aka Sparks..

[Guest guest]

Hi there ..Hows the weather there? My girls are still up there

by you but i'm not use to the little cold central Fl. gives me

here..I'm freezing often now and miss the 105 degree temps

ocassionally because it seems my fibro is getting MUCH worse but

geez; that was terrible to hear about your knee~hope it is feeling

alittle better by

now.

That sure is nice for your pharmacy to bring your meds over for

you...I had pink eye in high school and still remember how terrible

it left you feeling...it's a very bad infected cold in the

eye...hurts,itches,eyes shut, and tearing galore..I don't wish it on

anyone....

I had to go to my primary Dr. today for an urgent visit made this

morning because that hip pain i had going had keeping me from

sleeping;has now spread thru my lower waist-spine area and both sides

of the pelvis to a point that even though i'd cry just trying to roll

over in bed;now last night was the last straw with me because as i

got into bed and lied there 2 minuites~I started rolling on ever side

to avoid the exstreme pain that was haunting me...yes haunting me;and

it was so bad like being on a bed of nails in a sense but much WORSE

that i cried and cried til i HAD to get out of bed which is even hard

for me to sit up in bed no less get out...

I stood there for quiet awhile stariing at the bed with dread..how

could i get back in bed???there was no way..it was that bad for me

and greater than i've ever felt!!!So my Dr. said despite my worry of

it maybe an internal problem..like an organ,etc..she was sure the

pain was all from fibro...but gee was it very different..guess

because of the severity in it...

She and my neurologist had me on all the right meds like

neurontin..nortriptyline for help with sleep only..but today she

thought i should think about seeing a psyciatrist dr even though she

knows i'm sane but says chronic pain will increase with the stresses

of having severe chronic pain which i'm aware of but i don't feel it

the case with me and my spirits have held high til she presented me

with that..lol...Anyhow..she offered to send me to a pain management

Dr.the ones in Az. couldn't help me anymore..maybe these here in Fl.

will give more hope for me..

Today my dr. added Ambien..a newer sleeping drug for temp. use..she's

hoping it'll KNOCK me out and i won't feel the night pain..just til i

see the Pain management dr.I'm still on Neurontin,baclofen,and

nortriptyline..i was on amytriptyline because i kept me zombied

daily..even though i was on it for 2 or more months...so i was

changed to the nortriptyline that was suppose to have less side

affects as these..so far so good..it's been 3 months..i normally

can't tolorate any anti-depressants at all!!I do think the fog

(humidity does help in worsening fms in some people...i am greatly

affected by it and can definantly tell the difference comming from

Az. to Fl. but i love it here~

The neuro dr. noted in my records about

trying a spinal cord stimulator which he never mentioned directly to

me but i overherd him say it on his recorder for noting..My primary

was the one who told me the neuro offered it by looking at my

records,,I'm warey of it because i hear that it helps some but in

others;they get skin infections at the implants site and they need to

be replaced...that sounds like asking for more trouble..there has

been some controvery over those and morphine pumps as was the next

suggestion my neuro Dr listed to try...

I'll take it one step at a

time but pain doesn't wait!! Sorry this post was long..;i do

hope all goes well for you..I have been reading posts one and off but

more off because of my health going down hill lately like many of us

here..i will bounce back..just a matter of time..lol..Welcome to any

newbies i've not said hello to..glad your here!! gentle hugs..Mitzi