MSA reversal-16 months update + drooling info

[Guest guest]

MSA reversal 16 months update + Drooling info

Jan 21,2001 Fax request to Colet Lahoz

Colet, reason for this fax. In Sept of 1999, when Als (74)system was shutting down, he could not rise from chair,get on or off the bed unaided, was incontinent. both bowel and bladder, rigidity, iris atrophy, low blood pressure, drooling, slurred speech, etc. and I brought him to you. When I told you that he had Multiple System Atrophy, you said. "I CAN HELP". You explained plan of treatment.Acupuncture twice a week, you used 60-90 needles each treatment (I counted them from time to time) Cleanses and Supplements.I remember you saying, "if one part of the body is sick, the whole body is sick" You reversed the incontinence in four treatments,drooling in two, after six he knelt down and rose up from a kneeling position on our pontoon boat unaided. You raised his very low blood pressure to 117-78, where it has remained for 15 months.He takes care of himself.Our only major problem is the hallucinations which started three weeks after he started taking Levadopa/Carbidopa and Fludrocortisone in 1996. Except for this terrible problem our life would be great. I complained about this but was told it would help. After sixteen months of being off the meds it is still the same.Colet, if we could just do something about this. Dr. Khalaf Bushara, a Movement Disorder Specialist, first saw Al in Oct., 2000 at the VA Medical Center in Minneapolis. He reconfirmed the diagnosis of Multiple System Atrophy. After listening to our experience with Alternative Medicine, he said "could you, would you travel"? I said yes. He has asked that Dr. Mark Hallet,( who he studied under) at the National Institute of Neurological Disease and Stroke in Bethseda, see Al . Colet, I have been reading MSA email,( wish I had known about support groups in 1996), and I see that drooling is a big problem, as it was with Al. I know you brought it under control with Acupuncture. Now, when I notice a bit of drool, usually about every three months, you treat it and it is once again under control.Would you please give me the points you used? Maybe this would help some of the individuals with this problem. I will pass this information along. There should be a four year Acupuncture College in most of the large cities and they could get referrals from them.Thank you, see you in April and have a great trip to China. Marge Soeffker

response from Colet Lahoz----------------------Marge, for the drooling problem that Al exhibited as part of the MSA Syndrome, I used the following points in pairs-LI4, GB20 and St.7. In the beginning I connected LI4 and GB20 with electro Acupuncture Stimulation. The frequency set at intermittent and the intensity between 2 -4.-------------------Als case history will soon be seen on Colet Lahoz, BSN., R.N., M.S., L.ac., website: www.eastwest-mn.com email:eastwest@... This has been successful for us and I wanted to share it with you. Marge Soeffker

[Guest guest]

Marge,

I have yet to see any info on how Al was diagnosed as MSA. What tests were

done? You told me that you would not allow Al to be examined at at least one

movement disorder center. Has Al been to NIH yet? Since there is no test

specifically for MSA, how do you know that one doctor can accurately diagnose it

with no tests to rule out other disorders? How did the doctor decide that he

had MSA when all his symptoms were gone for 15 months when the doctor saw him?

I ask you again, what tests were done on Al. What form of MSA did he have? Did

he have the Parkinson's like tremor? Did he have the foot drop? How bad was

the orthostatic hypotension? Was there a BP drop of 40 points or more when

standing? When is his BP at 117/78 - laying down, sitting or standing? Did he

have balance problems? What dosage of Sinemet and florinef was he taking? How

fast did the doctor take him off the medicines? What exercise program did he

follow to get back movement? Did he have any speech therapy? Has his iris

atrophy reversed?

Are you saying that he has been off of the Sinemet totally for 15 months and

still has hallucinations from it? Please explain his bowel incontinence, are

you saying he had continuous diarrhea?

P.S. I still see no case history on that website. All I see is stuff about

curing yeast infections and smoking with acupuncture.

Take care, Bill and Charlotte

msoeffker@... wrote: