Irritated and grumpy & reply...

April 6, 2000

Hi guys, I haven't had time to read many posts tonight, I think its lack of

sleep. I finally got to bed about 4:30 a.m. last night but had to get up at

8:30 to get to his sinus CT (Brittany also had counseling at the same

time, hey, there are only two of us parents....) Then, no sooner than I got

home with from the CT, home health showed up to draw blood

UNSUCCESSFULLY grrrr, she is running out of good veins, we finally had to do

finger sticks then breastfed JOJO ran off to work, visited all eight group

homes, signed off on payroll and accounts payable, hosted a parent meeting

)for parents of our " individuals " and soemwhere in there ran home to

breastfeed JoJO again, then ran home about 9:45 p.m. after the last parent

finally left to feed JoJO and put him to bed, then rocked Mallory to sleep

(was able to catch half of ER, though, not bad for a sucky day...) while

watching ER, started nebs, now waiting to finish and waiting for time to do

fortaz and Tobra....grrrrr OH, and of course, Ron said the dang doc office

did not call with the CT results NOR the labwork for Mall..... I guess its

no wonder that my shoulders hurt.

thanks for listening!!

, your post did catch my eye.....I see your point. For me, at this

point, if I dont' vent here, I might just lose it. EVERYONE that I come into

contact with other than Ron and kiddos, primarily, is my employee....so I do

not share much if anything with them. I certainly would never dare let on to

anyone in the medical profession if I am frustrated or sad or whatever or

jsut need to vent. Both Ron and I are v ery private like that, from our

friends, family, co-workers, docs, etc. So, for me, this list is my ONLY

outlet. I do realize its different with everyone, if the lists make you

focus too much on CF, then maybe you do need a break.... On the otherhand,

would you be that focused on CF anyway right now, B/c of what Kodey is doing

and even for whatever reason you personally are focusing on it???? (focused

on CF with or without the list, I mean....) Anyway, everyone has to find his

or her own way..... some do well talking to counselors or the SW at the

clinic or family or friends. I have this weird thing of always having to be

the " strong " one, so you'd never see me do that.... but somehow, our

friendships on this list have made me feel safer in venting, etc.....

OK, I am rambling on enough.....

Jen

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