Guest guest Posted March 10, 1993 Report Share Posted March 10, 1993 Hi , Yes, I saw that article last night on my Yahoo home page and let me tell you, I was steamed! I started to write him a letter, but I was so angry, I knew I shouldn't because I would have forgotten I am a lady. As a sufferer of both Fibromyalgia and TMJ Syndrome, I wonder just how long he would think they were psychosomatic if he had to go through what we here on this list do for just a month or even a week? GRR! I don't understand these doctors...I really don't. Mine are no better. I've been told " Well, there's really no use in worrying about it because there's not much we can do about it anyway. " My sister also has TMJ Syndrome, as well as my mom, aunt and some of my friends. My sister's Periodontist told me and her straight out that he believes that TMJ is just something middle age women get who are stressed out as they approach Menopause. She was only in her early 30's at the time and I am only 38 now. I've had TMJ since I was a teenager and Fibro since my early 20's. Sorry for the rant folks...it's just hard not to when I see such ignorance coming from the medical community. Gentle Hugs, Jacqui " Anything less than mad, passionate, extraordinary love is a waste of time. There are too many mediocre things in life and love shouldn't be one of them. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Don't get mad at the Doctor folks....I actually listened to this on the radio yesterday...and he wasn't all high and mighty and dismissive...the tone of his voice was quite supportive and he did sound 'baffled' by the disease...not all of what he said is contained in the written article.... He is saying right now it appears to be 'in the mind' because of the lack of diagnostic tests to find it...and he is a scientist and must go by hard evidence... He did go on to say he is open minded...if they can find out more about it he is willing to change his mind...after all MS was a mystery for a long time but they now know so much more about it because of extensive research... I've listened to Dr. Edell for a long time...and I like his no- nonsense approach to medicine...so I guess I felt I just had to speak up in his behalf...all he is saying is 'right now we don't know enough about it'...which is true. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Dr. Dean Edell: " Now fibromyalgia is puzzling. Many people who do not have the disease cannot know that the only thing that separates fibromyalgia from a psychosomatic disease is the little tender parts in the back. There's 12 little spots that you push on the patient's back. If they are very tender in these different spots, or 8 out of 12, then you're considered to have fibromyalgia. " I've always liked Dr. Edell's approach to most subjects, as well. But, scientist or not, he doesn't seem to even be familiar enough with fibromyalgia to be speaking about it. As all of us know, the tender spots are not all on the back, and it's 11 out of 18. As is so often the case in the medical community, he is pulling answers out of his *ss because he doesn't actually have any. I'm not just speaking from personal experience, here. I am also a nurse, and have seen it too much. Hope this isn't too harsh. I have a tendency to speak my mind. I do realize not everyone is of the same opinion, of course. Love & Laughter, in NY __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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