Re: Thyroid Problems

[Guest guest]

Hi Debbie G and everyone,

As ya'll already know, I've had Thyroid problems ever since I was a kid. I

noticed the mass growing in my neck when I was in 5th grade, I believe.

I was examined by a couple of small town quacks that I personally wouldn't take

my cat to. (Thanks Dad, he was always trying to pinch pennies) One of these

doctors said I had a gland infection and put me on antibiotics. The other said

he thought it was some sort of infection, maybe even tonsils, put me on

Pencillin and that was it. I was in with my mom at her GYN, of all places and he

looked at my neck as a favor to her. He said that he thought it was my Thyroid

and I probably had a Goiter. He wanted me to see a specialist, but Dad wouldn't

hear of it.

About 7 years later, I was a Senior in high school and had a 'flu' that wouldn't

go away. I had a fever that ran between 102-104, swollen glands, could barely

talk, no appetite, etc.. It would get better, but never completely go away, then

come right back in a couple of months. I was coughing up blood for 2 or 3

months, hiding it from my parents for 2 reasons: I was terrified of the doctor

and I knew Dad was going to have a fit about the money.

Finally, one of my teacher's saw me coughing up the blood and talked to me after

class. She told me if I didn't tell my parents, she was going to. I told Mom

that evening and she told Dad. Just as expected, he yelled about the money and

pouted at Mom and I for about a week. He finally felt guilty enough to have my

uncle take me to ER and they began running tests on me. Dad ranted and raved

because i had to go back and forth to the hospital from Sept-Nov, 1979 for test

after test. They decided to just admit me because we live 45 minutes from the

hospital and they were doing tests several times a week.

2 weeks after i was admitted, after many scans, x-rays and blood tests, they did

a Needle Biopsy on the mass and diagnosed me with Papillary Thyroid Cancer. The

Thyroid was removed and my Parathyroids moved to my left arm. (Weird, huh?)

Scans showed that the Cancer had already spread to both my lungs, so I had my

first Radioactive Iodine treatment in Feb, 1980. I have had several recurences

warranting a treatment each time, the most recent being June of this year.

My Fibromyalgia symptoms started around 1984 or so, tho I wasn't diagnosed until

1997. My doctors have never made a connection with my Thyroid problems and FMS,

but they also act like FMS is no big deal. So I don't put alot of stock in them.

I'm off to the Arthritis Clinic for the 2nd time in just about 4 hours and I

haven't been to bed yet, so I guess I better try to catch a few winks. I'm sorry

this ended up so long, I just get started and don't know when to stop lol. Take

care everyone!

Gentle Hugs,

Jacqui

" Anything less than mad, passionate, extraordinary love is a waste of time.

There are too many mediocre things in life and love shouldn't be one of them. "

[Guest guest]

Hi Debbie G and everyone,

As ya'll already know, I've had Thyroid problems ever since I was a kid. I

noticed the mass growing in my neck when I was in 5th grade, I believe.

I was examined by a couple of small town quacks that I personally wouldn't take

my cat to. (Thanks Dad, he was always trying to pinch pennies) One of these

doctors said I had a gland infection and put me on antibiotics. The other said

he thought it was some sort of infection, maybe even tonsils, put me on

Pencillin and that was it. I was in with my mom at her GYN, of all places and he

looked at my neck as a favor to her. He said that he thought it was my Thyroid

and I probably had a Goiter. He wanted me to see a specialist, but Dad wouldn't

hear of it.

About 7 years later, I was a Senior in high school and had a 'flu' that wouldn't

go away. I had a fever that ran between 102-104, swollen glands, could barely

talk, no appetite, etc.. It would get better, but never completely go away, then

come right back in a couple of months. I was coughing up blood for 2 or 3

months, hiding it from my parents for 2 reasons: I was terrified of the doctor

and I knew Dad was going to have a fit about the money.

Finally, one of my teacher's saw me coughing up the blood and talked to me after

class. She told me if I didn't tell my parents, she was going to. I told Mom

that evening and she told Dad. Just as expected, he yelled about the money and

pouted at Mom and I for about a week. He finally felt guilty enough to have my

uncle take me to ER and they began running tests on me. Dad ranted and raved

because i had to go back and forth to the hospital from Sept-Nov, 1979 for test

after test. They decided to just admit me because we live 45 minutes from the

hospital and they were doing tests several times a week.

2 weeks after i was admitted, after many scans, x-rays and blood tests, they did

a Needle Biopsy on the mass and diagnosed me with Papillary Thyroid Cancer. The

Thyroid was removed and my Parathyroids moved to my left arm. (Weird, huh?)

Scans showed that the Cancer had already spread to both my lungs, so I had my

first Radioactive Iodine treatment in Feb, 1980. I have had several recurences

warranting a treatment each time, the most recent being June of this year.

My Fibromyalgia symptoms started around 1984 or so, tho I wasn't diagnosed until

1997. My doctors have never made a connection with my Thyroid problems and FMS,

but they also act like FMS is no big deal. So I don't put alot of stock in them.

I'm off to the Arthritis Clinic for the 2nd time in just about 4 hours and I

haven't been to bed yet, so I guess I better try to catch a few winks. I'm sorry

this ended up so long, I just get started and don't know when to stop lol. Take

care everyone!

Gentle Hugs,

Jacqui

" Anything less than mad, passionate, extraordinary love is a waste of time.

There are too many mediocre things in life and love shouldn't be one of them. "

[Guest guest]

HI I was diagnosed with grave's disease as well as a hyperactive thyroid back

in 1982.. I was diagnosed with fibro about 4 years ago. Not sure if it is

connected or not but I have heard alot of people that have fibro also has

thyroid problems as well

[Guest guest]

I have a normal thyroid. : )

Thyroid Problems

I've noticed that quite a few people on this list have thyroid problems and I

was just wondering what the number of people on this list really affected by

that was, so what's the number???? How many of you have thyroid problems? And

is this something associated with Fibro???

[Guest guest]

I don't know if it's associated, but I am hypothyroid and have been for

several years, yet my thyroid levels have not stabilised. And yes, I think

it contributes to my symptoms.

Petra (mailto:Petra@...)

Maaammmiiieee!!! to Katja (14 Mar '90), Kai (29 Apr '92) and Saskia (11 Dec

'95)

Visit us at http://www.kjsl.com/~petra Check out our Halloween page for

craft and party ideas!

~*~ Children need love, especially when they do not deserve it.

Harold S. Hulbert ~*~

> Thyroid Problems

>

>

> I've noticed that quite a few people on this list have

> thyroid problems and I was just wondering what the number of

> people on this list really affected by that was, so what's

> the number???? How many of you have thyroid problems? And

> is this something associated with Fibro???

>

>

>

[Guest guest]

I do not have a thyroid problem.

>

>Reply-To: egroups

>To: < egroups>

>Subject: Thyroid Problems

>Date: Wed, 15 Nov 2000 16:07:09 -0800

>

>I've noticed that quite a few people on this list have thyroid problems and

>I was just wondering what the number of people on this list really affected

>by that was, so what's the number???? How many of you have thyroid

>problems? And is this something associated with Fibro???

>

>

>

[Guest guest]

Hypothyroid here x 4 years and so far not under control with meds. My doc told

me and from what I have read it does go hand

and hand with fibro.

Thyroid Problems

> I've noticed that quite a few people on this list have thyroid problems and I

was just wondering what the number of people

on this list really affected by that was, so what's the number???? How many of

you have thyroid problems? And is this

something associated with Fibro???

>

>

>

[Guest guest]

> I've noticed that quite a few people on this list have thyroid problems

and I was just wondering what the number of people on this list really

affected by that was, so what's the number???? How many of you have thyroid

problems? And is this something associated with Fibro???

I am not sure how long I have had thyroid problems. It was first found in

1998 and I was Hyper-thyroid and not hypo.

It goes up and down constantly. I have 2 nodules on the thyroid and maybe

that is what is causing it, I don't know. I do know my weight goes up and

down with it and I haven't changed my eating habits. I'll lose weight like

crazy for a month or two then gain it back again. I have had all kinds of

tests, scan and uptake etc. But it doesn't seem to worry the doctor so I

haven't gotten really concerned with it either. My fatigue and pain etc.

started back in 1994 but not officially diagnosed with CFS, Fibro and NMH

just this last couple of months.

I very rarely used to go to the doctor. Thought I had to be tough like my

Grandfather. Took the pain and slid through all illnesses. But since 1996, I

have been seen by 11 different doctors. Bummer. No more workaholic.

http://members.tripod.com/~Shue/menu2.html

[Guest guest]

I have had thyroid problems for about 6 yrs, but only diagnosed with fms and

cfs the last 2, although i think it had been coming in gradually over the

hears. i'm hypo instead of hyper.

[Guest guest]

as i said before i also have hypothyroidism and it has not stabilized in the

last 6 yrs. i take 0.175mg of synthroid daily--so i don't know if there is a

connection between this and fms or cfs or not.