Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Oh, I love the different things we have all been told! I was told that the enzymes last 30 to 40 minutes -- no longer. So if it has been a half hour or more I usually give new enzymes (maybe not as many as I would have without the first ones). Lori mom to Scout 2 wCF Enzymes and milk... > Yes, enzymes must be given anytime food or drink > containing fats is consumed. The enzymes work for > about an hour after being taken, so if the child has > milk with enzymes, then waits 30 minutes and has more > milk, you wouldn't have to give another dose of > enzymes, the first dose would still be working. You > may find that your child's appetite (or thirst for > milk) will taper off when given the correct enzyme > dose. This is because she will start absorbing the > fats and proteins from the food that she gets, instead > of it all passing through without being digested. > Since her body will be getting the nourishment it > needs, she won't be constantly hungry for more. She > should also start putting on weight with the enzymes > if she was underweight before. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 My personal opinion is that I did NOT give enzymes with each bottle of milk my son drank (drinks) -- provided the bottle was a comfort bottle and not his main source of food. First of all, I just give my kids skim milk, anyway, so it truly wouldn't matter about the enzymes. But most importantly, my child does not (seem to) have an issue with weight -- always been in the 75%-ile. But when he was taking formula (he was diagnosed at birth) he would take his enzymes WHOLE! while he drank the first few sips of his bottle. The most important factor in your decision is whether weight is an issue for your daughter. If it is, then the inconvenience of the enzymes should be outweighed (no pun intended!) by the need for calories. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 I'm curious as to your belief that " you could have a child in the 75% that should be in the 90th " or one in the 20th that should be in the 5th. Don't quite understand your relevance here -- I'm quite happy with mine in the 75% for both height and weight and hopefully we'll be able to maintain that through his life! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Hi: Oh those enzymes! That's how I remember as well. The capsules are one hour time released, so when it gets to 40 minutes after eating there's not much left. Cheers, Lou camelot@... Lori Devoti wrote: > Oh, I love the different things we have all been told! I was told that the > enzymes last 30 to 40 minutes -- no longer. So if it has been a half hour or > more I usually give new enzymes (maybe not as many as I would have without > the first ones). > > Lori > mom to Scout 2 wCF > Enzymes and milk... > > > Yes, enzymes must be given anytime food or drink > > containing fats is consumed. The enzymes work for > > about an hour after being taken, so if the child has > > milk with enzymes, then waits 30 minutes and has more > > milk, you wouldn't have to give another dose of > > enzymes, the first dose would still be working. You > > may find that your child's appetite (or thirst for > > milk) will taper off when given the correct enzyme > > dose. This is because she will start absorbing the > > fats and proteins from the food that she gets, instead > > of it all passing through without being digested. > > Since her body will be getting the nourishment it > > needs, she won't be constantly hungry for more. She > > should also start putting on weight with the enzymes > > if she was underweight before. > > > *********************** > This is a secular list. > *********************** > > PLEASE do not post religious emails to the list. > > -------------------------------------------------- > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 the doctor told us with our MT12's that the time release on those are 20-25 minutes long... he has to take two a meal.... maybe even three if he is taking a very long time to eat..... is this right? anyone's children on MT12's? charlotte Enzymes and milk... > > > Yes, enzymes must be given anytime food or drink > > containing fats is consumed. The enzymes work for > > about an hour after being taken, so if the child has > > milk with enzymes, then waits 30 minutes and has more > > milk, you wouldn't have to give another dose of > > enzymes, the first dose would still be working. You > > may find that your child's appetite (or thirst for > > milk) will taper off when given the correct enzyme > > dose. This is because she will start absorbing the > > fats and proteins from the food that she gets, instead > > of it all passing through without being digested. > > Since her body will be getting the nourishment it > > needs, she won't be constantly hungry for more. She > > should also start putting on weight with the enzymes > > if she was underweight before. > > > *********************** > This is a secular list. > *********************** > > PLEASE do not post religious emails to the list. > > -------------------------------------------------- > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Ah, how different everyone is. Try not to compare too much to what other children take. My son, takes Creon 10 and Creon 25. I was told the 25's are a one hour release (maybe the 10's are less). He takes a couple of 10's with his snacks and a 25 & 10 with his meals (usually). This is less than his friends, less than the doctors had suggested, but works for him. Right now he doesn't eat slow:) so no probs there! When he was younger, I tended to use more 8's or 10's with his snacks 'and' his meals because sometimes he poked around and sometimes I just didn't know how much he felt like eating at that time on that day. Therefore he'd take one or two 8's or 10's before he ate, and then an 8 or a 10 at the middle of his meal. Hope this isn't just a little more of the same aggravation :-) Cheers, Lou camelot@... Charlotte & Rich Banks wrote: > the doctor told us with our MT12's that the time release on those are 20-25 minutes long... he has to take two a meal.... maybe even three if he is taking a very long time to eat..... is this right? anyone's children on MT12's? > > charlotte > Enzymes and milk... > > > > > Yes, enzymes must be given anytime food or drink > > > containing fats is consumed. The enzymes work for > > > about an hour after being taken, so if the child has > > > milk with enzymes, then waits 30 minutes and has more > > > milk, you wouldn't have to give another dose of > > > enzymes, the first dose would still be working. You > > > may find that your child's appetite (or thirst for > > > milk) will taper off when given the correct enzyme > > > dose. This is because she will start absorbing the > > > fats and proteins from the food that she gets, instead > > > of it all passing through without being digested. > > > Since her body will be getting the nourishment it > > > needs, she won't be constantly hungry for more. She > > > should also start putting on weight with the enzymes > > > if she was underweight before. > > > > > > *********************** > > This is a secular list. > > *********************** > > > > PLEASE do not post religious emails to the list. > > > > -------------------------------------------------- > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > > > -------------------------------------------------- > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > > > _________________________________________________ > > Post message: cfparentsegroups > > Subscribe: cfparents-subscribeegroups > > Unsubscribe: cfparents-unsubscribeegroups > > List owner: cfparents-owneregroups > > _________________________________________________ > > > > WE HAVE A CHAT PAGE!!! > > /chat/cfparents > > _________________________________________________ > > *********************** > This is a secular list. > *********************** > > PLEASE do not post religious emails to the list. > > -------------------------------------------------- > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Weight isn't the only issue to consider. You could have a child that is in the 75% that with proper nutrition should be in the 90%. (Or you could have a child that is 20% that should only be 5%, but is getting too many calories or not enough exercise.) If your child is pancreatic insufficient and not getting enzymes it can cause problems aside from just not getting all the calories - the most serious being liver damage from the fat/protein not being properly digested. Plus milk has protein - not just fat - so a CF child may have problems properly digesting even skim milk. Lori mom to Scout 2wCF Re: Enzymes and milk... > My personal opinion is that I did NOT give enzymes with each bottle of milk > my son drank (drinks) -- provided the bottle was a comfort bottle and not his > main source of food. First of all, I just give my kids skim milk, anyway, so > it truly wouldn't matter about the enzymes. But most importantly, my child > does not (seem to) have an issue with weight -- always been in the 75%-ile. > But when he was taking formula (he was diagnosed at birth) he would take his > enzymes WHOLE! while he drank the first few sips of his bottle. The most > important factor in your decision is whether weight is an issue for your > daughter. If it is, then the inconvenience of the enzymes should be > outweighed (no pun intended!) by the need for calories. Good luck. > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 What I mean is that the percentiles are based on all body types. Some people are meant to be (genetically) 6 feet tall some 5 feet tall. If you are meant to be 5 feet tall but are in the 80th percentile in weight you are probably getting too many calories or not enough exercise. If you are meant to be 6 feet tall and are in the 30th percentile for weight you probably aren't getting enough calories. Basically what I mean is that there is nothing " wrong " with being 20th percentile if that is what is healthy for you and that 75th could be unhealthy for someone who should be 20th. Your child probably is meant to be somewhere around 75th. My entire family and my husband's tend toward the small side - 75th would not be normal for us. I have no aspirations to get my daughter to 75th - it just isn't going to happen. (unless she became quite the porker) I will be very happy when she is at 20th or so for both weight and height. (She was diagnosed due to failure to thrive at 7 months and is still catching up.) Lori mom to Scout 2 wCF Re: Enzymes and milk... > I'm curious as to your belief that " you could have a child in the 75% that > should be in the 90th " or one in the 20th that should be in the 5th. Don't > quite understand your relevance here -- I'm quite happy with mine in the 75% > for both height and weight and hopefully we'll be able to maintain that > through his life! > > > *********************** > This is a secular list. > *********************** > > > PLEASE do not post religious emails to the list. > > > -------------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 TA DA!! I couldn't have said it better myself! 's always been around the 50-60 percentile...which is great for him. Besides taking his CF into consideration (dah, obviously), we take into consideration genetics in general; i.e. mom and dad are tall and skinny. I believe genetics accounts for 40-70% of a childs' being....this, however is another thread. Lori, I think the part about enzymes being taken not only with fatty foods is an important one. There are so many nutrients in the foods (veggies, skim milk, etc.) that don't have fat, that need to be absorbed as well. The only things doesn't take enzymes with are things like pop, hard candies, popsicles. I think I noticed in another post (can't remember who) that enzymes were given with ?? and not with crackers and something. I think that was supposed to be the other way around. Anyway, 'nuff said for now. Good post. Cheers Lou camelot@... Lori Devoti wrote: > Weight isn't the only issue to consider. You could have a child that is in > the 75% that with proper nutrition should be in the 90%. (Or you could have > a child that is 20% that should only be 5%, but is getting too many calories > or not enough exercise.) If your child is pancreatic insufficient and not > getting enzymes it can cause problems aside from just not getting all the > calories - the most serious being liver damage from the fat/protein not > being properly digested. Plus milk has protein - not just fat - so a CF > child may have problems properly digesting even skim milk. > > Lori > mom to Scout 2wCF > > Re: Enzymes and milk... > > > My personal opinion is that I did NOT give enzymes with each bottle of > milk > > my son drank (drinks) -- provided the bottle was a comfort bottle and not > his > > main source of food. First of all, I just give my kids skim milk, anyway, > so > > it truly wouldn't matter about the enzymes. But most importantly, my > child > > does not (seem to) have an issue with weight -- always been in the > 75%-ile. > > But when he was taking formula (he was diagnosed at birth) he would take > his > > enzymes WHOLE! while he drank the first few sips of his bottle. The most > > important factor in your decision is whether weight is an issue for your > > daughter. If it is, then the inconvenience of the enzymes should be > > outweighed (no pun intended!) by the need for calories. Good luck. > > > > > > *********************** > > This is a secular list. > > *********************** > > > > > > PLEASE do not post religious emails to the list. > > > > > > -------------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > > > _________________________________________________ > > Post message: cfparentsegroups > > Subscribe: cfparents-subscribeegroups > > Unsubscribe: cfparents-unsubscribeegroups > > List owner: cfparents-owneregroups > > _________________________________________________ > > > > WE HAVE A CHAT PAGE!!! > > /chat/cfparents > > _________________________________________________ > > > > > > > > > > > *********************** > This is a secular list. > *********************** > > PLEASE do not post religious emails to the list. > > -------------------------------------------------- > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > Our webpage is at http://www.eohio.net/malbright/cfparents.htm > > _________________________________________________ > Post message: cfparentsegroups > Subscribe: cfparents-subscribeegroups > Unsubscribe: cfparents-unsubscribeegroups > List owner: cfparents-owneregroups > _________________________________________________ > > WE HAVE A CHAT PAGE!!! > /chat/cfparents > _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 In a message dated 12/6/2000 6:09:17 AM Pacific Standard Time, loristays@... writes: > h, I love the different things we have all been told! I was told that the > enzymes last 30 to 40 minutes -- no longer. So if it has been a half hour or > more I usually give new enzymes (maybe not as many as I would have without > We've been told 45 minutes on several occasions by various doctors. Ricky doesn't usuall lag on eating but in the hospital he sure does! So many distractions! (TV, toys, other kids, etc.) Becky Whicker beckerbuns@... or letscurecf@... mom of Ricky (11/26/95) with CF and Andy (3/18/98) no CF Shop the web and raise money for CFRI! http://www.geocities.com/beckerbuns/store.html Quote Link to comment Share on other sites More sharing options...
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