Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Hi Jackie. You saw my post about having reactions. I may have actually found something that crawled out of my body and died. It was on the sheet and looked alot like one of the pictures on lymephotos. I definately have had the crawling sensations, stinging, biting etc. Plus I came down with shingles on my thumb only (go figure) the same day I started getting the wierd sensations. Yesterday I had a slightly better day (YEA!). There are so many incredible stories in this group. Of course, they also recommend minerals, detox and some other things but salt/c is the main thing. I got mine from americaRX.com. They are CMC (brand name) tablets and are pure salt. Not really any more expensive than Walmart, but Walmart didn't carry this brand which is preferrable and I didn't ask if they could order them. I may next time. I also purchased some krystal salt (from the Hymilayans) much like celtic sea salt but supposedly better (definately stronger tasting) and made some salt brine with their rock salt. I use that for part of the salt. Carol B --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Hi Carol. This is very fascinating, so please keep us posted on how you are doing. Like Val was saying, I think it is very possible that people have more than one problem, and lyme and mercury may be two of the biggest. I think mercury can weaken your immune system, and they say it can cause antibiotic resistance, so it may play a part in why the lyme takes hold in some people and why the antibiotics don't work for them. Just a thought/theory. Also, I will be interested to see if your hair test shows deranged minerals or not. Mine clearly does, meeting two of the counting rules for probable mercury toxicity, so I'm quite sure it is a problem for me. But if I remember right, Val had her amalgams out a few years ago, and a recent hair test showed normal mineral transport, so mercury wasn't a for sure thing with her, and she had 3 doctors suggest lyme to her, so I think its a very wise move on her part to pursue this. So, if your hair test shows the same thing, and if you are already noticing things from the salt/c therapy, then I would say stick with it. But if you do show deranged minerals on your hair test, then I would encourage you to at least try chelation at some point. I have no idea if you could do them both at the same time. From the ingredients, it doesn't sound like it should be a problem, it would probably depend on whether your body could handle both at once, side effects, etc. So I sure hope you have finally found the source of your problems and will be able to restore good health to yourself. And regardless if mercury was a big problem for you or not, getting it out of your mouth can't be a bad thing to do, IMO. So good luck Carol, and keep us posted! Jackie T> Re: Re: salt/c/Jackie Hi Jackie. You saw my post about having reactions. I may have actually found something that crawled out of my body and died. It was on the sheet and looked alot like one of the pictures on lymephotos. I definately have had the crawling sensations, stinging, biting etc. Plus I came down with shingles on my thumb only (go figure) the same day I started getting the wierd sensations. Yesterday I had a slightly better day (YEA!). There are so many incredible stories in this group. Of course, they also recommend minerals, detox and some other things but salt/c is the main thing. I got mine from americaRX.com. They are CMC (brand name) tablets and are pure salt. Not really any more expensive than Walmart, but Walmart didn't carry this brand which is preferrable and I didn't ask if they could order them. I may next time. I also purchased some krystal salt (from the Hymilayans) much like celtic sea salt but supposedly better (definately stronger tasting) and made some salt brine with their rock salt. I use that for part of the salt. Carol B --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Hi Jackie. I could be wrong but I don't think any doctor suggested lyme to Val. She's had NO doctors support and is doing this on her own much like I am (please Val, clarify this). Getting the amalgams out was a wise thing to do regardless of what I find out. Sure is taking long to get here and don't know if I should call them or not. Chelation is definately ok with salt/c. Others on the group have done it. Sounds like you are having your challanges as well, and I hope you find the whys soon. It is so frustrating knowing something is wrong but not knowing why. I'm an expert at that. lOL Thanks, Carol B --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 > > Hi Jackie. I could be wrong but I don't think any doctor suggested lyme to Val. She's had NO doctors support and is doing this on her own much like I am (please Val, clarify this). --- Yeah, 2 docs and a nutritionist all suggested I may have Lyme. I did do a saliva test with a homeopath for lyme and he said it was negative but I was " loaded with metals. " Hmmm... I've grown disgusted with mosts tests and doctors. What really got me thinking is when the first doc suggested lyme and the same week my mom called and said she had just gone to a book signing/discussion by an atty in CT who wrote all about the the Plum Isalnd/Lyme connection. Too weird!! My mom never goes to stuff like that. Also, I had a horrific reaction (herx?) to Samento which is frequently used to treat Lyme. Anyway, I don't have a test to tell me what I supposedly have but I do know that the salt/c is helping me. Today was a good day for the most part. I think I will have the Bowen test done when I get more money. And ALA and DMSA both helped me initially until the yeast or whatever in my stomach went out of control and I had to stop. So, I think I have both issues going on. Back to the salt/c ..I take the CMC tablets and vit c from an organic grocery store. When I first ordered the salt from CVS I told the pharmacists/clerk? that I was using it for LYme. She said she had a friend on antibiotics who was not getting better and is now disabled. She wrote down the Lymephotos website and salt/c for her friend. Good for her. The other pharma didn't seem interested. Anyway, the salt is a whopping $8.91 and we all know vit c isn't that expensive. But what a powerful combination they are! I really think cleansing is important for all health woes mercury/lyme/cancer whatever. So I'm looking into that more.. ~ Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 > > Hi Carol. Yes, I remember not hearing too many good things about >most endos. But here is my plan. If my reg doc will refer me to >one that is covered by my insurance, and at least if he does some >more testing, at least I will have tests results to use on my own, >even if he won't treat me. Does that make any sense? Jackie, That does make sense. If you take your anti TPO blood tests to an endo and if he can't figure that out..... I will personally write him a letter and draw him a picture. Just don't be surprised to find out that endos really don't understand endocrinology. They have no clue about adrenal problems. It is slightly possible that one might catch on to a thyroid problem.... if it it presented to him on a silver platter. Remind me just before you go and maybe we can find some simplistic reading for him on Hashimoto's and on secondary hypothyroidism. How can you tell that my endo was a dud. I'm just sick of having insurance, and not having what I need covered, and making my husband pay for this stuff, WHEN WE HAVE INSURANCE!!!!! I did see my DO on a list that prescribed Armour, must have been at about.com or some link from there. He's not covered by my insurance, and I'm not following his chelation protocol, and I didn't go to the allergy clinic (yet, again not covered) that he recommended, so I'm not sure if he'll treat my thyroid if I don't listen to his other advice. When I showed him my thyroid test from another doctor, he said, you have Hashimoto's, but never suggested thyroid hormone. When I asked him on a followup phone consult what to do about it, he said to take selenium. So I don't know what to think about him. Maybe because I lived far away, he figured I wouldn't be back, or because I mentioned the Cutler protocol, which he didn't want to discuss, that he doesn't care if I come back, who knows. > > Maybe I'll try the pharmacist route, if I remember when I'm in town. I haven't checked into Broda yet either. Thanks for the tips, Carol.-------Jackie T> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 what adrenal problems? All endos and most docs know are addisons and cushings....idiots. V > They have no clue about adrenal problems. It is > slightly possible that one might catch on to a thyroid problem.... if > it it presented to him on a silver platter. > > > > > > > > > > > > > I'm just sick of having insurance, and not having what I need > covered, and making my husband pay for this stuff, WHEN WE HAVE > INSURANCE!!!!! I did see my DO on a list that prescribed Armour, must > have been at about.com or some link from there. He's not covered by > my insurance, and I'm not following his chelation protocol, and I > didn't go to the allergy clinic (yet, again not covered) that he > recommended, so I'm not sure if he'll treat my thyroid if I don't > listen to his other advice. When I showed him my thyroid test from > another doctor, he said, you have Hashimoto's, but never suggested > thyroid hormone. When I asked him on a followup phone consult what to > do about it, he said to take selenium. So I don't know what to think > about him. Maybe because I lived far away, he figured I wouldn't be > back, or because I mentioned the Cutler protocol, which he didn't want > to discuss, that he doesn't care if I come back, who knows. > > > > Maybe I'll try the pharmacist route, if I remember when I'm in town. > I haven't checked into Broda yet either. Thanks for the tips, > Carol.-------Jackie T> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 > > How can you tell that my endo was a dud. LOL mine was a dud too. My thyroid numbers were high and so he was happy to give me Synthroid, and keep raising the dosage even though I wasn't feeling even a tiny bit better. He refused to give me Armour, and when I went to an appointment armed with NEJM articles supporting the use of Armour dismissed them -- and told me I needed to find another doctor to find out " what my real problem " was. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 HI Jackie. It makes sence ONLY if he will order the right tests. TSH, FT3 and FT4. Especially the FT3 and FT4 NOT total T3 and T4 which are useless. F stands for free or unbound and tells what is available for use in the body. Best wishes. Carol B --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 > > Thanks Val. Please keep us posted on how you are doing, this is very interesting! How long have you been doing this, and what dose of salt/c are you up to, and how often do you take it? Most of us already take lots of Vit. C, so adding the salt wouldn't be a big deal.--------Jackie T> ---------- Hi Jackie, Thanks for the well wishes and I'm glad to hear you're seeing improvement with chelation! Regarding salt/c -- I started Sept 12 which puts me at the end of week 7. Some days are better then others and sometimes I feel like I step forward only to go back. But I do think something is happening. It's too soon to say whether this will be the answer for me. I'm up to about 6 grams of salt/c. I seem to be having insomonia now which I didn't have before and which according to Hulda is a sign of die off. When I take epsom salt baths dark grey matter comes out of my skin which makes me think I'm releasing metals of some sort. If I do have Lyme, I've been infected for a loooong time. I've had symptoms for years. So, I don't expect a quick cure. I DO have a bump at the top of my spine and behind my neck which has always been a major source of pain/problems for me. Thought it might be related to a spinal reconstruction surgery I had as a teenager but now I'm thinking it may be the Lyme. Anyway, I know this forum is for Cutler/chelation and I think maybe we can talk about this offline in the future. One last note, your friend might benefit tremendously from this protocal - alot of people are seeing complete remission of their symptoms. Encourage her to check it out - there is no real danger in it that I can think of.. ~ VAl Quote Link to comment Share on other sites More sharing options...
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