Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Ann, forgive me for jumping right in as a new comer, but in the PSP group, the stiff neck is a very common complaint. My Ken could not move his neck at all. It appears to be one of the nasty manifestations of this disease. I rubbed his neck a lot, and he did not complain of pain, but he definitely could not move it. Bernice (Ohio) Ken was 73 when he passed away on 6/23/00 after 13 years of suffering. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 My mother Joyce had a severe head flex. Her neck turned her head completed into her chest, making it impossible to see the world. ANyway, she always decribed it as a heavy head, but insisted that in her case there was no pain. She used heat compresses and went for PT and to an osteopath. She tried acupuncture, but it did nothing to lift the head. I would suspect that pain could be caused by muscles pulling? And I would think that anything to relax the muscles (PT, heat) would help. GOod luck. Debbie Debbie White dwhite@... > MSA and neck pain > Date: Tue, 12 Dec 2000 22:57:30 -0500 > > My husband has severe neck pain. He is wearing a cervical collar > and doing a > little physical therapy, with little results. This condition is very > debilitating. Is this " cervical dystonia " ? His neurologist is not > enthusiastic about the idea of surgery to remove a protruding disc. Have > other patients with MSA found help for neck pain? Thank-you. > > __________________________________________________________________ > ___________________ > Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 ok PT is my favorite choice. I don't have faith in chiropractors Sp?) My opinion not law:) In order for my PT exercises to work I need it 1 hour at least 2 times a week. The other times I am doing it with assistance about 2 times a day. I have to clue myself into not only putting my shoulders back but ALSO down so they are not hunched up . Another thing I watch for is that I do not protrude my neck. All this is very hard and discouraging , but I gotta do it !!Do not lead on a grocery cart either. You will hutch over. Use the dumb walker:) and make the arms of the walker high enough so u don't hutch. If will be a pain at first , after a month it may be gone. However, over the month it will slowly go away- i.e. the pain. Another thing I am gonna try is have the PT tape my back with sports tape in a x across the back . This way when I get lazy I will be cued into sitting up straight and proper. PLEASE do ur stretching properly. Don't bounce when u stretch. U can sit and stretch ur upper body too as oppose to standing. Caregivers help so that the patient is secure while stretching. Sometimes it feels like you're gonna fall even if u aren't. OH and caregivers what ever ...if u see ur spouse /patient hunching says 'head' or 'neck' My son does this and nags me into self correcting or he does it for me. I rather do it myself:) sincerely, nancy m. maryann pedersen wrote: > > Hi all: > I too would like to know what cause the neck to stiffen up. Is it due to > just not using it?... My mother Mable Neubauer also has a very sore and > stiff neck. I massauge it for her on the days she goes to water therapy, and > we try to work it while we are in the pool... She thinks I'm gona break her > neck....God I sure hope not... Even after the massauge the neck doesn't move > any better, but it feels much better. > And then again as soon as she gets stressed out or has to walk...You know > with her hills of her feet not touching the floor and her knees bent all the > time while walking...Well than it is like I never even gave her a > massauge...Mom has an appointment for a chiropractor to check her out next > week....(he's one of the good ones) so maybe I will get some information > from him.....But why is the neck so stiff and sore and what can be of > assistance to my mother....I want to know too....Thanks Ann Pedersen > from MN > > ----Original Message Follows---- > > Reply-To: shydrageregroups > To: " MSA MSA " <shydrageregroups> > Subject: MSA and neck pain > Date: Tue, 12 Dec 2000 22:57:30 -0500 > > My husband has severe neck pain. He is wearing a cervical collar and doing a > little physical therapy, with little results. This condition is very > debilitating. Is this " cervical dystonia " ? His neurologist is not > enthusiastic about the idea of surgery to remove a protruding disc. Have > other patients with MSA found help for neck pain? Thank-you. > > ________________________________________________________________________________\ _____ > Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > Quote Link to comment Share on other sites More sharing options...
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