Re: Re:Young children (Jeanie)

[Guest guest]

Hi Jeanie,

My mom has SDS and I have two children 11 and 13. It is extremely tough on my kids especially my 13 year old daughter. She is very close to my mother and it is so hard for her to be around her now. We cannot understand my mom when she talks, it is so incredibly sad to see her like this. They pray for her everyday in school. They know she will never get better but they cannot understand why this has happened to her, who can? Does your husband have this disease or a relative?

Love

Laurie

[Guest guest]

Hi Jeanie,

My mom has SDS and I have two children 11 and 13. It is extremely tough on my kids especially my 13 year old daughter. She is very close to my mother and it is so hard for her to be around her now. We cannot understand my mom when she talks, it is so incredibly sad to see her like this. They pray for her everyday in school. They know she will never get better but they cannot understand why this has happened to her, who can? Does your husband have this disease or a relative?

Love

Laurie

[Guest guest]

To all who have responded, Thank you. It seems that we will have our hands

full. Laurie, it is my husband, who is 53 yrs. old who has the disease. He

is currently able to work and is able to participate in the childrens

activities. Having mostly balance problems. I think I will need to get in to

better shape and start weight lifting to help with his care later on. I'm

trying to plan ahead and I want my children to be prepared. I've told my

daughter very little at this point, she is 13 and my son hasn't been told

anything yet since Ed is able to be there for them right now. I appeciate

all the help you all have given me.

Jeanie

>From: Laurieb9@...

>Reply-To: shydrageregroups

>To: shydrageregroups

>Subject: Re: Re:Young children (Jeanie)

>Date: Fri, 12 Jan 2001 15:53:57 EST

>

>Hi Jeanie,

>

> My mom has SDS and I have two children 11 and 13. It is extremely

>tough on my kids especially my 13 year old daughter. She is very close to

>my

>mother and it is so hard for her to be around her now. We cannot

>understand

>my mom when she talks, it is so incredibly sad to see her like this. They

>pray for her everyday in school. They know she will never get better but

>they cannot understand why this has happened to her, who can? Does your

>husband have this disease or a relative?

>

>Love

>Laurie

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[Guest guest]

Laurie, you noted:

> My mom has SDS and I have two children 11 and 13. It is

> extremely tough on my kids ... We cannot understand my

> mom when she talks ... They know she will never get better

> but they cannot understand why this has happened to her...

Hope you don't mind my jumping into this conversation. My grandmother

developed heath problems ... I also found it difficult to adjust. But it's

important to learn that people still need our love and attention.

Your Mom's talking problems may contribute to that difficulty for your kids.

Speech therapy might help. As someone that spent many years learning speech

and theater, I find that I now need those lessons more than ever. Though my

language would tend to slur, I've learned to articulate my words clearly and

to slow down.

Finally, another key lesson is that bad things do happen to good people.

The key is not that bad things happen. The key is what they do when those

bad things happen. And how their loved ones and friends react.

Of course you already know this. I'm just thinking 'out loud'.

Regards,

=jbf=

B. Fisher

[Guest guest]

Greetings Jeanie!

May I suggest that you should tell your kids what's wrong. Just don't make

a big deal about it. In fact, not telling them can increase their concern.

Don't assume they don't know. Most kids DO know when something is wrong.

But don't make it overwhelming. Just explain the facts. And also note,

quite clearly, that you are " trying to plan ahead and I want my children to

be prepared " .

Just my own experience from dealing with my 11 and 16 year old kids.

Regards,

=jbf=

B. Fisher

[Guest guest]

What wonderful words. I hope that I can remember and follow. Marilyn in TN

>

>Finally, another key lesson is that bad things do happen to good people.

>The key is not that bad things happen. The key is what they do when those

>bad things happen. And how their loved ones and friends react.

>

>Of course you already know this. I'm just thinking 'out loud'.

>

>

>Regards,

>=jbf=

>

> B. Fisher

>

>

>