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GUYS I AM HAVING A YUCK A.M. SO FAR. I HAD AUTONOMIC TESTING FRIDAY AND

WAS OFF MY FLORINEFF FOR 5 DAYS THEN PROAMATINE 1 1/2 DAYS. THIS

WEEKEND - NOT GOOD. I WAS SLEEPING ALL DAY SATURDAY 'TIL SUNDAY. MY

LOWER LEGS ARE BURNING AND FEET AE FLOPPY . I DON'T FEEL MYSLEF. U

THINK MY BODY IS JUST GETTING BACK TO IT'S OLD SELF FROM THE TEMPORARY

MED STOPPAGE?

NANCY M.

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,

When Rob went off his meds for 2 weeks to participate in a clinical

trial over the summer it took him about a week to start feeling close

to normal and another 3 or 4 weeks to really get back to where he had

been. It's probably just re-adjustment for you, but a call to the

doctor woouldn't be a bad idea.

Carol & Rob

> GUYS I AM HAVING A YUCK A.M. SO FAR. I HAD AUTONOMIC TESTING FRIDAY

AND

> WAS OFF MY FLORINEFF FOR 5 DAYS THEN PROAMATINE 1 1/2 DAYS. THIS

> WEEKEND - NOT GOOD. I WAS SLEEPING ALL DAY SATURDAY 'TIL SUNDAY. MY

> LOWER LEGS ARE BURNING AND FEET AE FLOPPY . I DON'T FEEL MYSLEF. U

> THINK MY BODY IS JUST GETTING BACK TO IT'S OLD SELF FROM THE

TEMPORARY

> MED STOPPAGE?

>

> NANCY M.

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Hi ,

Warren was off his Florinef and Pramatine for almost 3 weeks while in

hospital and rehab center. It really tired him out and took about a week

before he started feeling better. I think your body will react positively

since your back on meds but it takes time, just like it did when you first

started them. Just keep resting and take your meds.

Sorry can't be of more help,

Hi GUYS

> GUYS I AM HAVING A YUCK A.M. SO FAR. I HAD AUTONOMIC TESTING FRIDAY AND

> WAS OFF MY FLORINEFF FOR 5 DAYS THEN PROAMATINE 1 1/2 DAYS. THIS

> WEEKEND - NOT GOOD. I WAS SLEEPING ALL DAY SATURDAY 'TIL SUNDAY. MY

> LOWER LEGS ARE BURNING AND FEET AE FLOPPY . I DON'T FEEL MYSLEF. U

> THINK MY BODY IS JUST GETTING BACK TO IT'S OLD SELF FROM THE TEMPORARY

> MED STOPPAGE?

>

> NANCY M.

>

>

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:

Ken was off his Midodrine but not the florinef for about four days not so long ago when a physical therapist got upset because his BP was 200/110. The result was that he passed out for 15 minutes and the Paramedics had to take him to the hospital. After determining that there was nothing except the sudden BP drop wrong with him, our Neurologist just said not to take his BP any more and give him the drugs!

Barbara

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