a few questions

[Guest guest]

Meg,

To find a specialist in Nebraska, try going to this webpage:

http://intranet.unmc.edu/roberttest/phyrefer.htm

Fill out the form and put in the following info under additional information:

movement disorders, multiple system atrophy, ataxia, dysphagia

They should come up with a name in your general area. This is through the U. of

Nebraska and they have been doing some stem cell research there. Anyone looking

for a specialist in MSA should try their state University Medical Center first,

long trips and MSA do not go well together. If you live on the border of

another state and their University Medical Center is closer try the close one

first.

As long as there is no cure, it does not pay to spend huge sums of money to go a

long distance for treatment. Even your primary care physician can often help

with a call to a recognised specialist.

Take care, Bill and Charlotte

>

>

> > a few questions

> >

> > I was wondering from the group if anyone can help me with these questions.

> > i

> > go to my GP here in Nebraska. he is not at all knowledgable about SDS, but

> > then neither am I. Any help you can give me would be greatly appreciated.

> > I

> > can take this information back to my doctor. If the neck of my urethra has

> > tightened up, what do i have done to help the urine flow. I went to see a

> > urologist before I was diagnosed and he stretched the neck, but to no

> > avail.

> > What is the next step now. Also, what do people take for their muscle

> > stiffness and soreness? I have tried a heating pad and tylenol. No luck.

> > Does

> > anyone have a problem with light sensitiveity/ My pupils don't work right.

> > They open when they shouldn't and get small when they should be enlarged.

> > Consequently, the light outside or in a bright room irritates them. Even

> > the

> > TV screen or the computer screen at times. I feel foolish walking around

> > with

> > sunglasses all the time. But then again if Hollywood can get away with it,

> > so

> > can I. Thanks, Meg freezing in SE Nebraska, wind chills were -45-50 today

> > with light snow

> >

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