Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 First - glad you are still out there!!!!! We have both been laying low, huh? Anyway, it would be nice if the study included what type of home cleaning is inadequate. Does that meant most people just rinse them out or does it include home cleaning where we actually clean with soap and water - between boilings or soaking in vinegar. Lori mom to Scout 2 wCF clean those nebs.... > Hi, > > This is from the latest medscape Medpulse: > > CYSTIC FIBROSIS > PATHOGENS COMMON IN NEBULIZERS USED BY CYSTIC FIBROSIS PATIENTS > In the absence of adequate cleaning, nebulizers used by cystic fibrosis > patients for treatment of Pseudomonas aeruginosa infection are likely to > harbor that organism and other pathogens, according to French researchers. > http://respiratorycare.medscape.com/30540.rhtml?srcmp=rc-120100 > <a href= " http://respiratorycare.medscape.com/30540.rhtml?srcmp=rc-120100 " > > Read it Here</a> > > > , mom of Meagan 5 (cf, asthma) and Kailin 8 (asthma) > > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Hi, We have been using disposable nebulizers ( the same as most people clean and reuse) for years. We use them and toss them. No cleaning, no hassle. I read an article in a Microbiology magazine a number of years ago about the problems with cleaning disposable nebs and contamination and quit cleaning ours, my son uses the neb then tosses it. The fact is, even with the most vigilent cleaning and disinfection practices at home, there still are a large percentage that are contaminated and those organisms are deposited right back in the lungs with the next use of that neb. Our insurance company was a little resistant at first ( as was our doc) but after giving them the information in the article and basically demanding that they play a role in safeguarding our son, it has become part of his care. A couple of R.T.'s I know thought that it was a terrific idea also. We use the Salter Labs full kit nebulizers and have found that our local medical supply store is an easy place to get them from and are not overly expensive @ a full case ( 50 ) at a time. If you add in the cost of your disinfectant or vinegar, your time, effort and hassle, it does become rather inexpensive to do. Laurie Mom of 11wCF ( almost 12) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 do you have a copy of this information you used for insurance purposes. Cherie Re: clean those nebs.... > > Hi, > > We have been using disposable nebulizers ( the same > as most people clean and reuse) for years. We use them > and toss them. No cleaning, no hassle. > I read an article in a Microbiology magazine a > number of years ago about the problems with cleaning > disposable nebs and contamination and quit cleaning > ours, my son uses the neb then tosses it. > The fact is, even with the most vigilent cleaning > and disinfection practices at home, there still are a > large percentage that are contaminated and those > organisms are deposited right back in the lungs with > the next use of that neb. > Our insurance company was a little resistant at > first ( as was our doc) but after giving them the > information in the article and basically demanding > that they play a role in safeguarding our son, it has > become part of his care. A couple of R.T.'s I know > thought that it was a terrific idea also. > We use the Salter Labs full kit nebulizers and have > found that our local medical supply store is an easy > place to get them from and are not overly expensive @ > a full case ( 50 ) at a time. If you add in the cost > of your disinfectant or vinegar, your time, effort and > hassle, it does become rather inexpensive to do. > > > Laurie Mom of 11wCF ( almost 12) > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 , at the risk of sounding, well, like a slob of a mom, I'll confess that they did not have no-spill cups when ours, including cf one were little; we just used heavy cups and were ready to grab them. Cups that were too light seemed to fly from small hands and the pottery clean-up gang was always at work. Slob mom, n wcf, mom of 3, 1 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Hi, we are always talking about disinfecting nebs, but I think it's a neverending story.. I sterilize daily the pacifiers, bottles, teats (? not sure about that word) and no-spill drinking cups of Leo. This no-spill device just makes me cringe !! it's the perfect P.A. contaminator one can get.. yikes !!! what do you guys do ? , Mom to Leo, 2 wcf -----Message d'origine----- De : Laurie Envoyé : lundi, 4. décembre 2000 09:41 À : cfparentsegroups Objet : Re: clean those nebs.... Hi, We have been using disposable nebulizers ( the same as most people clean and reuse) for years. We use them and toss them. No cleaning, no hassle. I read an article in a Microbiology magazine a number of years ago about the problems with cleaning disposable nebs and contamination and quit cleaning ours, my son uses the neb then tosses it. The fact is, even with the most vigilent cleaning and disinfection practices at home, there still are a large percentage that are contaminated and those organisms are deposited right back in the lungs with the next use of that neb. Our insurance company was a little resistant at first ( as was our doc) but after giving them the information in the article and basically demanding that they play a role in safeguarding our son, it has become part of his care. A couple of R.T.'s I know thought that it was a terrific idea also. We use the Salter Labs full kit nebulizers and have found that our local medical supply store is an easy place to get them from and are not overly expensive @ a full case ( 50 ) at a time. If you add in the cost of your disinfectant or vinegar, your time, effort and hassle, it does become rather inexpensive to do. Laurie Mom of 11wCF ( almost 12) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 ****** I agree with you - it is a never ending story...then again, I step back and think... What about the time she put her finger in the dog's butt?!?!? LOL (almost 2.5 yowcf and loves being outside) has eaten dirt, bugs and no telling what else. At the moment I am terrified and then I think, 'What could I have done to have prevented that?!?!?' And then I have my answer, 'Absolutely nothing'. I do my best to provide a *clean* environment for her - but it's hard when you step outside the door. She has never been sick with a *CF* bug. She has one asthma flare-up, a few colds, one bout with pneumonia and a bacterial infection...but nothing else. I know that we are extremely lucky with her health so, believe me - I may take my own breath for granted, but not hers.. I agree with a post from Torsten (I think written yesterday) I feel so blessed that 'looks' normal. Sometimes in my minds eye, she is. Of course she is 'perfect' to me! LOL ****To All**** We are here because we want what is best for our children and/or ourselves. I know sometimes disagreements will arise - but please don't turn us into a *debate* board. , Momma to " Leder " on 12/05/2000 11:58:04 AM Please respond to cfparentsegroups To: cfparentsegroups cc: (bcc: -Holmes/Louisville/Humana) Subject: RE: clean those nebs.... Hi, we are always talking about disinfecting nebs, but I think it's a neverending story.. I sterilize daily the pacifiers, bottles, teats (? not sure about that word) and no-spill drinking cups of Leo. This no-spill device just makes me cringe !! it's the perfect P.A. contaminator one can get.. yikes !!! what do you guys do ? , Mom to Leo, 2 wcf -----Message d'origine----- De : Laurie Envoy ---------- é : lundi, 4. décembre 2000 09:41 À : cfparentsegroups Objet : Re: clean those nebs.... Hi, We have been using disposable nebulizers ( the same as most people clean and reuse) for years. We use them and toss them. No cleaning, no hassle. I read an article in a Microbiology magazine a number of years ago about the problems with cleaning disposable nebs and contamination and quit cleaning ours, my son uses the neb then tosses it. The fact is, even with the most vigilent cleaning and disinfection practices at home, there still are a large percentage that are contaminated and those organisms are deposited right back in the lungs with the next use of that neb. Our insurance company was a little resistant at first ( as was our doc) but after giving them the information in the article and basically demanding that they play a role in safeguarding our son, it has become part of his care. A couple of R.T.'s I know thought that it was a terrific idea also. We use the Salter Labs full kit nebulizers and have found that our local medical supply store is an easy place to get them from and are not overly expensive @ a full case ( 50 ) at a time. If you add in the cost of your disinfectant or vinegar, your time, effort and hassle, it does become rather inexpensive to do. Laurie Mom of 11wCF ( almost 12) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 What about his no-spill device is so bad? Scout's cups have a little piece of rubber (plastic actually) that pulls out. The whole thing then goes in the dishwasher. There really isn't anywhere for the bugs to hide. Lori mom to Scout 2 wCF RE: clean those nebs.... > Hi, > > we are always talking about disinfecting nebs, but I think it's a > neverending story.. > I sterilize daily the pacifiers, bottles, teats (? not sure about that word) > and no-spill drinking cups of Leo. > This no-spill device just makes me cringe !! it's the perfect P.A. > contaminator one can get.. yikes !!! what do you guys do ? > > , Mom to Leo, 2 wcf > > > -----Message d'origine----- > De : Laurie > Envoyé : lundi, 4. décembre 2000 09:41 > À : cfparentsegroups > Objet : Re: clean those nebs.... > > > > Hi, > > We have been using disposable nebulizers ( the same > as most people clean and reuse) for years. We use them > and toss them. No cleaning, no hassle. > I read an article in a Microbiology magazine a > number of years ago about the problems with cleaning > disposable nebs and contamination and quit cleaning > ours, my son uses the neb then tosses it. > The fact is, even with the most vigilent cleaning > and disinfection practices at home, there still are a > large percentage that are contaminated and those > organisms are deposited right back in the lungs with > the next use of that neb. > Our insurance company was a little resistant at > first ( as was our doc) but after giving them the > information in the article and basically demanding > that they play a role in safeguarding our son, it has > become part of his care. A couple of R.T.'s I know > thought that it was a terrific idea also. > We use the Salter Labs full kit nebulizers and have > found that our local medical supply store is an easy > place to get them from and are not overly expensive @ > a full case ( 50 ) at a time. If you add in the cost > of your disinfectant or vinegar, your time, effort and > hassle, it does become rather inexpensive to do. > > > Laurie Mom of 11wCF ( almost 12) > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 the only no-spill device that is really working (according to me , of course) is from " Luv & Care " the device is made of hard plastic, has some kind of filter in it and always stays wet and there really IS space for bugs to hide :-(( , Mom to Leo, 2 wcf -----Message d'origine----- De : Lori Devoti Envoyé : mardi, 5. décembre 2000 14:16 À : cfparentsegroups Objet : Re: clean those nebs.... What about his no-spill device is so bad? Scout's cups have a little piece of rubber (plastic actually) that pulls out. The whole thing then goes in the dishwasher. There really isn't anywhere for the bugs to hide. Lori mom to Scout 2 wCF RE: clean those nebs.... > Hi, > > we are always talking about disinfecting nebs, but I think it's a > neverending story.. > I sterilize daily the pacifiers, bottles, teats (? not sure about that word) > and no-spill drinking cups of Leo. > This no-spill device just makes me cringe !! it's the perfect P.A. > contaminator one can get.. yikes !!! what do you guys do ? > > , Mom to Leo, 2 wcf > > > -----Message d'origine----- > De : Laurie > Envoyé : lundi, 4. décembre 2000 09:41 > À : cfparentsegroups > Objet : Re: clean those nebs.... > > > > Hi, > > We have been using disposable nebulizers ( the same > as most people clean and reuse) for years. We use them > and toss them. No cleaning, no hassle. > I read an article in a Microbiology magazine a > number of years ago about the problems with cleaning > disposable nebs and contamination and quit cleaning > ours, my son uses the neb then tosses it. > The fact is, even with the most vigilent cleaning > and disinfection practices at home, there still are a > large percentage that are contaminated and those > organisms are deposited right back in the lungs with > the next use of that neb. > Our insurance company was a little resistant at > first ( as was our doc) but after giving them the > information in the article and basically demanding > that they play a role in safeguarding our son, it has > become part of his care. A couple of R.T.'s I know > thought that it was a terrific idea also. > We use the Salter Labs full kit nebulizers and have > found that our local medical supply store is an easy > place to get them from and are not overly expensive @ > a full case ( 50 ) at a time. If you add in the cost > of your disinfectant or vinegar, your time, effort and > hassle, it does become rather inexpensive to do. > > > Laurie Mom of 11wCF ( almost 12) > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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