds

at the gunpoint of our cf team who concurrently,

desperately attempted to get me to stop nursing due to

that she needed more " superior nutrition " ...THis about

" sent me " , as I work in maternal and child health and

know the countless benefits of breastmilk. So, the NG

tubes were impressive at first although incredibly

stressful to execute. Soon though, ANabelle started

vomiting and lost all interest in day time nursing or

eating. Our cf team then, without addressing the

issues of her vomiting or bulky stools, insisted on a

G tube. It was then that we made the decision to stop

all tube feeds, let her try to learn hunger and see

where it would go. We switched cf clinics to an

entirely more supportive team who kept the focus on

our wishes in raising our daughter (breastfeeding) and

how they could support us to help her to gain. They

introduced us to some supplements which we have used

with some discretion, and I am happy to report that

little Anabelle is now at the 10th percentile, where

she was born at. We retested her pancreatic

sufficiency and determined she did infact need enzyme

support. She was tested for reflux but nothing

significant was ever found and we recently

discontinued her Zantac. Interestingly, we did this

at the same time her vomiting stopped. I wonder about

side effects though I have heard Zantac is pretty

benign in this respect.

About parenting her: It's been a scary year and a

bit. THere were days and nights I thought I couldn't

get through. Mostly because no one could explain her

symptoms. I also have been scared of the germs on her

own brother - and concerned about where I can take

her, how much do I have to protect her from it all.

ANd then there has been the adjusting to doing her

pts, and remembering the 8 meds she sometimes takes

morning, noon and night. I have also been on a quest

for complementary and alternative therapies. This too

has been tiring. But it is who I am and how I think

and so I move forward.

In all, what I know is that Anabelle is an incredibly

strong spirit who I believe has chosen this life.

When I am not focusing on fear, I find her an absolute

treasure and I cherish every moment with her. Through

her, we as a family have learned to pray together, to

be thankful for our food and our digestion (and

general health), and are focusing on the love we have

for oneanother. I NEVER wanted this challenge in my

life. I have stretched in ways I couldn't have

imagined. And for the first time in a year and three

months I am gleefully catching my breath. I have had

many times where I have allowed myself the challenge

of processing the deep pain of having a child whose

many challenges throughout her life, I think I can

predict. I have spent days in self pity and

resentment. But throughout, I have been aware that I

have been given a challenge - to be the best me, the

most patient, loving and faithful person/mother I can

be. I chose not to dwell in fear. I don't chose to

picture the life challenges that my son Lucas (4.5

years) will have throughout his life - so similarly, I

do not chose to be in those moments with Anabelle. I

so appreciate that we all struggle - and that we all

can offer oneanother support in our shared experiences

and fears. I am happy to have finally taken the time

to get on this list - after feeling daunted by the

task of funneling through the Cystic-L mailings. I

pray for all of you and your families, and pray that

we can all do our best to live in the solution. I

know being on this list will be part of that for me.

I am grateful to you all.

- -Mom of Lucas (4.5) and Anabelle (20 mo

w/cf)

__________________________________________________

Get personalized email addresses from Yahoo! Mail - only $35

a year! http://personal.mail.yahoo.com/

[Guest guest]

praise YOU AND PRAYERS FOR YOUR CONTINUED PEACE BE WITH YOU..yOU SOUND LIKE

A WONDERFUL MOMMY AND YOUR CHILDREN WILL BE SOOOOO HAPPY FOR IT TOO. lOVE &

HUGS,

GRANDMOMbeV(I HAVE A 16+ YR.OLD GRANDDAUGHTER--ERIN

Re: introduction

Hello to all from Chicago. This is a long one...

Thanks in advance for reading on.

After a year of being overwhelmed by my daughter

Anabelle's diagnosis with cf, I am emerging back - now

capable of communication. Anabelle is 20 months and

doing well. Her presentation thus far has been

exclusively GI (slow weight gain, low appetite,

vomiting). Though she sometimes gets a gurgly cough

which we treat w/antibiotics. ON the GI front - we

would have weeks where she would vomit more than 25

times. Mid December, this changed. She just stopped.

I consider it a miracle. It feels like one to all of

us. It may be that we stopped giving her as much fat,

it may be the herbal teas we began giving, who knows.

I am just so very very grateful for this respite. We

sorely needed it.

We, my husband Pablo and I, have been focused on

Anabelle's nutrition since her diagnosis. At five

months she was exclusively breast fed and " failed to

thrive " . After beginning enzyme treatment, our cf

team was unimpressed by her weight gain and took her

off enzymes. Her fecal fat test revealed pacreatic

sufficiency, but I suspect it was wrong because it was

based solely on breastfeeds, where I had to weigh her

before and after feeds -- and I sort of fudged it at

night. So she went for several months on tube feeds

at the gunpoint of our cf team who concurrently,

desperately attempted to get me to stop nursing due to

that she needed more " superior nutrition " ...THis about

" sent me " , as I work in maternal and child health and

know the countless benefits of breastmilk. So, the NG

tubes were impressive at first although incredibly

stressful to execute. Soon though, ANabelle started

vomiting and lost all interest in day time nursing or

eating. Our cf team then, without addressing the

issues of her vomiting or bulky stools, insisted on a

G tube. It was then that we made the decision to stop

all tube feeds, let her try to learn hunger and see

where it would go. We switched cf clinics to an

entirely more supportive team who kept the focus on

our wishes in raising our daughter (breastfeeding) and

how they could support us to help her to gain. They

introduced us to some supplements which we have used

with some discretion, and I am happy to report that

little Anabelle is now at the 10th percentile, where

she was born at. We retested her pancreatic

sufficiency and determined she did infact need enzyme

support. She was tested for reflux but nothing

significant was ever found and we recently

discontinued her Zantac. Interestingly, we did this

at the same time her vomiting stopped. I wonder about

side effects though I have heard Zantac is pretty

benign in this respect.

About parenting her: It's been a scary year and a

bit. THere were days and nights I thought I couldn't

get through. Mostly because no one could explain her

symptoms. I also have been scared of the germs on her

own brother - and concerned about where I can take

her, how much do I have to protect her from it all.

ANd then there has been the adjusting to doing her

pts, and remembering the 8 meds she sometimes takes

morning, noon and night. I have also been on a quest

for complementary and alternative therapies. This too

has been tiring. But it is who I am and how I think

and so I move forward.

In all, what I know is that Anabelle is an incredibly

strong spirit who I believe has chosen this life.

When I am not focusing on fear, I find her an absolute

treasure and I cherish every moment with her. Through

her, we as a family have learned to pray together, to

be thankful for our food and our digestion (and

general health), and are focusing on the love we have

for oneanother. I NEVER wanted this challenge in my

life. I have stretched in ways I couldn't have

imagined. And for the first time in a year and three

months I am gleefully catching my breath. I have had

many times where I have allowed myself the challenge

of processing the deep pain of having a child whose

many challenges throughout her life, I think I can

predict. I have spent days in self pity and

resentment. But throughout, I have been aware that I

have been given a challenge - to be the best me, the

most patient, loving and faithful person/mother I can

be. I chose not to dwell in fear. I don't chose to

picture the life challenges that my son Lucas (4.5

years) will have throughout his life - so similarly, I

do not chose to be in those moments with Anabelle. I

so appreciate that we all struggle - and that we all

can offer oneanother support in our shared experiences

and fears. I am happy to have finally taken the time

to get on this list - after feeling daunted by the

task of funneling through the Cystic-L mailings. I

pray for all of you and your families, and pray that

we can all do our best to live in the solution. I

know being on this list will be part of that for me.

I am grateful to you all.

- -Mom of Lucas (4.5) and Anabelle (20 mo

w/cf)

__________________________________________________

Get personalized email addresses from Yahoo! Mail - only $35

a year! http://personal.mail.yahoo.com/

***********************

This is a secular list.

***********************

PLEASE do not post religious emails to the list.

--------------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Our webpage is at http://www.eohio.net/malbright/cfparents.htm

_________________________________________________

Post message: cfparentsegroups

Subscribe: cfparents-subscribeegroups

Unsubscribe: cfparents-unsubscribeegroups

List owner: cfparents-owneregroups

_________________________________________________

WE HAVE A CHAT PAGE!!!

/chat/cfparents

_________________________________________________

[Guest guest]

Hi ,

welcome to the list! I exchanged a few mails with Pablo last year and

wondered what might have happened to his family.

Re the vomiting we have had a similar experience, although not as bad. Fiona

vomitted a few times a week, but this stopped when she turned two. I think

it had something to do with her ability to control the gas in her stomach.

She burps majorly during and after the meal.

We also have stopped to add fat to her meals and she drinks half a pint of

herbal tea (anise, fennel, caraway and coriander) every day.

Torsten Krafft

dad of Fiona almost 4wcf

e-mail: torstenkrafft@...

[Guest guest]

<< We retested her pancreatic

sufficiency and determined she did infact need enzyme

support. She was tested for reflux but nothing

significant was ever found and we recently

discontinued her Zantac. Interestingly, we did this

at the same time her vomiting stopped. >>

Hi , and welcome to the list....

Did you start enzymes around the same time she stopped vomiting? I ask this

because Mallory's multiple puking episodes magically stopped the very day she

started enzymes...everyone seemed so surprised that the enzymes would have

that effect (including us...), but it did seem to make a difference. To this

day, if she does not get enough enzymes, she throws up. I have no

explanation, but it seems to be a reality for her. I do know that before she

was on enzymes, she had a upper GI that showed extremely delayed gastric

emptying, so maybe all that undigested food was just sitting there waiting to

come up.. She would often throw up stuff she had eaten the day before or

even sometimes 2 days before. Odd....

anyway, just thought I would share that, b/c I think it is a rarer occurance

than the malabsorption stuff....

Jen

Mommy of 7, including ph 19 months with CF, Mallory 3 with CF, RAD, GERD,

OSA, port-a-cath; 4 with CF, port-a-cath; 6, Miranda 9,

Brittany 7 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon

to be adopted by us; ERica 4 yo foster daughter, soon to be adopted by us

also ; also aunt to 3 yo with CF

[Guest guest]

We had the same experience with Scout. She had been cough/puking before her

diagnosis and the enzymes stopped it completely.

Lori

mom to Scout 2 wCF

Re: Re: introduction

>

>

>

> << We retested her pancreatic

> sufficiency and determined she did infact need enzyme

> support. She was tested for reflux but nothing

> significant was ever found and we recently

> discontinued her Zantac. Interestingly, we did this

> at the same time her vomiting stopped. >>

>

> Hi , and welcome to the list....

> Did you start enzymes around the same time she stopped vomiting? I ask

this

> because Mallory's multiple puking episodes magically stopped the very day

she

> started enzymes...

[Guest guest]

> Did you start enzymes around the same time she

stopped vomiting? I ask

this

> because Mallory's multiple puking episodes magically

stopped the very day

she

> started enzymes...

--- Lori Devoti wrote:

> We had the same experience with Scout. She had been

> cough/puking before her

> diagnosis and the enzymes stopped it completely.

Actually, our experience doesn't seem consistent. The

enzymes did not stop the vomiting - though when we cut

them back (or got the dosage right) and stopped buling

out her food w/as much fat, she stopped the vomiting.

- (mom of Anabelle 20 mo w/cf, Lucas 4.5 no cf)

__________________________________________________

[Guest guest]

Hi Miranda,

Welcome to the list. This is probably my favorite

of the cf lists I'm on. It's very active and the

members here have great compassion and humor.

Hugs,

--- miranda dobbs wrote:

> Hi, I just recently found out about this list and

> wanted to introduce myself

> to everyone. I'm Miranda and have 2 great kids both

> wcf. will turn 6

> this month and our baby Isabelle is just over 6

> months. I look forward to

> getting to know each of you better.

>

> Miranda

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com

>

>

__________________________________________________

[Guest guest]

Thank all of you for the great welcome. My family and I live in

Louisville, Kentucky. They see Dr.'s Morton and Eid. Both are really great.

My son was diagnosed when he was about 10 months old. He'd had many

colds and started having failure to thrive. He lost 2 pounds in a 2 week

period. Finally, he couldn't see his regular pediatrician one day and the

substitue suggested a sweat test. Someone ended dropping that one and by the

time they did it again he was in the hospital. After 2 weeks we noticed a

huge change in him, for the better. Since then he's been hospitalized about

once a year. The only real complications he's had were prolapsed rectum when

he was 3. That was really scarry. And this past January he had sinus surgery

for chronic sinusitis.

When my 6 month old, Isabelle, was born she had meconium aspiration

which resulted in a collapsed lung. I tld the NICU staff her brother had CF

and they immediately did a blood test. 3 weeks later her pediatrician called

wanting to see us in her office and right away we knew the news wasn't good.

She's on enzymes and breathing treatments and has had a few colds here and

there. But so far everything is pretty good with her.

I look forward to getting to know each of you.

Miranda

>

>Hi there, I am glad you are here with us. We all really need this

>CF-Internet family &

>I know you will both get info/help/support and GI VE it too. All folks need

>to have others that truly understand how your doing.......What you are

>going

>thru....They have " been there done that " ,so this is THE PLACE to be!!

>:)

>enjoy, tell us all about yourselves. What clinic/doc do you see? what state

>do you live in? , etc...

>

>LOVE & HUGS,

>grandmomBEv

>

> introduction

>

>

>Hi, I just recently found out about this list and wanted to introduce

>myself

>to everyone. I'm Miranda and have 2 great kids both wcf. will turn 6

>this month and our baby Isabelle is just over 6 months. I look forward to

>getting to know each of you better.

>

>Miranda

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>***********************

>This is a secular list.

>***********************

>

>

>PLEASE do not post religious emails to the list.

>

>

>--------------------------------------------------

>

>

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

>TREATMENTS.

>

>--------------------------------------------------

>

>

>Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

>_________________________________________________

>Post message: cfparentsegroups

>Subscribe: cfparents-subscribeegroups

>Unsubscribe: cfparents-unsubscribeegroups

>List owner: cfparents-owneregroups

>_________________________________________________

>

>WE HAVE A CHAT PAGE!!!

>/chat/cfparents

>_________________________________________________

>

>

>

>

[Guest guest]

Hi, Miranda!

I also live in Louisville and my daughter is a patient of Dr.'s Eid

and Morton.

This list is absolutely wonderful - so glad you found it!

Feel free to write to me anytime, if you like.

Take care!

, Momma to (2.5 yowcf my blond, blue-eyed beauty)

" miranda dobbs " on 03/06/2001 11:06:36 AM

Please respond to cfparents

To: cfparents

cc:

Subject: RE: introduction

Thank all of you for the great welcome. My family and I live in

Louisville, Kentucky. They see Dr.'s Morton and Eid. Both are really great.

My son was diagnosed when he was about 10 months old. He'd had many

colds and started having failure to thrive. He lost 2 pounds in a 2 week

period. Finally, he couldn't see his regular pediatrician one day and the

substitue suggested a sweat test. Someone ended dropping that one and by

the

time they did it again he was in the hospital. After 2 weeks we noticed a

huge change in him, for the better. Since then he's been hospitalized about

once a year. The only real complications he's had were prolapsed rectum

when

he was 3. That was really scarry. And this past January he had sinus

surgery

for chronic sinusitis.

When my 6 month old, Isabelle, was born she had meconium aspiration

which resulted in a collapsed lung. I tld the NICU staff her brother had CF

and they immediately did a blood test. 3 weeks later her pediatrician

called

wanting to see us in her office and right away we knew the news wasn't

good.

She's on enzymes and breathing treatments and has had a few colds here and

there. But so far everything is pretty good with her.

I look forward to getting to know each of you.

Miranda

>

>Hi there, I am glad you are here with us. We all really need this

>CF-Internet family &

>I know you will both get info/help/support and GI VE it too. All folks

need

>to have others that truly understand how your doing.......What you are

>going

>thru....They have " been there done that " ,so this is THE PLACE to be!!

>:)

>enjoy, tell us all about yourselves. What clinic/doc do you see? what

state

>do you live in? , etc...

>

>LOVE & HUGS,

>grandmomBEv

>

> introduction

>

>

>Hi, I just recently found out about this list and wanted to introduce

>myself

>to everyone. I'm Miranda and have 2 great kids both wcf. will turn 6

>this month and our baby Isabelle is just over 6 months. I look forward to

>getting to know each of you better.

>

>Miranda

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>***********************

>This is a secular list.

>***********************

>

>

>PLEASE do not post religious emails to the list.

>

>

>--------------------------------------------------

>

>

>The opinions and information exchanged on this list should

>IN NO WAY

>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

>TREATMENTS.

>

>--------------------------------------------------

>

>

>Our webpage is at http://www.eohio.net/malbright/cfparents.htm

>

>_________________________________________________

>Post message: cfparentsegroups

>Subscribe: cfparents-subscribeegroups

>Unsubscribe: cfparents-unsubscribeegroups

>List owner: cfparents-owneregroups

>_________________________________________________

>

>WE HAVE A CHAT PAGE!!!

>/chat/cfparents

>_________________________________________________

>

>

>

>

[Guest guest]

Hi Miranda - I have learned so much from everyone and continue to learn

each day. The most important thing to me is getting through the day...... I

take it one day at a time or one pie at time.. I am dieting.......

Take Care...

Rosemary in New York with 3 kids with CF ages 10, 8 and 4! If I had a dog it

would probably have CF! I have the luck of the Irish!

[Guest guest]

This intro was blank... was it there to make us think.... or accidently

submitted.....

Go figure.....

Famous last words........ BREATH DAMMIT!!!!!!!!

I must say it at least 500 times a day!!!!!!!!!!!

Rosemary in New York with 3 kids with CF ages 10, 8 and 4! If I had a dog it

would probably have CF! I have the luck of the Irish!

[Guest guest]

Welcome Miranda,

This is a great place to be, hope all is well with your girls, take care.

, mommy of 4, , 16 and begging to drive the family auto, (I

dont need more grey hair here) Caleb, 6 wishing to be 3 again, and the

worrier of the family,

, 5 and the next famous artist, and , 19 months with CF and reflux

and a beautiful smile and bright blue eyes, whose greatest passions are

dancing and Elmo.

[Guest guest]

WELCOME FREDA,

You sound like you are a very busy mom. It is nice you are on the list also.

I am a grandmom to a 16+ yr old ERIN. Granddaughter. She is doing well...

Have a great week. You will enjoy all the folks

LOVE & HUGS,

grandmomBEV

Re: introduction

Hi, my name is Freda I am a mother of 2.

daughter 16 wo/CF son 12 w/CF.

I'm looking forward to hereing from you all.

thank you

HUGS AND PRAYERS

Freda freda@...

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Hi Jill. I am Patty , i have 2 daughters ages 15 and 19 with cf. welocome to

the group. Patty

[Guest guest]

Welcome Patty! I am sure you will find much information on these lists. It

is also a great group support. I have 4 children, only one with CF.

, mom of Shantell 19yr wcf

Introduction

Hi!My name is Patty.I have just been made aware of this list and am looking

forward to hearing what people such as yourselves have to say and experience

on a day to day basis with CF.I live in Michigan, USA with my husband,

Corey,

son Austin,2, daughter, Selena,1, and my special little guy with

CF:Tyler,6.Tyler was diagnosed at age 3 after a bout with jaundice, and

common symptoms of CF before, during, and after that.He is seen at our

nearest Children's Hospital.If I am correct he has Delta 508(twin copies).We

try to learn, together, the best ways for our family to cope with this

disease from every aspect, and welcome any advice or helpful tips on how to

make our lives more enjoyable and " normal " .I check my e-mail regularly and

can be reached at:PLH3395@..., and also:PKBLAZER@...

for

the opportunity to become a member of this group!Patty and family.

[Guest guest]

Hi Patty,

Welcome! I have two children 7 WCF, and Mia 11 WOCF I look forward to

talking with you more.

And I hope you enjoy this list.

[Guest guest]

Patty

Welcome to the list!

Jen

Mommy of 7, including ph 21 months with CF, Mallory 3 with CF, RAD, GERD,

OSA, port-a-cath; 5 with CF, port-a-cath; 6, Miranda 9, Brittany

8 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon to be

adopted by us; ERica 4 yo foster daughter, soon to be adopted by us also ;

also aunt to 4 yo with CF

[Guest guest]

Hi Patty

Welcome.

How is your son doing?

Take care,

Stein....mom to CF (10 1/2 mo) & Tori wo/CF ( 3 1/2 yr)

Introduction

Hi!My name is Patty.I have just been made aware of this list and am looking

forward to hearing what people such as yourselves have to say and experience

on a day to day basis with CF.I live in Michigan, USA with my husband, Corey,

son Austin,2, daughter, Selena,1, and my special little guy with

CF:Tyler,6.Tyler was diagnosed at age 3 after a bout with jaundice, and

common symptoms of CF before, during, and after that.He is seen at our

nearest Children's Hospital.If I am correct he has Delta 508(twin copies).We

try to learn, together, the best ways for our family to cope with this

disease from every aspect, and welcome any advice or helpful tips on how to

make our lives more enjoyable and " normal " .I check my e-mail regularly and

can be reached at:PLH3395@..., and also:PKBLAZER@... for

the opportunity to become a member of this group!Patty and family.