Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 There has been a lot of stress...my husbands migranes got so out of control he was hospitalized for a week; I quit my career of 11 years and still struggle with the isolation (tried antidepressants for a few months but did not feel that was the way to handle things); we have another child with a neurological speech disorder (takes a lot of time/work/effort); our healthy 7 yr old seems to take the brunt of frustration (unfortunately it works that way even though it shouldn't). I am 1 1/2 years into this disease and thought I'd have adjusted to it more by now. Most posts I read cf'ers and there families seem very positive--I'm hoping to gain that optimism and return to some sort of stability in this thing called life. Just thought I'd offer my 2 cents. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 , Apart from the bags under the eyes, the grey hairs.... With , we have been lucky as so far she has shown no classic cf symptoms (she's 15 mo)...the only time we really stress is on her monthly doc visits and when I have to phone for her results... Our marriage took some strain at the beginning when she was diagnosed (she was 2 mo prem too) so it wasn't an easy time for any of us...but so far we have all enjoyed perfect health (touch wood!) Good luck! Love Karolina (Mum to 15 mo w/cf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Relating to this question, I can tell you that I often think I have made a mistake in dispensing meds to my child....I get continuously concerned about double-dosing. My son takes whatever is in the medicine cup with his meals and never questions it. He is 13. While he manages his own nebs and inhalations, I dispense the vitamins and ever-changing oral drugs he takes daily. I always question my ability to screw up and hope I don't! This is what constantly dwells in the back of my mind. On Thu, 07 Dec 2000 22:19:41 +1030 Baxter writes: > I was just wondering have any of the parents own health suffered due > to the stress of having a cf child and the worry? > > julie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 , If you are including Mental Health - then yes. My OB/GYN prescribed a mild anti-depressant for me about a week after was diagnosed. I weaned myself off about 2 months later. Could deal with being stressed better than dealing with, 'I just don't care about anything anymore' - that's what they did for me. Didn't like that and didn't think it was fair to myself or my family. , Momma to (2yowcf) Baxter on 12/07/2000 06:49:41 AM Please respond to cfparentsegroups To: cfparentsegroups cc: (bcc: -Holmes/Louisville/Humana) Subject: question I was just wondering have any of the parents own health suffered due to the stress of having a cf child and the worry? julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 YES, I am on prozac now for a 6 months for stress and nervous. has it helped i really dont know. My oldest daughter is 19 with cf and she is in her 2nd year at college and she seems to hate me right now because i am the one who is making her feel different from the other college kids by reminded her about her treatments. it feels like we are going through a new a different stage now and the youngest one who is 15 has had a rough couple of months with her cf. patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 I think that cf, along with any other serious illness, can definitely put a strain on health and family. I think I run on adrenaline half the time. I haven;t been sick physically, but mentally for sure. My oldest really suffers from my moods swings and it's really hard to catch myself until it's too late and the damage is done. I also think it puts a strain on your relationship with your spouse. The stress of it has really affected us, but we just don't talk. We rarely yell at eachother or argue, but you can cut the tension with a dull knife. So, yes, I think this can make you sick in more ways than one. mom to 17mo wcf and Brenna 5yrs wocf >From: PamH622@... >Reply-To: cfparentsegroups >To: cfparentsegroups >Subject: Re: question >Date: Thu, 7 Dec 2000 19:01:49 EST > >YES, I am on prozac now for a 6 months for stress and nervous. has it >helped >i really dont know. My oldest daughter is 19 with cf and she is in her 2nd >year at college and she seems to hate me right now because i am the one who >is making her feel different from the other college kids by reminded her >about her treatments. it feels like we are going through a new a different >stage now and the youngest one who is 15 has had a rough couple of months >with her cf. patty ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 That's how it was with Hans and me, too; maybe that's because my brothers are so cheerful, and my sister, whose birthday it is today, is a psychological menace--there is just no accounting for some things. Of our three kids, two, including the cf one are cheerful, and one is a great wit, but can be really mean, which means that the heredity argument has real appeal! n Rojas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 I don't know if it hasn't affected me or if I am just pretending not to be affected... I have always had a carefree personality, life has always been very easy to me and CF won't bring me down... this is what I say, while my son is only 2... Let's wait and see..til his health flares up....But I am strong, my husband is strong and Leo's illness has not affected our relationship at all. bye , Mom to Leo 2wcf and pregnant 4 months with a male cf carrier...named.. ?? -----Message d'origine----- De : Keslar Envoyé : jeudi, 7. décembre 2000 19:12 À : cfparentsegroups Objet : Re: question I think that cf, along with any other serious illness, can definitely put a strain on health and family. I think I run on adrenaline half the time. I haven;t been sick physically, but mentally for sure. My oldest really suffers from my moods swings and it's really hard to catch myself until it's too late and the damage is done. I also think it puts a strain on your relationship with your spouse. The stress of it has really affected us, but we just don't talk. We rarely yell at eachother or argue, but you can cut the tension with a dull knife. So, yes, I think this can make you sick in more ways than one. mom to 17mo wcf and Brenna 5yrs wocf >From: PamH622@... >Reply-To: cfparentsegroups >To: cfparentsegroups >Subject: Re: question >Date: Thu, 7 Dec 2000 19:01:49 EST > >YES, I am on prozac now for a 6 months for stress and nervous. has it >helped >i really dont know. My oldest daughter is 19 with cf and she is in her 2nd >year at college and she seems to hate me right now because i am the one who >is making her feel different from the other college kids by reminded her >about her treatments. it feels like we are going through a new a different >stage now and the youngest one who is 15 has had a rough couple of months >with her cf. patty ____________________________________________________________________________ _________ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 I try not to let it bother me, but sometimes you can't help it. I do believe has cf to test mine and my husband's strength and love for eachother and our family. I believe that it will make us stronger and bring us closer. Time will only tell, but eventually. I also believe that we all have been given our cfers because we are the strongest and most capable to deal with everything it throws at us. > >Reply-To: cfparentsegroups >To: <cfparentsegroups> >Subject: RE: question >Date: Thu, 7 Dec 2000 19:56:29 -0600 > >I don't know if it hasn't affected me or if I am just pretending not to be >affected... >I have always had a carefree personality, life has always been very easy to >me >and CF won't bring me down... this is what I say, while my son is only 2... >Let's wait and see..til his health flares up....But I am strong, my husband >is strong and Leo's illness has not affected our relationship at all. > >bye > >, Mom to Leo 2wcf and pregnant 4 months with a male cf >carrier...named.. ?? > >-----Message d'origine----- >De : Keslar >Envoyé : jeudi, 7. décembre 2000 19:12 >À : cfparentsegroups >Objet : Re: question > > > >I think that cf, along with any other serious illness, can definitely put a >strain on health and family. I think I run on adrenaline half the time. I >haven;t been sick physically, but mentally for sure. My oldest really >suffers from my moods swings and it's really hard to catch myself until >it's >too late and the damage is done. I also think it puts a strain on your >relationship with your spouse. The stress of it has really affected us, but >we just don't talk. We rarely yell at eachother or argue, but you can cut >the tension with a dull knife. So, yes, I think this can make you sick in >more ways than one. > > mom to 17mo wcf and Brenna 5yrs wocf > > >From: PamH622@... > >Reply-To: cfparentsegroups > >To: cfparentsegroups > >Subject: Re: question > >Date: Thu, 7 Dec 2000 19:01:49 EST > > > >YES, I am on prozac now for a 6 months for stress and nervous. has it > >helped > >i really dont know. My oldest daughter is 19 with cf and she is in her >2nd > >year at college and she seems to hate me right now because i am the one >who > >is making her feel different from the other college kids by reminded her > >about her treatments. it feels like we are going through a new a >different > >stage now and the youngest one who is 15 has had a rough couple of months > >with her cf. patty > >____________________________________________________________________________ >_________ >Get more from the Web. FREE MSN Explorer download : >http://explorer.msn.com > > > >*********************** >This is a secular list. >*********************** > > >PLEASE do not post religious emails to the list. > > >-------------------------------------------------- > > >The opinions and information exchanged on this list should >IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > >-------------------------------------------------- > > >Our webpage is at http://www.eohio.net/malbright/cfparents.htm > >_________________________________________________ >Post message: cfparentsegroups >Subscribe: cfparents-subscribeegroups >Unsubscribe: cfparents-unsubscribeegroups >List owner: cfparents-owneregroups >_________________________________________________ > >WE HAVE A CHAT PAGE!!! >/chat/cfparents >_________________________________________________ > > > ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 So true Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Hello , I always thought of myself as being strong, and being able to handle anything that was thrown my way. Well after was diagnosed, I found that I couldnt handle even the smallest amount of added stress. I would take things out on my husband and the other kids, things that they had no control over, but I just couldnt help it. I was bitten by a tick, this past summer, and because of that I finally mentioned, just as a little statement, how my nerves had gotten so bad with the diagnosis, the doc was so understanding, and prescribed Paxil, which helped, but then I would fool myself, think " I feel better now " and stop taking it, which was not a good thing. Also, my blood pressure has been high now, so now I take Ziac for that, and I cant think of anything which has brought more stress into our lives than watching our baby being poked, prodded and everything else over the past year. I have listened to family who means well, tell me how I cant let things get to me, what they fail to realize is that they have no clue what is going on with , and that he is my son and everything about cf and him gets to me, I just try to hide it sometimes. Geez, sorry for rambling with this, quickly to answer your question, yes, my health has seen some changes in the past year. Take care, and hope all is well with you and your family. , mommy of 4, , 15 with a much older mind, Caleb, 6 and a kindergarten pro, finally, , 4 1/2 and the next famous artist, and , 15months with CF and reflux and a beautiful smile and bright blue eyes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 New to the list so I'll just jump in here. I wanted to ask how many parents exercise daily and eat right to help take care of themselves? Like we have time right? My dear friend has been pushing me to go to the gym with her and do more things that are just for me. She keeps telling me that I won't be able to take care of my daughter and my elderly mom who is in a wheelchair if I am sick too. Maybe she sees some potential health problems and stress in my life I just am ignoring. yvonne price mom to Madi 12 wcf & Ariel 9 wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 , iknow what you mean , i sometimes think my family thinks well she seems to have things under control so lets not even mention the cf, if they only know for years my mom always told people that i have a condition with my mood swings for years it ate at me ever time she says it. Then finally one time i just flipped out and told her and 4 sister to come live my life for one week and you see the reason for my mood swing. then when i was 35 i had to have a hystercomy and then they were all like could you image how emotion she will be now. if they oly know. thanks for me relaeasing some of that on you . pattty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Stacey, good luck with the test and so sorry for the lost of your father. patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Hello, i am just kind of jumping into this conversation... but, my child has not even been " offically " diagnosed with cf and my nerves are shot. i believe I might have an ulcer. The thought of eating makes me nausated. I am currently on zooloft but I don't know if it is helping. I am also on blood pressure med and by bp stays high still. Espcially everytime he throws up- I just cringe and feel like I could cry. I have a very wonderful family and husband, however, I don't think its the same with anyone as it is with mom. That child comes from your body and there is just no other love like it. I know my family extremly cares and my husband is very patient and supportative but no one can replace a child. I know that the things going on with caleb are contributing my stress, however, i lost my father in June with a sudden massive heart attack. He loved his grandsons soooo much. More than I thought he ever would. He would come see them every time they were in the hospital and bring him toys. The last time, he was not there. It hurt. SOOO what I am trying to say is that we as moms (parents, including dads) have these problems with our children and still have everyday stresses that everyone else has. My suggestion, and its only a suggestions, is to get any help you can. To me its more importatnt that you are a loving, patient mom while you have your children. I don't want my children growing up thinking that I am a stress nut becasue I yell all of the time. I am planning on going back to the doc. to get some other suggstions. i also am going to start to takeing YOga. It is souppose to help teach you how to relax yourself from stress. I wil let ya know how it goes. Remember, you need to watch your health soo that you can be there for your children. Good luck and sorry for rambling!!!! Going for testing on Monday Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 , I know exactly what your going through. I either sleep all the time or not at all. I feel I need company all the time as Im scared to be alone and my husband works over 70 hours a week so I am alone alot. Even silly things get to me, like if Eilish is playing and she pretends she's dead, I hate that I tell her not to, without going into it with her. I also take Zoloft for anxiety. That seems strange for me as I think of myself as a strong, capable person. My mum had breast cancer just before Eilish was born and I think all that put together put me on edge. Plus I do have underactive thyroid which apparently can cause anxiety/depresssion (not sure what the difference iS). And then Ive also got IBS (Irritable bowel), which is causing me alot of problems for the last few months. Reading this I feel like a hypoconriac (?) but I do have great days, but nights are to good. But I love my children and wouldnt swap her for anything. In the beginning I thought why me, but I dont think I ever blamed anyone (God etc.) I just sort of thought we have this for a reason but I know it has affected my health. But then again my husband got really sick and run down for a few months but that was in her first year. But I do try to shield him, as I dont like him to be upset. He hates taking her to theatre for the IV's as he said when they put her under her eyes roll back and she looks like she's dead. He cant handle that and although I to end up leaving theatre crying, I dont want him to suffer. I suppose as the mother we take on alot of the stuff, but that's just life and hopefully things will get better. Sorry to ramble, but I could so relate to your letter. Re: question > Hello , > > I always thought of myself as being strong, and being able to handle anything > that was thrown my way. Well after was diagnosed, I found that I > couldnt handle even the smallest amount of added stress. I would take things > out on my husband and the other kids, things that they had no control over, > but I just couldnt help it. I was bitten by a tick, this past summer, and > because of that I finally mentioned, just as a little statement, how my > nerves had gotten so bad with the diagnosis, the doc was so understanding, > and prescribed Paxil, which helped, but then I would fool myself, think " I > feel better now " and stop taking it, which was not a good thing. > Also, my blood pressure has been high now, so now I take Ziac for that, and I > cant think of anything which has brought more stress into our lives than > watching our baby being poked, prodded and everything else over the past > year. I have listened to family who means well, tell me how I cant let > things get to me, what they fail to realize is that they have no clue what is > going on with , and that he is my son and everything about cf and him > gets to me, I just try to hide it sometimes. > > Geez, sorry for rambling with this, quickly to answer your question, yes, my > health has seen some changes in the past year. > Take care, and hope all is well with you and your family. > , mommy of 4, , 15 with a much older mind, Caleb, 6 and a > kindergarten pro, finally, , 4 1/2 and the next famous artist, and > , 15months with CF and reflux and a beautiful smile and bright blue eyes > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Stacey, Ive been on ZOloft for months and its been great, but my girlfiend takes it as her father is seriously ill and it makes her worse. So her specialist swapped it for something else. All bodies are different. Maybe you've also got irritable bowel, i have. And I feel nauseated, bloated, pains (Like wind pains), but apparently thats caused by stress and worry. Stacey, I also have begun yoga exercises, more the relaxation type. Its in a little book so it can be done anywhere (the breathing). I find the hsp. very stressful. I had to go to casualty last time Eilish was in (Nov.) as I thought I was having a heart attack,I could hear my heart beating in my head. Apparently an anxiety attack, but the worst I had. Good luck for Monday. Re: question > Hello, i am just kind of jumping into this conversation... but, my child has not > even been " offically " diagnosed with cf and my nerves are shot. i believe I might > have an ulcer. The thought of eating makes me nausated. I am currently on zooloft > but I don't know if it is helping. I am also on blood pressure med and by bp > stays high still. Espcially everytime he throws up- I just cringe and feel like I > could cry. I have a very wonderful family and husband, however, I don't think its > the same with anyone as it is with mom. That child comes from your body and there > is just no other love like it. I know my family extremly cares and my husband is > very patient and supportative but no one can replace a child. I know that the > things going on with caleb are contributing my stress, however, i lost my father > in June with a sudden massive heart attack. He loved his grandsons soooo much. > More than I thought he ever would. He would come see them every time they were in > the hospital and bring him toys. The last time, he was not there. It hurt. SOOO > what I am trying to say is that we as moms (parents, including dads) have these > problems with our children and still have everyday stresses that everyone else > has. My suggestion, and its only a suggestions, is to get any help you can. To me > its more importatnt that you are a loving, patient mom while you have your > children. I don't want my children growing up thinking that I am a stress nut > becasue I yell all of the time. I am planning on going back to the doc. to get > some other suggstions. i also am going to start to takeing YOga. It is souppose > to help teach you how to relax yourself from stress. I wil let ya know how it > goes. Remember, you need to watch your health soo that you can be there for your > children. > Good luck and sorry for rambling!!!! > > Going for testing on Monday > > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Patty, Isnt it wonderful when they can blame everything in the world on what is going on with you, but they cant come out of the " Land of Denial " , (heard that from another mom I met during our last stay at CHOP), long enough to see the stress caused by the knowledge that the disease that our kids have is serious, not some common cold that will go away. I think if they could get that in their heads, then they would have more compassion for the real things that bother us every day. By the way, Patty, didnt you say you were going to CHOP's cf center? Do you mind if I ask where you live? Maybe you are closer than I think. Take care, and I hope all is well for you and your family during this holiday season. Love , mommy of 4, , 15 with a much older mind, Caleb, 6 and a kindergarten pro, finally, , 4 1/2 and the next famous artist, and , 15months with CF and reflux and a beautiful smile and bright blue eyes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 In a message dated 12/7/2000 3:53:08 AM Pacific Standard Time, scottie@... writes: > > I was just wondering have any of the parents own health suffered due to the > I know that since Ricky's health has worsened in the past year, I have become so depressed and guilty feeling to the point that my trusty Zoloft didn't work any more and I had to go to something more powerful, Trazodone, which works great for me. It didn't look very nice when I was having a background check to become a dispatcher! (Well, I withdrew from that anyway so it doesn't matter.) Becky Whicker beckerbuns@... or letscurecf@... mom of Ricky (11/26/95) with CF and Andy (3/18/98) no CF Shop the web and raise money for CFRI! http://www.geocities.com/beckerbuns/store.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2000 Report Share Posted December 9, 2000 , yes i am going to chop, we had are first visit last month and i like it so for. I live In Northeast Philadlphia. what doctor do you see at chop. and have a great holiday. patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2001 Report Share Posted February 7, 2001 I'm so sorry to read of Eilish's health at the moment. And I totally understand how you would feel about hospital. Hope things become more positive for you all - just wanted to send my best. Cath (Australia 4 1/2 wcf) question > I forgot to ask. She's been on antibiotics for 6 days today and only a bit better. We have 4 more days to go before we need to call the hsp. to take her in for a look (which usually means staying). Do you think if by the half way mark if there isnt significant improvement then the next 4 days wont do much? > > Im living in hope here as I dont want to go there again. She's only been out since 21st Nov. Plus, Im being a bit selfish here, my birthday is in Feb. and for the last three birthdays, including my 30th Ive spent it sitting in the hsp. with Eilish. So I dont want to make this my 4th in a row. I dont know what it is about Feb. but she's always sick then. Do you think the heat would have any influence? Of course I know if she needs to go in then in we go, but I hope she doesnt. Poor Liam hasnt seen me on my birthday all those times. Just felt like a moan, sorry. > > (mummy to Liam 6 wocf & Eilish 3wcf) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Kim, started in a 000 as well when she was 4 weeks old. We had to have extra holes punched in the strap and we double-socked her for the first month or so. How tight is the strap? We tie 's strap tight enough that only the tip of my finger can get between her foot and the strap (as someone else suggested at this site). Amy Re:Re: Question > > >He's in a 000...the orthotist said that was the smallest they had. When I get his foot in the shoe to begin with, his toes come to the end of the fringe. The buckle is on the last hole, and we tie the shoe as tight as we can. We're having a problem with his ex-clubfoot...the other foot doesn't have this problem, but it is a little bigger. We even tried just putting the shoe on without the brace, but he still gets out of it. > >Kim and > > > > >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/web/. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Kim, started in a 000 as well when she was 4 weeks old. We had to have extra holes punched in the strap and we double-socked her for the first month or so. How tight is the strap? We tie 's strap tight enough that only the tip of my finger can get between her foot and the strap (as someone else suggested at this site). Amy Re:Re: Question > > >He's in a 000...the orthotist said that was the smallest they had. When I get his foot in the shoe to begin with, his toes come to the end of the fringe. The buckle is on the last hole, and we tie the shoe as tight as we can. We're having a problem with his ex-clubfoot...the other foot doesn't have this problem, but it is a little bigger. We even tried just putting the shoe on without the brace, but he still gets out of it. > >Kim and > > > > >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/web/. > > > Quote Link to comment Share on other sites More sharing options...
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