checking in

[Guest guest]

unless I take a rope to lasso him with, probably won't keep him there long enough to talk about this.

Rose, that's bullshit. Take someone with you to do the lasso-ing, and make this man answer your questions. I don't care how busy he is-- you're paying big bucks for him to do the injections, and you have this time reserved--FOR YOU. Don't let him out of the room until your questions are answered.

Hugs, Tracie--who hates it when the MD's are too frickin fast to take care of us.

[Guest guest]

So

ture.

Marla

checking in

Hi, everyone. I don't know if

I'm having a flare; never had one as far as I know, so I don't know what to

look for. The past few days, I have been much more exhausted than usual,

legs more weak & tending to give way, arms more weak. I will see my

neuro tomorrow for the epidural steroid injection, but unless I take a rope to

lasso him with, probably won't keep him there long enough to talk about

this. I'm going to ask him to call me at least, so I can talk about

trying Trental. Have any of you taken it? Dr. Stern mentioned it

for the fatigue. I just got an email with a nice little saying that I

hadn't heard before, so wanted to share it with you. No author given.

" Life may not be the party we

hoped for, but while we are here we might as well dance! "

Rose

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives and Digest Attachment Pictures:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant

messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

Bookmarks:-

Add a website URL you have found useful.

http://groups.yahoo.com/group/Neurosarcoidosis/links

Personal Complaints or problems:-

Please email the moderators

mailto:Neurosarcoidosis-owner

Subscription Details:-

1) Individual email - means that every email sent

to the list you receive.

2) Daily Digest - sends you 25 messages in one

single email for you to browse. This is an excellent option if you receive alot

of email.

3) Web only/No mail - means that you can pop into

eGroups at your convenience and receive no email.

To modify your subscription settings please

visit:-

http://groups.yahoo.com/group/Neurosarcoidosis/join

To subscribe email

neurosarcoidosis-subscribe

To unsubscribe email neurosarcoidosis-unsubscribe

The moderators will not be doing it for you!

~~~~ *** ~~~ *** ~~~ *** ~~~~

Come stand by my side where I am going,

Take my hand if I should stumble and fall,

It's the strength and love that you share,

That gives me what I need most of all.

- Hoyt Axton

~~~~ *** ~~~ *** ~~~ *** ~~~~

Your use of

Yahoo! Groups is subject to the Yahoo!

Terms of Service.

[Guest guest]

>>I do have a question for you or any of you i'm starting to get some

involuntary movements of my body kinda like its my nerves

Jan you might want to get them to do an EEG or BSER or other evoked

potentials, or talk to them about forms of myoclonus and ask if it's

possible that this could be some sort of nerve spasm from either your neck

or the illness. Perhaps Klonapin, the first drug used with myoclonus, would

help?

Love Aisha

[Guest guest]

>>How are you my dear one? Have you started those new TB meds yet?

Hey Jan,

I'm pretty sick right now. Not desperately sick or any of that, just not at

my best. My last lot of blood tests were rather warped due to one lot

clotting so that threw a lot of tests out of wack. I get it redone End of

October. Because of this also, we didnt start the TB stuff. To be honest, I

don't know where I am medically.

>>I hope you are getting better and how is Moo?

Crystal is extremely sick, she is basically how I was when I had no

specialist and was slowly dying. She cannot cope with email, so even sending

an e-card wont help I'm afraid. If anyone wants to post her a card of

support, I have her postal address, just write to me of the list

(aisha@...).

Thanks for asking after me, I hope things are steadily getting better for

you?

Love isha.

[Guest guest]

---You are perhaps in the very hardest stage of this process.

Approved and waiting for a date. It took me almost a year too. The

being approved and waiting is extremely difficult. I went through

extreme mood swings from extremely happy to extrememly depressed. I

would cry at the drop of a hat, truly believing it would never

happen. Everyone would be very supportive and encouraging, but it

didnt help, I was obessed with getting my date and I too would cry

hearing some one get their date quickly. But everyone was right it

did come and its been great so far. Ive had little dips and valleys

but thankfully no complications. I hit a plateau at 4 weeks and felt

like a failure...thank goodness for Eleanor....she really helped me

through it. The only thing I can tell you is that it will come. I

know it wont help much. Rely on all the support you can, this site is

awesome because we are all Kaiser patients. Another good one is the

Association for Morbid Obesity Support...I lived on that site and the

live chat there really kept me going. You are worth this wonderful

tool and when it comes you will be ready.

In gastric-bypass-support-kaiser-

patients , " pgbaker21 " <pgbaker21@y...> wrote:

> Hi all!

> I'm one of the many that read the postings to gain hope and learn

> from the experiences of those that have gone over to the post-op

side

> and to empathize with other pre-ops who are beginning their journey

> or struggling with the pre-op process.

>

> I particularly appreciate reading the success stories - like

> Francisco's latest posting and Eleanor's postings as well as the

> recent post-op experiences like Kay, , and . I don't

> know any of you personally, but thanks to Shell, we have this email

> group where we can share our journeys with people that understand

in

> ways our non-wls families and friends can.

>

> I've been on my journey for just over a year now and I have twelve

> pounds to go before I reach my pre-surgery weight and seven pounds

to

> go before they will schedule me for my pre-surgery clearances.

I've

> had to lose more than the 10% due to my pulmonary co-morbidities

and

> I've lost about 40 lbs. so far.

>

> I hate to say it, but sometimes it's hard to read about people

> getting their surgery dates after a few months. It sounds

terrible,

> and I don't begrudge everyone's successes (I'm usually not a

negative

> person) but I think if I vent I'll be able to move forward with

what

> I need to do and maybe there are other silent readers out there

that

> are experiencing the same things I'm feeling and it will also

benefit

> them.

>

> I'm part of the Richmond program and Dr. Fisher is my surgeon.

With

> the Richmond program, the most recent thing I learned is that pre-

ops

> need to maintain a close relationship with your PCP - especially if

> your PCP is at another Kaiser facility like me. I go to South

> Sacramento and my PCP was very supportive of my plans for bariatric

> surgery but he left the Kaiser system and moved back east. For

> months, I didn't have a need to connect with a new PCP because I

was

> surprisingly healthy (being on the 1200 calorie food plan and

> exercising). Now that it's time to schedule the various pre-

surgery

> clearance evaluations, at Richmond now tells me to ask my

> physician to order my pulmonary tests. I then find out from my

> pulmonary doctor that he needs Richmond to formally request the

> tests. So I talk to and she tells me that Dr. Fisher will

> request them from South Sac. A few days later, I've followed up

with

> and found out that Dr. Fisher wrote a great email to my PCP,

> not my pulmonary doctor because my Richmond can't communicate

> directly with my pulmonary doctor - it has to go through my pcp.

So

> now I'm scurrying to make an appointment with my PCP (who doesn't

> know me) and hope that he is supportive and knowledgeable about

> bariatric surgery. I wish I knew all this during those months that

I

> was just trying to lose my pre-op weight - it's not in the

Bariatric

> Surgery binder. Anyways, I just have to look ahead and do what I

> need to do, but it is frustrating.

>

> One more thing, before I end this epic email... I really do what to

> congratulate those that have gotten their surgery dates coming up

> soon. I really am happy for you and Ijust can't wait until I can

be

> there too. To the rest of you, Merry Christmas!

[Guest guest]

Thanks for sharing your story and your empathy really helps to get

through this phase.

> > Hi all!

> > I'm one of the many that read the postings to gain hope and learn

> > from the experiences of those that have gone over to the post-op

> side

> > and to empathize with other pre-ops who are beginning their

journey

> > or struggling with the pre-op process.

> >

> > I particularly appreciate reading the success stories - like

> > Francisco's latest posting and Eleanor's postings as well as the

> > recent post-op experiences like Kay, , and . I don't

> > know any of you personally, but thanks to Shell, we have this

email

> > group where we can share our journeys with people that understand

> in

> > ways our non-wls families and friends can.

> >

> > I've been on my journey for just over a year now and I have

twelve

> > pounds to go before I reach my pre-surgery weight and seven

pounds

> to

> > go before they will schedule me for my pre-surgery clearances.

> I've

> > had to lose more than the 10% due to my pulmonary co-morbidities

> and

> > I've lost about 40 lbs. so far.

> >

> > I hate to say it, but sometimes it's hard to read about people

> > getting their surgery dates after a few months. It sounds

> terrible,

> > and I don't begrudge everyone's successes (I'm usually not a

> negative

> > person) but I think if I vent I'll be able to move forward with

> what

> > I need to do and maybe there are other silent readers out there

> that

> > are experiencing the same things I'm feeling and it will also

> benefit

> > them.

> >

> > I'm part of the Richmond program and Dr. Fisher is my surgeon.

> With

> > the Richmond program, the most recent thing I learned is that pre-

> ops

> > need to maintain a close relationship with your PCP - especially

if

> > your PCP is at another Kaiser facility like me. I go to South

> > Sacramento and my PCP was very supportive of my plans for

bariatric

> > surgery but he left the Kaiser system and moved back east. For

> > months, I didn't have a need to connect with a new PCP because I

> was

> > surprisingly healthy (being on the 1200 calorie food plan and

> > exercising). Now that it's time to schedule the various pre-

> surgery

> > clearance evaluations, at Richmond now tells me to ask my

> > physician to order my pulmonary tests. I then find out from my

> > pulmonary doctor that he needs Richmond to formally request the

> > tests. So I talk to and she tells me that Dr. Fisher will

> > request them from South Sac. A few days later, I've followed up

> with

> > and found out that Dr. Fisher wrote a great email to my

PCP,

> > not my pulmonary doctor because my Richmond can't communicate

> > directly with my pulmonary doctor - it has to go through my pcp.

> So

> > now I'm scurrying to make an appointment with my PCP (who doesn't

> > know me) and hope that he is supportive and knowledgeable about

> > bariatric surgery. I wish I knew all this during those months

that

> I

> > was just trying to lose my pre-op weight - it's not in the

> Bariatric

> > Surgery binder. Anyways, I just have to look ahead and do what I

> > need to do, but it is frustrating.

> >

> > One more thing, before I end this epic email... I really do what

to

> > congratulate those that have gotten their surgery dates coming up

> > soon. I really am happy for you and Ijust can't wait until I can

> be

> > there too. To the rest of you, Merry Christmas!

[Guest guest]

-

Congratulations on your upcoming date!!! You will be in my prayers. When were your marathon apts?

As for follow up care, you will see the Drs. when they come up for the seminars. You won't be going back down to San Diego.

I don't have any suggestions for the hospital b/c I am still preop...

Angie

Dr.

pre-op

teachercrowley @ aol.com

[Guest guest]

-

Congratulations on your upcoming date!!! You will be in my prayers. When were your marathon apts?

As for follow up care, you will see the Drs. when they come up for the seminars. You won't be going back down to San Diego.

I don't have any suggestions for the hospital b/c I am still preop...

Angie

Dr.

pre-op

teachercrowley @ aol.com

[Guest guest]

Good Afternoon all, per the request of our leader I'd just like to say Hi again! I have done the Marathon appointments and I am scheduled for Surgery 1 week from today! January 21st! What a way to start off the new year! Thank you to everyone for your postings and your responses to the occasional post from me with questions. I think I have learned more reading all of your stories then any study or research on this topic. There is nothing like Human Emotion and Triumph I think! It hasn't really hit me all that I am in for yet, but I feel a little more excitement as each day passes, I will be blessed to have my father there during the surgery and my mother there during the recovery! I'm sad my husband won't be able to join me he is in College right now study to be a stenographer and is in a portion of that study that is the most intense! We are both in agreement he can't take the time off but is having trouble dealing with the decision as time continues to count down.

Well if anyone has suggestions as to what to bring to the hospital and any post surgery suggestions for a great recovery please pass them along. I was wondering if anyone could tell me how the follow-up appointments go? Do we go to the Seminar's to meet with our Dr's for our follow-up or fly back to PB?

Well Thank you for listening to me go on and on!

See you on the other side!!

Dr.

245/???

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Good Afternoon all, per the request of our leader I'd just like to say Hi again! I have done the Marathon appointments and I am scheduled for Surgery 1 week from today! January 21st! What a way to start off the new year! Thank you to everyone for your postings and your responses to the occasional post from me with questions. I think I have learned more reading all of your stories then any study or research on this topic. There is nothing like Human Emotion and Triumph I think! It hasn't really hit me all that I am in for yet, but I feel a little more excitement as each day passes, I will be blessed to have my father there during the surgery and my mother there during the recovery! I'm sad my husband won't be able to join me he is in College right now study to be a stenographer and is in a portion of that study that is the most intense! We are both in agreement he can't take the time off but is having trouble dealing with the decision as time continues to count down.

Well if anyone has suggestions as to what to bring to the hospital and any post surgery suggestions for a great recovery please pass them along. I was wondering if anyone could tell me how the follow-up appointments go? Do we go to the Seminar's to meet with our Dr's for our follow-up or fly back to PB?

Well Thank you for listening to me go on and on!

See you on the other side!!

Dr.

245/???

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

:

The follow up appointments are not at PB but at the place where the seminars are held. I don't know what area you are from. I'm in the Sac area and my month appointment was at the Red Lion Inn and then my 6 month appointment this last Monday was at Kaiser Pt West in Sac.

in Vacaville

-----Original Message-----From: Sent: Wednesday, January 14, 2004 10:05 AMTo: gastric-bypass-support-kaiser-patients Subject: Re: Checking In

Good Afternoon all, per the request of our leader I'd just like to say Hi again! I have done the Marathon appointments and I am scheduled for Surgery 1 week from today! January 21st! What a way to start off the new year! Thank you to everyone for your postings and your responses to the occasional post from me with questions. I think I have learned more reading all of your stories then any study or research on this topic. There is nothing like Human Emotion and Triumph I think! It hasn't really hit me all that I am in for yet, but I feel a little more excitement as each day passes, I will be blessed to have my father there during the surgery and my mother there during the recovery! I'm sad my husband won't be able to join me he is in College right now study to be a stenographer and is in a portion of that study that is the most intense! We are both in agreement he can't take the time off but is having trouble dealing with the decision as time continues to count down.

Well if anyone has suggestions as to what to bring to the hospital and any post surgery suggestions for a great recovery please pass them along. I was wondering if anyone could tell me how the follow-up appointments go? Do we go to the Seminar's to meet with our Dr's for our follow-up or fly back to PB?

Well Thank you for listening to me go on and on!

See you on the other side!!

Dr.

245/???

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

:

The follow up appointments are not at PB but at the place where the seminars are held. I don't know what area you are from. I'm in the Sac area and my month appointment was at the Red Lion Inn and then my 6 month appointment this last Monday was at Kaiser Pt West in Sac.

in Vacaville

-----Original Message-----From: Sent: Wednesday, January 14, 2004 10:05 AMTo: gastric-bypass-support-kaiser-patients Subject: Re: Checking In

Good Afternoon all, per the request of our leader I'd just like to say Hi again! I have done the Marathon appointments and I am scheduled for Surgery 1 week from today! January 21st! What a way to start off the new year! Thank you to everyone for your postings and your responses to the occasional post from me with questions. I think I have learned more reading all of your stories then any study or research on this topic. There is nothing like Human Emotion and Triumph I think! It hasn't really hit me all that I am in for yet, but I feel a little more excitement as each day passes, I will be blessed to have my father there during the surgery and my mother there during the recovery! I'm sad my husband won't be able to join me he is in College right now study to be a stenographer and is in a portion of that study that is the most intense! We are both in agreement he can't take the time off but is having trouble dealing with the decision as time continues to count down.

Well if anyone has suggestions as to what to bring to the hospital and any post surgery suggestions for a great recovery please pass them along. I was wondering if anyone could tell me how the follow-up appointments go? Do we go to the Seminar's to meet with our Dr's for our follow-up or fly back to PB?

Well Thank you for listening to me go on and on!

See you on the other side!!

Dr.

245/???

____________________________________________________ IncrediMail - Email has finally evolved - Click Here