Your comments on using Minocin daily

[Guest guest]

Hello,

I'm Joan, my husband Dave is entering this message. I have just joined your

support group today.

Here is my situation.

I have had diffuse scleroderma for 11 months. In Feb, I was started on

Depen 150 mg every day for the 1st 6 weeks. I have worked up to 500 mg daily

and have been on that dosage for 6 weeks. Now I am seeing signs of skin

relaxing and have my energy back. This week my rheumatologist started me on

Minocin, 50 mg twice a day, every day. Everything I have read says to use

Minocin Mon - Wed - Fri.

I'm looking forward to your comments.

Thanks, Joan Wood

[Guest guest]

I have to jump on this one.

I too was on Cuprimine....d-penicillimine for 18 months but I was at 250mg a

day and my dr. wanted to up it to 500mg a day since it was not really doing

much in the first 6 months. I did for a short time then went back to the

250.

The way it went for me was I had a slow down of the fibrosis and a reduction

in pain but nothing like a have now. At the two year mark I went full tilt

into the skin hardening again with lung involvement. That is when I

panicked and jumped of the fence to get involved in the AP, antibiotic

protocol.

I wish I had a doctor that would have started me on the minocycline earlier

but that's all water under the bridge.

Personally, I would alter the drug intake to match the protocol and tell

your doctor why. Start at 50mg MWF and move up to 200mg MWF at a pace you

can handle.

However, I would strongly recommend trying to manage the clindamycin IV. It

makes a huge difference for me.

Anyway, doctors do not prescribe drugs in a pulsed method so they don't

understand why. You can explain it to them and they should agree given the

theory.

Congrats on finding us.

ps: can you write me personally and give me more details of your drug intake

and your condition. I imagine you are on the piles of meds that I was on

and no longer take.

Donna

Ottawa, Canada

Scleroderma, Jan.95, AP Oct.97

(My Story) www3.sympatico.ca/mousepotatoes

rheumatic Your comments on using Minocin daily

>From: " L. Wood " <dwood1@...>

>

>Hello,

>

>I'm Joan, my husband Dave is entering this message. I have just joined your

>support group today.

>Here is my situation.

>

>I have had diffuse scleroderma for 11 months. In Feb, I was started on

>Depen 150 mg every day for the 1st 6 weeks. I have worked up to 500 mg

daily

>and have been on that dosage for 6 weeks. Now I am seeing signs of skin

>relaxing and have my energy back. This week my rheumatologist started me on

>Minocin, 50 mg twice a day, every day. Everything I have read says to use

>Minocin Mon - Wed - Fri.

>

>I'm looking forward to your comments.

>

>Thanks, Joan Wood

>

>

>

>

>---------------------------

[Guest guest]

Dear Joan,

For what it's worth, since I'm fairly new....I do the M, W, F, routine.

Traditional doctors, mine included, suggest the 7 days a week, but Dr. Brown,

as you know, suggested the alternate route of administration. My feeling

was, (And doc is letting me do my own thing) " less of any medicine is better "

and since M<W< F is supposed to work really well, why take more medicine than

I need. And (knock wood) I have done well so far. So that's my approach. I

guess if it didn't work, I might try more, or I might investigate other

problems that kept it from working. I know everyone here has opinions. I

hope we help you, and good luck.