Guest guest Posted December 31, 2000 Report Share Posted December 31, 2000 Hi Gail and Welcome I just started this group last week and it seems wonderful. It's comforting to know that these people know what you are going through and speak from experience. My mom was diagnosed 5 years ago with what they thought was Parkinson's, but she was not responding to the meds and was having blackouts all the time, unable to walk etc. they then diagnosed with SDS two years ago. She is completely confined to a wheelchair, cannot move any arms, legs, etc and cannot talk anymore. It is very sad, although I do think she has deteriorated quicker than most SDS patients. Some have it for years. It really helps to ask any of these people who are going through the same things. Take care and keep writing. Laurie Quote Link to comment Share on other sites More sharing options...
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